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    Last Updated: 10/30/2025

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    MediFind found 109 doctor with experience in Birt-Hogg-Dube Syndrome near Massachusetts, US. Of these, 97 are Experienced, 11 are Advanced and 1 are Distinguished.

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    109 providers found
      Distinguished in Birt-Hogg-Dube Syndrome
      Oncology | Pulmonary Medicine
      Distinguished in Birt-Hogg-Dube Syndrome
      Oncology | Pulmonary Medicine

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Henske is an Oncologist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Henske is rated as a Distinguished provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Lymphangioleiomyomatosis, Chromophobe Renal Cell Carcinoma, Birt-Hogg-Dube Syndrome, and Renal Cell Carcinoma (RCC). Dr. Henske is currently accepting new patients.

      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Cardiology | Cardiology
      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Cardiology | Cardiology

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Kristin Bonello is a Pediatric Cardiologist and a Cardiologist in Boston, Massachusetts. Dr. Bonello has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Arachnodactyly, Marfan Syndrome, Congenital Contractural Arachnodactyly, and Retinopathy Pigmentary Mental Retardation. Dr. Bonello is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Birt-Hogg-Dube Syndrome
      Cardiology | Pediatrics | Pediatric Cardiology
      Advanced in Birt-Hogg-Dube Syndrome
      Cardiology | Pediatrics | Pediatric Cardiology

      Baystate Medical Practices Inc

      759 Chestnut St, 
      Springfield, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Singh is a Cardiologist and a Pediatrics provider in Springfield, Massachusetts. Dr. Singh is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. His top areas of expertise are Marfan Syndrome, Congenital Heart Disease (CHD), Bicuspid Aortic Valve, and Truncus Arteriosus. Dr. Singh is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Birt-Hogg-Dube Syndrome
      Medical Genetics | Pediatric Neurology | Pediatrics
      Advanced in Birt-Hogg-Dube Syndrome
      Medical Genetics | Pediatric Neurology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Lance Rodan is a Medical Genetics specialist and a Pediatric Neurologist in Boston, Massachusetts. Dr. Rodan is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. His top areas of expertise are Hennekam Syndrome, Increased Head Circumference, Polymicrogyria, Retinopathy Pigmentary Mental Retardation, and Deep Brain Stimulation. Dr. Rodan is currently accepting new patients.

      Advanced in Birt-Hogg-Dube Syndrome
      Pulmonary Medicine
      Advanced in Birt-Hogg-Dube Syndrome
      Pulmonary Medicine

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Raby is a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Raby is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. His top areas of expertise are Acute Interstitial Pneumonia, Interstitial Lung Disease, Asthma, Sleeve Gastrectomy, and Lung Transplant. Dr. Raby is currently accepting new patients.

      Advanced in Birt-Hogg-Dube Syndrome
      Medical Genetics | Pediatrics
      Advanced in Birt-Hogg-Dube Syndrome
      Medical Genetics | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Sleep Medicine
      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Sleep Medicine

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Thomas Kinane is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Kinane is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. His top areas of expertise are Myhre Syndrome, Birt-Hogg-Dube Syndrome, Congenital Central Hypoventilation Syndrome, and Pneumonia. Dr. Kinane is currently accepting new patients.

      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics
      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Catherine Sheils is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Sheils is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Bronchopulmonary Dysplasia, Congenital Unilateral Pulmonary Hypoplasia, Lung Agenesis, and Cerebral Hypoxia. Dr. Sheils is currently accepting new patients.

      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Tregony Simoneau is a Pediatric Pulmonologist and a Pediatrics provider in Boston, Massachusetts. Dr. Simoneau is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Congenital Unilateral Pulmonary Hypoplasia, Duchenne Muscular Dystrophy, Laryngomalacia, Cerebral Hypoxia, and Myringotomy. Dr. Simoneau is currently accepting new patients.

      Advanced in Birt-Hogg-Dube Syndrome
      Medical Genetics
      Advanced in Birt-Hogg-Dube Syndrome
      Medical Genetics
      65 Landsdowne St, 3rd Floor, 
      Cambridge, MA 
      Languages Spoken:
      English

      Birgit Funke is a Medical Genetics provider in Cambridge, Massachusetts. Dr. Funke is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Birt-Hogg-Dube Syndrome and Pulmonary Fibrosis.

      Advanced in Birt-Hogg-Dube Syndrome
      Medical Genetics
      Advanced in Birt-Hogg-Dube Syndrome
      Medical Genetics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Helen Lyon is a Medical Genetics provider in Boston, Massachusetts. Dr. Lyon is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), DOOR Syndrome, and Beare-Stevenson Cutis Gyrata Syndrome. Dr. Lyon is currently accepting new patients.

      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics
      Advanced in Birt-Hogg-Dube Syndrome
      Pediatric Pulmonology | Pulmonary Medicine | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, Bch3446, 
      Boston, MA 
      Languages Spoken:
      English

      Dennis Rosen is a Pediatric Pulmonologist and a Pulmonary Medicine provider in Boston, Massachusetts. Dr. Rosen is rated as an Advanced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. His top areas of expertise are Chemical Pneumonitis, Ciliary Dyskinesia-Bronchiectasis, Primary Ciliary Dyskinesia (PCD), and Kartagener Syndrome.

      Elena B. Hawryluk
      Experienced in Birt-Hogg-Dube Syndrome
      Experienced in Birt-Hogg-Dube Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Elena Hawryluk is a Dermatologist in Boston, Massachusetts. Dr. Hawryluk has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Melanoma, Xeroderma Pigmentosum, and Nevoid Basal Cell Carcinoma Syndrome. Dr. Hawryluk is currently accepting new patients.

      Michelle Z. Gurvitz
      Experienced in Birt-Hogg-Dube Syndrome
      Cardiology | Pediatrics | Pediatric Cardiology
      Experienced in Birt-Hogg-Dube Syndrome
      Cardiology | Pediatrics | Pediatric Cardiology

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michelle Gurvitz is a Cardiologist and a Pediatrics provider in Boston, Massachusetts. Dr. Gurvitz is rated as an Experienced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Congenital Heart Disease (CHD), Coarctation of the Aorta, Tetralogy of Fallot, Transposition of the Great Arteries, and Thymectomy. Dr. Gurvitz is currently accepting new patients.

      Michael J. Landzberg
      Experienced in Birt-Hogg-Dube Syndrome
      Experienced in Birt-Hogg-Dube Syndrome

      Boston Childrens Heart Foundation Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Landzberg is a Cardiologist in Boston, Massachusetts. Dr. Landzberg is rated as an Experienced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. His top areas of expertise are Congenital Heart Disease (CHD), Tetralogy of Fallot, Eisenmenger Syndrome, Heart Transplant, and Patent Foramen Ovale Repair. Dr. Landzberg is currently accepting new patients.

      Patrick T. Ogara
      Experienced in Birt-Hogg-Dube Syndrome
      Experienced in Birt-Hogg-Dube Syndrome

      Brigham And Womens Physicians Organization Inc

      70 Francis St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Patrick Ogara is a Cardiologist in Boston, Massachusetts. Dr. Ogara is rated as an Experienced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. His top areas of expertise are Aortic Valve Stenosis, Mitral Valve Regurgitation, Bicuspid Aortic Valve, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR). Dr. Ogara is currently accepting new patients.

      Experienced in Birt-Hogg-Dube Syndrome
      Pediatrics | Medical Genetics
      Experienced in Birt-Hogg-Dube Syndrome
      Pediatrics | Medical Genetics

      The General Hospital Corporation

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Barbara Pober is a Pediatrics specialist and a Medical Genetics provider in Boston, Massachusetts. Dr. Pober is rated as an Experienced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Williams Syndrome, Chromosome 7p Deletion, Snyder-Robinson Syndrome, and Marshall Syndrome. Dr. Pober is currently accepting new patients.

      Experienced in Birt-Hogg-Dube Syndrome
      Internal Medicine
      Experienced in Birt-Hogg-Dube Syndrome
      Internal Medicine

      Harbor Medical Associates Inc

      15 Corporate Dr, 
      Pembroke, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Ruth Lamprey is a primary care provider, practicing in Internal Medicine in Pembroke, Massachusetts. Dr. Lamprey is rated as an Experienced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Osteoarthritis, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension.

      Experienced in Birt-Hogg-Dube Syndrome
      Internal Medicine
      Experienced in Birt-Hogg-Dube Syndrome
      Internal Medicine
      330 Mount Auburn St, Primary Care Center, 
      Cambridge, MA 
      Languages Spoken:
      English

      Linda Powers is a primary care provider, practicing in Internal Medicine in Cambridge, Massachusetts. Dr. Powers is rated as an Experienced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Cystic Fibrosis, Oculodentodigital Dysplasia, Jackson-Weiss Syndrome, and Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant.

      Experienced in Birt-Hogg-Dube Syndrome
      Internal Medicine
      Experienced in Birt-Hogg-Dube Syndrome
      Internal Medicine

      Atrius Health Inc

      51 Performance Dr, 
      Weymouth, MA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Susan Thomas is a primary care provider, practicing in Internal Medicine in Weymouth, Massachusetts. Dr. Thomas is rated as an Experienced provider by MediFind in the treatment of Birt-Hogg-Dube Syndrome. Her top areas of expertise are Lacrimo-Auriculo-Dento-Digital Syndrome, Cockayne Syndrome Type 1, Yunis-Varon Syndrome, and Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism. Dr. Thomas is currently accepting new patients.

      Showing 1-20 of 109

      Last Updated: 10/30/2025

      What is the definition of Birt-Hogg-Dube Syndrome?

      Birt-Hogg-Dubé syndrome is a rare disorder that affects the skin and lungs and increases the risk of certain types of tumors. Its signs and symptoms vary among affected individuals.

      When should I see a Birt-Hogg-Dube Syndrome doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Birt-Hogg-Dube Syndrome doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Birt-Hogg-Dube Syndrome doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Birt-Hogg-Dube Syndrome doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Birt-Hogg-Dube Syndrome doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Birt-Hogg-Dube Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Birt-Hogg-Dube Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Birt-Hogg-Dube Syndrome doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Birt-Hogg-Dube Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Birt-Hogg-Dube Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Birt-Hogg-Dube Syndrome doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Birt-Hogg-Dube Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Birt-Hogg-Dube Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Birt-Hogg-Dube Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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