The 20 Best Batten Disease Doctors Near Me in Hesse, DE

Find the Top Batten Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 61 doctor with experience in Batten Disease near Hesse, DE. Of these, 52 are Experienced, 8 are Advanced and 1 are Distinguished.

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61 providers found
    Distinguished in Batten Disease

    Janos Groh
    Distinguished in Batten Disease

    Janos Groh
    Referral may be required
    Josef Schneider Str. 11, 
    Wuerzburg, BY, DE 

    Janos Groh practices practicing medicine in Wuerzburg, Germany. Mr. Groh is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN4 Disease, CLN3 Disease, and CLN5 Disease.

    Advanced in Batten Disease

    Rudolf Martini
    Advanced in Batten Disease

    Rudolf Martini
    Referral may be required
    4Developmental Neurobiology, Josef Schneider Str. 11, 
    Wuerzburg, BY, DE 

    Rudolf Martini practices practicing medicine in Wuerzburg, Germany. Mr. Martini is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Charcot-Marie-Tooth Disease, Batten Disease, CLN5 Disease, and CLN4 Disease.

    Advanced in Batten Disease

    Cornelia Volz
    Advanced in Batten Disease

    Cornelia Volz
    Referral may be required
    Franz Josef Strauß Allee 11, 
    Regensburg, BY, DE 

    Cornelia Volz practices practicing medicine in Regensburg, Germany. Ms. Volz is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses CLN3 Disease, CLN1 Disease, CLN5 Disease, and CLN4 Disease.

    Learn about our expert tiers
    Advanced in Batten Disease

    Friederike Zunke
    Advanced in Batten Disease

    Friederike Zunke
    Referral may be required
    Erlangen, BY, DE 

    Friederike Zunke practices practicing medicine in Erlangen, Germany. Zunke is rated as an Advanced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses Parkinson's Disease, Movement Disorders, Farber Lipogranulomatosis, and CLN5 Disease.

    Advanced in Batten Disease

    Herbert Jagle
    Advanced in Batten Disease

    Herbert Jagle
    Referral may be required
    Franz Josef Strauss Allee 11, 
    Regensburg, BY, DE 

    Herbert Jagle practices practicing medicine in Regensburg, Germany. Mr. Jagle is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, CLN3 Disease, CLN5 Disease, and Vitrectomy.

    Advanced in Batten Disease

    Claudia S. Priglinger
    Advanced in Batten Disease

    Claudia S. Priglinger
    Referral may be required
    Munich, BY, DE 

    Claudia Priglinger practices practicing medicine in Munich, Germany. Ms. Priglinger is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Cystinosis, CLN4 Disease, and Vitrectomy.

    Advanced in Batten Disease

    Benedikt Grunewald
    Advanced in Batten Disease

    Benedikt Grunewald
    Referral may be required
    Erlanger Allee 101, 07747 Jena, Josef Schneider Str. 11, 
    Wuerzburg, BY, DE 

    Benedikt Grunewald practices practicing medicine in Wuerzburg, Germany. Mr. Grunewald is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Stiff Person Syndrome, CLN3 Disease, CLN5 Disease, and CLN4 Disease.

    Advanced in Batten Disease

    Anna Rosato-Scotto
    Advanced in Batten Disease

    Anna Rosato-Scotto
    Referral may be required
    Munich, BY, DE 

    Anna Rosato-Scotto practices practicing medicine in Munich, Germany. Ms. Rosato-Scotto is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Mucolipidosis Type 4, Mucolipidosis 3, Sialidosis, and CLN5 Disease.

    Advanced in Batten Disease

    Kristina C. Berve
    Advanced in Batten Disease

    Kristina C. Berve
    Referral may be required
    Josef Schneider Str. 11, 
    Wuerzburg, BY, DE 

    Kristina Berve practices practicing medicine in Wuerzburg, Germany. Ms. Berve is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses CLN1 Disease, CLN3 Disease, CLN4 Disease, and CLN5 Disease.

    Experienced in Batten Disease

    Matthias H. Brendel
    Experienced in Batten Disease

    Matthias H. Brendel
    Referral may be required
    Munich, BY, DE 

    Matthias Brendel practices practicing medicine in Munich, Germany. Mr. Brendel is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Progressive Supranuclear Palsy, Progressive Supranuclear Palsy Atypical, Supranuclear Ophthalmoplegia, and Dementia.

    Experienced in Batten Disease

    Christian Haass
    Experienced in Batten Disease

    Christian Haass
    Referral may be required
    Feodor Lynen Str. 17, 
    Munich, BY, DE 

    Christian Haass practices practicing medicine in Munich, Germany. Mr. Haass is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Movement Disorders.

    Experienced in Batten Disease

    Einar K. Krogsaeter
    Experienced in Batten Disease

    Einar K. Krogsaeter
    Referral may be required
    Munich, BY, DE 

    Einar Krogsaeter practices practicing medicine in Munich, Germany. Mr. Krogsaeter is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Mucolipidosis Type 4, CLN5 Disease, CLN4 Disease, and CLN1 Disease.

    Experienced in Batten Disease

    Jan P. Dobert
    Experienced in Batten Disease

    Jan P. Dobert
    Referral may be required
    Erlangen, BY, DE 

    Jan Dobert practices practicing medicine in Erlangen, Germany. Dobert is rated as an Experienced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Farber Lipogranulomatosis, CLN1 Disease, CLN5 Disease, and CLN3 Disease.

    Experienced in Batten Disease

    Alice Drobny
    Experienced in Batten Disease

    Alice Drobny
    Referral may be required
    Erlangen, BY, DE 

    Alice Drobny practices practicing medicine in Erlangen, Germany. Ms. Drobny is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses CLN1 Disease, CLN5 Disease, CLN3 Disease, and CLN4 Disease.

    Experienced in Batten Disease

    Sabina Tahirovic
    Experienced in Batten Disease

    Sabina Tahirovic
    Referral may be required
    Feodor Lynen Str. 17, 
    Munich, BY, DE 

    Sabina Tahirovic practices practicing medicine in Munich, Germany. Ms. Tahirovic is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Dementia, and Alzheimer's Disease.

    Experienced in Batten Disease

    Rachel Tang
    Experienced in Batten Disease

    Rachel Tang
    Referral may be required
    Munich, BY, DE 

    Rachel Tang practices practicing medicine in Munich, Germany. Ms. Tang is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses CLN1 Disease, CLN4 Disease, CLN3 Disease, and CLN5 Disease.

    Experienced in Batten Disease

    Christian H. Werner
    Experienced in Batten Disease

    Christian H. Werner
    Referral may be required
    Prof. Ernst Nathan Str. 1, 
    Nuernberg, BY, DE 

    Christian Werner practices practicing medicine in Nuernberg, Germany. Mr. Werner is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, and Stiff Person Syndrome.

    Experienced in Batten Disease

    Sebastiano Di Bucchianico
    Experienced in Batten Disease

    Sebastiano Di Bucchianico
    Referral may be required
    Neuherberg, BY, DE 

    Sebastiano Di Bucchianico practices practicing medicine in Neuherberg, Germany. Mr. Di Bucchianico is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His clinical expertise encompasses CLN5 Disease, CLN3 Disease, CLN1 Disease, and CLN4 Disease.

    Experienced in Batten Disease

    Esther M. Maier
    Experienced in Batten Disease

    Esther M. Maier
    Referral may be required
    Dr. Von Haunersches Kinderspital, 
    Munich, BY, DE 

    Esther Maier practices practicing medicine in Munich, Germany. Ms. Maier is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Glutaric Acidemia Type 1, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, Mitochondrial Trifunctional Protein Deficiency, and Inborn Amino Acid Metabolism Disorder.

    Experienced in Batten Disease

    Anja Capell
    Experienced in Batten Disease

    Anja Capell
    Referral may be required
    Munich, BY, DE 

    Anja Capell practices practicing medicine in Munich, Germany. Ms. Capell is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Dementia, Alzheimer's Disease, Frontotemporal Dementia, and CLN4 Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 61

    Last Updated: 06/30/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in Hesse, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in Hesse, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Batten Disease doctor in Hesse, DE?

    You can find a Batten Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Batten Disease doctors in Hesse, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in Hesse, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in Hesse, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in Hesse, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in Hesse, DE?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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