The 20 Best Batten Disease Doctors in Netherlands

Find the Top Batten Disease Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 56 doctor with experience in Batten Disease near Netherlands. Of these, 54 are Experienced and 2 are Distinguished.

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56 providers found
    Distinguished in Batten Disease
    Distinguished in Batten Disease
    Referral may be required
    Utrecht, UT, NL 

    Peter Van Hasselt practices practicing medicine in Utrecht, Netherlands. Mr. Van Hasselt is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Metachromatic Leukodystrophy, Leukodystrophy, Osteotomy, and Bone Marrow Transplant.

    Distinguished in Batten Disease
    Distinguished in Batten Disease
    Referral may be required
    Utrecht, UT, NL 

    Willemijn Kuper practices practicing medicine in Utrecht, Netherlands. Kuper is rated as a Distinguished expert by MediFind in the treatment of Batten Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses CLN1 Disease, CLN2 Disease, CLN3 Disease, and CLN4 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Nijmegen, GE, NL 

    Carel Hoyng practices practicing medicine in Nijmegen, Netherlands. Hoyng is rated as an Experienced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 21 other conditions, according to our data. Their clinical expertise encompasses Late-Onset Retinal Degeneration, Stargardt Macular Degeneration, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Trabeculectomy.

    Learn about our expert tiers
    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Utrecht, UT, NL 

    Maria Van Genderen practices practicing medicine in Utrecht, Netherlands. Ms. Van Genderen is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Ocular Albinism, Late-Onset Retinal Degeneration, Albinism, Hermansky-Pudlak Syndrome, and Vitrectomy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Amersfoort, UT, NL 

    Lourens Nonkes practices practicing medicine in Amersfoort, Netherlands. Nonkes is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Their clinical expertise encompasses CLN5 Disease, CLN1 Disease, CLN4 Disease, and CLN3 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Waalwijk, NB, NL 

    Koen Santifort practices practicing medicine in Waalwijk, Netherlands. Mr. Santifort is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Syringomyelia, Cerebellum Agenesis Hydrocephaly, Hydranencephaly, Paraplegia, and Laminectomy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Amsterdam, NH, NL 

    Mary Van Schooneveld practices practicing medicine in Amsterdam, Netherlands. Ms. Van Schooneveld is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Blue Cone Monochromatism, and Vitrectomy.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Rotterdam, ZH, NL 

    Hidde Huidekoper practices practicing medicine in Rotterdam, Netherlands. Huidekoper is rated as an Experienced expert by MediFind in the treatment of Batten Disease. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Xanthoma, Cerebrotendinous Xanthomatosis, Classic Galactosemia, and Galactokinase Deficiency.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Utrecht, UT, NL 

    Edward Nieuwenhuis practices practicing medicine in Utrecht, Netherlands. Mr. Nieuwenhuis is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Microvillus Inclusion Disease, Sialidosis, Mucolipidosis Type 4, Mucolipidosis 3, and Liver Transplant.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Nijmegen, GE, NL 

    Daan Panneman practices practicing medicine in Nijmegen, Netherlands. Mr. Panneman is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Leber Congenital Amaurosis, and Late-Onset Retinal Degeneration.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Uppsalalaan 8, 3584, CT, 
    Utrecht, UT, NL 

    Sabine Fuchs practices practicing medicine in Utrecht, Netherlands. Ms. Fuchs is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Protein Deficiency, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, Rhabdomyolysis, Hepato-Pancreato-Biliary Surgery, and Liver Transplant.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Groningen, GR, NL 

    Barbara Huijgen practices practicing medicine in Groningen, Netherlands. Ms. Huijgen is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses CLN3 Disease, CLN1 Disease, CLN2 Disease, and CLN5 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Utrecht, UT, NL 

    Albert Huisman practices practicing medicine in Utrecht, Netherlands. Mr. Huisman is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Blood Clots, Antiphospholipid Syndrome, Platelet Storage Pool Deficiency, and Thrombocytopenia.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Utrecht, UT, NL 

    Dorothee Trenite-Nolst practices practicing medicine in Utrecht, Netherlands. Ms. Trenite-Nolst is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Photosensitive Epilepsy, Myoclonic Epilepsy, Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Utrecht, UT, NL 

    Erik Olsman practices practicing medicine in Utrecht, Netherlands. Mr. Olsman is rated as an Experienced expert by MediFind in the treatment of Batten Disease. His clinical expertise encompasses Batten Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Leiden, ZH, NL 

    Jessica Karuntu practices practicing medicine in Leiden, Netherlands. Ms. Karuntu is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Zellweger Syndrome.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Eindhoven, NB, NL 

    Yue Sun practices practicing medicine in Eindhoven, Netherlands. Sun is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Their clinical expertise encompasses CLN4 Disease, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Alexis Brice practices practicing medicine in Rotterdam, Netherlands. Ms. Brice is rated as an Experienced expert by MediFind in the treatment of Batten Disease. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Acute Cerebellar Ataxia, Spastic Paraplegia Type 7, Paraplegia, Spasticity, and Deep Brain Stimulation.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Leiden, ZH, NL 

    Herman Overkleeft practices practicing medicine in Leiden, Netherlands. Mr. Overkleeft is rated as an Experienced expert by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Farber Lipogranulomatosis, Gaucher Disease, Fabry Disease, and Phosphoglycerate Mutase Deficiency.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required
    Nijmegen, GE, NL 

    Marlies Oostendorp practices practicing medicine in Nijmegen, Netherlands. Ms. Oostendorp is rated as an Experienced expert by MediFind in the treatment of Batten Disease. Her clinical expertise encompasses Transient Familial Hyperbilirubinemia, Newborn Jaundice, Lactic Acidosis, and CLN2 Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 56

    Last Updated: 11/08/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Batten Disease doctor in Netherlands?

    You can find a Batten Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    Batten Disease doctor near San Jose, CA

    How does MediFind rank Batten Disease doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in Netherlands?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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