Broad Phenotype Children With Autism in Kent, Surrey, and Sussex: Developing a Self-Report Questionnaire Prioritising Individual Self-Care

Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY

Referrals for autism assessment have greatly increased in the last few years. This means that waiting times are longer for families, and children and young people are struggling to get the support they need. This also means that the number of autistic children and young people there is assumed to be is not correct. A better understanding of the true number of autistic children and young people is needed so that better support for them can be provided. This research aims to understand what autism looks like in Kent, Surrey, and Sussex (KSS) to better help autistic children and young people. To do this, schools will be asked about the number of autistic children in their school to better understand the number of children and young people with autism in KSS. Secondly, autistic children and young people will be interviewed to find out about the support they need. The information gathered will help the research team to develop a quality-of-life measure, which can be used by schools to help autistic children and young people get the support they need.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 6
Maximum Age: 16
View:

⁃ \- Primary and secondary schools in Kent, Surrey and Sussex

• Aged 6-16

• Attends a school in Kent, Surrey and Sussex

• Autism diagnosis

Locations
Other Locations
United Kingdom
Sussex Community NHS Foundation Trust
RECRUITING
Brighton
Contact Information
Primary
Helen Vaughan
helenvaughan@nhs.net
44 1273 696011
Time Frame
Start Date: 2023-09-18
Estimated Completion Date: 2024-09-18
Participants
Target number of participants: 30
Treatments
Schools
Prevalence questionnaire data will be collected from 20 schools.
Autistic children and young people (CYP)
10 semi-structured qualitative interviews will be conducted with autistics CYP.
Related Therapeutic Areas
Sponsors
Leads: Sussex Community NHS Foundation Trust

This content was sourced from clinicaltrials.gov