The 20 Best Batten Disease Doctors Near Me in Massachusetts, US

Find the Top Batten Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 27 doctor with experience in Batten Disease near Massachusetts, US. Of these, 25 are Experienced and 2 are Advanced.

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27 providers found
    Experienced in Batten Disease
    Experienced in Batten Disease
    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Coral Stredny is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Stredny is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 36 other conditions, according to our data. Her clinical expertise encompasses Seizures, Anti-NMDA Receptor Encephalitis, Encephalitis, and Epilepsy. Dr. Stredny is board certified in Neurology With Special Qualifications In Child Neurology and Clinical Neurophysiology.

    Experienced in Batten Disease
    Experienced in Batten Disease

    C H Neurology Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Phillip Pearl is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Pearl is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 41 other conditions, according to our data. His clinical expertise encompasses Succinic Semialdehyde Dehydrogenase Deficiency, Epilepsy, Epilepsy in Children, and Seizures. Dr. Pearl is board certified in Pediatrics, Neurology With Special Qualifications In Child Neurology, Clinical Neurophysiology, Neurodevelopmental Disabilities, and Epilepsy.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Jeffrey Bolton is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Bolton is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 49 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, Epilepsy in Children, and Generalized Tonic-Clonic Seizure.

    Learn about our expert tiers
    Experienced in Batten Disease
    Experienced in Batten Disease

    Boston Univ. Dermatology Inc.

    725 Albany St Ste 7B, 
    Boston, MA 
    Experience:
    18+ years
    Languages Spoken:
    English
    Offers Telehealth

    Myriam Abdennadher is a Neurologist practicing medicine in Boston, Massachusetts. She has been practicing medicine for over 18 years. Dr. Abdennadher is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Absence Seizure.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Annapurna Poduri is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Poduri is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 52 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, West Syndrome, Cortical Dysplasia, and Polymicrogyria.

    Advanced in Batten Disease
    Pediatric Neurology
    Advanced in Batten Disease
    Pediatric Neurology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Ariane Soldatos is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Soldatos is rated as an Advanced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, West Syndrome, CLN4 Disease, CLN1 Disease, and Deep Brain Stimulation.

    Advanced in Batten Disease
    Medical Genetics
    Advanced in Batten Disease
    Medical Genetics

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Lance Rodan is a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Rodan is rated as an Advanced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 172 other conditions, according to our data. His clinical expertise encompasses Polymicrogyria, Hennekam Syndrome, Increased Head Circumference, and Cortical Dysplasia.

    Experienced in Batten Disease
    Pediatric Neurology | Neurology
    Experienced in Batten Disease
    Pediatric Neurology | Neurology

    C H Neurology Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Darius Ebrahimi-Fakhari is a Pediatric Neurologist and a Neurologist practicing medicine in Boston, Massachusetts. Dr. Ebrahimi-Fakhari is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Chorea, Spastic Paraplegia Type 4, and Troyer Syndrome. Dr. Ebrahimi-Fakhari is currently accepting new patients.

    Experienced in Batten Disease
    Pediatrics
    Experienced in Batten Disease
    Pediatrics

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Janet Soul is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Soul is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 53 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy in Children, Absence Seizure, and Generalized Tonic-Clonic Seizure.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Kerri Larovere is a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Larovere is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Multisystem Inflammatory Syndrome in Children (MIS-C), Epilepsy in Children, Infant Epilepsy with Migrant Focal Crisis, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in Batten Disease
    Pediatric Neurology
    Experienced in Batten Disease
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Melissa Tsuboyama is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Tsuboyama is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 44 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy, Succinic Semialdehyde Dehydrogenase Deficiency, and Cerebellar Hypoplasia.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Christelle Moufawadelachkar is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Moufawadelachkar is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Photosensitive Epilepsy, Infant Epilepsy with Migrant Focal Crisis, Epilepsy in Children, and Seizures.

    Experienced in Batten Disease
    Experienced in Batten Disease
    55 Fruit St, Vbk 915, 
    Boston, MA 
    Languages Spoken:
    English

    Timothy Yu is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Yu is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Periventricular Heterotopia, Schizencephaly, Autism Spectrum Disorder, and Achalasia Microcephaly Syndrome.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Alexander Rotenberg is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Rotenberg is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Seizures, Succinic Semialdehyde Dehydrogenase Deficiency, Epilepsy, Generalized Tonic-Clonic Seizure, and Deep Brain Stimulation.

    Experienced in Batten Disease
    Medical Genetics
    Experienced in Batten Disease
    Medical Genetics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Olaf Bodamer is a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Bodamer is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Kabuki Syndrome, Classic Galactosemia, Niemann-Pick Disease, and Microcephaly. Dr. Bodamer is currently accepting new patients.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Karen Stannard is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Stannard is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Spasmus Nutans, Stereotypic Movement Disorder, Seizures, and Memory Loss.

    Experienced in Batten Disease
    Medical Genetics | Pediatrics
    Experienced in Batten Disease
    Medical Genetics | Pediatrics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Sacharow is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 158 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Experienced in Batten Disease
    Experienced in Batten Disease

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Stephanie Donatelli is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Donatelli is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Epilepsy, Epilepsy in Children, and Seizures.

    Experienced in Batten Disease
    Pediatric Neurology
    Experienced in Batten Disease
    Pediatric Neurology

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Anna Pinto is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Pinto is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 48 other conditions, according to our data. Her clinical expertise encompasses Sturge-Weber Syndrome, Parkes Weber Syndrome, Seizures, and Epilepsy in Children.

    Experienced in Batten Disease
    Pediatric Neurology
    Experienced in Batten Disease
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Sara Trowbridge is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Trowbridge is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Seizures, Myoclonic Epilepsy, and Memory Loss.

    Showing 1-20 of 27

    Last Updated: 04/28/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Batten Disease doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in Massachusetts, US?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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