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    Last Updated: 10/30/2025

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    MediFind found 50 doctor with experience in Batten Disease near Netherlands. Of these, 48 are Experienced, 1 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    50 providers found
      Distinguished in Batten Disease
      Distinguished in Batten Disease
      Utrecht, UT, NL 

      Willemijn Kuper practices in Utrecht, Netherlands. Kuper is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are CLN3 Disease, CLN4 Disease, CLN5 Disease, and CLN1 Disease.

      Advanced in Batten Disease
      Advanced in Batten Disease
      Utrecht, UT, NL 

      Peter Van Hasselt practices in Utrecht, Netherlands. Mr. Van Hasselt is rated as an Advanced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Metachromatic Leukodystrophy, Leukodystrophy, Osteotomy, and Bone Marrow Transplant.

      Carel B. Hoyng
      Experienced in Batten Disease
      Experienced in Batten Disease
      Nijmegen, GE, NL 

      Carel Hoyng practices in Nijmegen, Netherlands. Hoyng is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are Late-Onset Retinal Degeneration, Stargardt Macular Degeneration, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Trabeculectomy.

      Learn about our expert tiers
      Experienced in Batten Disease
      Experienced in Batten Disease
      Utrecht, UT, NL 

      Maria Van Genderen practices in Utrecht, Netherlands. Ms. Van Genderen is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Ocular Albinism, Late-Onset Retinal Degeneration, Albinism, and X-Linked Congenital Stationary Night Blindness.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Amersfoort, UT, NL 

      Lourens Nonkes practices in Amersfoort, Netherlands. Nonkes is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are CLN2 Disease, CLN3 Disease, CLN4 Disease, and CLN1 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Utrecht, UT, NL 

      Edward Nieuwenhuis practices in Utrecht, Netherlands. Mr. Nieuwenhuis is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Microvillus Inclusion Disease, Mucolipidosis Type 4, Mucolipidosis 3, Thymectomy, and Liver Transplant.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Utrecht, UT, NL 

      Albert Huisman practices in Utrecht, Netherlands. Mr. Huisman is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Blood Clots, Antiphospholipid Syndrome, Primary Lateral Sclerosis, and Hemophilia A.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Zeist, UT, NL 

      Mary Van Schooneveld practices in Zeist, Netherlands. Ms. Van Schooneveld is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, and Blue Cone Monochromatism.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Rotterdam, ZH, NL 

      Hidde Huidekoper practices in Rotterdam, Netherlands. Huidekoper is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are Xanthoma, Cerebrotendinous Xanthomatosis, Galactokinase Deficiency, and Classic Galactosemia.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Groningen, GR, NL 

      Barbara Huijgen practices in Groningen, Netherlands. Ms. Huijgen is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are CLN3 Disease, CLN4 Disease, CLN1 Disease, and CLN5 Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease

      Erasmus MC

      Rotterdam, ZH, NL 

      Guido Breedveld practices in Rotterdam, Netherlands. Mr. Breedveld is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Movement Disorders, Parkinson's Disease, Lewy Body Dementia (LBD), and Hallervorden-Spatz Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Utrecht, UT, NL 

      Dorothee Trenite-Nolst practices in Utrecht, Netherlands. Ms. Trenite-Nolst is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Photosensitive Epilepsy, Myoclonic Epilepsy, Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Leiden, ZH, NL 

      Jessica Karuntu practices in Leiden, Netherlands. Ms. Karuntu is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Zellweger Syndrome.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Utrecht, UT, NL 

      Erik Olsman practices in Utrecht, Netherlands. Mr. Olsman is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top area of expertise is Batten Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Amsterdam, NH, NL 

      Camiel Boon practices in Amsterdam, Netherlands. Mr. Boon is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Central Serous Chorioretinopathy, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and Vitrectomy.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Leiden, ZH, NL 

      Herman Overkleeft practices in Leiden, Netherlands. Mr. Overkleeft is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Farber Lipogranulomatosis, Gaucher Disease, Multiple Myeloma, and Fabry Disease.

      Experienced in Batten Disease
      Experienced in Batten Disease

      Erasmus MC

      Rotterdam, ZH, NL 

      Giovanni Stevanin practices in Rotterdam, Netherlands. Mr. Stevanin is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Spastic Paraplegia Type 7, Paraplegia, Spasticity, and Acute Cerebellar Ataxia.

      Experienced in Batten Disease
      Experienced in Batten Disease

      Erasmus MC

      Rotterdam, ZH, NL 

      Jochem Spoor practices in Rotterdam, Netherlands. Spoor is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Their top areas of expertise are Myelomeningocele, Increased Intracranial Pressure, Lennox-Gastaut Syndrome (LGS), Endoscopy, and Awake Craniotomy.

      Experienced in Batten Disease
      Experienced in Batten Disease

      Erasmus MC

      Rotterdam, ZH, NL 

      Alexis Brice practices in Rotterdam, Netherlands. Ms. Brice is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her top areas of expertise are Acute Cerebellar Ataxia, Spastic Paraplegia Type 7, Spasticity, Paraplegia, and Deep Brain Stimulation.

      Experienced in Batten Disease
      Experienced in Batten Disease
      Amsterdam, NH, NL 

      Arthur Bergen practices in Amsterdam, Netherlands. Mr. Bergen is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His top areas of expertise are Gyrate Atrophy of the Choroid and Retina, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and Retinopathy Pigmentary Mental Retardation.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 50

      Last Updated: 10/30/2025

      What is the definition of Batten Disease?

      Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

      These are the three main types of NCL:

      • Adult (Kufs or Parry disease)
      • Juvenile (Batten disease)
      • Late infantile (Jansky-Bielschowsky disease)

      When should I see a Batten Disease doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Batten Disease doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Batten Disease doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Batten Disease doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Batten Disease doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

      Why is it important to get a second opinion from a different Batten Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Batten Disease doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Batten Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Batten Disease doctors in Netherlands?

      Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Batten Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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