The 20 Best CDKL5 Deficiency Disorder Doctors Near Me in ENG, GB

Find the Top CDKL5 Deficiency Disorder Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 40 doctor with experience in CDKL5 Deficiency Disorder near ENG, GB. Of these, 36 are Experienced, 3 are Advanced and 1 are Elite.

Location
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40 providers found
    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder
    Referral may be required
    Upper Maudlin Street, 
    Bristol, ENG, GB 

    Sam Amin practices practicing medicine in Bristol, United Kingdom. Mr. Amin is rated as an Elite expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses CDKL5 Deficiency Disorder, Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Rhizotomy.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    1 Midland Road, 
    London, ENG, GB 

    Sila Ultanir practices practicing medicine in London, United Kingdom. Ms. Ultanir is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Rett Syndrome, and Spasmus Nutans.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    London, ENG, GB 

    Judith Cross practices practicing medicine in London, United Kingdom. Cross is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. They are also highly rated in 19 other conditions, according to our data. Their clinical expertise encompasses Epilepsy, Absence Seizure, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Deep Brain Stimulation.

    Learn about our expert tiers
    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder
    Referral may be required
    1 Midland Road, 
    London, ENG, GB 

    Suzanne Claxton practices practicing medicine in London, United Kingdom. Ms. Claxton is rated as an Advanced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Rett Syndrome, CDKL5 Deficiency Disorder, and Spasmus Nutans.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Oxford, ENG, GB 

    Alex Bullock practices practicing medicine in Oxford, United Kingdom. Mr. Bullock is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Diffuse Midline Glioma H3 K27M-Mutant, Fibrodysplasia Ossificans Progressiva, Brain Stem Cancer, and Posterior Fossa Tumor.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Newcastle Upon Tyne, ENG, GB 

    Julien Peltier practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Peltier is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses West Syndrome, CDKL5 Deficiency Disorder, Spasmus Nutans, and Rett Syndrome.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    1 Midland Road, 
    London, ENG, GB 

    Simeon Mihaylov practices practicing medicine in London, United Kingdom. Mr. Mihaylov is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His clinical expertise encompasses West Syndrome, CDKL5 Deficiency Disorder, Spasmus Nutans, and Rett Syndrome.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Cambridge, ENG, GB 

    Daniel Checketts practices practicing medicine in Cambridge, United Kingdom. Mr. Checketts is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Lennox-Gastaut Syndrome (LGS), Myoclonic Epilepsy, Dravet Syndrome, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required

    Young Epilepsy

    Lingfield, ENG, GB 

    Colin Reilly practices practicing medicine in Lingfield, United Kingdom. Mr. Reilly is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Dravet Syndrome, Epilepsy, Myoclonic Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    London, ENG, GB 

    Antonino Zito practices practicing medicine in London, United Kingdom. Mr. Zito is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His clinical expertise encompasses Spasmus Nutans, West Syndrome, CDKL5 Deficiency Disorder, and Rett Syndrome.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    London, ENG, GB 

    Samia Elkommos practices practicing medicine in London, United Kingdom. Ms. Elkommos is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, Seizures, Absence Seizure, and Generalized Tonic-Clonic Seizure.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Queen Square, 
    London, ENG, GB 

    Marisol Castaneda-Sampedro practices practicing medicine in London, United Kingdom. Ms. Castaneda-Sampedro is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Familial Periodic Paralysis, Hypokalemic Periodic Paralysis, West Syndrome, and Myoclonic Epilepsy.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Crown St, 
    Liverpool, ENG, GB 

    Patrick Eyers practices practicing medicine in Liverpool, United Kingdom. Mr. Eyers is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cushing's syndrome due to Adrenal Tumor, Cushing's syndrome, Spasmus Nutans, and West Syndrome.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    London, ENG, GB 

    Ellie Chilcott practices practicing medicine in London, United Kingdom. Ms. Chilcott is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Dravet Syndrome, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    90 Tottenham Court Road, W1T 4TJ, 
    London, ENG, GB 

    Andre Lopes practices practicing medicine in London, United Kingdom. Mr. Lopes is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His clinical expertise encompasses Cholangiocarcinoma (Bile Duct Cancer), West Syndrome, Gallbladder Cancer, Endometrial Cancer, and Bone Marrow Transplant.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Manchester, ENG, GB 

    Neil Humphreys practices practicing medicine in Manchester, United Kingdom. Mr. Humphreys is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses GEMSS Syndrome, Weill-Marchesani Syndrome, Dehydrated Hereditary Stomatocytosis, and Fetal Edema.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Bristol, ENG, GB 

    David Smith-Lewis practices practicing medicine in Bristol, United Kingdom. Mr. Smith-Lewis is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Epilepsy, West Syndrome, Photosensitive Epilepsy, and Alien Hand Syndrome.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    1 Midland Road, 
    London, ENG, GB 

    Ambrosius Snijders practices practicing medicine in London, United Kingdom. Snijders is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. Their clinical expertise encompasses Malaria, Cockayne Syndrome Type 1, Toxoplasmosis, and West Syndrome.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    Gabriele Lignani practices practicing medicine in London, United Kingdom. Ms. Lignani is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, Epilepsy, Dravet Syndrome, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder
    Referral may be required
    Park House, Castle Park, 
    Cambridge, ENG, GB 

    Tim Guilliams practices practicing medicine in Cambridge, United Kingdom. Mr. Guilliams is rated as an Experienced expert by MediFind in the treatment of CDKL5 Deficiency Disorder. His clinical expertise encompasses Fragile X Syndrome and CDKL5 Deficiency Disorder.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 40

    Last Updated: 06/30/2026

    What is the definition of CDKL5 Deficiency Disorder?

    CDKL5 deficiency disorder is characterized by seizures that begin in infancy, followed by significant delays in many aspects of development.

    When should I see a CDKL5 Deficiency Disorder doctor in ENG, GB?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CDKL5 Deficiency Disorder doctor in ENG, GB?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CDKL5 Deficiency Disorder doctors in ENG, GB?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CDKL5 Deficiency Disorder doctors in ENG, GB?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CDKL5 Deficiency Disorder doctor in ENG, GB?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. 

    Why is it important to get a second opinion from a different CDKL5 Deficiency Disorder doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CDKL5 Deficiency Disorder doctor in ENG, GB?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CDKL5 Deficiency Disorder doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CDKL5 Deficiency Disorder doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CDKL5 Deficiency Disorder doctors in ENG, GB?

    Look for the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CDKL5 Deficiency Disorder doctor that offers video calls?

    Look for the filter feature on the left-side of the CDKL5 Deficiency Disorder doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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