The 20 Best Autosomal Recessive Polycystic Kidney Disease Doctors in The United States

Find the Top Autosomal Recessive Polycystic Kidney Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 241 doctor with experience in Autosomal Recessive Polycystic Kidney Disease near The United States. Of these, 174 are Experienced, 57 are Advanced, 5 are Distinguished and 5 are Elite.

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241 providers found
    Elite in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology
    Elite in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    39+ years
    Languages Spoken:
    English

    Katherine Dell is a Pediatric Nephrologist practicing medicine in Cleveland, Ohio. She has been practicing medicine for over 39 years. Dr. Dell is rated as an Elite provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, and Minimal Change Disease. Dr. Dell is board certified in American Board Of Pediatrics, 1999.

    Elite in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology
    Elite in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Erum Hartung is a Pediatric Nephrologist practicing medicine in Philadelphia, Pennsylvania. Dr. Hartung is rated as an Elite provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Polycystic Kidney Disease, Potter Syndrome, Autosomal Dominant Polycystic Kidney Disease, and Kidney Transplant.

    Elite in Autosomal Recessive Polycystic Kidney Disease
    Pediatrics
    Elite in Autosomal Recessive Polycystic Kidney Disease
    Pediatrics

    Children's National Hospital

    111 Michigan Ave NW, 
    Washington, DC 
    Languages Spoken:
    English

    Lisa Guay is a Pediatrics provider practicing medicine in Washington, Washington, D.c.. Dr. Guay is rated as an Elite provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Polycystic Kidney Disease, Autosomal Dominant Polycystic Kidney Disease, and Minimal Change Disease.

    Learn about our expert tiers
    Elite in Autosomal Recessive Polycystic Kidney Disease
    Internal Medicine
    Elite in Autosomal Recessive Polycystic Kidney Disease
    Internal Medicine

    Office

    31 Center Dr Bldg 31, 
    Bethesda, MD 
    Languages Spoken:
    English

    Gregory Germino is an Internal Medicine provider practicing medicine in Bethesda, Maryland. Dr. Germino is rated as an Elite provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Polycystic Kidney Disease, Autosomal Recessive Polycystic Kidney Disease, and Autosomal Dominant Polycystic Kidney Disease.

    Elite in Autosomal Recessive Polycystic Kidney Disease
    Internal Medicine
    Elite in Autosomal Recessive Polycystic Kidney Disease
    Internal Medicine

    University Of Maryland Pediatric Associates PA

    22 S Greene St, 
    Baltimore, MD 
    Languages Spoken:
    English

    Terry Watnick is an Internal Medicine provider practicing medicine in Baltimore, Maryland. Dr. Watnick is rated as an Elite provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Polycystic Kidney Disease, Autosomal Dominant Polycystic Kidney Disease, Autosomal Recessive Polycystic Kidney Disease, and Pseudohypoaldosteronism Type 2.

    Experienced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology | Pediatrics
    Experienced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology | Pediatrics

    Atrium Health Levine Children's Nephrology

    1001 Blythe Blvd., Suite C, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Susan Massengill is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. Dr. Massengill is rated as an Experienced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, Minimal Change Disease, Glomerulonephritis, and Kidney Transplant. Dr. Massengill is board certified in American Board Of Pediatrics, Pediatric Nephrology. Dr. Massengill is currently accepting new patients.

    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Advanced in Autosomal Recessive Polycystic Kidney Disease

    Midwest Nephrology Associates, SC

    3120 S 27th St, 
    Milwaukee, WI 
    Languages Spoken:
    English
    Offers Telehealth

    Fadi Hussein is a Nephrologist practicing medicine in Milwaukee, Wisconsin. Dr. Hussein is rated as an Advanced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Acute Kidney Failure, Necrosis, Acute Tubular Necrosis, and Chronic Kidney Disease. Dr. Hussein is board certified in American Board Of Internal Medicine, Nephrology.

    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology
    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology

    Corewell Health William Beaumont University Hospital Pediatric Nephrology

    3535 West 13 Mile Road, Suite 707, 
    Royal Oak, MI 
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients

    Brooke Blazius is a Pediatric Nephrologist practicing medicine in Royal Oak, Michigan. She has been practicing medicine for over 10 years. Dr. Blazius is rated as an Advanced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Glomerulonephritis, Autosomal Recessive Polycystic Kidney Disease, Potter Syndrome, Nephrotic Syndrome, and Kidney Transplant. Dr. Blazius is board certified in American Board Of Pediatrics and American Board Of Pediatrics. Dr. Blazius is currently accepting new patients.

    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology
    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology

    Cleveland Clinic Children's Outpatient Center

    8950 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    29+ years
    Languages Spoken:
    English

    Charles Kwon is a Pediatric Nephrologist practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 29 years. Dr. Kwon is rated as an Advanced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Renal Coloboma Syndrome, Autosomal Recessive Polycystic Kidney Disease, Potter Syndrome, and Williams Syndrome. Dr. Kwon is board certified in American Board Of Pediatrics, 2012.

    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Distinguished in Autosomal Recessive Polycystic Kidney Disease

    Mayo Clinic-Rochester

    5716 Cleveland St Ste 200, 
    Virginia Beach, VA 
    Languages Spoken:
    English

    Vicente Torres is a Nephrologist practicing medicine in Virginia Beach, Virginia. Dr. Torres is rated as a Distinguished provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Autosomal Dominant Polycystic Kidney Disease, Polycystic Kidney Disease, Chronic Kidney Disease, Kidney Transplant, and Nephrectomy.

    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Nephrology
    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Nephrology

    Office

    1530 3rd Ave S, 
    Birmingham, AL 
    Languages Spoken:
    English

    Michal Mrug is a Nephrologist practicing medicine in Birmingham, Alabama. Dr. Mrug is rated as a Distinguished provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Polycystic Kidney Disease, Autosomal Dominant Polycystic Kidney Disease, Autosomal Recessive Polycystic Kidney Disease, and Tuberous Sclerosis.

    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology
    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Susan Furth is a Pediatric Nephrologist practicing medicine in Philadelphia, Pennsylvania. Dr. Furth is rated as a Distinguished provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Chronic Kidney Disease, Reflux Nephropathy, Autosomal Recessive Polycystic Kidney Disease, Kidney Transplant, and Adenoidectomy.

    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Internal Medicine
    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Internal Medicine

    Yale New Haven Hospital

    5 Columbus Cir, 
    New York, NY 
    Languages Spoken:
    English

    Stefan Somlo is an Internal Medicine provider practicing medicine in New York, New York. Dr. Somlo is rated as a Distinguished provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Polycystic Kidney Disease, Autosomal Dominant Polycystic Kidney Disease, Autosomal Recessive Polycystic Kidney Disease, and Tuberous Sclerosis.

    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology
    Distinguished in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology

    Office

    2401 Gillham Rd Ste 1, 
    Kansas City, MO 
    Languages Spoken:
    English

    Bradley Warady is a Pediatric Nephrologist practicing medicine in Kansas City, Missouri. Dr. Warady is rated as a Distinguished provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Secondary Peritonitis, Chronic Kidney Disease, Alport Syndrome, Kidney Transplant, and Gastrostomy.

    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology | Pediatrics
    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology | Pediatrics

    Children's Renal Center

    7777 Forest Ln, Ste A311, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Albert Quan is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Dallas, Texas. Dr. Quan is rated as an Advanced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Posterior Urethral Valves, Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Kidney Transplant, and Simultaneous Pancreas Kidney Transplant.

    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Advanced in Autosomal Recessive Polycystic Kidney Disease

    Penn Renal Electrolyte And Hypertension Perelman

    3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Sandeep Aggarwal is a Nephrologist practicing medicine in Philadelphia, Pennsylvania. Dr. Aggarwal is rated as an Advanced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Autosomal Recessive Polycystic Kidney Disease, Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Sleeve Gastrectomy, and Gastric Bypass. Dr. Aggarwal is board certified in Nephrology, 2012 and Internal Medicine, 2008. Dr. Aggarwal is currently accepting new patients.

    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Advanced in Autosomal Recessive Polycystic Kidney Disease

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Michael Somers is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Somers is rated as an Advanced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, Congenital Nephrotic Syndrome, Feingold Syndrome, and Kidney Transplant. Dr. Somers is board certified in Pediatrics and Pediatric Nephrology.

    Advanced in Autosomal Recessive Polycystic Kidney Disease
    Advanced in Autosomal Recessive Polycystic Kidney Disease
    1126 Slide Rd, 
    Lubbock, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Nayankumar Patel is a Nephrologist practicing medicine in Lubbock, Texas. Dr. Patel is rated as an Advanced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Chronic Kidney Disease, End-Stage Renal Disease (ESRD), Acute Kidney Failure, and Nephrosclerosis. Dr. Patel is currently accepting new patients.

    Experienced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology
    Experienced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology

    Akron General Health Center

    676 South Broadway Street, 
    Akron, OH 
    Languages Spoken:
    English, Arabic

    Raed Matar is a Pediatric Nephrologist practicing medicine in Akron, Ohio. Dr. Matar is rated as an Experienced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Alport Syndrome, Nephrotic Syndrome, Glomerulonephritis, and Posterior Urethral Valves. Dr. Matar is board certified in American Board Of Pediatrics, 2014.

    Experienced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology | Pediatrics
    Experienced in Autosomal Recessive Polycystic Kidney Disease
    Pediatric Nephrology | Pediatrics

    Cook Children's Nephrology And Dialysis Services

    1500 Cooper St, 1st Fl, 
    Fort Worth, TX 
    Languages Spoken:
    English, Spanish

    Robert Gillespie is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Fort Worth, Texas. Dr. Gillespie is rated as an Experienced provider by MediFind in the treatment of Autosomal Recessive Polycystic Kidney Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Cystinosis, Congenital Nephrotic Syndrome, and Nephrotic Syndrome.

    Showing 1-20 of 241

    Last Updated: 04/28/2026

    What is the definition of Autosomal Recessive Polycystic Kidney Disease?

    Autosomal recessive polycystic kidney disease (ARPKD) is a genetic condition that is characterized by the growth of cysts in the kidneys (which lead to kidney failure) and liver and problems in other organs, such as the blood vessels in the brain and heart. The severity varies from person to person. The signs of ARPKD frequently begin before birth, so it is often called infantile PKD but some people do not develop symptoms until later in childhood or even adulthood. The condition is caused by a genetic change in the PKHD1 gene and is inherited in an autosomal recessive manner.

    When should I see an Autosomal Recessive Polycystic Kidney Disease doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Autosomal Recessive Polycystic Kidney Disease doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Autosomal Recessive Polycystic Kidney Disease doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Autosomal Recessive Polycystic Kidney Disease doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Autosomal Recessive Polycystic Kidney Disease doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Autosomal Recessive Polycystic Kidney Disease doctor search results page. 

    Why is it important to get a second opinion from a different Autosomal Recessive Polycystic Kidney Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Autosomal Recessive Polycystic Kidney Disease doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Autosomal Recessive Polycystic Kidney Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Autosomal Recessive Polycystic Kidney Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Autosomal Recessive Polycystic Kidney Disease doctors in The United States?

    Look for the filter feature on the left side of the Autosomal Recessive Polycystic Kidney Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Autosomal Recessive Polycystic Kidney Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Autosomal Recessive Polycystic Kidney Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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