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    Last Updated: 01/09/2026

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    MediFind found 50 doctor with experience in Batten Disease near Hamburg, DE. Of these, 34 are Experienced, 6 are Advanced, 6 are Distinguished and 4 are Elite.

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    50 providers found
      Elite in Batten Disease

      Angela Schulz
      Elite in Batten Disease

      Angela Schulz
      Hamburg, HH, DE 

      Angela Schulz practices in Hamburg, Germany. Ms. Schulz is rated as an Elite expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are CLN2 Disease, Batten Disease, CLN1 Disease, and CLN5 Disease.

      Elite in Batten Disease

      Alfried Kohlschutter
      Elite in Batten Disease

      Alfried Kohlschutter
      Martini Str. 52, 
      Hamburg, HH, DE 

      Alfried Kohlschutter practices in Hamburg, Germany. Kohlschutter is rated as an Elite expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are CLN1 Disease, CLN4 Disease, CLN5 Disease, CLN3 Disease, and Bone Marrow Transplant.

      Elite in Batten Disease

      Miriam Nickel
      Elite in Batten Disease

      Miriam Nickel
      Hamburg, HH, DE 

      Miriam Nickel practices in Hamburg, Germany. Ms. Nickel is rated as an Elite expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are CLN2 Disease, Batten Disease, CLN3 Disease, and CLN1 Disease.

      Learn about our expert tiers
      Elite in Batten Disease

      Simon Dulz
      Elite in Batten Disease

      Simon Dulz
      Hamburg, HH, DE 

      Simon Dulz practices in Hamburg, Germany. Mr. Dulz is rated as an Elite expert by MediFind in the treatment of Batten Disease. His top areas of expertise are CLN2 Disease, CLN1 Disease, CLN3 Disease, CLN5 Disease, and Vitrectomy.

      Distinguished in Batten Disease

      Udo Bartsch
      Distinguished in Batten Disease

      Udo Bartsch
      Hamburg, HH, DE 

      Udo Bartsch practices in Hamburg, Germany. Bartsch is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are CLN2 Disease, Batten Disease, CLN1 Disease, and CLN4 Disease.

      Distinguished in Batten Disease

      Christoph Schwering
      Distinguished in Batten Disease

      Christoph Schwering
      Hamburg, HH, DE 

      Christoph Schwering practices in Hamburg, Germany. Mr. Schwering is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. His top areas of expertise are CLN2 Disease, CLN3 Disease, CLN1 Disease, and CLN5 Disease.

      Distinguished in Batten Disease

      Yevgeniya Atiskova
      Distinguished in Batten Disease

      Yevgeniya Atiskova
      Hamburg, HH, DE 

      Yevgeniya Atiskova practices in Hamburg, Germany. Atiskova is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are CLN2 Disease, Batten Disease, CLN1 Disease, and CLN4 Disease.

      Distinguished in Batten Disease

      Martin S. Spitzer
      Distinguished in Batten Disease

      Martin S. Spitzer
      Hamburg, HH, DE 

      Martin Spitzer practices in Hamburg, Germany. Mr. Spitzer is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Retinal Artery Occlusion, Retinal Detachment, CLN2 Disease, Vitrectomy, and Trabeculectomy.

      Distinguished in Batten Disease

      Eva Wibbeler
      Distinguished in Batten Disease

      Eva Wibbeler
      Hamburg, HH, DE 

      Eva Wibbeler practices in Hamburg, Germany. Ms. Wibbeler is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are CLN2 Disease, CLN5 Disease, CLN3 Disease, and CLN1 Disease.

      Distinguished in Batten Disease

      Stephan Storch
      Distinguished in Batten Disease

      Stephan Storch
      Hamburg, HH, DE 

      Stephan Storch practices in Hamburg, Germany. Mr. Storch is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. His top areas of expertise are CLN5 Disease, CLN3 Disease, CLN1 Disease, and CLN4 Disease.

      Advanced in Batten Disease

      Thomas Braulke
      Advanced in Batten Disease

      Thomas Braulke
      Hamburg, HH, DE 

      Thomas Braulke practices in Hamburg, Germany. Mr. Braulke is rated as an Advanced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Mucolipidosis 3, Mucolipidosis Type 4, Sialidosis, and Glutaric Acidemia Type 1.

      Advanced in Batten Disease

      Wanda Jankowiak
      Advanced in Batten Disease

      Wanda Jankowiak
      Hamburg, HH, DE 

      Wanda Jankowiak practices in Hamburg, Germany. Ms. Jankowiak is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Batten Disease, CLN4 Disease, CLN5 Disease, and CLN1 Disease.

      Advanced in Batten Disease

      Jan Sedlacik
      Advanced in Batten Disease

      Jan Sedlacik
      Hamburg, HH, DE 

      Jan Sedlacik practices in Hamburg, Germany. Sedlacik is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are CLN5 Disease, CLN3 Disease, CLN1 Disease, CLN4 Disease, and Thrombectomy.

      Advanced in Batten Disease

      Jens Fiehler
      Advanced in Batten Disease

      Jens Fiehler
      Hamburg, HH, DE 

      Jens Fiehler practices in Hamburg, Germany. Mr. Fiehler is rated as an Advanced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Stroke, Brain Aneurysm, Subdural Hematoma, Thrombectomy, and Stent Placement.

      Advanced in Batten Disease

      Susanne Lezius
      Advanced in Batten Disease

      Susanne Lezius
      Hamburg, HH, DE 

      Susanne Lezius practices in Hamburg, Germany. Ms. Lezius is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are CLN2 Disease, Batten Disease, CLN1 Disease, Heart Valve Repair, and Kidney Transplant.

      Advanced in Batten Disease

      Christian Hagel
      Advanced in Batten Disease

      Christian Hagel
      Hamburg, HH, DE 

      Christian Hagel practices in Hamburg, Germany. Mr. Hagel is rated as an Advanced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Malignant Peripheral Nerve Sheath Tumor, and Rhabdoid Tumor Predisposition Syndrome.

      Robin Kobbe
      Experienced in Batten Disease

      Robin Kobbe
      Experienced in Batten Disease

      Robin Kobbe
      Bernhard Nocht Str 74, 
      Hamburg, HH, DE 

      Robin Kobbe practices in Hamburg, Germany. Mr. Kobbe is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Primary Immunodeficiency (PID), Common Variable Immune Deficiency, Pediatric Myocarditis, and Severe Acute Respiratory Syndrome (SARS).

      Experienced in Batten Disease

      Lena M. Westermann
      Experienced in Batten Disease

      Lena M. Westermann
      Hamburg, HH, DE 

      Lena Westermann practices in Hamburg, Germany. Ms. Westermann is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Mucolipidosis Type 4, Sialidosis, Mucolipidosis 3, and CLN2 Disease.

      Experienced in Batten Disease

      Michaela Schweizer
      Experienced in Batten Disease

      Michaela Schweizer
      Hamburg, HH, DE 

      Michaela Schweizer practices in Hamburg, Germany. Ms. Schweizer is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Sialidosis, Mucolipidosis 3, Mucolipidosis Type 4, and Glutaric Acidemia Type 1.

      Experienced in Batten Disease

      Herman Van Der Putten
      Experienced in Batten Disease

      Herman Van Der Putten
      Hamburg, HH, DE 

      Herman Van Der Putten practices in Hamburg, Germany. Mr. Van Der Putten is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Retinal Vasculopathy with Cerebral Leukodystrophy, CLN5 Disease, CLN4 Disease, and CLN3 Disease.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 50

      Last Updated: 01/09/2026

      What is the definition of Batten Disease?

      Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

      These are the three main types of NCL:

      • Adult (Kufs or Parry disease)
      • Juvenile (Batten disease)
      • Late infantile (Jansky-Bielschowsky disease)

      When should I see a Batten Disease doctor in Hamburg, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Batten Disease doctor in Hamburg, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Batten Disease doctor in Hamburg, DE?

      You can find a Batten Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      Batten Disease doctor near San Jose, CA

      How does MediFind rank Batten Disease doctors in Hamburg, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Batten Disease doctors in Hamburg, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Batten Disease doctor in Hamburg, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

      Why is it important to get a second opinion from a different Batten Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Batten Disease doctor in Hamburg, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Batten Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Batten Disease doctors in Hamburg, DE?

      Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Batten Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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