The 20 Best Batten Disease Doctors Near Me in Texas, US

Find the Top Batten Disease Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 16 doctor with experience in Batten Disease near Texas, US. Of these, 12 are Experienced, 2 are Advanced and 2 are Distinguished.

Location
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16 providers found
    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required

    Baylor College Of Medicine Medical Center

    7200 Cambridge St., Ste 9A, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joseph Jankovic is a Neurologist practicing medicine in Houston, Texas. Dr. Jankovic is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Benign Essential Blepharospasm, Drug Induced Dyskinesia, Movement Disorders, Torticollis, and Deep Brain Stimulation. Dr. Jankovic is currently accepting new patients.

    Distinguished in Batten Disease
    Neurology | Pediatrics
    Distinguished in Batten Disease
    Neurology | Pediatrics
    Referral may be required

    UT Southwestern - Neurology

    5323 Harry Hines Blvd., 
    Dallas, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Saima Kayani is a Neurologist and a Pediatrics provider practicing medicine in Dallas, Texas. Dr. Kayani is rated as a Distinguished provider by MediFind in the treatment of Batten Disease. She is also highly rated in 142 other conditions, according to our data. Her clinical expertise encompasses Leigh Syndrome, Batten Disease, CLN3 Disease, and CLN4 Disease. Dr. Kayani is currently accepting new patients.

    Distinguished in Batten Disease
    Pediatric Neurology
    Distinguished in Batten Disease
    Pediatric Neurology
    Referral may be required

    University Of Texas Southwestern Medical Center

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English

    Berge Minassian is a Pediatric Neurologist practicing medicine in Dallas, Texas. Dr. Minassian is rated as a Distinguished provider by MediFind in the treatment of Batten Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Epilepsy, and Batten Disease.

    Learn about our expert tiers
    Advanced in Batten Disease
    Advanced in Batten Disease
    Referral may be required

    University Of Texas Southwestern Medical Center

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Benjamin Greenberg is a Neurologist practicing medicine in Dallas, Texas. Dr. Greenberg is rated as an Advanced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Transverse Myelitis, Optic Neuritis, Neuromyelitis Optica, and Multiple Sclerosis (MS).

    Advanced in Batten Disease
    Pediatric Neurology
    Advanced in Batten Disease
    Pediatric Neurology
    Referral may be required

    Texas Childrens Hospital

    6621 Fannin St, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Gary Clark is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Clark is rated as an Advanced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Seizures, Cortical Dysplasia, Orofaciodigital Syndrome 6, and Lissencephaly 2. Dr. Clark is currently accepting new patients.

    Experienced in Batten Disease
    Pediatric Neurology
    Experienced in Batten Disease
    Pediatric Neurology
    Referral may be required
    17520 W Grand Pkwy S, Ste 120, 
    Sugar Land, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Shaun Varghese is a Pediatric Neurologist practicing medicine in Sugar Land, Texas. Dr. Varghese is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Autism Spectrum Disorder, and Transient Tic Disorder. Dr. Varghese is currently accepting new patients.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral required

    Baylor College Of Medicine

    7200 Cambridge St, Fl 9, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Joshua Shulman is a Neurologist practicing medicine in Houston, Texas. Dr. Shulman is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Parkinson's Disease, Movement Disorders, Alzheimer's Disease, and Dementia. Dr. Shulman is currently accepting new patients.

    Experienced in Batten Disease
    Pediatric Neurology | Pediatrics | Neurology
    Experienced in Batten Disease
    Pediatric Neurology | Pediatrics | Neurology
    Referral may be required

    Texas Health Care, P.L.L.C.

    400 E John Carpenter Fwy, 
    Irving, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Andrea Lowden is a Pediatric Neurologist and a Pediatrics provider practicing medicine in Irving, Texas. Dr. Lowden is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Memory Loss. Dr. Lowden is board certified in Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology and Psychiatry- American Board Of Psychiatry And Neurology. Dr. Lowden is currently accepting new patients.

    Experienced in Batten Disease
    Neurology | Neuromusculoskeletal Medicine | Holistic Medicine
    Experienced in Batten Disease
    Neurology | Neuromusculoskeletal Medicine | Holistic Medicine
    Referral may be required

    UT Southwestern - Dept Of Pediatric Neurology

    5323 Harry Hines Blvd, 
    Dallas, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Kaitlin Batley is a Neurologist and a Neuromusculoskeletal Medicine provider practicing medicine in Dallas, Texas. Ms. Batley is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 42 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Dysferlinopathy, Congenital Myasthenic Syndrome, Amyotonia Congenita, and Thymectomy. Ms. Batley is currently accepting new patients.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required

    Cook Children's Neurosciences

    1500 Cooper St, 4th Fl, 
    Fort Worth, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Acord is a Neurologist practicing medicine in Fort Worth, Texas. Dr. Acord is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Alternating Hemiplegia of Childhood, Hyperkalemic Periodic Paralysis, Andersen-Tawil Syndrome, and Deep Brain Stimulation. Dr. Acord is currently accepting new patients.

    Experienced in Batten Disease
    Medical Genetics
    Experienced in Batten Disease
    Medical Genetics
    Referral may be required

    Office

    1102 Bates Ave Ste 830, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    James Versalovic is a Medical Genetics provider practicing medicine in Houston, Texas. Dr. Versalovic is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 100 other conditions, according to our data. His clinical expertise encompasses Hereditary Spherocytosis, Hereditary Neuroblastoma, Primary Ciliary Dyskinesia (PCD), and Smith-Kingsmore Syndrome. Dr. Versalovic is currently accepting new patients.

    Experienced in Batten Disease
    Pediatrics | Pediatric Neurology | Neurology
    Experienced in Batten Disease
    Pediatrics | Pediatric Neurology | Neurology
    Referral may be required
    6701 Fannin St, Suite 1560, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Lisa Emrick is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Emrick is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses MELAS Syndrome, Hypotonia, CACH Syndrome, Cortical Dysplasia, and Gastrostomy. Dr. Emrick is currently accepting new patients.

    Experienced in Batten Disease
    Pediatric Neurology
    Experienced in Batten Disease
    Pediatric Neurology
    Referral may be required

    Baylor College Of Medicine

    6701 Fannin St, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Farida Abid is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Abid is rated as an Experienced provider by MediFind in the treatment of Batten Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Amyotonia Congenita, Congenital Myasthenic Syndrome, Duchenne Muscular Dystrophy, and West Syndrome. Dr. Abid is currently accepting new patients.

    Experienced in Batten Disease
    Experienced in Batten Disease
    Referral may be required

    UT Southwestern-Bill And Rita Clements Advanced Medical Imaging Center

    2201 Inwood Rd, 
    Dallas, TX 
    Languages Spoken:
    English
    Offers Telehealth

    Michael Youssef is a Neurologist practicing medicine in Dallas, Texas. Dr. Youssef is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Astrocytoma, Glioma, Glioblastoma, and Oligodendroglioma.

    Experienced in Batten Disease
    Pediatric Neurology
    Experienced in Batten Disease
    Pediatric Neurology
    Referral may be required

    Office

    6701 Fannin St Ste 1250, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Davut Pehlivan is a Pediatric Neurologist practicing medicine in Houston, Texas. Dr. Pehlivan is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Arthrogryposis Multiplex Congenita, Microcephaly, Achalasia Microcephaly Syndrome, Cortical Dysplasia, and Craniectomy. Dr. Pehlivan is currently accepting new patients.

    Experienced in Batten Disease
    Pediatrics | Medical Genetics
    Experienced in Batten Disease
    Pediatrics | Medical Genetics
    Referral may be required
    1 Baylor Plz, 
    Houston, TX 
    Languages Spoken:
    English
    Accepting New Patients

    Neil Hanchard is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Houston, Texas. Dr. Hanchard is rated as an Experienced provider by MediFind in the treatment of Batten Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Micrognathia, Anemia, Malnutrition, and Miller Syndrome. Dr. Hanchard is currently accepting new patients.

    Showing 1-16 of 16

    Last Updated: 09/19/2026

    What is the definition of Batten Disease?

    Neuronal ceroid lipofuscinoses (NCL) refers to a group of rare disorders of the nerve cells. NCL is passed down through families (inherited).

    These are the three main types of NCL:

    • Adult (Kufs or Parry disease)
    • Juvenile (Batten disease)
    • Late infantile (Jansky-Bielschowsky disease)

    When should I see a Batten Disease doctor in Texas, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Batten Disease doctor in Texas, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Batten Disease doctors in Texas, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Batten Disease doctors in Texas, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Batten Disease doctor in Texas, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Batten Disease doctor search results page. 

    Why is it important to get a second opinion from a different Batten Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Batten Disease doctor in Texas, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Batten Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Batten Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Batten Disease doctors in Texas, US?

    Look for the filter feature on the left side of the Batten Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Batten Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Batten Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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