The 20 Best Batten Disease Doctors in Germany

Find the Top Batten Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 256 doctor with experience in Batten Disease near Germany. Of these, 223 are Experienced, 22 are Advanced, 8 are Distinguished and 3 are Elite.

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256 providers found
    Elite in Batten Disease

    Alfried Kohlschutter
    Elite in Batten Disease

    Alfried Kohlschutter
    Martini Str. 52, 
    Hamburg, HH, DE 

    Alfried Kohlschutter practices practicing medicine in Hamburg, Germany. Kohlschutter is rated as an Elite expert by MediFind in the treatment of Batten Disease. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Batten Disease, CLN1 Disease, CLN4 Disease, CLN5 Disease, and Bone Marrow Transplant.

    Elite in Batten Disease

    Miriam Nickel
    Elite in Batten Disease

    Miriam Nickel
    Hamburg, HH, DE 

    Miriam Nickel practices practicing medicine in Hamburg, Germany. Ms. Nickel is rated as an Elite expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses CLN2 Disease, Batten Disease, CLN3 Disease, and CLN1 Disease.

    Elite in Batten Disease

    Simon Dulz
    Elite in Batten Disease

    Simon Dulz
    Hamburg, HH, DE 

    Simon Dulz practices practicing medicine in Hamburg, Germany. Mr. Dulz is rated as an Elite expert by MediFind in the treatment of Batten Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses CLN2 Disease, Batten Disease, CLN1 Disease, CLN3 Disease, and Vitrectomy.

    Learn about our expert tiers
    Distinguished in Batten Disease

    Ansgar S. Schulz
    Distinguished in Batten Disease

    Ansgar S. Schulz
    Marburger Str. 85, 
    Kassel, HE, DE 

    Ansgar Schulz practices practicing medicine in Kassel, Germany. Schulz is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. They are also highly rated in 32 other conditions, according to our data. Their clinical expertise encompasses Osteopetrosis, Severe Combined Immunodeficiency (SCID), CLN2 Disease, Bone Marrow Transplant, and Splenectomy.

    Distinguished in Batten Disease

    Udo Bartsch
    Distinguished in Batten Disease

    Udo Bartsch
    Hamburg, HH, DE 

    Udo Bartsch practices practicing medicine in Hamburg, Germany. Bartsch is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses CLN2 Disease, Batten Disease, CLN1 Disease, and CLN4 Disease.

    Distinguished in Batten Disease

    Christoph Schwering
    Distinguished in Batten Disease

    Christoph Schwering
    Hamburg, HH, DE 

    Christoph Schwering practices practicing medicine in Hamburg, Germany. Mr. Schwering is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses CLN2 Disease, Batten Disease, CLN3 Disease, and CLN1 Disease.

    Distinguished in Batten Disease

    Yevgeniya Atiskova
    Distinguished in Batten Disease

    Yevgeniya Atiskova
    Hamburg, HH, DE 

    Yevgeniya Atiskova practices practicing medicine in Hamburg, Germany. Atiskova is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses CLN2 Disease, Batten Disease, CLN1 Disease, and CLN4 Disease.

    Distinguished in Batten Disease

    Martin S. Spitzer
    Distinguished in Batten Disease

    Martin S. Spitzer
    Hamburg, HH, DE 

    Martin Spitzer practices practicing medicine in Hamburg, Germany. Mr. Spitzer is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Retinal Artery Occlusion, Retinal Detachment, CLN2 Disease, Vitrectomy, and Trabeculectomy.

    Distinguished in Batten Disease

    Eva Wibbeler
    Distinguished in Batten Disease

    Eva Wibbeler
    Hamburg, HH, DE 

    Eva Wibbeler practices practicing medicine in Hamburg, Germany. Ms. Wibbeler is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses CLN2 Disease, Batten Disease, CLN5 Disease, and CLN3 Disease.

    Distinguished in Batten Disease

    Janos Groh
    Distinguished in Batten Disease

    Janos Groh
    Josef Schneider Str. 11, 
    Wuerzburg, BY, DE 

    Janos Groh practices practicing medicine in Wuerzburg, Germany. Mr. Groh is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN5 Disease, CLN3 Disease, and CLN2 Disease.

    Distinguished in Batten Disease

    Stephan Storch
    Distinguished in Batten Disease

    Stephan Storch
    Hamburg, HH, DE 

    Stephan Storch practices practicing medicine in Hamburg, Germany. Mr. Storch is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN5 Disease, CLN3 Disease, and CLN1 Disease.

    Advanced in Batten Disease

    Thomas Langmann
    Advanced in Batten Disease

    Thomas Langmann
    Koeln, NW, DE 

    Thomas Langmann practices practicing medicine in Koeln, Germany. Mr. Langmann is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

    Advanced in Batten Disease

    Paul Saftig
    Advanced in Batten Disease

    Paul Saftig
    Kiel, SH, DE 

    Paul Saftig practices practicing medicine in Kiel, Germany. Mr. Saftig is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN3 Disease, CLN5 Disease, and CLN4 Disease.

    Advanced in Batten Disease

    Rudolf Martini
    Advanced in Batten Disease

    Rudolf Martini
    4Developmental Neurobiology, Josef Schneider Str. 11, 
    Wuerzburg, BY, DE 

    Rudolf Martini practices practicing medicine in Wuerzburg, Germany. Mr. Martini is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Charcot-Marie-Tooth Disease, Batten Disease, CLN1 Disease, and CLN4 Disease.

    Advanced in Batten Disease

    Thomas Braulke
    Advanced in Batten Disease

    Thomas Braulke
    Hamburg, HH, DE 

    Thomas Braulke practices practicing medicine in Hamburg, Germany. Mr. Braulke is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Mucolipidosis 3, Mucolipidosis Type 4, Sialidosis, and CLN3 Disease.

    Advanced in Batten Disease

    Wanda Jankowiak
    Advanced in Batten Disease

    Wanda Jankowiak
    Hamburg, HH, DE 

    Wanda Jankowiak practices practicing medicine in Hamburg, Germany. Ms. Jankowiak is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN5 Disease, CLN1 Disease, and CLN4 Disease.

    Advanced in Batten Disease

    Michael Przybylski
    Advanced in Batten Disease

    Michael Przybylski
    Ruesselsheim, HE, DE 

    Michael Przybylski practices practicing medicine in Ruesselsheim, Germany. Mr. Przybylski is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses CLN1 Disease, CLN4 Disease, CLN5 Disease, and CLN3 Disease.

    Advanced in Batten Disease

    Cornelia Volz
    Advanced in Batten Disease

    Cornelia Volz
    Franz Josef Strauß Allee 11, 
    Regensburg, BY, DE 

    Cornelia Volz practices practicing medicine in Regensburg, Germany. Ms. Volz is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses CLN3 Disease, CLN1 Disease, CLN5 Disease, and CLN4 Disease.

    Advanced in Batten Disease

    Jan Sedlacik
    Advanced in Batten Disease

    Jan Sedlacik
    Hamburg, HH, DE 

    Jan Sedlacik practices practicing medicine in Hamburg, Germany. Sedlacik is rated as an Advanced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses CLN5 Disease, CLN3 Disease, CLN1 Disease, CLN4 Disease, and Thrombectomy.

    Advanced in Batten Disease

    Alessandro Di Spiezio
    Advanced in Batten Disease

    Alessandro Di Spiezio
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Alessandro Di Spiezio practices practicing medicine in Luebeck, Germany. Mr. Di Spiezio is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN2 Disease, CLN5 Disease, and CLN3 Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 256

    Last Updated: 04/28/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Batten Disease doctor in Germany?

    You can find a Batten Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Batten Disease doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in Germany?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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