The 20 Best Batten Disease Doctors Near Me in Sydney, NSW

Find the Top Batten Disease Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 16 doctor with experience in Batten Disease near Sydney, NSW. Of these, 15 are Experienced and 1 are Advanced.

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16 providers found
    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Sydney, NSW, AU 
     (0.6 km away)

    Alexandra Johnson practices practicing medicine in Sydney, Australia. Ms. Johnson is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN4 Disease, CLN1 Disease, and CLN2 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Sydney, NSW, AU 
     (0.6 km away)

    Benjamin Nash practices practicing medicine in Sydney, Australia. Mr. Nash is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, Cone-Rod Dystrophy, and Cone Dystrophy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Sydney, NSW, AU 
     (0.6 km away)

    Robyn Jamieson practices practicing medicine in Sydney, Australia. Ms. Jamieson is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Microphthalmia, Late-Onset Retinal Degeneration, and Trabeculectomy.

    Learn about our expert tiers
    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Sydney, NSW, AU 
     (0.6 km away)

    Marianne Keller practices practicing medicine in Sydney, Australia. Ms. Keller is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses CLN5 Disease, CLN2 Disease, CLN3 Disease, and CLN4 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Sydney, NSW, AU 
     (0.6 km away)

    Ian Andrews practices practicing medicine in Sydney, Australia. Mr. Andrews is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Arachnoiditis, Epilepsy in Children, Stroke, CLN2 Disease, and Thrombectomy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Sydney, NSW, AU 
     (0.6 km away)

    Neil Rowe practices practicing medicine in Sydney, Australia. Mr. Rowe is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His clinical expertise encompasses Cavernous Sinus Thrombosis, Horner Syndrome, Orbital Cellulitis, Cellulitis, and Cataract Removal.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Sydney, NSW, AU 
     (0.6 km away)

    Thomas Morris practices practicing medicine in Sydney, Australia. Mr. Morris is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Dementia, Vascular Dementia, CACH Syndrome, and Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome).

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    8 Macquarie St, 
    Sydney, NSW, AU 
     (0.8 km away)

    John Grigg practices practicing medicine in Sydney, Australia. Mr. Grigg is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, Cataract Removal, and Trabeculectomy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    8 Macquarie Street, 
    Sydney, NSW, AU 
     (0.8 km away)

    Elisa Cornish practices practicing medicine in Sydney, Australia. Ms. Cornish is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, and Age-Related Macular Degeneration (ARMD).

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    8 Macquarie St, 
    Sydney, NSW, AU 
     (0.8 km away)

    Clare Fraser practices practicing medicine in Sydney, Australia. Ms. Fraser is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Papilledema, Increased Intracranial Pressure, Pseudotumor Cerebri Syndrome, Optic Nerve Atrophy, and Tissue Biopsy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Camperdown, NSW, AU 
     (4.2 km away)

    Peter Williamson practices practicing medicine in Camperdown, Australia. Mr. Williamson is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His clinical expertise encompasses Fucosidosis, CLN5 Disease, CLN4 Disease, and CLN2 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    High Street, 
    Randwick, NSW, AU 
     (6.4 km away)

    John Lawson practices practicing medicine in Randwick, Australia. Mr. Lawson is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Epilepsy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Barker Street, 
    Randwick, NSW, AU 
     (6.9 km away)

    Luke Parkitny practices practicing medicine in Randwick, Australia. Mr. Parkitny is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Complex Regional Pain Syndrome, Fibromyalgia, Rett Syndrome, and Chronic Pain.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Randwick, NSW, AU 
     (6.9 km away)

    Sarah Parker practices practicing medicine in Randwick, Australia. Ms. Parker is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses Batten Disease, CLN2 Disease, CLN3 Disease, and CLN5 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Randwick, NSW, AU 
     (6.9 km away)

    Carolyn Ellaway practices practicing medicine in Randwick, Australia. Ms. Ellaway is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Rett Syndrome, Ornithine Transcarbamylase Deficiency, Smith-Lemli-Opitz Syndrome, Gastrostomy, and Spinal Fusion.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Concord, NSW, AU 
     (9.7 km away)

    Susan Brammah practices practicing medicine in Concord, Australia. Ms. Brammah is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses Horizontal Gaze Palsy with Progressive Scoliosis, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, and X-Linked Myotubular Myopathy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-16 of 16

    Last Updated: 11/08/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor near Sydney, NSW?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor near Sydney, NSW?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Batten Disease doctor near Sydney, NSW?

    You can find a Batten Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Batten Disease doctors near Sydney, NSW?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors near Sydney, NSW?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor near Sydney, NSW?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor near Sydney, NSW?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors near Sydney, NSW?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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