The 20 Best Alstrom Syndrome Doctors Near Me in Delaware, US

Find the Top Alstrom Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 35 doctor with experience in Alstrom Syndrome near Delaware, US. Of these, 33 are Experienced and 2 are Advanced.

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35 providers found
    Advanced in Alstrom Syndrome
    Medical Genetics
    Advanced in Alstrom Syndrome
    Medical Genetics

    Nemours DuPont Hospital For Children

    1600 Rockland Road, Department Of General Pediatrics, 
    Wilmington, DE 
    Languages Spoken:
    English

    Karen Gripp is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Gripp is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 122 other conditions, according to our data. Her clinical expertise encompasses Costello Syndrome, RASopathies, Noonan Syndrome, and Gingival Fibromatosis with Hypertrichosis.

    Experienced in Alstrom Syndrome
    Medical Genetics
    Experienced in Alstrom Syndrome
    Medical Genetics

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    30+ years
    Languages Spoken:
    English
    Offers Telehealth

    Nina Powell is a Medical Genetics provider practicing medicine in Wilmington, Delaware. She has been practicing medicine for over 30 years. Dr. Powell is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 45 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, PIK3CA-Related Overgrowth Spectrum, Chromosome 13q Deletion, and Increased Head Circumference. Dr. Powell is board certified in American Board Of Medical Genetics And Genomics.

    Experienced in Alstrom Syndrome
    Neurology
    Experienced in Alstrom Syndrome
    Neurology

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    45+ years
    Languages Spoken:
    English, Vietnamese

    I’ve always enjoyed puzzles and the satisfaction once a puzzle is completed. That is one reason that attracted me to the field of pediatric neurology, specifically epilepsy. It’s heart-warming when the puzzle pieces fit together and I’m able to help my patients understand their neurological disorder so we can work as a team to find the best treatment plan. I love working with children because they are honest and resilient. When they smile and laugh, the world just lights up. I chose my field of pediatric neurology because of my fascination with the brain, in particular the plasticity of a young brain where timely treatment can have an impact on the child’s cognitive future. I’m passionate about helping my patients and their families attain the best quality of life, and to achieve this requires a trusting partnership and teamwork between my team, my patients and their families.  I have special interest in the treatment of intractable epilepsy, and am very familiar with the use of dietary therapies, neurostimulation and epilepsy surgery in the treatment of epilepsy. Few people know a child better than the child’s caretaker. So I always try to listen and work together as a team with my patients and their caretakers. I strive to stay up-to-date with the latest innovations and treatment options to provide my patients the best care possible so they can live life to its fullest. Dr. Tran is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 60 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Absence Seizure. Dr. Tran is board certified in American Board Of Psychiatry & Neurology.

    Learn about our expert tiers
    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    19+ years
    Languages Spoken:
    English

    Anand Gundakaram is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 19 years. Dr. Gundakaram is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Generalized Tonic-Clonic Seizure, Seizures, Migraine, and Wolf-Hirschhorn Syndrome. Dr. Gundakaram is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Patrice Hyde is a Dermatologist practicing medicine in Wilmington, Delaware. Dr. Hyde is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 46 other conditions, according to our data. Her clinical expertise encompasses Stork Bite, Familial Multiple Nevi Flammei, Vascular Birthmark, and Linear Hamartoma Syndrome. Dr. Hyde is board certified in American Board Of Dermatology.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    3+ years
    Languages Spoken:
    English

    Dr. Jeffery Campbell has been a pediatric neurosurgeon at Nemours for 20 years. His most notable work is with kids that have skeletal dysplasia and he acts as the neurosurgical component of our larger skeletal dysplasia program at Nemours. Most of his research has been in dwarfism and osteogenesis imperfecta (OI). Prior to Nemours, he worked in a private practice in Charleston, SC. When I was in medical school, I knew that I wanted to do something “brain-related.” During my fourth year, I did a neurology rotation and thoroughly enjoyed the immediate feedback of surgery. I split my residency time between pediatric and adult hospitals, but quickly realized that I loved working with kids. I was able to see kids get better and found the impact I had on them gratifying. My goal as a doctor is to have a long-term impact on someone’s life and treating kids was my path to do just that. I am passionate about providing the best possible care for all children. I enjoy being on the cutting edge of treating rare problems on the skeletal dysplasia spectrum and I take pride in people traveling to Nemours from all over the country to seek such treatment. I love that I can do things that can’t be done anywhere else. I believe that health care should be a team sport. I always advocate for team approaches, especially with complicated cases. I actively create multidisciplinary teams for many of my patients to give them the very best care. Dr. Campbell is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 80 other conditions, according to our data. His clinical expertise encompasses Achondroplasia, Increased Head Circumference, Syringomyelia, Bone Graft, and Adenoidectomy. Dr. Campbell is board certified in American Board Of Neurological Surgery.

    Experienced in Alstrom Syndrome
    Pediatric Cardiology
    Experienced in Alstrom Syndrome
    Pediatric Cardiology

    Nemours Cardiac Center

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Erica Del Grippo is a Pediatric Cardiologist practicing medicine in Wilmington, Delaware. Dr. Del Grippo is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Pediatric Myocarditis, and Tetralogy of Fallot. Dr. Del Grippo is board certified in Pediatric Cardiology, American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    17+ years
    Languages Spoken:
    English

    Russell Cross is a Cardiologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 17 years. Dr. Cross is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Orthostatic Hypotension, Familial Dysautonomia, and Ebstein's Anomaly. Dr. Cross is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    16+ years
    Languages Spoken:
    English

    Karen Carvalho is a Neurologist practicing medicine in Wilmington, Delaware. She has been practicing medicine for over 16 years. Dr. Carvalho is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Tetrasomy X, Absence Seizure, Seizures, and Epilepsy Juvenile Absence. Dr. Carvalho is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    39+ years
    Languages Spoken:
    English, Japanese

    Takeshi Tsuda is a Cardiologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 39 years. Dr. Tsuda is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Anomalous Left Coronary Artery from the Pulmonary Artery, Patent Ductus Arteriosus, and Transposition of the Great Arteries. Dr. Tsuda is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Pediatric Cardiology
    Experienced in Alstrom Syndrome
    Pediatric Cardiology

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Sean Connolly is a Pediatric Cardiologist practicing medicine in Wilmington, Delaware. Dr. Connolly is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Tetralogy of Fallot, and Kawasaki Disease. Dr. Connolly is board certified in Pediatric Cardiology, American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Pediatrics | Internal Medicine
    Experienced in Alstrom Syndrome
    Pediatrics | Internal Medicine

    Transitional Care Practice Special Needs

    501 West 14th Tctrcr Street, Wilmington Hospital Health Center, 
    Wilmington, DE 
    Languages Spoken:
    English
    Offers Telehealth

    Neal Emery is a primary care provider, practicing in Pediatrics and Internal Medicine in Wilmington, Delaware. Dr. Emery is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Autism Spectrum Disorder, Down Syndrome, and Sickle Cell Disease.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    25+ years
    Languages Spoken:
    English

    Andrew Mower is a Neurologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 25 years. Dr. Mower is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Seizures, Absence Seizure, Generalized Tonic-Clonic Seizure, and West Syndrome. Dr. Mower is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    13+ years
    Languages Spoken:
    English

    I’m a proud father of two with two on the way. Being a dad has opened a new door in my life — it’s helped me realize even more how special children are and what family means. I enjoy spending time with family, doing anything outdoors and watching sports. I’m originally from the Bronx, but grew up in Florida and am a lifelong Florida Gators fan. When I was in high school, my older sister was diagnosed with a rare form of pediatric cancer. It required her to get specialized treatment. She at the time was 18 and was looked up to by all the other pediatric patients as a role model, and sometimes even as a babysitter. Her impact on those kids made me want to do something for kids, too. I’m passionate about making sure that children can still experience life as children regardless of their circumstances, location or sickness. I think it’s important to help kids maintain a sense of innocence and fun throughout the process of something as serious as open-heart surgery. I try to make a difference by actively listening to patients and families, offering continued support, having a willingness to research new therapies, and providing seamless communication with primary care providers. I think it’s very important to provide constant feedback and communication for families and involve them in decision-making. Dr. Luceri is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Familial Neurocardiogenic Syncope, Fainting, Heart Murmurs, and Patent Ductus Arteriosus. Dr. Luceri is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Internal Medicine | Pediatrics
    Experienced in Alstrom Syndrome
    Internal Medicine | Pediatrics

    Transitional Care Practice Special Needs

    501 West 14th Tctrcr Street, Wilmington Hospital Health Center, 
    Wilmington, DE 
    Languages Spoken:
    English
    Offers Telehealth

    Charmaine Wright is a primary care provider, practicing in Internal Medicine and Pediatrics in Wilmington, Delaware. Dr. Wright is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Sickle Cell Disease, Autism Spectrum Disorder, and Down Syndrome.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Sharon Weil is a Cardiologist practicing medicine in Wilmington, Delaware. Dr. Weil is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Interrupted Aortic Arch, Patent Ductus Arteriosus, Ventricular Septal Defects, and Heart Murmurs. Dr. Weil is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Pediatric Cardiology
    Experienced in Alstrom Syndrome
    Pediatric Cardiology

    Nemours Cardiac Center

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Dr. Deepika Thacker is a pediatric cardiologist and assistant professor of Pediatrics at Jefferson Medical College. She’s a member of the American College of Cardiology, American Heart Association and American Society of Echocardiography; an invited lecturer; and an author of journal articles, book chapters and abstracts. I first thought about medicine when I was young and doctors discovered a hole in a friend’s heart. From that moment, I decided I wanted to become a doctor and help children with problems like my friend’s. I never wanted to be anything else. Medical school and my medical training reaffirmed this decision. There is an added attraction to cardiology in that it provides a challenging field of medicine to study — the mix of anatomy and physiology is almost like math or engineering, and I enjoy it very much. Becoming a mother further validated my career choice for me. I see something of one of my own children in every child I treat.I’m happiest when I’m caring for children.. There’s no better feeling for me than when I’ve helped a child get better. At the end of every day I am thankful to be able to do what I do. I always want to make sure that every child gets the best care and treatment, and that we do everything possible for that child. My role is to help each child get the most out of each day. In addition to the care I deliver as a cardiologist, I also try to make a difference every day through my role as medical director of the hospital’s 2B cardiac unit. As we move to more unit-based inpatient care, we’ll continue to always look for ways to improve the great care we give. I’m excited to be a part of that. We’ll continue to work so that patients being discharged can go home sooner. We’ll continue to work to reduce readmissions. And we’ll continue to explore what it means to deliver true family-centered care — making parents and families part of our medical rounding and decision-making. Dr. Thacker is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Multisystem Inflammatory Syndrome in Children (MIS-C), Kawasaki Disease, Pediatric Myocarditis, Myocarditis, and Heart Transplant. Dr. Thacker is board certified in Pediatric Cardiology, American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Experience:
    31+ years
    Languages Spoken:
    English

    Aryaz Sheybani is a Cardiologist practicing medicine in Wilmington, Delaware. He has been practicing medicine for over 31 years. Dr. Sheybani is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Familial Dysautonomia, Familial Dilated Cardiomyopathy, and Ventricular Septal Defects. Dr. Sheybani is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Pediatric Cardiology
    Experienced in Alstrom Syndrome
    Pediatric Cardiology

    Nemours Cardiac Center

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    I recall the awe and fascination I felt for my own pediatrician growing up, and that inspired me to go into medicine and care for children. The first time I heard a human heartbeat with a stethoscope in medical school, I knew I wanted to be a cardiologist! I enjoy the challenge of putting together information from a patient’s medical history, physical examination, and test results to arrive at a diagnosis. Treating children with heart problems can be complicated, and it’s important for patients and families to understand what’s going on. I pride myself on my ability to explain complex diagnoses and situations in non-medical terms, so everyone can understand. It’s a unique privilege to work so closely with children and families. Dr. Ritz is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Familial Neurocardiogenic Syncope, Heart Murmurs, Patent Ductus Arteriosus, and Fainting. Dr. Ritz is board certified in Pediatric Cardiology, American Board Of Pediatrics and American Board Of Pediatrics.

    Advanced in Alstrom Syndrome
    Medical Genetics
    Advanced in Alstrom Syndrome
    Medical Genetics

    Nemours Children's Hospital, Delaware

    1600 Rockland Road, 
    Wilmington, DE 
    Languages Spoken:
    English

    Mahim Jain is a Medical Genetics provider practicing medicine in Wilmington, Delaware. Dr. Jain is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 138 other conditions, according to our data. His clinical expertise encompasses Osteogenesis Imperfecta, Miller-Dieker Syndrome, Lissencephaly 1, and Spondyloepimetaphyseal Dysplasia Strudwick Type. Dr. Jain is board certified in American Board Of Medical Genetics And Genomics.

    Showing 1-20 of 35

    Last Updated: 04/28/2026

    What is the definition of Alstrom Syndrome?

    Alström syndrome is a very rare disease. It is passed down through families (inherited). This disease can lead to blindness, deafness, diabetes, and obesity.

    When should I see an Alstrom Syndrome doctor in Delaware, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Alstrom Syndrome doctor in Delaware, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Alstrom Syndrome doctors in Delaware, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Alstrom Syndrome doctors in Delaware, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Alstrom Syndrome doctor in Delaware, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alstrom Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Alstrom Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Alstrom Syndrome doctor in Delaware, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Alstrom Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Alstrom Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Alstrom Syndrome doctors in Delaware, US?

    Look for the filter feature on the left side of the Alstrom Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Alstrom Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Alstrom Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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