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    Last Updated: 01/09/2026

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    MediFind found 20 doctor with experience in Batten Disease near New South Wales, AU. Of these, 18 are Experienced and 2 are Advanced.

    Location
    LocationClose
    20 providers found
      Advanced in Batten Disease
      Advanced in Batten Disease
      425 Werombi Road, 
      Camden, NSW, AU 

      Imke Tammen practices in Camden, Australia. Tammen is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are Batten Disease, CLN4 Disease, CLN3 Disease, and CLN1 Disease.

      Advanced in Batten Disease
      Advanced in Batten Disease
      Randwick, NSW, AU 

      Alexandra Johnson practices in Randwick, Australia. Ms. Johnson is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Batten Disease, CLN3 Disease, CLN1 Disease, and CLN4 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      8 Macquarie St, 
      Sydney, NSW, AU 

      John Grigg practices in Sydney, Australia. Mr. Grigg is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, Cataract Removal, and Trabeculectomy.

      Learn about our expert tiers
      Experienced in Batten Disease
      Experienced in Batten Disease
      Sydney, NSW, AU 

      Sulekha Rajagopalan practices in Sydney, Australia. Ms. Rajagopalan is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Fryns Syndrome, Fanconi Anemia, Congenital Aplastic Anemia, and Congenital Contractures.

      Experienced in Batten Disease
      Experienced in Batten Disease
      425 Werombi Road, 
      Camden, NSW, AU 

      Greg Cronin practices in Camden, Australia. Mr. Cronin is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Batten Disease, CLN2 Disease, CLN5 Disease, and CLN1 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Sydney, NSW, AU 

      Benjamin Nash practices in Sydney, Australia. Mr. Nash is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, Cone-Rod Dystrophy, and Retinitis Pigmentosa.

      Experienced in Batten Disease
      Experienced in Batten Disease
      425 Werombi Road, 
      Camden, NSW, AU 

      Mehar Khatkar practices in Camden, Australia. Ms. Khatkar is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Niemann-Pick Disease, Brucellosis, Cysticercosis, and Fetal Edema.

      Experienced in Batten Disease
      Experienced in Batten Disease
      8 Macquarie Street, 
      Sydney, NSW, AU 

      Elisa Cornish practices in Sydney, Australia. Ms. Cornish is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, and Birdshot Chorioretinopathy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Sydney, NSW, AU 

      Robyn Jamieson practices in Sydney, Australia. Ms. Jamieson is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Microphthalmia, Late-Onset Retinal Degeneration, and Trabeculectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Randwick, NSW, AU 

      Ian Andrews practices in Randwick, Australia. Mr. Andrews is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Arachnoiditis, Epilepsy in Children, CLN1 Disease, CLN4 Disease, and Thrombectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Sydney, NSW, AU 

      Carolyn Ellaway practices in Sydney, Australia. Ms. Ellaway is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Rett Syndrome, Ornithine Transcarbamylase Deficiency, Urea Cycle Disorders (UCD), Gastrostomy, and Liver Transplant.

      Experienced in Batten Disease
      Experienced in Batten Disease
      St Leonards, NSW, AU 

      Thomas Morris practices in St Leonards, Australia. Mr. Morris is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Dementia, Vascular Dementia, CACH Syndrome, and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome).

      Experienced in Batten Disease
      Experienced in Batten Disease
      High Street, 
      Randwick, NSW, AU 

      John Lawson practices in Randwick, Australia. Mr. Lawson is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Epilepsy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Northfields Ave, 
      Wollongong, NSW, AU 

      Lezanne Ooi practices in Wollongong, Australia. Ms. Ooi is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Alzheimer's Disease, Dementia, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      Experienced in Batten Disease
      Experienced in Batten Disease
      425 Werombi Road, 
      Camden, NSW, AU 

      Peter Thomson practices in Camden, Australia. Mr. Thomson is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Heart Murmurs, Brucellosis, Tongue Tie, Orchiectomy, and Oophorectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Sydney, NSW, AU 

      Neil Rowe practices in Sydney, Australia. Mr. Rowe is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Cavernous Sinus Thrombosis, Horner Syndrome, Orbital Cellulitis, Cellulitis, and Cataract Removal.

      Experienced in Batten Disease
      Experienced in Batten Disease
      8 Macquarie St, 
      Sydney, NSW, AU 

      Clare Fraser practices in Sydney, Australia. Ms. Fraser is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Papilledema, Increased Intracranial Pressure, Pseudotumor Cerebri Syndrome, Optic Nerve Atrophy, and Tissue Biopsy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Barker Street, 
      Randwick, NSW, AU 

      Luke Parkitny practices in Randwick, Australia. Mr. Parkitny is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Complex Regional Pain Syndrome, Fibromyalgia, Rett Syndrome, and Chronic Pain.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Reserve Rd, 
      St Leonards, NSW, AU 

      Carolyn Sue practices in St Leonards, Australia. Ms. Sue is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Paraplegia, Spastic Paraplegia Type 7, Spasticity, Gastrostomy, and Deep Brain Stimulation.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Concord, NSW, AU 

      Susan Brammah practices in Concord, Australia. Ms. Brammah is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Horizontal Gaze Palsy with Progressive Scoliosis.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 20

      Last Updated: 01/09/2026

      What is the definition of Batten Disease?

      Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

      These are the three main types of NCL:

      • Adult (Kufs or Parry disease)
      • Juvenile (Batten disease)
      • Late infantile (Jansky-Bielschowsky disease)

      When should I see a Batten Disease doctor in New South Wales, AU?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Batten Disease doctor in New South Wales, AU?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Batten Disease doctors in New South Wales, AU?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Batten Disease doctors in New South Wales, AU?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Batten Disease doctor in New South Wales, AU?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

      Why is it important to get a second opinion from a different Batten Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Batten Disease doctor in New South Wales, AU?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Batten Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Batten Disease doctors in New South Wales, AU?

      Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Batten Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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