The 20 Best C Syndrome Doctors in Netherlands

Find the Top C Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 25 doctor with experience in C Syndrome near Netherlands. Of these, 22 are Experienced, 2 are Advanced and 1 are Distinguished.

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25 providers found
    Distinguished in C Syndrome

    Anita S. Koelega-Hokken
    Distinguished in C Syndrome

    Anita S. Koelega-Hokken
    Rotterdam, ZH, NL 

    Anita Koelega-Hokken practices in Rotterdam, Netherlands. Ms. Koelega-Hokken is rated as a Distinguished expert by MediFind in the treatment of C Syndrome. Her top areas of expertise are Small for Gestational Age, Prader-Willi Syndrome, Hypopituitarism, Russell-Silver Dwarfism, and Hormone Replacement Therapy (HRT).

    Advanced in C Syndrome

    Martijn C. Van Der Lienden
    Advanced in C Syndrome

    Martijn C. Van Der Lienden
    Leiden, ZH, NL 

    Martijn Van Der Lienden practices in Leiden, Netherlands. Mr. Van Der Lienden is rated as an Advanced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are Gaucher Disease, Acid Sphingomyelinase Deficiency (ASMD), Farber Lipogranulomatosis, and C Syndrome.

    Advanced in C Syndrome

    Hendriekje M. Eggink
    Advanced in C Syndrome

    Hendriekje M. Eggink
    Groningen, GR, NL 

    Hendriekje Eggink practices in Groningen, Netherlands. Eggink is rated as an Advanced expert by MediFind in the treatment of C Syndrome. Their top areas of expertise are Drug Induced Dyskinesia, Mohr-Tranebjaerg Syndrome, C Syndrome, Focal Dystonia, and Deep Brain Stimulation.

    Learn about our expert tiers
    Tom J. De Koning
    Experienced in C Syndrome

    Tom J. De Koning
    Experienced in C Syndrome

    Tom J. De Koning
    Groningen, GR, NL 

    Tom De Koning practices in Groningen, Netherlands. Mr. De Koning is rated as an Experienced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are Drug Induced Dyskinesia, Dentatorubral-Pallidoluysian Atrophy, Lafora Disease, and Harding Ataxia.

    Experienced in C Syndrome

    Roelof Ottenhoff
    Experienced in C Syndrome

    Roelof Ottenhoff
    Amsterdam, NH, NL 

    Roelof Ottenhoff practices in Amsterdam, Netherlands. Ottenhoff is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Their top areas of expertise are Farber Lipogranulomatosis, Gaucher Disease, Niemann-Pick Disease, and C Syndrome.

    Experienced in C Syndrome

    Rick Brandsma
    Experienced in C Syndrome

    Rick Brandsma
    Utrecht, UT, NL 

    Rick Brandsma practices in Utrecht, Netherlands. Mr. Brandsma is rated as an Experienced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are Drug Induced Dyskinesia, Harding Ataxia, Movement Disorders, Selective Mutism, and Deep Brain Stimulation.

    Experienced in C Syndrome

    Fiete M. Lange
    Experienced in C Syndrome

    Fiete M. Lange
    Groningen, GR, NL 

    Fiete Lange practices in Groningen, Netherlands. Lange is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Their top areas of expertise are C Syndrome, Niemann-Pick Disease, Palatal Myoclonus, and Transthyretin Amyloidosis.

    Experienced in C Syndrome

    Ingeborg E. Waas
    Experienced in C Syndrome

    Ingeborg E. Waas

    Amsterdam UMC, Location AMC

    Amsterdam, NH, NL 

    Ingeborg Waas practices in Amsterdam, Netherlands. Ms. Waas is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Her top areas of expertise are C Syndrome, Acid Sphingomyelinase Deficiency (ASMD), Farber Lipogranulomatosis, and Atherosclerosis.

    Experienced in C Syndrome

    Johannes M. Aerts
    Experienced in C Syndrome

    Johannes M. Aerts
    Leiden, ZH, NL 

    Johannes Aerts practices in Leiden, Netherlands. Mr. Aerts is rated as an Experienced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are Farber Lipogranulomatosis, Gaucher Disease, Acid Sphingomyelinase Deficiency (ASMD), and Niemann-Pick Disease.

    Experienced in C Syndrome

    Per B. Larsen
    Experienced in C Syndrome

    Per B. Larsen
    Amsterdam, NH, NL 

    Per Larsen practices in Amsterdam, Netherlands. Mr. Larsen is rated as an Experienced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are C Syndrome, Acid Sphingomyelinase Deficiency (ASMD), Diabetic Nephropathy, Farber Lipogranulomatosis, and Nephrectomy.

    Experienced in C Syndrome

    Jan J. Aten
    Experienced in C Syndrome

    Jan J. Aten
    Amsterdam, NH, NL 

    Jan Aten practices in Amsterdam, Netherlands. Aten is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Their top areas of expertise are Gaucher Disease, Acid Sphingomyelinase Deficiency (ASMD), C Syndrome, and Niemann-Pick Disease.

    Experienced in C Syndrome

    Marco J. Van Eijk
    Experienced in C Syndrome

    Marco J. Van Eijk
    Leiden, ZH, NL 

    Marco Van Eijk practices in Leiden, Netherlands. Mr. Van Eijk is rated as an Experienced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are Gaucher Disease, Farber Lipogranulomatosis, Gaucher Disease Type 1, and C Syndrome.

    Experienced in C Syndrome

    Nicole N. Van Der Wel
    Experienced in C Syndrome

    Nicole N. Van Der Wel
    Amsterdam, NH, NL 

    Nicole Van Der Wel practices in Amsterdam, Netherlands. Ms. Van Der Wel is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Her top areas of expertise are Zellweger Syndrome, Paris-Trousseau Thrombocytopenia, C Syndrome, and Jacobsen Syndrome.

    Experienced in C Syndrome

    Marina A. Tijssen
    Experienced in C Syndrome

    Marina A. Tijssen
    Groningen, GR, NL 

    Marina Tijssen practices in Groningen, Netherlands. Tijssen is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Their top areas of expertise are Drug Induced Dyskinesia, Myoclonus-Dystonia, Palatal Myoclonus, Movement Disorders, and Deep Brain Stimulation.

    Experienced in C Syndrome

    Johannes H. Van Der Hoeven
    Experienced in C Syndrome

    Johannes H. Van Der Hoeven
    Groningen, GR, NL 

    Johannes Van Der Hoeven practices in Groningen, Netherlands. Mr. Van Der Hoeven is rated as an Experienced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are Glycogen Storage Disease Type 3, C Syndrome, Cramp-Fasciculation Syndrome, and Palatal Myoclonus.

    Experienced in C Syndrome

    Nike Claessen
    Experienced in C Syndrome

    Nike Claessen
    Amsterdam, NH, NL 

    Nike Claessen practices in Amsterdam, Netherlands. Claessen is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Their top areas of expertise are C Syndrome, Interstitial Nephritis, Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, and Kidney Transplant.

    Experienced in C Syndrome

    Sander I. Van Kasteren
    Experienced in C Syndrome

    Sander I. Van Kasteren
    Leiden, ZH, NL 

    Sander Van Kasteren practices in Leiden, Netherlands. Mr. Van Kasteren is rated as an Experienced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are Mononucleosis, C Syndrome, CACH Syndrome, and Multiple Sclerosis (MS).

    Experienced in C Syndrome

    Nienke E. Bakker
    Experienced in C Syndrome

    Nienke E. Bakker
    Capelle Aan Den Ijssel, ZH, NL 

    Nienke Bakker practices in Capelle Aan Den Ijssel, Netherlands. Bakker is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Their top areas of expertise are Prader-Willi Syndrome, C Syndrome, Pediatric Growth Hormone Deficiency, Growth Hormone Deficiency (GHD), and Hormone Replacement Therapy (HRT).

    Experienced in C Syndrome

    Patric D. Delhanty
    Experienced in C Syndrome

    Patric D. Delhanty

    Erasmus MC

    Rotterdam, ZH, NL 

    Patric Delhanty practices in Rotterdam, Netherlands. Mr. Delhanty is rated as an Experienced expert by MediFind in the treatment of C Syndrome. His top areas of expertise are Prader-Willi Syndrome, Obesity, Acromegaloid Facial Appearance Syndrome, Hypertrichosis-Acromegaloid Facial Appearance Syndrome, and Gastric Bypass.

    Experienced in C Syndrome

    Renske J. Kuppens
    Experienced in C Syndrome

    Renske J. Kuppens
    Rotterdam, ZH, NL 

    Renske Kuppens practices in Rotterdam, Netherlands. Kuppens is rated as an Experienced expert by MediFind in the treatment of C Syndrome. Their top areas of expertise are Prader-Willi Syndrome and C Syndrome.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 25

    Last Updated: 04/28/2026

    What is the definition of C Syndrome?

    C syndrome, also known as Opitz trigonocephaly syndrome, is characterized by trigonocephaly, severe intellectual disability, hypotonia, variable cardiac defects, redundant (extra folds of) skin, joint and limb abnormalities, and unusual facial features such as upslanted palpebral fissures (upward pointing outside corners of the eyes), epicanthal folds, depressed nasal bridge, and low-set, posteriorly rotated ears. There is evidence of more than one type of inheritance. While many cases are sporadic, autosomal recessive, autosomal dominant, and germline mosaicism have all been suggested. At least some cases of C syndrome have been caused by dysfunction of the CD96 gene.

    When should I see a C Syndrome doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a C Syndrome doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best C Syndrome doctor in Netherlands?

    You can find a C Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank C Syndrome doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by C Syndrome doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a C Syndrome doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the C Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different C Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a C Syndrome doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my C Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my C Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female C Syndrome doctors in Netherlands?

    Look for the filter feature on the left side of the C Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a C Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the C Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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