The 20 Best Batten Disease Doctors in Canada

Find the Top Batten Disease Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 57 doctor with experience in Batten Disease near Canada. Of these, 50 are Experienced, 5 are Advanced and 2 are Distinguished.

Location
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57 providers found
    Distinguished in Batten Disease
    Distinguished in Batten Disease
    Referral may be required
    Laval, QC, CA 

    Stephane Lefrancois practices practicing medicine in Laval, Canada. Ms. Lefrancois is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses CLN1 Disease, CLN4 Disease, CLN3 Disease, and CLN5 Disease.

    Distinguished in Batten Disease
    Distinguished in Batten Disease
    Referral may be required
    Halifax, NS, CA 

    Sabateeshan Mathavarajah practices practicing medicine in Halifax, Canada. Mathavarajah is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses CLN1 Disease, CLN5 Disease, CLN3 Disease, and CLN4 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Peterborough, ON, CA 

    William Kim practices practicing medicine in Peterborough, Canada. Mr. Kim is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

    Learn about our expert tiers
    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Montreal, QC, CA 

    Patrick Cossette practices practicing medicine in Montreal, Canada. Mr. Cossette is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Batten Disease, CLN1 Disease, and CLN4 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Montreal, QC, CA 

    Eva Andermann practices practicing medicine in Montreal, Canada. Ms. Andermann is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Polymicrogyria, Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, and Subcortical Band Heterotopia.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Montreal, QC, CA 

    Frederick Andermann practices practicing medicine in Montreal, Canada. Mr. Andermann is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Polymicrogyria, Rasmussen Encephalitis, Lafora Disease, and Dentatorubral-Pallidoluysian Atrophy.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    399 Bathurst Street, 
    Toronto, ON, CA 

    Danielle Andrade practices practicing medicine in Toronto, Canada. Ms. Andrade is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 32 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Epilepsy, Seizures, and Deep Brain Stimulation.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Saint John, NB, CA 

    Pamela Jarrett practices practicing medicine in Saint John, Canada. Ms. Jarrett is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses Dementia, Palatal Myoclonus, Batten Disease, and CLN5 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Veteran's Memorial Lane, 
    Halifax, NS, CA 

    Kenneth Rockwood practices practicing medicine in Halifax, Canada. Mr. Rockwood is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Delirium, Hemophilia A, and Lung Transplant.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Toronto, ON, CA 

    Julie Turnbull practices practicing medicine in Toronto, Canada. Ms. Turnbull is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Lafora Disease, Dentatorubral-Pallidoluysian Atrophy, Epilepsy with Myoclonic-Atonic Seizures, and Myoclonic Epilepsy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Vancouver, BC, CA 

    Terri Petkau practices practicing medicine in Vancouver, Canada. Ms. Petkau is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses Batten Disease, CLN1 Disease, CLN3 Disease, and CLN4 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Toronto, ON, CA 

    Tara Paton practices practicing medicine in Toronto, Canada. Ms. Paton is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Mononucleosis, Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, and Batten Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Toronto, ON, CA 

    Christian Marshall practices practicing medicine in Toronto, Canada. Mr. Marshall is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Autism Spectrum Disorder, X-Linked Chondrodysplasia Punctata 2, Chondrodysplasia Punctata Syndrome, and Infantile Refsum Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Toronto, ON, CA 

    Sriranga Kashyap practices practicing medicine in Toronto, Canada. Kashyap is rated as an Experienced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Triple X Syndrome, Batten Disease, CLN3 Disease, CLN1 Disease, and Deep Brain Stimulation.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Halifax, NS, CA 

    Sarah Dyack practices practicing medicine in Halifax, Canada. Ms. Dyack is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Long QT Syndrome 3, Medium-Chain Acyl-CoA Dehydrogenase Deficiency, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Edmonton, AB, CA 

    Saadet Andrews-Mercimek practices practicing medicine in Edmonton, Canada. Andrews-Mercimek is rated as an Experienced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses X-Linked Creatine Deficiency, Guanidinoacetate Methyltransferase Deficiency, PGM1-CDG, and Succinic Semialdehyde Dehydrogenase Deficiency.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Laval, QC, CA 

    Etienne Sauvageau practices practicing medicine in Laval, Canada. Mr. Sauvageau is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His clinical expertise encompasses Batten Disease, CLN3 Disease, CLN1 Disease, and CLN5 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Mount Sinai Hospital, 
    Toronto, ON, CA 

    Susan Blaser practices practicing medicine in Toronto, Canada. Ms. Blaser is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 23 other conditions, according to our data. Her clinical expertise encompasses Oculocerebrocutaneous Syndrome, Orbital Cellulitis, Cerebelloparenchymal Disorder 3, and X-Linked Chondrodysplasia Punctata 2.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Montreal, QC, CA 

    Guy Rouleau practices practicing medicine in Montreal, Canada. Mr. Rouleau is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Spastic Paraplegia Type 7, Essential Tremor, Paraplegia, and Spasticity.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Vancouver, BC, CA 

    Anita Datta practices practicing medicine in Vancouver, Canada. Ms. Datta is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Benign Rolandic Epilepsy, Epilepsy Juvenile Absence, and Seizures.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 57

    Last Updated: 09/26/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in Canada?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in Canada?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Batten Disease doctor in Canada?

    You can find a Batten Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    Batten Disease doctor near San Jose, CA

    How does MediFind rank Batten Disease doctors in Canada?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in Canada?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in Canada?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in Canada?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in Canada?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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