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    Last Updated: 10/30/2025

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    MediFind found 21 doctor with experience in Beckwith-Wiedemann Syndrome near South Holland, NL. Of these, 16 are Experienced, 3 are Distinguished and 2 are Advanced.

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    21 providers found
      Distinguished in Beckwith-Wiedemann Syndrome

      Saskia M. Maas
      Distinguished in Beckwith-Wiedemann Syndrome

      Saskia M. Maas
      Amsterdam, NH, NL 

      Saskia Maas practices in Amsterdam, Netherlands. Ms. Maas is rated as a Distinguished expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Macroglossia, Beckwith-Wiedemann Syndrome, Gigantism, Marshall-Smith Syndrome, and Glossectomy.

      Distinguished in Beckwith-Wiedemann Syndrome

      Jet Bliek
      Distinguished in Beckwith-Wiedemann Syndrome

      Jet Bliek
      Amsterdam, NH, NL 

      Jet Bliek practices in Amsterdam, Netherlands. Bliek is rated as a Distinguished expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Their top areas of expertise are Macroglossia, Beckwith-Wiedemann Syndrome, Gigantism, and Russell-Silver Dwarfism.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Distinguished in Beckwith-Wiedemann Syndrome

      Raoul C. Hennekam
      Distinguished in Beckwith-Wiedemann Syndrome

      Raoul C. Hennekam
      Amsterdam, NH, NL 

      Raoul Hennekam practices in Amsterdam, Netherlands. Mr. Hennekam is rated as a Distinguished expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. His top areas of expertise are Nicolaides-Baraitser Syndrome, Marshall-Smith Syndrome, Micrognathia, and Trichorhinophalangeal Syndrome Type 2.

      Learn about our expert tiers
      Advanced in Beckwith-Wiedemann Syndrome

      Marcel M. Mannens
      Advanced in Beckwith-Wiedemann Syndrome

      Marcel M. Mannens
      Amsterdam, NH, NL 

      Marcel Mannens practices in Amsterdam, Netherlands. Mr. Mannens is rated as an Advanced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. His top areas of expertise are Beckwith-Wiedemann Syndrome, Macroglossia, Gigantism, and Trichorhinophalangeal Syndrome Type 2.

      Advanced in Beckwith-Wiedemann Syndrome

      Maria P. Lombardi
      Advanced in Beckwith-Wiedemann Syndrome

      Maria P. Lombardi
      Amsterdam, NH, NL 

      Maria Lombardi practices in Amsterdam, Netherlands. Ms. Lombardi is rated as an Advanced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Focal Dermal Hypoplasia, Beckwith-Wiedemann Syndrome, Pentalogy of Cantrell, and Macroglossia.

      Experienced in Beckwith-Wiedemann Syndrome

      Marielle M. Alders
      Experienced in Beckwith-Wiedemann Syndrome

      Marielle M. Alders
      Amsterdam, NH, NL 

      Marielle Alders practices in Amsterdam, Netherlands. Ms. Alders is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Van Maldergem Syndrome, Hydrocephalus due to Congenital Stenosis of Aqueduct of Sylvius, Blepharophimosis, and Long QT Syndrome.

      Experienced in Beckwith-Wiedemann Syndrome

      Izabela M. Krzyzewska
      Experienced in Beckwith-Wiedemann Syndrome

      Izabela M. Krzyzewska
      Amsterdam, NH, NL 

      Izabela Krzyzewska practices in Amsterdam, Netherlands. Ms. Krzyzewska is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Macroglossia, Beckwith-Wiedemann Syndrome, Gigantism, and Fetal Alcohol Syndrome (FAS).

      Experienced in Beckwith-Wiedemann Syndrome

      Chantal A. Van Der Horst
      Experienced in Beckwith-Wiedemann Syndrome

      Chantal A. Van Der Horst
      Amsterdam, NH, NL 

      Chantal Van Der Horst practices in Amsterdam, Netherlands. Ms. Van Der Horst is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Micrognathia, Stork Bite, Wrist Arthroscopy, and Glossectomy.

      Experienced in Beckwith-Wiedemann Syndrome

      Peter Henneman
      Experienced in Beckwith-Wiedemann Syndrome

      Peter Henneman
      Amsterdam, NH, NL 

      Peter Henneman practices in Amsterdam, Netherlands. Mr. Henneman is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. His top areas of expertise are Crohn's Disease, Viral Gastroenteritis, Down Syndrome, and Colitis.

      Experienced in Beckwith-Wiedemann Syndrome

      Mariel Y. Alders
      Experienced in Beckwith-Wiedemann Syndrome

      Mariel Y. Alders
      Amsterdam, NH, NL 

      Mariel Alders practices in Amsterdam, Netherlands. Ms. Alders is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Hemifacial Hyperplasia Strabismus, Wiedemann-Rautenstrauch Syndrome, Jervell Lange-Nielsen Syndrome (JLNS), and Angelman Syndrome.

      Experienced in Beckwith-Wiedemann Syndrome

      Floor M. Postema
      Experienced in Beckwith-Wiedemann Syndrome

      Floor M. Postema
      Amsterdam, NH, NL 

      Floor Postema practices in Amsterdam, Netherlands. Postema is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Their top areas of expertise are Mosaicism, Macroglossia, Beckwith-Wiedemann Syndrome, and Pleuropulmonary Blastoma.

      Experienced in Beckwith-Wiedemann Syndrome

      Lianne Hoeijmakers
      Experienced in Beckwith-Wiedemann Syndrome

      Lianne Hoeijmakers
      Science Park 904, 
      Amsterdam, NH, NL 

      Lianne Hoeijmakers practices in Amsterdam, Netherlands. Ms. Hoeijmakers is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Alzheimer's Disease, Dementia, Macroglossia, and Beckwith-Wiedemann Syndrome.

      Experienced in Beckwith-Wiedemann Syndrome

      Niels Vos
      Experienced in Beckwith-Wiedemann Syndrome

      Niels Vos
      Amsterdam, NH, NL 

      Niels Vos practices in Amsterdam, Netherlands. Mr. Vos is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. His top areas of expertise are Albright's Hereditary Osteodystrophy, Pseudohypoparathyroidism, Obesity, and Macroglossia.

      Experienced in Beckwith-Wiedemann Syndrome

      Adri N. Mul
      Experienced in Beckwith-Wiedemann Syndrome

      Adri N. Mul

      Amsterdam UMC

      Amsterdam, NH, NL 

      Adri Mul practices in Amsterdam, Netherlands. Ms. Mul is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Fetal Alcohol Syndrome (FAS), Delayed Growth, Down Syndrome, and Macroglossia.

      Experienced in Beckwith-Wiedemann Syndrome

      Daniel J. Kadouch
      Experienced in Beckwith-Wiedemann Syndrome

      Daniel J. Kadouch
      Amsterdam, NH, NL 

      Daniel Kadouch practices in Amsterdam, Netherlands. Mr. Kadouch is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. His top areas of expertise are Basal Cell Skin Cancer, Macroglossia, Beckwith-Wiedemann Syndrome, Gigantism, and Glossectomy.

      Experienced in Beckwith-Wiedemann Syndrome

      Carel J. Van Noesel
      Experienced in Beckwith-Wiedemann Syndrome

      Carel J. Van Noesel
      Amsterdam, NH, NL 

      Carel Van Noesel practices in Amsterdam, Netherlands. Van Noesel is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Their top areas of expertise are Anal Cancer, Langerhans Cell Histiocytosis, Reticulohistiocytoma, and Histiocytosis.

      Experienced in Beckwith-Wiedemann Syndrome

      Leonie A. Menke
      Experienced in Beckwith-Wiedemann Syndrome

      Leonie A. Menke
      Amsterdam, NH, NL 

      Leonie Menke practices in Amsterdam, Netherlands. Ms. Menke is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Marfan Syndrome, Achard Syndrome, Arachnodactyly, and Rubinstein-Taybi Syndrome.

      Experienced in Beckwith-Wiedemann Syndrome

      Andrea W. Venema
      Experienced in Beckwith-Wiedemann Syndrome

      Andrea W. Venema
      Amsterdam, NH, NL 

      Andrea Venema practices in Amsterdam, Netherlands. Ms. Venema is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Delayed Growth, Actinic Keratosis, Macroglossia, and Beckwith-Wiedemann Syndrome.

      Experienced in Beckwith-Wiedemann Syndrome

      Hennie Bikker
      Experienced in Beckwith-Wiedemann Syndrome

      Hennie Bikker
      Amsterdam, NH, NL 

      Hennie Bikker practices in Amsterdam, Netherlands. Ms. Bikker is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Her top areas of expertise are Congenital Hypothyroidism, Hypothyroidism, Gaucher Disease Type 2, and Autosomal Recessive Congenital Methemoglobinemia.

      Experienced in Beckwith-Wiedemann Syndrome

      Pernette J. Verschure
      Experienced in Beckwith-Wiedemann Syndrome

      Pernette J. Verschure
      Amsterdam, NH, NL 

      Pernette Verschure practices in Amsterdam, Netherlands. Verschure is rated as an Experienced expert by MediFind in the treatment of Beckwith-Wiedemann Syndrome. Their top areas of expertise are Macroglossia, Beckwith-Wiedemann Syndrome, Angelman Syndrome, and Gigantism.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 21

      Last Updated: 10/30/2025

      What is the definition of Beckwith-Wiedemann Syndrome?

      Beckwith-Wiedemann syndrome (BWS) is a growth disorder that can affect several parts of the body. Babies and children are larger than normal usually until age 8, when growth slows down, resulting in an average height in adults. Symptoms may include one side or area of the body growing more than the other side (asymmetric growth or hemihyperplasia), omphalocele or other abdominal wall defect at birth, low blood sugar (hypoglycemia) in infancy, an abnormally large tongue (macroglossia), abnormally large abdominal organs, creases or pits in the skin near the ears, and kidney abnormalities. Affected children have an increased risk to develop tumors, particularly a rare form of kidney cancer called Wilms tumor, a cancer of muscle tissue called rhabdomyosarcoma, and a form of liver cancer called hepatoblastoma. Some people only have one symptom while others may have many of the symptoms. The cause of BWS is complex and is different for different people, but involves genes that control body growth. The genes, including the CDKN1C, H19, IGF2, and KCNQ1OT1 genes, are located on chromosome 11. In most cases BWS is caused by problems with the genomic imprinting of these genes. Genomic imprinting refers to having some genes that are active (expressed) only when inherited from the father and others that are active only when inherited from the mother. Less commonly, changess in the CDKN1C gene or larger changes to chromosome 11, such as a translocation, deletion, or duplication, may cause BWS. Diagnosis of BWS is based on symptoms with the support of genetic testing. At present however, there is no clearly accepted diagnostic criteria as doctors are trying to understand the full spectrum of possible symptoms.

      When should I see a Beckwith-Wiedemann Syndrome doctor in South Holland, NL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Beckwith-Wiedemann Syndrome doctor in South Holland, NL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Beckwith-Wiedemann Syndrome doctor in South Holland, NL?

      You can find a Beckwith-Wiedemann Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Beckwith-Wiedemann Syndrome doctors in South Holland, NL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Beckwith-Wiedemann Syndrome doctors in South Holland, NL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Beckwith-Wiedemann Syndrome doctor in South Holland, NL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Beckwith-Wiedemann Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Beckwith-Wiedemann Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Beckwith-Wiedemann Syndrome doctor in South Holland, NL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Beckwith-Wiedemann Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Beckwith-Wiedemann Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Beckwith-Wiedemann Syndrome doctors in South Holland, NL?

      Look for the filter feature on the left side of the Beckwith-Wiedemann Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Beckwith-Wiedemann Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Beckwith-Wiedemann Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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