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    Last Updated: 10/30/2025

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    MediFind found 13 doctor with experience in Atelosteogenesis Type 1 near Oregon, US. Of these, 12 are Experienced and 1 are Advanced.

    Location
    LocationClose
    13 providers found
      Experienced in Atelosteogenesis Type 1
      Cardiology | Pediatrics
      Experienced in Atelosteogenesis Type 1
      Cardiology | Pediatrics
      9427 Southwest Barnes Road, Suite 598, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Marc Legras is a Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Legras is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. His top areas of expertise are Heart Murmurs, Wolff-Parkinson-White Syndrome, Ventricular Septal Defects, Orthostatic Hypotension, and Patent Foramen Ovale Repair. Dr. Legras is currently accepting new patients.

      Advanced in Atelosteogenesis Type 1
      Medical Genetics | Pediatrics
      Advanced in Atelosteogenesis Type 1
      Medical Genetics | Pediatrics
      2801 N Gantenbein Ave Ste 2225, 
      Portland, OR 
      Languages Spoken:
      English

      Andrea Petersen is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Petersen is rated as an Advanced provider by MediFind in the treatment of Atelosteogenesis Type 1. Her top areas of expertise are Trichorhinophalangeal Syndrome Type 2, Cardiomyopathy Hypogonadism Metabolic Anomalies, Nijmegen Breakage Syndrome, and Bosma Arhinia Microphthalmia Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Atelosteogenesis Type 1
      Endocrinology
      Experienced in Atelosteogenesis Type 1
      Endocrinology

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Offers Telehealth

      Eric Orwoll is an Endocrinologist in Portland, Oregon. Dr. Orwoll is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. His top areas of expertise are Osteoporosis, Osteogenesis Imperfecta, Postmenopausal Osteoporosis, Fractured Spine, and Hormone Replacement Therapy (HRT).

      Learn about our expert tiers
      Experienced in Atelosteogenesis Type 1
      Medical Genetics | Pediatrics
      Experienced in Atelosteogenesis Type 1
      Medical Genetics | Pediatrics

      Legacy Good Samaritan Hospital And Medical Center

      1130 Nw 22nd Ave, Suite 630, 
      Portland, OR 
      Languages Spoken:
      English, Greek
      Accepting New Patients

      George Anadiotis is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Anadiotis is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. His top areas of expertise are Miller-Dieker Syndrome, Smith-Magenis Syndrome, Autism Spectrum Disorder, and Chromosome 2 Uniparental Disomy. Dr. Anadiotis is currently accepting new patients.

      Experienced in Atelosteogenesis Type 1
      Experienced in Atelosteogenesis Type 1

      University Professional Services

      3311 Riverbend Dr, Suite 300, 
      Springfield, OR 
      Languages Spoken:
      English, French, Italian, Spanish
      Accepting New Patients

      Craig Broberg is a Cardiologist in Springfield, Oregon. Dr. Broberg is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. His top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Eisenmenger Syndrome, Heart Transplant, and Heart Valve Repair. Dr. Broberg is currently accepting new patients.

      Experienced in Atelosteogenesis Type 1
      Dermatology
      Experienced in Atelosteogenesis Type 1
      Dermatology
      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English

      Alfons Krol is a Dermatologist in Portland, Oregon. Dr. Krol is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. His top areas of expertise are PHACE Syndrome, Aplasia Cutis Congenita, Nijmegen Breakage Syndrome, and Clouston Syndrome.

      Experienced in Atelosteogenesis Type 1
      Medical Genetics
      Experienced in Atelosteogenesis Type 1
      Medical Genetics

      Legacy Good Samaritan Hospital And Medical Center

      1040 Nw 22nd Ave, Suite 30, 
      Portland, OR 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dana Simpson is a Medical Genetics provider in Portland, Oregon. Dr. Simpson is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. Her top areas of expertise are Incontinentia Pigmenti, Increased Head Circumference, Miller-Dieker Syndrome, and Smith-Magenis Syndrome. Dr. Simpson is currently accepting new patients.

      Experienced in Atelosteogenesis Type 1
      Pediatric Cardiology | Pediatrics | Cardiology
      Experienced in Atelosteogenesis Type 1
      Pediatric Cardiology | Pediatrics | Cardiology

      Pediatric Cardiology Center Of Oregon PC

      300 N Graham St, Suite 250, 
      Portland, OR 
      Languages Spoken:
      English, Hindi, Tamil, Urdu
      Accepting New Patients
      Offers Telehealth

      Margie Tucker is a Pediatric Cardiologist and a Pediatrics provider in Portland, Oregon. Dr. Tucker is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. Her top areas of expertise are Heart Murmurs, Ventricular Septal Defects, Patent Ductus Arteriosus, Bicuspid Aortic Valve, and Patent Foramen Ovale Repair. Dr. Tucker is currently accepting new patients.

      Experienced in Atelosteogenesis Type 1
      Medical Genetics | Pediatrics
      Experienced in Atelosteogenesis Type 1
      Medical Genetics | Pediatrics

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English
      Offers Telehealth

      Wojciech Wiszniewski is a Medical Genetics specialist and a Pediatrics provider in Portland, Oregon. Dr. Wiszniewski is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. His top areas of expertise are Microcephaly, Achalasia Microcephaly Syndrome, Cortical Dysplasia, and Focal or Multifocal Malformations in Neuronal Migration.

      Experienced in Atelosteogenesis Type 1
      Experienced in Atelosteogenesis Type 1

      Good Samaritan Hospital Corvallis

      3600 Nw Samaritan Dr, Suite 227, 
      Corvallis, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Jenny Stegeman-Olsen is a primary care provider, practicing in Family Medicine in Corvallis, Oregon. Dr. Stegeman-Olsen is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Cirrhosis, and Familial Combined Hyperlipidemia. Dr. Stegeman-Olsen is currently accepting new patients.

      Experienced in Atelosteogenesis Type 1
      Experienced in Atelosteogenesis Type 1

      University Professional Services

      3181 Sw Sam Jackson Park Rd, 
      Portland, OR 
      Languages Spoken:
      English, Japanese
      Accepting New Patients
      Offers Telehealth

      Shashima Nakahara is a Cardiologist in Portland, Oregon. Dr. Nakahara is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Pulmonary Edema, Heart Failure, and Atrial Fibrillation. Dr. Nakahara is currently accepting new patients.

      Experienced in Atelosteogenesis Type 1
      Cardiac Electrophysiology | Cardiology
      Experienced in Atelosteogenesis Type 1
      Cardiac Electrophysiology | Cardiology

      Legacy Clinics LLC

      1040 Nw 22nd Ave, Suite 660, 
      Portland, OR 
      Languages Spoken:
      English, Hindi, Spanish
      Accepting New Patients

      Manish Mehta is a Cardiac Electrophysiologist and a Cardiologist in Portland, Oregon. Dr. Mehta is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. His top areas of expertise are Atrial Fibrillation, Arrhythmias, Sick Sinus Syndrome, Cardiac Ablation, and Pacemaker Implantation. Dr. Mehta is currently accepting new patients.

      Experienced in Atelosteogenesis Type 1
      Family Medicine
      Experienced in Atelosteogenesis Type 1
      Family Medicine

      Mid-Valley Healthcare Inc

      679 Main St, Suite A, 
      Sweet Home, OR 
      Languages Spoken:
      English
      Accepting New Patients

      Tessa Reff is a primary care provider, practicing in Family Medicine in Sweet Home, Oregon. Dr. Reff is rated as an Experienced provider by MediFind in the treatment of Atelosteogenesis Type 1. Her top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Hypertension, Familial Hypertension, and Post-Traumatic Stress Disorder (PTSD). Dr. Reff is currently accepting new patients.

      Showing 1-13 of 13

      Last Updated: 10/30/2025

      What is the definition of Atelosteogenesis Type 1?

      Atelosteogenesis type 1 is a disorder that affects the development of bones throughout the body. Affected individuals are born with inward- and upward-turning feet (clubfeet) and dislocations of the hips, knees, and elbows. Bones in the spine, rib cage, pelvis, and limbs may be underdeveloped or in some cases absent. As a result of the limb bone abnormalities, individuals with this condition have very short arms and legs. Characteristic facial features include a prominent forehead, wide-set eyes (hypertelorism), an upturned nose with a grooved tip, and a very small lower jaw and chin (micrognathia). Affected individuals may also have an opening in the roof of the mouth (a cleft palate). Males with this condition can have undescended testes.

      When should I see an Atelosteogenesis Type 1 doctor in Oregon, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Atelosteogenesis Type 1 doctor in Oregon, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Atelosteogenesis Type 1 doctors in Oregon, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Atelosteogenesis Type 1 doctors in Oregon, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Atelosteogenesis Type 1 doctor in Oregon, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Atelosteogenesis Type 1 doctor search results page. 

      Why is it important to get a second opinion from a different Atelosteogenesis Type 1 doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Atelosteogenesis Type 1 doctor in Oregon, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Atelosteogenesis Type 1 doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Atelosteogenesis Type 1 doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Atelosteogenesis Type 1 doctors in Oregon, US?

      Look for the filter feature on the left side of the Atelosteogenesis Type 1 doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Atelosteogenesis Type 1 doctor that offers video calls?

      Look for the filter feature on the left-side of the Atelosteogenesis Type 1 doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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