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    Last Updated: 10/30/2025

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    MediFind found 7 doctor with experience in Beta-Propeller Protein-Associated Neurodegeneration near Massachusetts, US. Of these, 6 are Experienced and 1 are Advanced.

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    7 providers found
      Advanced in Beta-Propeller Protein-Associated Neurodegeneration
      Pediatric Neurology | Neurology
      Advanced in Beta-Propeller Protein-Associated Neurodegeneration
      Pediatric Neurology | Neurology

      C H Neurology Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Darius Ebrahimi-Fakhari is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Ebrahimi-Fakhari is rated as an Advanced provider by MediFind in the treatment of Beta-Propeller Protein-Associated Neurodegeneration. His top areas of expertise are Vici Syndrome, Chorea, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, and Spastic Paraplegia Type 2. Dr. Ebrahimi-Fakhari is currently accepting new patients.

      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Pediatric Neurology | Neurology | Sleep Medicine
      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Pediatric Neurology | Neurology | Sleep Medicine

      C H Neurology Foundation Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English

      Kiran Maski is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Maski is rated as an Experienced provider by MediFind in the treatment of Beta-Propeller Protein-Associated Neurodegeneration. Her top areas of expertise are Drowsiness, Narcolepsy, Excessive Daytime Sleepiness, and Idiopathic Hypersomnia.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Medical Genetics | Pediatric Neurology | Pediatrics
      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Medical Genetics | Pediatric Neurology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Lance Rodan is a Medical Genetics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Rodan is rated as an Experienced provider by MediFind in the treatment of Beta-Propeller Protein-Associated Neurodegeneration. His top areas of expertise are Hennekam Syndrome, Increased Head Circumference, Polymicrogyria, Retinopathy Pigmentary Mental Retardation, and Deep Brain Stimulation. Dr. Rodan is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Experienced in Beta-Propeller Protein-Associated Neurodegeneration

      Lahey Clinic Inc

      41 Mall Rd, 
      Burlington, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Julie Leegwater-Kim is a Neurologist in Burlington, Massachusetts. Dr. Leegwater-Kim is rated as an Experienced provider by MediFind in the treatment of Beta-Propeller Protein-Associated Neurodegeneration. Her top areas of expertise are Movement Disorders, Parkinson's Disease, Secondary Parkinsonism, and Drug Induced Dyskinesia. Dr. Leegwater-Kim is currently accepting new patients.

      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Pediatric Neurology | Pediatrics | Neurology
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Kerri Larovere is a Pediatric Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Larovere is rated as an Experienced provider by MediFind in the treatment of Beta-Propeller Protein-Associated Neurodegeneration. Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Infant Epilepsy with Migrant Focal Crisis, Epilepsy in Children, and Epilepsy with Myoclonic-Atonic Seizures. Dr. Larovere is currently accepting new patients.

      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Pediatric Neurology | Neurology
      Experienced in Beta-Propeller Protein-Associated Neurodegeneration
      Pediatric Neurology | Neurology
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Mustafa Sahin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Sahin is rated as an Experienced provider by MediFind in the treatment of Beta-Propeller Protein-Associated Neurodegeneration. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Spastic Paraplegia Type 7. Dr. Sahin is currently accepting new patients.

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Florian Eichler is a Neurologist in Boston, Massachusetts. Dr. Eichler is rated as an Experienced provider by MediFind in the treatment of Beta-Propeller Protein-Associated Neurodegeneration. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy. Dr. Eichler is currently accepting new patients.

      Showing 1-7 of 7

      Last Updated: 10/30/2025

      What is the definition of Beta-Propeller Protein-Associated Neurodegeneration?

      Beta-propeller protein-associated neurodegeneration (BPAN) is a disorder that damages the nervous system and is progressive, which means that it gradually gets worse. Affected individuals develop a buildup of iron in the brain that can be seen with medical imaging. For this reason, BPAN is classified as a type of disorder called neurodegeneration with brain iron accumulation (NBIA), although the iron accumulation may not occur until late in the disease.

      When should I see a Beta-Propeller Protein-Associated Neurodegeneration doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Beta-Propeller Protein-Associated Neurodegeneration doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Beta-Propeller Protein-Associated Neurodegeneration doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Beta-Propeller Protein-Associated Neurodegeneration doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Beta-Propeller Protein-Associated Neurodegeneration doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Beta-Propeller Protein-Associated Neurodegeneration doctor search results page. 

      Why is it important to get a second opinion from a different Beta-Propeller Protein-Associated Neurodegeneration doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Beta-Propeller Protein-Associated Neurodegeneration doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Beta-Propeller Protein-Associated Neurodegeneration doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Beta-Propeller Protein-Associated Neurodegeneration doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Beta-Propeller Protein-Associated Neurodegeneration doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Beta-Propeller Protein-Associated Neurodegeneration doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Beta-Propeller Protein-Associated Neurodegeneration doctor that offers video calls?

      Look for the filter feature on the left-side of the Beta-Propeller Protein-Associated Neurodegeneration doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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