The 20 Best Alstrom Syndrome Doctors Near Me in Florida, US

Find the Top Alstrom Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 82 doctor with experience in Alstrom Syndrome near Florida, US. Of these, 76 are Experienced and 6 are Advanced.

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82 providers found
    Advanced in Alstrom Syndrome
    Advanced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    19+ years
    Languages Spoken:
    English

    Gul Dadlani is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 19 years. Dr. Dadlani is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 110 other conditions, according to our data. His clinical expertise encompasses Williams Syndrome, Patent Ductus Arteriosus, Heart Murmurs, and Infectious Myocarditis. Dr. Dadlani is board certified in American Board Of Pediatrics.

    Advanced in Alstrom Syndrome
    Advanced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    22+ years
    Languages Spoken:
    English
    Offers Telehealth

    Peace Madueme is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 22 years. Dr. Madueme is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 116 other conditions, according to our data. His clinical expertise encompasses Williams Syndrome, Ventricular Septal Defects, Vascular Ring, and Double Aortic Arch. Dr. Madueme is board certified in American Board Of Pediatrics.

    Advanced in Alstrom Syndrome
    Pediatrics
    Advanced in Alstrom Syndrome
    Pediatrics

    Johns Hopkins All Children's Outpatient Care, St. Petersburg

    601 5th Street South, Suite 520, Suite 520, 
    Saint Petersburg, FL 
    Languages Spoken:
    English, Turkish
    Offers Telehealth

    Meral Gunay-Aygun is a professor of pediatrics and genetic medicine at Johns Hopkins University School of Medicine. Dr. Gunay-Aygun specializes in the diagnosis and treatment of children and adults with inherited metabolic diseases including diagnostic evaluation and follow-up of newborns with abnormal newborn screens for inherited metabolic diseases. After serving 14 years as an attending physician at The Johns Hopkins Hospital in Baltimore, she joined the medical staff of Johns Hopkins All Children’s Hospital in St. Petersburg, Florida in 2022. Dr. Gunay-Aygun earned her medical degree from Hacettepe University School of Medicine, Ankara, Turkey. She completed pediatrics and medical genetics residencies at Case Western Reserve University, Cleveland, Ohio, and a biochemical genetics fellowship at the National Institutes of Health’s National Human Genome Research Institute, Bethesda, Maryland. She has made numerous research contributions, especially in the study of inherited ciliopathies, for which she has earned international recognition. Dr. Gunay-Aygun received the Innovative Leadership Award from Genetic Alliance, as well as the NHGRI Merit Award for her research on Autosomal Recessive Polycystic Kidney Disease/Congenital Hepatic Fibrosis. She is a member of myriad professional organizations, including the American Society of Human Genetics, the American Academy of Pediatrics, the Society of Pediatric Research and the Society for Inherited Metabolic Disorders. Dr. Gunay is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Ornithine Translocase Deficiency, Ornithine Transcarbamylase Deficiency, and 3-Hydroxy-3-Methylglutaryl-CoA Lyase Deficiency. Dr. Gunay is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics.

    Learn about our expert tiers
    Advanced in Alstrom Syndrome
    Advanced in Alstrom Syndrome

    Nemours Children's Health, Jacksonville

    807 Children's Way, 
    Jacksonville, FL 
    Experience:
    40+ years
    Languages Spoken:
    English

    Medicine runs in my family. Both of my parents were physicians (and role models) and my wife is a pediatrician and hospitalist at Wolfson Children’s Hospital. As a Nemours pediatric neurologist, I treat kids with a variety of medical problems involving the nervous system and brain. I enjoy educating families and making life a little easier for them. I’ve always enjoyed working with kids. I was a camp counselor when I was in college and medical school, and later a doctor at a camp for special needs kids. I like watching children grow and develop. Taking care of children is fun and rewarding. I feel strongly about helping children with neurological problems live up to their full potential. My passion is to educate kids and their parents, reassuring them that we’ll do whatever it takes to help make life as normal as possible. The children who come to me are often facing a serious condition that’s scary for the entire family. So more than making a difference medically, I always try to be compassionate and understand where they’re coming from, their anxieties, and concerns. I try to put myself in their place. Dr. Abram is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 141 other conditions, according to our data. His clinical expertise encompasses Absence Seizure, Epilepsy Juvenile Absence, Seizures, and Memory Loss. Dr. Abram is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, Farsi, German

    I was born in Iran, moved to Germany at age 18 for college, and have lived in the United States since 1992. I’ve always been close to my parents, brothers and sister. Our relationship gave me a sense of respect for the concept of family that is reflected in the way I treat patients and families today. My interest in cardiology began when I was just eight or nine years old reading a schoolbook about heart function; I decided then and there on my career. I chose to work with children because of their great need and limited ability to express themselves. It’s rewarding to connect and understand what they’re trying to say. Because children are very delicate, I insist on precision with every service I provide. I’m also passionate about getting the diagnosis right. Sometimes parents bring their child to me after multiple doctors have given up trying to diagnose them. I like the challenge and the opportunity to provide treatment that will help. Many of my patients — for example, kids with congenital heart conditions — must be treated over a period of months or even years. I try to really manage their condition and help their family be part of the care team. I’m also interested in providing medicine that has been lacking in Florida. Dysautonomia, a nervous system disorder, is one of them. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST). Dr. Kakavand is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, French, Spanish

    Elena De Leon is a Cardiologist practicing medicine in Orlando, Florida. Dr. De Leon is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, and Pulmonary Atresia with Intact Ventricular Septum. Dr. De Leon is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Cardiology
    Experienced in Alstrom Syndrome
    Cardiology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    10+ years
    Languages Spoken:
    English, Arabic, Turkish

    Dima Turpin is a Cardiologist practicing medicine in Orlando, Florida. She has been practicing medicine for over 10 years. Dr. Turpin is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Aorta-Pulmonary Artery Fistula, Aortopulmonary Window, Interrupted Aortic Arch, and Patent Ductus Arteriosus. Dr. Turpin is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    31+ years
    Languages Spoken:
    English, German

    Svjetlana Tisma is a Cardiologist practicing medicine in Orlando, Florida. She has been practicing medicine for over 31 years. Dr. Tisma is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Wolff-Parkinson-White Syndrome, Congenital Heart Block, Inappropriate Sinus Tachycardia (IST), and Familial Ventricular Tachycardia. Dr. Tisma is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Pediatric Cardiology
    Experienced in Alstrom Syndrome
    Pediatric Cardiology

    Pediatric Cardiology Associates

    625 6th Avenue South, Suite 120, Suite 120, 
    St Petersburg, FL 
    Experience:
    44+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Jorge Mccormack is a Pediatric Cardiologist practicing medicine in St Petersburg, Florida. He has been practicing medicine for over 44 years. Dr. Mccormack is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Block, Heart Murmurs, Long QT Syndrome, and Wolff-Parkinson-White Syndrome. Dr. Mccormack is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    6+ years
    Languages Spoken:
    English

    Joseph Kuruvilla is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 6 years. Dr. Kuruvilla is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Familial Neurocardiogenic Syncope, and Coronary Artery Fistula. Dr. Kuruvilla is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, German
    Offers Telehealth

    I was born in Germany. As a kid I was curious, adventurous, and wanted to be an architect. I had a strong desire to help people, especially those in developing countries. I decided the best way for me to help people was to become a doctor. In medical school, I trained three months in Lesotho, South Africa, and while working with many U.S. physicians, decided the best place to train would be the U.S. Working with children doesn’t feel like work at all. It’s pure fun. Also, I like being part of a team to help children get better. Just to see them walk out of the hospital, often cured and happy, is worth all the effort. My passion is fetal cardiology. Working in conjunction with a multidisciplinary team, I try to help expecting moms decide the best route of treatment for their baby’s heart condition. I feel it’s important to relay the information in understandable terms and to give the family the big picture of what to expect for their baby’s future. With each patient, I try to work in the moment – making them the center of my attention. I feel it's my duty to provide excellent care and compassion. Dr. Ivsic is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Bicuspid Aortic Valve, Ventricular Septal Defects, and Familial Neurocardiogenic Syncope. Dr. Ivsic is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Cardiology
    Experienced in Alstrom Syndrome
    Cardiology

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    7+ years
    Languages Spoken:
    English, Vietnamese

    Thieu Nguyen is a Cardiologist practicing medicine in Orlando, Florida. He has been practicing medicine for over 7 years. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Ventricular Septal Defects, and Heart Murmurs. Dr. Nguyen is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    32+ years
    Languages Spoken:
    English, Icelandic

    Medicine seems to run in my family. My father trained as a physician in Iceland, and my childhood was split between the US and Reykjavik, Iceland. At first, I wanted to be a veterinarian, but once in medical school I had my heart set on Pediatrics from the start. I love kids. With eight children of my own I have realized that every child is unique and that there is no one right way to parent. Parents can be certain that I will be upfront with them regarding their child’s illness. I treat people the way I want to be treated when I step into a physician’s office with one of my kids. I try to listen more than I speak and learn from others at every opportunity. To me the treatment of a child is a collaboration between the child, his/her parents and the physician and team at Nemours. Together we will find the best solution, always. Dr. Sigurdardottir is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Memory Loss, and Autism Spectrum Disorder. Dr. Sigurdardottir is board certified in American Board Of Psychiatry & Neurology.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    Katherine Braley is a Cardiologist practicing medicine in Orlando, Florida. She has been practicing medicine for over 17 years. Dr. Braley is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Cor Triatriatum, Congenital Heart Disease (CHD), and Patent Ductus Arteriosus. Dr. Braley is board certified in American Board Of Pediatrics.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    Nemours Children's Health, Pensacola

    8331 N. Davis Highway, 
    Pensacola, FL 
    Experience:
    29+ years
    Languages Spoken:
    English, Spanish

    As a society, our overall health continues to be poor. I try to make a difference by being involved in medical care individually and in the community. I enjoy working with children, especially those with congenital heart disease. This is an inherited condition and not acquired — compared to adult cardiology — so it’s not their fault. Kids’ energy is amazing — and so is all the good energy I get from their parents and my colleagues. I have a passion about using exercise as a diagnostic, prognostic and therapeutic tool. My interests include:Cardiac OncologySports Cardiology. Dr. Arevalo is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, and Bicuspid Aortic Valve. Dr. Arevalo is board certified in American Board Of Pediatrics.

    Advanced in Alstrom Syndrome
    Medical Genetics
    Advanced in Alstrom Syndrome
    Medical Genetics

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Experience:
    3+ years
    Languages Spoken:
    English

    Gifty Bhat is a Medical Genetics provider practicing medicine in Orlando, Florida. She has been practicing medicine for over 3 years. Dr. Bhat is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 134 other conditions, according to our data. Her clinical expertise encompasses Microcephaly, HNRNPH2-Related Disorder, Chromosome 6q Duplication, and Chromosome 8p Deletion. Dr. Bhat is board certified in American Board Of Medical Genetics And Genomics.

    Advanced in Alstrom Syndrome
    Medical Genetics
    Advanced in Alstrom Syndrome
    Medical Genetics

    Nemours Children's Hospital, Florida

    6535 Nemours Parkway, 
    Orlando, FL 
    Languages Spoken:
    English, French

    Kathleen Pope is a Medical Genetics provider practicing medicine in Orlando, Florida. Dr. Pope is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 96 other conditions, according to our data. Her clinical expertise encompasses Marshall Syndrome, KBG Syndrome, Nijmegen Breakage Syndrome, and CHARGE Syndrome. Dr. Pope is board certified in American Board Of Medical Genetics And Genomics.

    Experienced in Alstrom Syndrome
    Pediatric Cardiology
    Experienced in Alstrom Syndrome
    Pediatric Cardiology

    St Josephs Diagnostic Center LLC

    3003 W Dr Martin Luther King Jr Blvd, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Frances Arrillaga is a Pediatric Cardiologist practicing medicine in Tampa, Florida. Dr. Arrillaga is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Pulmonary Supravalvular Stenosis.

    Experienced in Alstrom Syndrome
    Experienced in Alstrom Syndrome

    The Cardiovascular Center Of Florida

    7301 Stonerock Cir Ste 1, 
    Orlando, FL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Adam Waldman is a Cardiologist practicing medicine in Orlando, Florida. Dr. Waldman is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Coronary Heart Disease, Cardiomyopathy, Atherosclerosis, and Angina. Dr. Waldman is board certified in American Board Of Internal Medicine. Dr. Waldman is currently accepting new patients.

    Experienced in Alstrom Syndrome
    Pediatric Cardiology
    Experienced in Alstrom Syndrome
    Pediatric Cardiology

    St Josephs Diagnostic Center LLC

    3003 W Dr Martin Luther King Jr Blvd, 
    Tampa, FL 
    Languages Spoken:
    English
    Offers Telehealth

    Jeremy Ringewald is a Pediatric Cardiologist practicing medicine in Tampa, Florida. Dr. Ringewald is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Pulmonary Valve Stenosis, Tetralogy of Fallot, Pulmonary Supravalvular Stenosis, and Double Inlet Left Ventricle.

    Showing 1-20 of 82

    Last Updated: 04/28/2026

    What is the definition of Alstrom Syndrome?

    Alström syndrome is a very rare disease. It is passed down through families (inherited). This disease can lead to blindness, deafness, diabetes, and obesity.

    When should I see an Alstrom Syndrome doctor in Florida, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Alstrom Syndrome doctor in Florida, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Alstrom Syndrome doctors in Florida, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Alstrom Syndrome doctors in Florida, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Alstrom Syndrome doctor in Florida, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alstrom Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Alstrom Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Alstrom Syndrome doctor in Florida, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Alstrom Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Alstrom Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Alstrom Syndrome doctors in Florida, US?

    Look for the filter feature on the left side of the Alstrom Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Alstrom Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Alstrom Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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