The 20 Best CAPOS Syndrome Doctors in The United Kingdom

Find the Top CAPOS Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 23 doctor with experience in CAPOS Syndrome near The United Kingdom. Of these, 20 are Experienced, 2 are Advanced and 1 are Distinguished.

Location
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23 providers found
    Distinguished in CAPOS Syndrome
    Distinguished in CAPOS Syndrome
    Referral may be required

    Great Ormond Street Hospital For Children NHS Foundation Trust

    London, ENG, GB 

    Kaukab Rajput practices practicing medicine in London, United Kingdom. Rajput is rated as a Distinguished expert by MediFind in the treatment of CAPOS Syndrome. They are also highly rated in 4 other conditions, according to our data. Their clinical expertise encompasses CAPOS Syndrome, Hearing Loss, CHARGE Syndrome, and Hepatoblastoma.

    Advanced in CAPOS Syndrome
    Advanced in CAPOS Syndrome
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Simona Balestrini practices practicing medicine in London, United Kingdom. Ms. Balestrini is rated as an Advanced expert by MediFind in the treatment of CAPOS Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Deep Brain Stimulation, and Gastrostomy.

    Advanced in CAPOS Syndrome
    Advanced in CAPOS Syndrome
    Referral may be required
    Queen Square, 
    London, ENG, GB 

    Daoud Chaudhry practices practicing medicine in London, United Kingdom. Mr. Chaudhry is rated as an Advanced expert by MediFind in the treatment of CAPOS Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses CAPOS Syndrome, Chronic Kidney Disease, Siderosis, Hearing Loss, and Kidney Transplant.

    Learn about our expert tiers
    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Great Ormond Street Hospital For Children, 
    Strete, ENG, GB 

    Juan Kaski practices practicing medicine in Strete, United Kingdom. Mr. Kaski is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Cardiomyopathy, Hypertrophic Cardiomyopathy (HCM), Restrictive Cardiomyopathy (RCM), Cardiac Arrest, and Heart Transplant.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Newcastle Upon Tyne, ENG, GB 

    Michael Ashworth practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Ashworth is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Endomyocardial Fibrosis, Microphthalmia with Linear Skin Defects Syndrome, CAPOS Syndrome, Pancreatectomy, and Tissue Biopsy.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Queen Square, 
    London, ENG, GB 

    Jan Novy practices practicing medicine in London, United Kingdom. Ms. Novy is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Status Epilepticus, Seizures, Generalized Tonic-Clonic Seizure, Absence Seizure, and Thrombectomy.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required

    Great Ormond Street Hospital For Children NHS Foundation Trust

    London, ENG, GB 

    Tony Sirimanna practices practicing medicine in London, United Kingdom. Mr. Sirimanna is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Auditory Neuropathy Spectrum Disorder, Auditory Processing Disorder, CAPOS Syndrome, and Hearing Loss.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    UCL Great Ormond Street Institute Of Child Health, 
    London, ENG, GB 

    Maria Glindzicz-Bitner practices practicing medicine in London, United Kingdom. Ms. Glindzicz-Bitner is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Hearing Loss, Norrie Disease, Usher Syndrome Type 2A, and Usher Syndrome.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    London, ENG, GB 

    Judith Cross practices practicing medicine in London, United Kingdom. Cross is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. They are also highly rated in 20 other conditions, according to our data. Their clinical expertise encompasses Epilepsy, Absence Seizure, Generalized Tonic-Clonic Seizure, and Myoclonic Epilepsy.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required

    Great Ormond Street For Children NHS Foundation Trust

    London, ENG, GB 

    Louise Wilson practices practicing medicine in London, United Kingdom. Ms. Wilson is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Frontometaphyseal Dysplasia, Craniosynostosis, Hypotonia, and Metopic Ridge.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Longfleet Road, 
    Poole, ENG, GB 

    Jamil Ahmed practices practicing medicine in Poole, United Kingdom. Mr. Ahmed is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. His clinical expertise encompasses CAPOS Syndrome, Colorectal Cancer, CHARGE Syndrome, Familial Colorectal Cancer, and Endoscopy.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    London, ENG, GB 

    Linda Luxon practices practicing medicine in London, United Kingdom. Ms. Luxon is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Usher Syndrome Type 2A, CAPOS Syndrome, Usher Syndrome, and Vertigo.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required

    UCL NIHR BRC Great Ormond Street Institute Of Child Health Collaborating Partner Of The ERN EpiCARE London UK

    Strete, ENG, GB 

    Aikaterini Vezyroglou practices practicing medicine in Strete, United Kingdom. Vezyroglou is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Alternating Hemiplegia of Childhood, Hemiplegia, Myoclonic Epilepsy, and CAPOS Syndrome.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Guilford Street, 
    London, ENG, GB 

    Shamima Rahman practices practicing medicine in London, United Kingdom. Rahman is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. They are also highly rated in 19 other conditions, according to our data. Their clinical expertise encompasses Leigh Syndrome, Pyruvate Dehydrogenase Deficiency, Pyruvate Decarboxylase Deficiency, and Riboflavin Transporter Deficiency Neuronopathy.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Hills Road, 
    Cambridge, ENG, GB 

    Manohar Bance practices practicing medicine in Cambridge, United Kingdom. Bance is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. They are also highly rated in 8 other conditions, according to our data. Their clinical expertise encompasses Hearing Loss, Schwannoma, Acoustic Neuroma, and Patulous Eustachian Tube.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Great Ormond Street Hospital For Children, 
    London, ENG, GB 

    Lucinda Carr practices practicing medicine in London, United Kingdom. Ms. Carr is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Drug Induced Dyskinesia, CAPOS Syndrome, Spasticity, and Rhizotomy.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Birmingham, ENG, GB 

    Peter Monksfield practices practicing medicine in Birmingham, United Kingdom. Mr. Monksfield is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Otosclerosis, Familial Otosclerosis, Internal Carotid Agenesis, and Nerve Decompression.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Guy's And St Thomas' NHS Foundation Trust, 
    London, ENG, GB 

    Dan Jiang practices practicing medicine in London, United Kingdom. Mr. Jiang is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Hearing Loss, CAPOS Syndrome, Acoustic Neuroma, and Familial Otosclerosis.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required

    UCL Queen Square Institute Of Neurology

    London, ENG, GB 

    Sanjay Sisodiya practices practicing medicine in London, United Kingdom. Mr. Sisodiya is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Myoclonic Epilepsy, Seizures, and Gastrostomy.

    Experienced in CAPOS Syndrome
    Experienced in CAPOS Syndrome
    Referral may be required
    Gray's Inn Road, WC1X 8DA, 
    London, ENG, GB 

    Robert Nash practices practicing medicine in London, United Kingdom. Mr. Nash is rated as an Experienced expert by MediFind in the treatment of CAPOS Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Hearing Loss, Cholesteatoma, CHARGE Syndrome, Otosclerosis, and Endoscopy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 23

    Last Updated: 11/08/2026

    What is the definition of CAPOS Syndrome?

    Cerebellar ataxia, areflexia, pes cavus, optic atrophy, and sensorineural hearing loss (CAPOS) syndrome is a neurological disorder. The syndrome gets its name from the different parts of the body it usually affects: Cerebellar ataxia: inflammation of the cerebellum, the part of the brain that helps control the coordination of muscle movement Areflexia: loss of reflexes Pes cavus: high arch in foot Optic atrophy: damage to the optic nerve of the eye Sensorinural hearing loss: damage to the nerves involved in hearing CAPOS syndrome typically begins after a fever-related illness with a sudden episode of ataxia, such as having a hard time walking or coordinating leg or arm movements. The ataxia is usually associated with generalized weakness and/or inflammation of the brain (encephalopathy). Pregnancy and delivery may also trigger episodes. Most people with CAPOS syndrome have one to three episodes during their lifetime. Other signs and symptoms during an episode may include low muscle tone, unusual eye movements (nystagmus or strabismus), problems with speech (dysarthria), difficulty swallowing (dysphagia), reduced or absent reflexes, and hearing loss. Some people may lose consciousness or go into a coma during an episode. Though many of the signs and symptoms of CAPOS syndrome get better as the fever and illness improve, some symptoms, including movement problems, may continue.

    When should I see a CAPOS Syndrome doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CAPOS Syndrome doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best CAPOS Syndrome doctor in The United Kingdom?

    You can find a CAPOS Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank CAPOS Syndrome doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CAPOS Syndrome doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CAPOS Syndrome doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CAPOS Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CAPOS Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CAPOS Syndrome doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CAPOS Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CAPOS Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CAPOS Syndrome doctors in The United Kingdom?

    Look for the filter feature on the left side of the CAPOS Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CAPOS Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CAPOS Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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