The 20 Best Athabaskan Brain Stem Dysgenesis Doctors Near Me in District of Columbia, US

Find the Top Athabaskan Brain Stem Dysgenesis Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 5 doctor with experience in Athabaskan Brain Stem Dysgenesis near District of Columbia, US. Of these, 5 are Experienced.

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5 providers found
    Experienced in Athabaskan Brain Stem Dysgenesis
    Pediatric Neurology
    Experienced in Athabaskan Brain Stem Dysgenesis
    Pediatric Neurology
    Referral may be required

    Main Hospital-Neuroscience Clinic

    111 Michigan Avenue Northwest, Room 1300, 
    Washington, DC 
    Experience:
    23+ years
    Languages Spoken:
    English
    Offers Telehealth

    Marc DiSabella, DO, is an associate professor of Pediatrics and Neurology at Children’s National Hospital in Washington, D.C., which is consistently ranked one of the best pediatric neurology and neurosurgery programs in the country by U.S. News & World Report. Dr. DiSabella serves as director of the Headache Program and was promoted to associate chief of Neurology Operations in 2024. Previously, he served 13 years as the Child Neurology Residency Program director where he graduated nearly 50 child neurology residents who now serve as division chiefs, VPs and have amassed millions in grant funding. Dr. DiSabella obtained his master's degree in leadership and education at the George Washington School of Medicine and Health Sciences and enjoys teaching and engaging his students and colleagues in educational innovation and improved teaching sessions. He currently has 10 industry sponsored clinical trials on which he serves as primary investigator in addition to a busy clinical practice. Dr. Disabella is rated as an Experienced provider by MediFind in the treatment of Athabaskan Brain Stem Dysgenesis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses New Daily Persistent Headache (NDPH), Migraine, Migraine with Brainstem Aura, and Opisthotonos. Dr. Disabella is board certified in American Board Of Psychiatry And Neurology, 2008.

    Experienced in Athabaskan Brain Stem Dysgenesis
    Experienced in Athabaskan Brain Stem Dysgenesis
    Referral may be required

    Rare Disease Institute

    7125 13th Place Northwest, 
    Washington, DC 
    Experience:
    22+ years
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Eyby Leon Janampa, MD, graduated from medical school in Lima-Peru in 2005. She finished her medical genetics training at the University of Utah in 2011 and joined Children’s National Hospital the same year. Her clinical interests include disorders of sexual differentiation and dysmorphic syndromes, and she has published extensively on improving clinical descriptions of rare and new genetic conditions. She is one of the founding members of the Rare Disease Institute at Children’s National and teaches medical students on topics related to rare disease diagnosis and care. Dr. Leon advocates for a multidisciplinary approach to common genetic syndromes and is a founding member of various multidisciplinary clinic teams at Children’s National. Dr. Janampa is rated as an Experienced provider by MediFind in the treatment of Athabaskan Brain Stem Dysgenesis. Her clinical expertise encompasses Turner Syndrome, Mixed Gonadal Dysgenesis, Maple Syrup Urine Disease, and Klinefelter Syndrome. Dr. Janampa is board certified in American Board Of Medical Genetics And Genomics, 2024, Clinical Biochemical Genetics: American Board Of Medical Genetics And Genomics, 2024, and American Board Of Medical Genetics And Genomics, 2013.

    Experienced in Athabaskan Brain Stem Dysgenesis
    Pediatric Cardiology
    Experienced in Athabaskan Brain Stem Dysgenesis
    Pediatric Cardiology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Experience:
    24+ years
    Languages Spoken:
    English
    Offers Telehealth

    Annette Ansong, MD, is a pediatric cardiologist and the medical director of outpatient cardiology at Children's National Hospital. Dr. Ansong is the proud daughter of immigrants from Ghana and has been fortunate to have been born, raised and worked in the Washington, D.C., area. She is a graduate of the University of Virginia, followed by medical school at Howard University College of Medicine. She completed her Pediatrics residency and Pediatric Cardiology fellowship at Duke University Medical Center, while also obtaining a Master of Health Science in Clinical Research. It was during this time that she became involved with the NIH Pediatric Heart Network. Since 2009, Dr. Ansong has been in private practice in Virginia. Her work there led to recognition as a Northern Virginia and Washingtonian Top Doctor. She is involved regionally and nationally on issues of diversity, equity and inclusion. She also has an interest in global health and has performed mission work in Ghana and Haiti. Dr. Ansong currently co-chairs the Women and Children Committee of the Association of Black Cardiologists, Inc., and serves on the Adult Congenital & Pediatric Cardiology Leadership Council of the American College of Cardiology. Her career interests and passion have allowed for multiple publications, case reports and presentations. She is excited about continuing great patient care and leading outpatient cardiology as she brings her insights from work as an inpatient and outpatient cardiologist. Dr. Ansong is rated as an Experienced provider by MediFind in the treatment of Athabaskan Brain Stem Dysgenesis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Interrupted Aortic Arch, Coronary Artery Fistula, Ventricular Septal Defects, and Congenital Heart Disease (CHD). Dr. Ansong is board certified in Pediatric Cardiology: American Board Of Pediatrics, 2010 and Pediatrics: American Board Of Pediatrics, 2005.

    Learn about our expert tiers
    Experienced in Athabaskan Brain Stem Dysgenesis
    Pediatric Neurology
    Experienced in Athabaskan Brain Stem Dysgenesis
    Pediatric Neurology
    Referral may be required

    Telehealth Video Visit

    111 Michigan Avenue Northwest, Childrens National Telemedicine, 
    Washington, DC 
    Experience:
    8+ years
    Languages Spoken:
    English

    Alexandra Wood, MD, is a neurologist at Children’s National Hospital. She is also an assistant professor of neurology and the medical student clerkship co-director at the George Washington University School of Medicine. Dr. Wood graduated from Saint Louis University School of Medicine and completed her residency at the Medical College of Wisconsin. After completing her residency, she worked for two years at the University of Virginia before moving to Washington, D.C., where she practices general child neurology with a special interest in headache. Dr. Wood is passionate about medical education, both of future physicians and for her patients and their families. Her goal at each visit is for the patient and their family to fully understand their diagnosis and treatment plan. Publications: ORCID. Dr. Wood is rated as an Experienced provider by MediFind in the treatment of Athabaskan Brain Stem Dysgenesis. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Partial Familial Epilepsy, and Memory Loss. Dr. Wood is board certified in American Board Of Psychiatry And Neurology, 2023.

    Experienced in Athabaskan Brain Stem Dysgenesis
    Medical Genetics | Pediatrics
    Experienced in Athabaskan Brain Stem Dysgenesis
    Medical Genetics | Pediatrics
    Referral may be required
    111 Michigan Ave Nw, Children's National Medical Center, 
    Washington, DC 
    Languages Spoken:
    English

    Kimberly Chapman is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Chapman is rated as an Experienced provider by MediFind in the treatment of Athabaskan Brain Stem Dysgenesis. Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Brittle Cornea Syndrome, Methylmalonic Acidemia, and Mitochondrial Trifunctional Protein Deficiency.

    Showing 1-5 of 5

    Last Updated: 06/30/2026

    What is the definition of Athabaskan Brain Stem Dysgenesis?

    Human HOXA1 Syndromes are very rare disorders present at birth mainly affecting the development of the ears, eyes, and cardiovascular system. The main symptoms include inability to move the eyes to the sides (horizontal gaze paralysis), deafness, and birth defects involving blood flow in and out of the heart. Human HOXA1 Syndromes have been described in Native American populations (primarily the Navajo and Apache Indians) and in a few Saudi Arabian and Turkish families. Symptoms may vary by population. Human HOXA1 Syndromes are caused by genetic changes (DNA variants) in the HOXA1 gene and inherited in an autosomal recessive pattern. Diagnosis is made based on the symptoms and confirmed by genetic testing.

    When should I see an Athabaskan Brain Stem Dysgenesis doctor in District of Columbia, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Athabaskan Brain Stem Dysgenesis doctor in District of Columbia, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Athabaskan Brain Stem Dysgenesis doctors in District of Columbia, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Athabaskan Brain Stem Dysgenesis doctors in District of Columbia, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Athabaskan Brain Stem Dysgenesis doctor in District of Columbia, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Athabaskan Brain Stem Dysgenesis doctor search results page. 

    Why is it important to get a second opinion from a different Athabaskan Brain Stem Dysgenesis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Athabaskan Brain Stem Dysgenesis doctor in District of Columbia, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Athabaskan Brain Stem Dysgenesis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Athabaskan Brain Stem Dysgenesis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Athabaskan Brain Stem Dysgenesis doctors in District of Columbia, US?

    Look for the filter feature on the left side of the Athabaskan Brain Stem Dysgenesis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Athabaskan Brain Stem Dysgenesis doctor that offers video calls?

    Look for the filter feature on the left-side of the Athabaskan Brain Stem Dysgenesis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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