The 20 Best CDKL5 Deficiency Disorder Doctors in The United Kingdom

Find the Top CDKL5 Deficiency Disorder Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 71 doctor with experience in CDKL5 Deficiency Disorder near The United Kingdom. Of these, 61 are Experienced, 8 are Advanced, 1 are Distinguished and 1 are Elite.

Location
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71 providers found
    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Upper Maudlin Street, 
    Bristol, ENG, GB 

    Sam Amin practices practicing medicine in Bristol, United Kingdom. Mr. Amin is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses CDKL5 Deficiency Disorder, Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Rhizotomy.

    Distinguished in CDKL5 Deficiency Disorder
    Distinguished in CDKL5 Deficiency Disorder
    Referral may be required
    London, ENG, GB 

    Sila Ultanir practices practicing medicine in London, United Kingdom. Ms. Ultanir is rated as a Distinguished expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Rett Syndrome, and Spasmus Nutans.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    Glasgow, SCT, GB 

    Sameer Zuberi practices practicing medicine in Glasgow, United Kingdom. Mr. Zuberi is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, Dravet Syndrome, and Epilepsy.

    Learn about our expert tiers
    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    Edinburgh, SCT, GB 

    Richard Chin practices practicing medicine in Edinburgh, United Kingdom. Mr. Chin is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Epilepsy, Seizures, and Status Epilepticus.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    London, ENG, GB 

    Suzanne Claxton practices practicing medicine in London, United Kingdom. Ms. Claxton is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, Rett Syndrome, Spasmus Nutans, and West Syndrome.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    George Square, 
    Edinburgh, SCT, GB 

    Peter Kind practices practicing medicine in Edinburgh, United Kingdom. Mr. Kind is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Fragile X Syndrome, Autism Spectrum Disorder, West Syndrome, and CDKL5 Deficiency Disorder.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    London, ENG, GB 

    Judith Cross practices practicing medicine in London, United Kingdom. Cross is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. They are also highly rated in 20 other conditions, according to our data. Their clinical expertise encompasses Epilepsy, Absence Seizure, Generalized Tonic-Clonic Seizure, and Myoclonic Epilepsy.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    Dundee, SCT, GB 

    Ivan Munoz practices practicing medicine in Dundee, United Kingdom. Mr. Munoz is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses West Syndrome, CDKL5 Deficiency Disorder, Spasmus Nutans, and Congenital Aplastic Anemia.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    Dundee, SCT, GB 

    John Rouse practices practicing medicine in Dundee, United Kingdom. Mr. Rouse is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses West Syndrome, CDKL5 Deficiency Disorder, Congenital Aplastic Anemia, and Fanconi Anemia.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    Edinburgh, SCT, GB 

    Richard Chin practices practicing medicine in Edinburgh, United Kingdom. Mr. Chin is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Epilepsy in Children, Lennox-Gastaut Syndrome (LGS), and Seizures.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Max Born Crescent, 
    Edinburgh, SCT, GB 

    Adrian Bird practices practicing medicine in Edinburgh, United Kingdom. Mr. Bird is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Rett Syndrome, West Syndrome, CDKL5 Deficiency Disorder, and Duane-Radial Ray Syndrome.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    90 Tottenham Court Road, W1T 4TJ, 
    London, ENG, GB 

    Andre Lopes practices practicing medicine in London, United Kingdom. Mr. Lopes is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cholangiocarcinoma (Bile Duct Cancer), CDKL5 Deficiency Disorder, Squamous Cell Carcinoma of the Anal Canal (SCAC), Colorectal Cancer, and Bone Marrow Transplant.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Oxford, ENG, GB 

    Alex Bullock practices practicing medicine in Oxford, United Kingdom. Mr. Bullock is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Fibrodysplasia Ossificans Progressiva, Brain Stem Cancer, and Posterior Fossa Tumor.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Newcastle Upon Tyne, ENG, GB 

    Julien Peltier practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Peltier is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses West Syndrome, CDKL5 Deficiency Disorder, Rett Syndrome, and Spasmus Nutans.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    1 Midland Road, 
    London, ENG, GB 

    Simeon Mihaylov practices practicing medicine in London, United Kingdom. Mr. Mihaylov is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His clinical expertise encompasses West Syndrome, CDKL5 Deficiency Disorder, Rett Syndrome, and Spasmus Nutans.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Cambridge, ENG, GB 

    Daniel Checketts practices practicing medicine in Cambridge, United Kingdom. Mr. Checketts is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Lennox-Gastaut Syndrome (LGS), Myoclonic Epilepsy, Dravet Syndrome, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Edinburgh, SCT, GB 

    Elizabeth Davenport practices practicing medicine in Edinburgh, United Kingdom. Ms. Davenport is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses West Syndrome, CDKL5 Deficiency Disorder, Rett Syndrome, and Spasmus Nutans.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Dundee, SCT, GB 

    Rachel Toth practices practicing medicine in Dundee, United Kingdom. Ms. Toth is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Fanconi Anemia, Congenital Aplastic Anemia, CDKL5 Deficiency Disorder, and Spondyloepimetaphyseal Dysplasia Strudwick Type.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    George Square, 
    Edinburgh, SCT, GB 

    Michael Cousin practices practicing medicine in Edinburgh, United Kingdom. Mr. Cousin is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses West Syndrome, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and CDKL5 Deficiency Disorder.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Manchester, ENG, GB 

    Matthias Trost practices practicing medicine in Manchester, United Kingdom. Mr. Trost is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His clinical expertise encompasses Omenn Syndrome, Perrault Syndrome, CDKL5 Deficiency Disorder, and Multiple Familial Trichoepithelioma.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 71

    Last Updated: 11/08/2026

    What is the definition of CDKL5 Deficiency Disorder?

    CDKL5 deficiency disorder is characterized by seizures that begin in infancy, followed by significant delays in many aspects of development.

    When should I see a CDKL5 Deficiency Disorder doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CDKL5 Deficiency Disorder doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best CDKL5 Deficiency Disorder doctor in The United Kingdom?

    You can find a CDKL5 Deficiency Disorder doctor in any of the 10 largest U.S. cities by clicking below:

    CDKL5 Deficiency Disorder doctor near New York, NY
    CDKL5 Deficiency Disorder doctor near Los Angeles, CA
    CDKL5 Deficiency Disorder doctor near Chicago, IL
    CDKL5 Deficiency Disorder doctor near Houston, TX
    CDKL5 Deficiency Disorder doctor near Phoenix, AZ
    CDKL5 Deficiency Disorder doctor near Philadelphia, PA
    CDKL5 Deficiency Disorder doctor near Atlanta, GA
    CDKL5 Deficiency Disorder doctor near Boston, MA
    CDKL5 Deficiency Disorder doctor near Dallas, TX
    CDKL5 Deficiency Disorder doctor near San Jose, CA

    How does MediFind rank CDKL5 Deficiency Disorder doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CDKL5 Deficiency Disorder doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CDKL5 Deficiency Disorder doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. 

    Why is it important to get a second opinion from a different CDKL5 Deficiency Disorder doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CDKL5 Deficiency Disorder doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CDKL5 Deficiency Disorder doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CDKL5 Deficiency Disorder doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CDKL5 Deficiency Disorder doctors in The United Kingdom?

    Look for the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CDKL5 Deficiency Disorder doctor that offers video calls?

    Look for the filter feature on the left-side of the CDKL5 Deficiency Disorder doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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