The 20 Best Batten Disease Doctors in The United Kingdom

Find the Top Batten Disease Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 227 doctor with experience in Batten Disease near The United Kingdom. Of these, 204 are Experienced, 19 are Advanced, 2 are Distinguished and 2 are Elite.

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227 providers found
    Elite in Batten Disease
    Elite in Batten Disease
    Referral may be required
    London, ENG, GB 

    Sara Mole practices practicing medicine in London, United Kingdom. Ms. Mole is rated as an Elite expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses CLN2 Disease, CLN1 Disease, CLN4 Disease, and CLN5 Disease.

    Elite in Batten Disease
    Elite in Batten Disease
    Referral may be required
    Great Ormond Street Hospital Biomedical Research Centre, 
    London, ENG, GB 

    Paul Gissen practices practicing medicine in London, United Kingdom. Mr. Gissen is rated as an Elite expert by MediFind in the treatment of Batten Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses CLN2 Disease, Argininosuccinic Aciduria, CLN4 Disease, CLN3 Disease, and Liver Transplant.

    Distinguished in Batten Disease
    Distinguished in Batten Disease
    Referral may be required
    London, ENG, GB 

    Robert Henderson practices practicing medicine in London, United Kingdom. Mr. Henderson is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Familial Exudative Vitreoretinopathy, Batten Disease, CLN1 Disease, CLN3 Disease, and Vitrectomy.

    Learn about our expert tiers
    Distinguished in Batten Disease
    Distinguished in Batten Disease
    Referral may be required
    George Square, 
    Edinburgh, SCT, GB 

    Thomas Wishart practices practicing medicine in Edinburgh, United Kingdom. Mr. Wishart is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    11-43 Bath Street, 
    London, ENG, GB 

    Robin Ali practices practicing medicine in London, United Kingdom. Ali is rated as an Advanced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 13 other conditions, according to our data. Their clinical expertise encompasses Leber Congenital Amaurosis, Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, and Retinitis Pigmentosa.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    London, ENG, GB 

    Sophia-martha Holthaus-Kleine practices practicing medicine in London, United Kingdom. Holthaus-Kleine is rated as an Advanced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Batten Disease, CLN3 Disease, CLN5 Disease, and CLN4 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Henry Houlden practices practicing medicine in London, United Kingdom. Mr. Houlden is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 131 other conditions, according to our data. His clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Movement Disorders, Gastrostomy, and Deep Brain Stimulation.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    London, ENG, GB 

    Ahad Rahim practices practicing medicine in London, United Kingdom. Mr. Rahim is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Gaucher Disease, Niemann-Pick Disease, Batten Disease, and CLN1 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    London, ENG, GB 

    Ruth Williams practices practicing medicine in London, United Kingdom. Ms. Williams is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN1 Disease, CLN4 Disease, and CLN3 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Kempston Road, 
    Bedford, ENG, GB 

    James Wawrzynski practices practicing medicine in Bedford, United Kingdom. Mr. Wawrzynski is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Norrie Disease, Batten Disease, CLN1 Disease, Vitrectomy, and Cataract Removal.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    De Crespigny Park, 
    London, ENG, GB 

    Claire Russell practices practicing medicine in London, United Kingdom. Ms. Russell is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN5 Disease, CLN3 Disease, and CLN1 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Cardiff, WLS, GB 

    Hannah Best practices practicing medicine in Cardiff, United Kingdom. Ms. Best is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN4 Disease, CLN3 Disease, and CLN1 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Edinburgh, SCT, GB 

    Samantha Eaton practices practicing medicine in Edinburgh, United Kingdom. Ms. Eaton is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN5 Disease, CLN3 Disease, and CLN4 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Chester Street, 
    Manchester, ENG, GB 

    Tristan Mckay practices practicing medicine in Manchester, United Kingdom. Mr. Mckay is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN4 Disease, CLN3 Disease, and CLN5 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Liverpool, ENG, GB 

    Alan Morgan practices practicing medicine in Liverpool, United Kingdom. Mr. Morgan is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Batten Disease, CLN1 Disease, CLN5 Disease, and CLN3 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    London, ENG, GB 

    Richard Bowman practices practicing medicine in London, United Kingdom. Mr. Bowman is rated as an Advanced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Retinoblastoma, Craniofrontonasal Dysplasia, Anton Syndrome, Trabeculectomy, and Osteotomy.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    30 Guilford Street, WC1N 1EH, 
    London, ENG, GB 

    Philippa Mills practices practicing medicine in London, United Kingdom. Ms. Mills is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Argininosuccinic Aciduria, Urea Cycle Disorders (UCD), Orotic Aciduria Type 1, and Pyridoxine Deficiency.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Mansfield Road, 
    Oxford, ENG, GB 

    Frances Platt practices practicing medicine in Oxford, United Kingdom. Ms. Platt is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Niemann-Pick Disease, Sandhoff Disease, Non-Langerhans-Cell Histiocytosis, and Reticulohistiocytoma.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    London, ENG, GB 

    Wenfei Liu practices practicing medicine in London, United Kingdom. Liu is rated as an Advanced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Batten Disease, CLN5 Disease, CLN3 Disease, and CLN1 Disease.

    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required
    Great Ormond Street Hospital For Children NHS Foundation Trust, 
    London, ENG, GB 

    Ulrike Lobel practices practicing medicine in London, United Kingdom. Ms. Lobel is rated as an Advanced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Mosaicism, Batten Disease, CLN3 Disease, and CLN5 Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 227

    Last Updated: 09/26/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Batten Disease doctor in The United Kingdom?

    You can find a Batten Disease doctor in any of the 10 largest U.S. cities by clicking below:

    Batten Disease doctor near New York, NY
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    Batten Disease doctor near Boston, MA
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    Batten Disease doctor near San Jose, CA

    How does MediFind rank Batten Disease doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in The United Kingdom?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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