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    Last Updated: 01/09/2026

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    MediFind found 93 doctor with experience in Batten Disease near France. Of these, 91 are Experienced and 2 are Advanced.

    Location
    LocationClose
    93 providers found
      Advanced in Batten Disease
      Advanced in Batten Disease
      Paris, FR 

      Stephane Auvin practices in Paris, France. Ms. Auvin is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Myoclonic Epilepsy, Epilepsy, Lennox-Gastaut Syndrome (LGS), and Epilepsy with Myoclonic-Atonic Seizures.

      Advanced in Batten Disease
      Advanced in Batten Disease
      Paris, FR 

      Catherine Caillaud practices in Paris, France. Ms. Caillaud is rated as an Advanced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Gangliosidosis, Sandhoff Disease, Pompe Disease, Tay-Sachs Disease, and Kidney Transplant.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Paris, FR 

      Isabelle Desguerre practices in Paris, France. Ms. Desguerre is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, Duchenne Muscular Dystrophy, Gastrostomy, and Spinal Fusion.

      Learn about our expert tiers
      Experienced in Batten Disease
      Experienced in Batten Disease
      Nantes, FR 

      Helene Boudin practices in Nantes, France. Ms. Boudin is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are CLN3 Disease, CLN5 Disease, CLN1 Disease, and CLN4 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Lille, FR 

      Vasily Smirnov practices in Lille, France. Mr. Smirnov is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Cone-Rod Dystrophy, X-Linked Congenital Stationary Night Blindness, and Late-Onset Retinal Degeneration.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Paris, FR 

      Benedicte Heron-Longe practices in Paris, France. Ms. Heron-Longe is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Niemann-Pick Disease, Mucopolysaccharidoses (MPS), and Non-Langerhans-Cell Histiocytosis.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Bordeaux, FR 

      Benjamin Dehay practices in Bordeaux, France. Mr. Dehay is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Movement Disorders, Parkinson's Disease, Multiple System Atrophy, and Familial Dysautonomia.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Bordeaux, FR 

      Erwan Bezard practices in Bordeaux, France. Mr. Bezard is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Parkinson's Disease, Movement Disorders, Drug Induced Dyskinesia, Multiple System Atrophy, and Deep Brain Stimulation.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Paris, FR 

      Catherine Delanoe practices in Paris, France. Ms. Delanoe is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Epilepsy in Children, Lennox-Gastaut Syndrome (LGS), Epilepsy, and CLN5 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Paris, FR 

      Hala Nasser practices in Paris, France. Nasser is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are Microcephaly Deafness Syndrome, Transcobalamin Deficiency, CLN5 Disease, and CLN3 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Paris, FR 

      Samia Pichard practices in Paris, France. Ms. Pichard is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Tyrosinemia Type 1, Gaucher Disease, Pompe Disease, Propionic Acidemia, and Splenectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Marseille, FR 

      Celia Hoebeke practices in Marseille, France. Ms. Hoebeke is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Reye Syndrome, Mitochondrial Complex 3 Deficiency, Lactic Acidosis, Rhabdomyolysis, and Splenectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Nouzilly, FR 

      Matthieu Keller practices in Nouzilly, France. Mr. Keller is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Hereditary Resistance to Anti-Vitamin K, CLN1 Disease, CLN4 Disease, Oophorectomy, and Orchiectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Montpellier, FR 

      Isabelle Meunier practices in Montpellier, France. Ms. Meunier is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Adult-Onset Vitelliform Macular Dystrophy (AVMD), and Late-Onset Retinal Degeneration.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Paris, FR 

      Antoinette Gelot practices in Paris, France. Ms. Gelot is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Periventricular Heterotopia, Focal or Multifocal Malformations in Neuronal Migration, Subacute Sclerosing Panencephalitis, and Cortical Dysplasia.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Paris, FR 

      Ludger Johannes practices in Paris, France. Mr. Johannes is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Mucolipidosis Type 4, CLN3 Disease, CLN4 Disease, and CLN5 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Paris, FR 

      Nathalie Boddaert practices in Paris, France. Ms. Boddaert is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Cortical Dysplasia, Polymicrogyria, Achalasia Microcephaly Syndrome, Microcephaly, and Hormone Replacement Therapy (HRT).

      Experienced in Batten Disease
      Experienced in Batten Disease
      Nouzilly, FR 

      Arsene Ella practices in Nouzilly, France. Mr. Ella is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are CLN1 Disease, CLN4 Disease, CLN3 Disease, and CLN5 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Lille, FR 

      Sabine Dhellemmes-Defoort practices in Lille, France. Ms. Dhellemmes-Defoort is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Optic Nerve Atrophy, Late-Onset Retinal Degeneration, X-Linked Infantile Nystagmus, and Cone-Rod Dystrophy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Marseille, FR 

      Brigitte Chabrol practices in Marseille, France. Ms. Chabrol is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Spinal Muscular Atrophy Type 1, Argininosuccinic Aciduria, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy Type 3, and Gastrostomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 93

      Last Updated: 01/09/2026

      What is the definition of Batten Disease?

      Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

      These are the three main types of NCL:

      • Adult (Kufs or Parry disease)
      • Juvenile (Batten disease)
      • Late infantile (Jansky-Bielschowsky disease)

      When should I see a Batten Disease doctor in France?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Batten Disease doctor in France?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Batten Disease doctors in France?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Batten Disease doctors in France?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Batten Disease doctor in France?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

      Why is it important to get a second opinion from a different Batten Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Batten Disease doctor in France?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Batten Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Batten Disease doctors in France?

      Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Batten Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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