Blue Rubber Bleb Nevus Syndrome
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Learn About Blue Rubber Bleb Nevus Syndrome

What is the definition of Blue Rubber Bleb Nevus Syndrome?
Blue rubber bleb nevus syndrome is a condition in which the blood vessels do not develop properly in an area of the skin or other body organ (particularly the intestines). The malformed blood vessels appear as a spot or lesion called a nevus. The underlying blood vessel malformations are present from birth even though the nevus may not be visible until later in life. The size, number, location, and severity of these malformations vary from person to person. Affected areas on the skin can be painful or tender to the touch and may be prone to sweating (hyperhidrosis). Nevi in the intestines may bleed spontaneously and cause anemia or other complications. Other symptoms vary depending on the organ affected.
What are the alternative names for Blue Rubber Bleb Nevus Syndrome?
  • Blue rubber bleb nevus syndrome
  • BRBNS
  • Bean syndrome
  • Blue rubber bleb nevus
Who are the top Blue Rubber Bleb Nevus Syndrome Local Doctors?
Elite in Blue Rubber Bleb Nevus Syndrome
Elite in Blue Rubber Bleb Nevus Syndrome
Cliniques Universitaires St Luc, 
Brussels, BRU, BE 

Laurence Boon practices practicing medicine in Brussels, Belgium. Mr. Boon is rated as an Elite expert by MediFind in the treatment of Blue Rubber Bleb Nevus Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Blue Rubber Bleb Nevus Syndrome, Meige Disease, Lymphedema, and Klippel-Trenaunay Syndrome.

Elite in Blue Rubber Bleb Nevus Syndrome
Elite in Blue Rubber Bleb Nevus Syndrome
Brussels, BRU, BE 

Miikka Vikkula practices practicing medicine in Brussels, Belgium. Vikkula is rated as an Elite expert by MediFind in the treatment of Blue Rubber Bleb Nevus Syndrome. They are also highly rated in 36 other conditions, according to our data. Their clinical expertise encompasses Meige Disease, Blue Rubber Bleb Nevus Syndrome, Lymphedema, Hemangioma, and Splenectomy.

 
 
 
 
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Experienced in Blue Rubber Bleb Nevus Syndrome
Radiology | Neuroradiology | Emergency Medicine
Experienced in Blue Rubber Bleb Nevus Syndrome
Radiology | Neuroradiology | Emergency Medicine

Reading Hospital

420 South 5th Avenue, 
West Reading, PA 
Languages Spoken:
English

. Dr. Chong is rated as an Experienced provider by MediFind in the treatment of Blue Rubber Bleb Nevus Syndrome. He is also highly rated in 28 other conditions, according to our data. His clinical expertise encompasses Tracheobronchopathia Osteoplastica, Idiopathic Dilatation of the Pulmonary Artery, Pulmonary Vein Stenosis, and Craniodiaphyseal Dysplasia. Dr. Chong is board certified in American Board Of Emergency Medicine and American Board Of Radiology.

What are the latest Blue Rubber Bleb Nevus Syndrome Clinical Trials?
Lymphatic Anomalies Registry for the Assessment of Outcome Data

Summary: Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigat...

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center