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    Last Updated: 01/09/2026

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    MediFind found 105 doctor with experience in Batten Disease near Australia. Of these, 95 are Experienced, 7 are Advanced and 3 are Distinguished.

    Location
    LocationClose
    105 providers found
      Distinguished in Batten Disease
      Distinguished in Batten Disease
      245 Burgundy St, 
      Heidelberg, VIC, AU 

      Samuel Berkovic practices in Heidelberg, Australia. Mr. Berkovic is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Myoclonic Epilepsy, Epilepsy, Partial Familial Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Distinguished in Batten Disease
      Distinguished in Batten Disease
      Wellington Road, 
      Clayton, VIC, AU 

      Alexandra Grubman practices in Clayton, Australia. Ms. Grubman is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Batten Disease, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

      Distinguished in Batten Disease
      Distinguished in Batten Disease
      300 Herston Rd, 
      Herston, QLD, AU 

      Anthony White practices in Herston, Australia. Mr. White is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Batten Disease, Primary Lateral Sclerosis, CLN3 Disease, and CLN5 Disease.

      Learn about our expert tiers
      Advanced in Batten Disease
      Advanced in Batten Disease
      50 Flemington Rd, 
      Parkville, VIC, AU 

      Ingrid Scheffer practices in Parkville, Australia. Ms. Scheffer is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Myoclonic Epilepsy, West Syndrome, Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Advanced in Batten Disease
      Advanced in Batten Disease
      245 Burgundy St, 
      Heidelberg, VIC, AU 

      John Damiano practices in Heidelberg, Australia. Mr. Damiano is rated as an Advanced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Subcortical Band Heterotopia, Miller-Dieker Syndrome, and Lissencephaly 1.

      Advanced in Batten Disease
      Advanced in Batten Disease
      425 Werombi Road, 
      Camden, NSW, AU 

      Imke Tammen practices in Camden, Australia. Tammen is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are Batten Disease, CLN4 Disease, CLN3 Disease, and CLN1 Disease.

      Advanced in Batten Disease
      Advanced in Batten Disease
      245 Burgundy St, 
      Heidelberg, VIC, AU 

      Karen Oliver practices in Heidelberg, Australia. Ms. Oliver is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, Myoclonic Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Advanced in Batten Disease
      Advanced in Batten Disease
      50 Flemington Rd, 
      Parkville, VIC, AU 

      Michael Hildebrand practices in Parkville, Australia. Mr. Hildebrand is rated as an Advanced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Hypothalamic Hamartomas, Mosaicism, Epilepsy, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

      Advanced in Batten Disease
      Advanced in Batten Disease
      Hobart, TAS, AU 

      Sueanne Chear practices in Hobart, Australia. Ms. Chear is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Batten Disease, CLN2 Disease, CLN1 Disease, and CLN3 Disease.

      Advanced in Batten Disease
      Advanced in Batten Disease
      Randwick, NSW, AU 

      Alexandra Johnson practices in Randwick, Australia. Ms. Johnson is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Batten Disease, CLN3 Disease, CLN1 Disease, and CLN4 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      215 Franklin Street, 
      Melbourne, VIC, AU 

      Wendy Heywood practices in Melbourne, Australia. Ms. Heywood is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Fabry Disease, Batten Disease, CLN4 Disease, and CLN3 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      32 Gisborne St, 
      East Melbourne, VIC, AU 

      Alex Hewitt practices in East Melbourne, Australia. Mr. Hewitt is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Ocular Hypertension (OHT), Glaucoma, Pigment-Dispersion Syndrome, Trabeculectomy, and Vitrectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      17 Liverpool Street, 
      Hobart, TAS, AU 

      Anthony Cook practices in Hobart, Australia. Mr. Cook is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Batten Disease, CLN5 Disease, CLN4 Disease, CLN1 Disease, and Trabeculectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      800 Blackburn Road, 
      Clayton, VIC, AU 

      Michael Jones practices in Clayton, Australia. Mr. Jones is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Batten Disease, Retinoblastoma, CLN3 Disease, and CLN1 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      17 Liverpool Street, 
      Hobart, TAS, AU 

      Jana Talbot practices in Hobart, Australia. Ms. Talbot is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Batten Disease, CLN1 Disease, CLN3 Disease, and CLN4 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Parkville, VIC, AU 

      Clare Duncan practices in Parkville, Australia. Ms. Duncan is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Primary Lateral Sclerosis, Batten Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and CLN5 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Parkville, VIC, AU 

      Irene Volitakis practices in Parkville, Australia. Ms. Volitakis is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Batten Disease, CLN5 Disease, CLN1 Disease, and CLN3 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Parkville, VIC, AU 

      Peter Crouch practices in Parkville, Australia. Mr. Crouch is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Restless Legs Syndrome, and Batten Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      72 King William Rd, 
      North Adelaide, SA, AU 

      Michael Fietz practices in North Adelaide, Australia. Mr. Fietz is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Multiple Sulfatase Deficiency, Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), CLN1 Disease, and CLN5 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Nedlands, WA, AU 

      Xiao Zhang practices in Nedlands, Australia. Ms. Zhang is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, and Batten Disease.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 105

      Last Updated: 01/09/2026

      What is the definition of Batten Disease?

      Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

      These are the three main types of NCL:

      • Adult (Kufs or Parry disease)
      • Juvenile (Batten disease)
      • Late infantile (Jansky-Bielschowsky disease)

      When should I see a Batten Disease doctor in Australia?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Batten Disease doctor in Australia?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Batten Disease doctors in Australia?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Batten Disease doctors in Australia?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Batten Disease doctor in Australia?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

      Why is it important to get a second opinion from a different Batten Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Batten Disease doctor in Australia?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Batten Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Batten Disease doctors in Australia?

      Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Batten Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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