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    Last Updated: 01/09/2026

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    MediFind found 72 doctor with experience in Alstrom Syndrome near Florida, US. Of these, 67 are Experienced and 5 are Advanced.

    Location
    LocationClose
    72 providers found
      Meral Gunay
      Advanced in Alstrom Syndrome
      Pediatrics
      Advanced in Alstrom Syndrome
      Pediatrics

      Johns Hopkins All Children's Outpatient Care, St. Petersburg

      601 5th Street South, Suite 520, Suite 520, 
      Saint Petersburg, FL 
      Languages Spoken:
      English, Turkish
      Offers Telehealth

      Meral Gunay-Aygun is a professor of pediatrics and genetic medicine at Johns Hopkins University School of Medicine. Dr. Gunay-Aygun specializes in the diagnosis and treatment of children and adults with inherited metabolic diseases including diagnostic evaluation and follow-up of newborns with abnormal newborn screens for inherited metabolic diseases. After serving 14 years as an attending physician at The Johns Hopkins Hospital in Baltimore, she joined the medical staff of Johns Hopkins All Children’s Hospital in St. Petersburg, Florida in 2022. Dr. Gunay-Aygun earned her medical degree from Hacettepe University School of Medicine, Ankara, Turkey. She completed pediatrics and medical genetics residencies at Case Western Reserve University, Cleveland, Ohio, and a biochemical genetics fellowship at the National Institutes of Health’s National Human Genome Research Institute, Bethesda, Maryland. She has made numerous research contributions, especially in the study of inherited ciliopathies, for which she has earned international recognition. Dr. Gunay-Aygun received the Innovative Leadership Award from Genetic Alliance, as well as the NHGRI Merit Award for her research on Autosomal Recessive Polycystic Kidney Disease/Congenital Hepatic Fibrosis. She is a member of myriad professional organizations, including the American Society of Human Genetics, the American Academy of Pediatrics, the Society of Pediatric Research and the Society for Inherited Metabolic Disorders. Dr. Gunay is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Ornithine Translocase Deficiency, Ornithine Transcarbamylase Deficiency, and Argininosuccinic Aciduria.

      Advanced in Alstrom Syndrome
      Pediatric Cardiology
      Advanced in Alstrom Syndrome
      Pediatric Cardiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Peace Madueme is a Pediatric Cardiologist in Orlando, Florida. Dr. Madueme is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Williams Syndrome, Ventricular Septal Defects, Vascular Ring, and Double Aortic Arch.

      Advanced in Alstrom Syndrome
      Pediatric Neurology
      Advanced in Alstrom Syndrome
      Pediatric Neurology

      Nemours Childrens Clinic

      807 Childrens Way, 
      Jacksonville, FL 
      Languages Spoken:
      English

      Harry Abram is a Pediatric Neurologist in Jacksonville, Florida. Dr. Abram is rated as an Advanced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Absence Seizure, Epilepsy Juvenile Absence, Seizures, and Memory Loss.

      Learn about our expert tiers
      Jorge Mccormack
      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      Pediatric Cardiology Associates

      625 6th Avenue South, Suite 120, Suite 120, 
      St Petersburg, FL 
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Jorge Mccormack is a Pediatric Cardiologist in St Petersburg, Florida. Dr. Mccormack is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Congenital Heart Block, Heart Murmurs, Long QT Syndrome, and Wolff-Parkinson-White Syndrome.

      Jonathan Braue
      Experienced in Alstrom Syndrome
      Dermatology
      Experienced in Alstrom Syndrome
      Dermatology

      Indian River Health Services Inc

      3555 10th Ct, Suite 200a, 
      Vero Beach, FL 
      Experience:
      15+ years
      Languages Spoken:
      English
      Offers Telehealth

      Jonathan Braue is a Dermatologist in Vero Beach, Florida. Dr. Braue has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Sunburn, Actinic Keratosis, Warts, and Seborrheic Keratosis.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English

      Bahram Kakavand is a Pediatric Cardiologist in Orlando, Florida. Dr. Kakavand is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Familial Neurocardiogenic Syncope, Ectopic Heartbeat, Fainting, and Inappropriate Sinus Tachycardia (IST).

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando,, FL 
      Languages Spoken:
      English

      Elena Rueda is a Pediatric Cardiologist in Orlando,, Florida. Dr. Rueda is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. Her top areas of expertise are Ventricular Septal Defects, Heart Murmurs, Patent Ductus Arteriosus, and Right Ventricle Hypoplasia.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      St Josephs Diagnostic Center LLC

      3003 W Dr Martin Luther King Jr Blvd, 
      Tampa, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Frances Arrillaga is a Pediatric Cardiologist in Tampa, Florida. Dr. Arrillaga is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. Her top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Pulmonary Valve Stenosis.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      Pediatrix Medical Group Of Florida Inc.

      12295 Taft St, 
      Pembroke Pines,, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Robert Pearson is a Pediatric Cardiologist in Pembroke Pines,, Florida. Dr. Pearson is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Interrupted Aortic Arch, Patent Ductus Arteriosus, Pulmonary Valve Stenosis, and Pulmonary Supravalvular Stenosis.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando,, FL 
      Languages Spoken:
      English

      Joseph Kuruvilla is a Pediatric Cardiologist in Orlando,, Florida. Dr. Kuruvilla is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Familial Neurocardiogenic Syncope, and Coronary Artery Fistula.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Tomislav Ivsic is a Pediatric Cardiologist in Orlando, Florida. Dr. Ivsic is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Heart Murmurs, Bicuspid Aortic Valve, Ventricular Septal Defects, and Familial Neurocardiogenic Syncope.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      Memorial Division Of Pediatric Cardiology

      3377 S State Road 7, 
      Wellington,, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Debbie Friedman is a Pediatric Cardiologist in Wellington,, Florida. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. Her top areas of expertise are Heart Murmurs, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Coronary Artery Fistula.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      Office

      601 5th St S Ste 2, 
      Saint Petersburg, FL 
      Languages Spoken:
      English

      Thieu Nguyen is a Pediatric Cardiologist in Saint Petersburg, Florida. Dr. Nguyen is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Aortopulmonary Window, Aorta-Pulmonary Artery Fistula, Ventricular Septal Defects, and Patent Ductus Arteriosus.

      Experienced in Alstrom Syndrome
      Cardiology
      Experienced in Alstrom Syndrome
      Cardiology

      The Cardiovascular Center Of Florida

      1723 Lucerne Ter Ste 100, 
      Orlando,, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Adam Waldman is a Cardiologist in Orlando,, Florida. Dr. Waldman is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Coronary Heart Disease, Cardiomyopathy, Atherosclerosis, and Angina.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      St Josephs Diagnostic Center LLC

      3003 W Dr Martin Luther King Jr Blvd, 
      Tampa, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Jeremy Ringewald is a Pediatric Cardiologist in Tampa, Florida. Dr. Ringewald is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Pulmonary Valve Stenosis, Tetralogy of Fallot, Pulmonary Supravalvular Stenosis, and Double Inlet Left Ventricle.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      The Nemours Foundation

      6535 Nemours Pkwy, 
      Orlando, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Katherine Braley is a Pediatric Cardiologist in Orlando, Florida. Dr. Braley is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. Her top areas of expertise are Ventricular Septal Defects, Cor Triatriatum, Congenital Heart Disease (CHD), and Patent Ductus Arteriosus.

      Experienced in Alstrom Syndrome
      Family Medicine
      Experienced in Alstrom Syndrome
      Family Medicine

      BayCare Medical Group Primary Care I (Suncoast)

      620 10th St N Ste 1D, 
      Saint Petersburg, FL 
      Languages Spoken:
      English

      Larry Ertel is a primary care provider, practicing in Family Medicine in Saint Petersburg, Florida. Dr. Ertel is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Maturity Onset Diabetes of the Young.

      Experienced in Alstrom Syndrome
      Pediatric Cardiology
      Experienced in Alstrom Syndrome
      Pediatric Cardiology

      Nemours Children's Specialty Care - Pensacola

      8331 N Davis Hwy, 
      Pensacola, FL 
      Languages Spoken:
      English

      Alejandro Arevalo is a Pediatric Cardiologist in Pensacola, Florida. Dr. Arevalo is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, and Bicuspid Aortic Valve.

      Experienced in Alstrom Syndrome
      Experienced in Alstrom Syndrome

      Uf Health Medical Lab-Shands Hospital

      1600 SW Archer Rd, 
      Gainesville, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Anthony Bavry is a Cardiologist in Gainesville, Florida. Dr. Bavry is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Aortic Valve Stenosis, Heart Attack, Coronary Heart Disease, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR).

      Experienced in Alstrom Syndrome
      Cardiology
      Experienced in Alstrom Syndrome
      Cardiology

      Broward Health Physician Group

      260 SW 84th Ave, 
      Plantation,, FL 
      Languages Spoken:
      English
      Offers Telehealth

      Ashok Sharma is a Cardiologist in Plantation,, Florida. Dr. Sharma is rated as an Experienced provider by MediFind in the treatment of Alstrom Syndrome. His top areas of expertise are Hypertension, Lipoid Proteinosis, Lipogranulomatosis, Cataract Removal, and Heart Bypass Surgery.

      Showing 1-20 of 72

      Last Updated: 01/09/2026

      What is the definition of Alstrom Syndrome?

      Alström syndrome is a very rare disease. It is passed down through families (inherited). This disease can lead to blindness, deafness, diabetes, and obesity.

      When should I see an Alstrom Syndrome doctor in Florida, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Alstrom Syndrome doctor in Florida, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Alstrom Syndrome doctors in Florida, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Alstrom Syndrome doctors in Florida, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Alstrom Syndrome doctor in Florida, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alstrom Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Alstrom Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Alstrom Syndrome doctor in Florida, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Alstrom Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Alstrom Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Alstrom Syndrome doctors in Florida, US?

      Look for the filter feature on the left side of the Alstrom Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Alstrom Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Alstrom Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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