The 20 Best CDKL5 Deficiency Disorder Doctors Near Me

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Last Updated: 06/30/2026

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MediFind found 21 doctor with experience in CDKL5 Deficiency Disorder.

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21 providers found
    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    216-444-2200
    Languages Spoken:
    English
    See accepted insurances

    Elia Knight is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Knight is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 107 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Seizures, and Epilepsy. Dr. Knight is board certified in American Board Of Psychiatry And Neurology, 2013.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Florence, IT 

    Renzo Guerrini practices practicing medicine in Florence, Italy. Mr. Guerrini is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 64 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, West Syndrome, Cortical Dysplasia, Epilepsy, and Deep Brain Stimulation.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Paris, FR 

    Nadia Buisson-Bahi practices practicing medicine in Paris, France. Ms. Buisson-Bahi is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Agyria Pachygyria Polymicrogyria, Lissencephaly, Focal or Multifocal Malformations in Neuronal Migration, and Polymicrogyria.

    Learn about our expert tiers
    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Rome, IT 

    Nicola Specchio practices practicing medicine in Rome, Italy. Ms. Specchio is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Myoclonic Epilepsy, CLN2 Disease, Seizures, and Deep Brain Stimulation.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Genoa, IT 

    Pasquale Striano practices practicing medicine in Genoa, Italy. Mr. Striano is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 72 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Seizures, and Endoscopy.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Rudolf Bultmann Str. 8, 
    Marburg An Der Lahn, HE, DE 

    Adam Strzelczyk practices practicing medicine in Marburg An Der Lahn, Germany. Mr. Strzelczyk is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 21 other conditions, according to our data. His clinical expertise encompasses Status Epilepticus, Myoclonic Epilepsy, Seizures, Epilepsy, and Thrombectomy.

    Elite in CDKL5 Deficiency Disorder

    Dr. Eric Marsh
    Pediatric Neurology
    Elite in CDKL5 Deficiency Disorder

    Dr. Eric Marsh
    Pediatric Neurology
    Referral may be required

    Office

    3401 Civic Center Blvd Fl 10, 
    Philadelphia, PA 
    215-590-1719
    Languages Spoken:
    English
    See accepted insurances

    Eric Marsh is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Marsh is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Epilepsy, West Syndrome, and CDKL5 Deficiency Disorder.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required

    Children's Hospital Colorado

    13123 E 16th Ave, 
    Aurora, CO 
    720-777-1234
    Languages Spoken:
    English
    See accepted insurances

    Scott Demarest is a Neurologist practicing medicine in Aurora, Colorado. Dr. Demarest is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Spasmus Nutans, and Epilepsy.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required

    Arkansas Children's Hospital

    1 Childrens Way, 
    Little Rock, AR 
    501-364-1850
    Languages Spoken:
    English
    See accepted insurances

    Debopam Samanta is a Neurologist practicing medicine in Little Rock, Arkansas. Dr. Samanta is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses West Syndrome, Lennox-Gastaut Syndrome (LGS), Spasmus Nutans, Epilepsy, and Deep Brain Stimulation.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required

    Ronald Reagan UCLA Medical Center

    757 Westwood Plz, 
    Los Angeles, CA 
    310-825-9111
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Rajsekar Rajaraman is a Pediatrics provider practicing medicine in Los Angeles, California. Dr. Rajaraman is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses West Syndrome, Spasmus Nutans, CDKL5 Deficiency Disorder, and Tuberous Sclerosis Complex.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Edegem, VLG, BE 

    Berten Ceulemans practices practicing medicine in Edegem, Belgium. Mr. Ceulemans is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 18 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Dravet Syndrome, Epilepsy with Myoclonic-Atonic Seizures, and Epilepsy.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Perugia, IT 

    Alberto Verrotti practices practicing medicine in Perugia, Italy. Mr. Verrotti is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Lennox-Gastaut Syndrome (LGS), Epilepsy in Children, and Epilepsy Juvenile Absence.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required

    Duke Children's Health Center Neurology Clinic

    2301 Erwin Rd, 
    Durham, NC 
    Experience:
    21+ years
    Languages Spoken:
    English, Hindi, Sindhi, Urdu
    See accepted insurances
    Offers Telehealth

    Because of my family experiences I was drawn into the field of medicine early in my life. One of my close family members suffered from epilepsy since she was very young. I witnessed the adverse effect of epilepsy on socio-economic, education and quality of life of not just the patient, but the entire family. I learned that a doctor’s job is not only to prescribe medication but also provide education, counseling, and support when dealing with diseases like epilepsy. My two young children keep my wife and I active and on our toes. We take them hiking, camping, swimming, and any other outdoor activities possibly available that keeps them busy and promises a full night’s sleep. I enjoy woodworking and wood carving in my free time and enjoy seeing raw wood transformed into a useful daily accessory or an artistic gift. Dr. Zafar is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, Dravet Syndrome, and Generalized Tonic-Clonic Seizure. Dr. Zafar is board certified in American Board Of Psychiatry/Neurology, Neurology With Special Qualifications In Child Neurology and American Board Of Psychiatry/Neurology, Clinical Neurophysiology.

    Distinguished in CDKL5 Deficiency Disorder
    Distinguished in CDKL5 Deficiency Disorder
    Referral may be required
    Upper Maudlin Street, 
    Bristol, ENG, GB 

    Sam Amin practices practicing medicine in Bristol, United Kingdom. Mr. Amin is rated as a Distinguished expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses CDKL5 Deficiency Disorder, Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Rhizotomy.

    Distinguished in CDKL5 Deficiency Disorder
    Distinguished in CDKL5 Deficiency Disorder
    Referral may be required
    15 Hospital Avenue, 
    Nedlands, WA, AU 

    Peter Jacoby practices practicing medicine in Nedlands, Australia. Mr. Jacoby is rated as a Distinguished expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Rett Syndrome, Gastrostomy, and Myringotomy.

    Distinguished in CDKL5 Deficiency Disorder
    Distinguished in CDKL5 Deficiency Disorder
    Referral may be required
    Zwolle, OV, NL 

    Boudewijn Gunning practices practicing medicine in Zwolle, Netherlands. Gunning is rated as a Distinguished expert by MediFind in the treatment of CDKL5 Deficiency Disorder. They are also highly rated in 11 other conditions, according to our data. Their clinical expertise encompasses Myoclonic Epilepsy, Dravet Syndrome, Epilepsy with Myoclonic-Atonic Seizures, and Epilepsy.

    Distinguished in CDKL5 Deficiency Disorder
    Distinguished in CDKL5 Deficiency Disorder
    Referral may be required
    Catanzaro, IT 

    Francesca Operto practices practicing medicine in Catanzaro, Italy. Ms. Operto is rated as a Distinguished expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Seizures, Lennox-Gastaut Syndrome (LGS), and Absence Seizure.

    Distinguished in CDKL5 Deficiency Disorder
    Distinguished in CDKL5 Deficiency Disorder
    Referral may be required
    St George's University Of London, 
    London, ENG, GB 

    Marco Mula practices practicing medicine in London, United Kingdom. Mr. Mula is rated as a Distinguished expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Seizures, Post-Traumatic Epilepsy, and Generalized Tonic-Clonic Seizure.

    Distinguished in CDKL5 Deficiency Disorder
    Distinguished in CDKL5 Deficiency Disorder
    Referral may be required
    Katowice, SL, PL 

    Justyna Paprocka practices practicing medicine in Katowice, Poland. Ms. Paprocka is rated as a Distinguished expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 17 other conditions, according to our data. Her clinical expertise encompasses Hypotonia, West Syndrome, Epilepsy, Spasmus Nutans, and Gastrostomy.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    Rome, IT 

    Giovanni Dell'isola practices practicing medicine in Rome, Italy. Mr. Dell'isola is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Lennox-Gastaut Syndrome (LGS), West Syndrome, CDKL5 Deficiency Disorder, and Epilepsy.

    Showing 1-20 of 21

    Last Updated: 06/30/2026

    What is the definition of CDKL5 Deficiency Disorder?

    CDKL5 deficiency disorder is characterized by seizures that begin in infancy, followed by significant delays in many aspects of development.

    When should I see a CDKL5 Deficiency Disorder doctor near me?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CDKL5 Deficiency Disorder doctor near me?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best CDKL5 Deficiency Disorder doctor near me?

    You can find a CDKL5 Deficiency Disorder doctor in any of the 10 largest U.S. cities by clicking below:

    CDKL5 Deficiency Disorder doctor near New York, NY
    CDKL5 Deficiency Disorder doctor near Los Angeles, CA
    CDKL5 Deficiency Disorder doctor near Chicago, IL
    CDKL5 Deficiency Disorder doctor near Houston, TX
    CDKL5 Deficiency Disorder doctor near Phoenix, AZ
    CDKL5 Deficiency Disorder doctor near Philadelphia, PA
    CDKL5 Deficiency Disorder doctor near Atlanta, GA
    CDKL5 Deficiency Disorder doctor near Boston, MA
    CDKL5 Deficiency Disorder doctor near Dallas, TX
    CDKL5 Deficiency Disorder doctor near San Jose, CA

    How does MediFind rank CDKL5 Deficiency Disorder doctors near me?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CDKL5 Deficiency Disorder doctors near me?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CDKL5 Deficiency Disorder doctor near me?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. 

    Why is it important to get a second opinion from a different CDKL5 Deficiency Disorder doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CDKL5 Deficiency Disorder doctor near me?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CDKL5 Deficiency Disorder doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CDKL5 Deficiency Disorder doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CDKL5 Deficiency Disorder doctors near me?

    Look for the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CDKL5 Deficiency Disorder doctor that offers video calls?

    Look for the filter feature on the left-side of the CDKL5 Deficiency Disorder doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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