The 20 Best Batten Disease Doctors in Australia

Find the Top Batten Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 97 doctor with experience in Batten Disease near Australia. Of these, 85 are Experienced, 10 are Advanced and 2 are Distinguished.

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97 providers found
    Distinguished in Batten Disease

    Samuel F. Berkovic
    Distinguished in Batten Disease

    Samuel F. Berkovic
    Referral may be required
    245 Burgundy St, 
    Heidelberg, VIC, AU 

    Samuel Berkovic practices practicing medicine in Heidelberg, Australia. Mr. Berkovic is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Epilepsy, Partial Familial Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Distinguished in Batten Disease

    Alexandra Grubman
    Distinguished in Batten Disease

    Alexandra Grubman
    Referral may be required
    Wellington Road, 
    Clayton, VIC, AU 

    Alexandra Grubman practices practicing medicine in Clayton, Australia. Ms. Grubman is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

    Advanced in Batten Disease

    Anthony R. White
    Advanced in Batten Disease

    Anthony R. White
    Referral may be required
    300 Herston Rd, 
    Herston, QLD, AU 

    Anthony White practices practicing medicine in Herston, Australia. Mr. White is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Batten Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and CLN3 Disease.

    Learn about our expert tiers
    Advanced in Batten Disease

    Alexandra M. Johnson
    Advanced in Batten Disease

    Alexandra M. Johnson
    Referral may be required
    Randwick, NSW, AU 

    Alexandra Johnson practices practicing medicine in Randwick, Australia. Ms. Johnson is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN3 Disease, CLN1 Disease, and CLN4 Disease.

    Advanced in Batten Disease

    Anthony L. Cook
    Advanced in Batten Disease

    Anthony L. Cook
    Referral may be required
    17 Liverpool Street, 
    Hobart, TAS, AU 

    Anthony Cook practices practicing medicine in Hobart, Australia. Mr. Cook is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses CLN3 Disease, CLN4 Disease, CLN1 Disease, CLN5 Disease, and Trabeculectomy.

    Advanced in Batten Disease

    Wendy E. Heywood
    Advanced in Batten Disease

    Wendy E. Heywood
    Referral may be required
    215 Franklin Street, 
    Melbourne, VIC, AU 

    Wendy Heywood practices practicing medicine in Melbourne, Australia. Ms. Heywood is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses CLN1 Disease, CLN3 Disease, CLN5 Disease, and CLN4 Disease.

    Advanced in Batten Disease

    Ingrid E. Scheffer
    Advanced in Batten Disease

    Ingrid E. Scheffer
    Referral may be required
    50 Flemington Rd, 
    Parkville, VIC, AU 

    Ingrid Scheffer practices practicing medicine in Parkville, Australia. Ms. Scheffer is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 61 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, West Syndrome, Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Advanced in Batten Disease

    Imke Tammen
    Advanced in Batten Disease

    Imke Tammen
    Referral may be required
    425 Werombi Road, 
    Camden, NSW, AU 

    Imke Tammen practices practicing medicine in Camden, Australia. Tammen is rated as an Advanced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Batten Disease, CLN5 Disease, CLN1 Disease, and CLN3 Disease.

    Advanced in Batten Disease

    Karen L. Oliver
    Advanced in Batten Disease

    Karen L. Oliver
    Referral may be required
    245 Burgundy St, 
    Heidelberg, VIC, AU 

    Karen Oliver practices practicing medicine in Heidelberg, Australia. Ms. Oliver is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, Epilepsy with Myoclonic-Atonic Seizures, and Myoclonic Epilepsy.

    Advanced in Batten Disease

    Michael S. Hildebrand
    Advanced in Batten Disease

    Michael S. Hildebrand
    Referral may be required
    50 Flemington Rd, 
    Parkville, VIC, AU 

    Michael Hildebrand practices practicing medicine in Parkville, Australia. Mr. Hildebrand is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Hypothalamic Hamartomas, Mosaicism, Epilepsy, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

    Advanced in Batten Disease

    John A. Damiano
    Advanced in Batten Disease

    John A. Damiano
    Referral may be required
    245 Burgundy St, 
    Heidelberg, VIC, AU 

    John Damiano practices practicing medicine in Heidelberg, Australia. Mr. Damiano is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Subcortical Band Heterotopia, Miller-Dieker Syndrome, and Lissencephaly 1.

    Advanced in Batten Disease

    Sueanne Chear
    Advanced in Batten Disease

    Sueanne Chear
    Referral may be required
    Hobart, TAS, AU 

    Sueanne Chear practices practicing medicine in Hobart, Australia. Ms. Chear is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses CLN5 Disease, CLN4 Disease, CLN1 Disease, and CLN3 Disease.

    Experienced in Batten Disease

    Alex W. Hewitt
    Experienced in Batten Disease

    Alex W. Hewitt
    Referral may be required
    32 Gisborne St, 
    East Melbourne, VIC, AU 

    Alex Hewitt practices practicing medicine in East Melbourne, Australia. Mr. Hewitt is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Ocular Hypertension (OHT), Pigment-Dispersion Syndrome, Trabeculectomy, and Vitrectomy.

    Experienced in Batten Disease

    Jana Talbot
    Experienced in Batten Disease

    Jana Talbot
    Referral may be required
    17 Liverpool Street, 
    Hobart, TAS, AU 

    Jana Talbot practices practicing medicine in Hobart, Australia. Ms. Talbot is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses CLN5 Disease, CLN4 Disease, CLN1 Disease, and CLN3 Disease.

    Experienced in Batten Disease

    Michael M. Jones
    Experienced in Batten Disease

    Michael M. Jones
    Referral may be required
    800 Blackburn Road, 
    Clayton, VIC, AU 

    Michael Jones practices practicing medicine in Clayton, Australia. Mr. Jones is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His clinical expertise encompasses Batten Disease, CLN1 Disease, CLN4 Disease, and CLN3 Disease.

    Experienced in Batten Disease

    Clare J. Duncan
    Experienced in Batten Disease

    Clare J. Duncan
    Referral may be required
    Parkville, VIC, AU 

    Clare Duncan practices practicing medicine in Parkville, Australia. Ms. Duncan is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Batten Disease, and CLN3 Disease.

    Experienced in Batten Disease

    Peter J. Crouch
    Experienced in Batten Disease

    Peter J. Crouch
    Referral may be required
    Melbourne, VIC, AU 

    Peter Crouch practices practicing medicine in Melbourne, Australia. Mr. Crouch is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Restless Legs Syndrome, and Batten Disease.

    Experienced in Batten Disease

    Irene Volitakis
    Experienced in Batten Disease

    Irene Volitakis
    Referral may be required
    Parkville, VIC, AU 

    Irene Volitakis practices practicing medicine in Parkville, Australia. Ms. Volitakis is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses Batten Disease, Dementia, CLN3 Disease, and CLN1 Disease.

    Experienced in Batten Disease

    Michael J. Fietz
    Experienced in Batten Disease

    Michael J. Fietz
    Referral may be required
    72 King William Rd, 
    North Adelaide, SA, AU 

    Michael Fietz practices practicing medicine in North Adelaide, Australia. Mr. Fietz is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 4 (MPS IV, Morquio Syndrome), Multiple Sulfatase Deficiency, CLN4 Disease, and CLN3 Disease.

    Experienced in Batten Disease

    Fred K. Chen
    Experienced in Batten Disease

    Fred K. Chen
    Referral may be required
    Hospital Avenue, 
    Nedlands, WA, AU 

    Fred Chen practices practicing medicine in Nedlands, Australia. Mr. Chen is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, Stargardt Macular Degeneration, and Vitrectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 97

    Last Updated: 06/30/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in Australia?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in Australia?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Batten Disease doctor in Australia?

    You can find a Batten Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Batten Disease doctors in Australia?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in Australia?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in Australia?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in Australia?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in Australia?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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