Alport Syndrome Treatments and Outcomes Registry
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
ASTOR's primary purpose is to enroll families and patients with a history of Alport syndrome in a central registry. The information we gather will be used as a basis for studies designed to test potential treatments for Alport syndrome. ASTOR also aims to provide patients, families and physicians with the most up-to-date information about Alport syndrome.
Eligibility
Participation Requirements
Sex: All
Maximum Age: 99
Healthy Volunteers: f
Locations
United States
Minnesota
University of Minnesota
RECRUITING
Minneapolis
Contact Information
Primary
Anael Kuperwajs Cohen
kuper029@umn.edu
612-626-7632
Time Frame
Start Date: 2007-09
Estimated Completion Date: 2030-01
Participants
Target number of participants: 1000
Related Therapeutic Areas
Sponsors
Leads: University of Minnesota