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    Last Updated: 01/09/2026

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    MediFind found 67 doctor with experience in CDKL5 Deficiency Disorder near The United Kingdom. Of these, 58 are Experienced, 7 are Advanced, 1 are Distinguished and 1 are Elite.

    Location
    LocationClose
    67 providers found
      Elite in CDKL5 Deficiency Disorder
      Elite in CDKL5 Deficiency Disorder
      Upper Maudlin Street, 
      Bristol, ENG, GB 

      Sam Amin practices in Bristol, United Kingdom. Mr. Amin is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are CDKL5 Deficiency Disorder, Tuberous Sclerosis Complex, Tuberous Sclerosis, and Cortical Dysplasia.

      Distinguished in CDKL5 Deficiency Disorder
      Distinguished in CDKL5 Deficiency Disorder
      London, ENG, GB 

      Sila Ultanir practices in London, United Kingdom. Ms. Ultanir is rated as a Distinguished expert by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are CDKL5 Deficiency Disorder, West Syndrome, Rett Syndrome, and Spasmus Nutans.

      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder
      Glasgow, SCT, GB 

      Sameer Zuberi practices in Glasgow, United Kingdom. Mr. Zuberi is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Epilepsy with Myoclonic-Atonic Seizures, Myoclonic Epilepsy, Dravet Syndrome, and Epilepsy.

      Learn about our expert tiers
      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder
      Edinburgh, SCT, GB 

      Richard Chin practices in Edinburgh, United Kingdom. Mr. Chin is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Epilepsy, Status Epilepticus, and Seizures.

      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder
      George Square, 
      Edinburgh, SCT, GB 

      Peter Kind practices in Edinburgh, United Kingdom. Mr. Kind is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Fragile X Syndrome, Autism Spectrum Disorder, West Syndrome, and CDKL5 Deficiency Disorder.

      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder
      1 Midland Road, 
      London, ENG, GB 

      Suzanne Claxton practices in London, United Kingdom. Ms. Claxton is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are West Syndrome, Rett Syndrome, CDKL5 Deficiency Disorder, and Spasmus Nutans.

      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder
      Dundee, SCT, GB 

      Ivan Munoz practices in Dundee, United Kingdom. Mr. Munoz is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are West Syndrome, CDKL5 Deficiency Disorder, Spasmus Nutans, and Fanconi Anemia.

      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder
      Edinburgh, SCT, GB 

      Richard Chin practices in Edinburgh, United Kingdom. Mr. Chin is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Epilepsy, Lennox-Gastaut Syndrome (LGS), Seizures, and Epilepsy in Children.

      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder
      Dundee, SCT, GB 

      John Rouse practices in Dundee, United Kingdom. Mr. Rouse is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are West Syndrome, CDKL5 Deficiency Disorder, Spasmus Nutans, and Fanconi Anemia.

      Adrian P. Bird
      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      Max Born Crescent, 
      Edinburgh, SCT, GB 

      Adrian Bird practices in Edinburgh, United Kingdom. Mr. Bird is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Rett Syndrome, CDKL5 Deficiency Disorder, West Syndrome, and Isolated Duane Retraction Syndrome.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder

      Young Epilepsy, Surrey

      Lingfield, ENG, GB 

      Colin Reilly practices in Lingfield, United Kingdom. Mr. Reilly is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Dravet Syndrome, Epilepsy, Myoclonic Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, and Gastrostomy.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      Dundee, SCT, GB 

      Rachel Toth practices in Dundee, United Kingdom. Ms. Toth is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are Fanconi Anemia, Congenital Aplastic Anemia, CDKL5 Deficiency Disorder, and Aplastic Anemia.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      Oxford, ENG, GB 

      Alex Bullock practices in Oxford, United Kingdom. Mr. Bullock is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Fibrodysplasia Ossificans Progressiva, Brain Stem Cancer, and Posterior Fossa Tumor.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      London, ENG, GB 

      Simeon Mihaylov practices in London, United Kingdom. Mr. Mihaylov is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are West Syndrome, CDKL5 Deficiency Disorder, Spasmus Nutans, and Rett Syndrome.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      Newcastle Upon Tyne, ENG, GB 

      Julien Peltier practices in Newcastle Upon Tyne, United Kingdom. Mr. Peltier is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are West Syndrome, CDKL5 Deficiency Disorder, Spasmus Nutans, and Rett Syndrome.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      Oxford, ENG, GB 

      William Richardson practices in Oxford, United Kingdom. Mr. Richardson is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are CDKL5 Deficiency Disorder, Frontonasal Dysplasia, Rett Syndrome, and Clouston Syndrome.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      George Square, 
      Edinburgh, SCT, GB 

      Michael Cousin practices in Edinburgh, United Kingdom. Mr. Cousin is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are West Syndrome, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and CDKL5 Deficiency Disorder.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      Cambridge, ENG, GB 

      Daniel Checketts practices in Cambridge, United Kingdom. Mr. Checketts is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Lennox-Gastaut Syndrome (LGS), Myoclonic Epilepsy, Dravet Syndrome, and Epilepsy with Myoclonic-Atonic Seizures.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      Edinburgh, SCT, GB 

      Elizabeth Davenport practices in Edinburgh, United Kingdom. Ms. Davenport is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are West Syndrome, CDKL5 Deficiency Disorder, Spasmus Nutans, and Rett Syndrome.

      Experienced in CDKL5 Deficiency Disorder
      Experienced in CDKL5 Deficiency Disorder
      London, ENG, GB 

      Antonino Zito practices in London, United Kingdom. Mr. Zito is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Spasmus Nutans, West Syndrome, CDKL5 Deficiency Disorder, and Rett Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 67

      Last Updated: 01/09/2026

      What is the definition of CDKL5 Deficiency Disorder?

      CDKL5 deficiency disorder is characterized by seizures that begin in infancy, followed by significant delays in many aspects of development.

      When should I see a CDKL5 Deficiency Disorder doctor in The United Kingdom?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CDKL5 Deficiency Disorder doctor in The United Kingdom?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CDKL5 Deficiency Disorder doctors in The United Kingdom?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CDKL5 Deficiency Disorder doctors in The United Kingdom?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CDKL5 Deficiency Disorder doctor in The United Kingdom?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. 

      Why is it important to get a second opinion from a different CDKL5 Deficiency Disorder doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CDKL5 Deficiency Disorder doctor in The United Kingdom?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CDKL5 Deficiency Disorder doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CDKL5 Deficiency Disorder doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CDKL5 Deficiency Disorder doctors in The United Kingdom?

      Look for the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CDKL5 Deficiency Disorder doctor that offers video calls?

      Look for the filter feature on the left-side of the CDKL5 Deficiency Disorder doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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