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    Last Updated: 10/30/2025

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    MediFind found 77 doctor with experience in CDKL5 Deficiency Disorder near The United States. Of these, 50 are Experienced, 20 are Advanced, 4 are Distinguished and 3 are Elite.

    Location
    LocationClose
    77 providers found
      Elia P. Knight
      Elite in CDKL5 Deficiency Disorder
      Elite in CDKL5 Deficiency Disorder

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Languages Spoken:
      English

      Elia Knight is a Pediatrics provider in Cleveland, Ohio. Dr. Knight is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are CDKL5 Deficiency Disorder, West Syndrome, Seizures, and Epilepsy.

      Elite in CDKL5 Deficiency Disorder
      Pediatric Neurology
      Elite in CDKL5 Deficiency Disorder
      Pediatric Neurology
      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Scott Demarest is a Pediatric Neurologist in Aurora, Colorado. Dr. Demarest is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are CDKL5 Deficiency Disorder, West Syndrome, Spasmus Nutans, and Epilepsy. Dr. Demarest is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology
      Elite in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Eric Marsh is a Pediatric Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Marsh is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Rett Syndrome, Epilepsy, West Syndrome, and CDKL5 Deficiency Disorder.

      Learn about our expert tiers
      Distinguished in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology

      Uc Regents

      200 Medical Plaza, Suite 265, 
      Los Angeles, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Rajsekar Rajaraman is a Pediatric Neurologist and a Pediatrics provider in Los Angeles, California. Dr. Rajaraman is rated as a Distinguished provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are West Syndrome, Spasmus Nutans, CDKL5 Deficiency Disorder, and Tuberous Sclerosis Complex.

      Distinguished in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology
      Distinguished in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology

      University Physicians Incorporated

      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Benke is a Pediatric Neurologist and a Pediatrics provider in Aurora, Colorado. Dr. Benke is rated as a Distinguished provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Rett Syndrome, West Syndrome, Spasmus Nutans, and CDKL5 Deficiency Disorder. Dr. Benke is currently accepting new patients.

      Distinguished in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Distinguished in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      300 Longwood Ave, Children's Hospital Boston, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Annapurna Poduri is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Poduri is rated as a Distinguished provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are West Syndrome, Epilepsy, Spasmus Nutans, and Cortical Dysplasia. Dr. Poduri is currently accepting new patients.

      Distinguished in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Distinguished in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      William Hong is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Hong is rated as a Distinguished provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are CDKL5 Deficiency Disorder, West Syndrome, Epilepsy in Children, and Seizures. Dr. Hong is currently accepting new patients.

      Ahsan M. Naduvil
      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Languages Spoken:
      English, Hindi, Malayalam, Tamil

      Ahsan Naduvil is a Pediatrics provider in Cleveland, Ohio. Dr. Naduvil is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Continuous Spike-Wave During Slow Sleep Syndrome, Photosensitive Epilepsy, Seizures, and Memory Loss.

      Deepak Lachhwani
      Advanced in CDKL5 Deficiency Disorder
      Advanced in CDKL5 Deficiency Disorder

      Cleveland Clinic Main Campus

      9500 Euclid Avenue, 
      Cleveland, OH 
      Experience:
      44+ years
      Languages Spoken:
      English, Hindi

      Deepak Lachhwani is a Pediatrics provider in Cleveland, Ohio. Dr. Lachhwani has been practicing medicine for over 44 years and is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Seizures, Epilepsy, Continuous Spike-Wave During Slow Sleep Syndrome, and Photosensitive Epilepsy.

      Experienced in CDKL5 Deficiency Disorder
      Pediatric Neurology
      Experienced in CDKL5 Deficiency Disorder
      Pediatric Neurology

      Neurology Consultants Of Dallas - Allscripts

      8390 Lyndon B. Johnson Freeway, Suite 1000, 
      Dallas, TX 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Gossett practices in Dallas, Texas. Dr. Gossett is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Tourette Syndrome, Juvenile Myoclonic Epilepsy, Seizures, and Landau-Kleffner Syndrome. Dr. Gossett is currently accepting new patients.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      300 Longwood Ave, Boston Children Hospital, Fegan 9, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Heather Olson is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Olson is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are CDKL5 Deficiency Disorder, Agyria Pachygyria Polymicrogyria, Joubert Syndrome, and Lissencephaly 2. Dr. Olson is currently accepting new patients.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      400 Parnassus Ave Fl 8, Box 0348, 
      San Francisco, CA 
      Languages Spoken:
      English

      Joseph Sullivan is a Pediatric Neurologist and a Neurologist in San Francisco, California. Dr. Sullivan is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Myoclonic Epilepsy, Dravet Syndrome, Epilepsy with Myoclonic-Atonic Seizures, and Epilepsy.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology
      930 20th St S, Suite 101, 
      Birmingham, AL 
      Languages Spoken:
      English
      Accepting New Patients

      Alan Percy is a Pediatric Neurologist and a Pediatrics provider in Birmingham, Alabama. Dr. Percy is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, CDKL5 Deficiency Disorder, and West Syndrome. Dr. Percy is currently accepting new patients.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      300 Longwood Ave, Fegan 11, 
      Boston, MA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Mustafa Sahin is a Pediatric Neurologist and a Neurologist in Boston, Massachusetts. Dr. Sahin is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Tuberous Sclerosis, Tuberous Sclerosis Complex, Cortical Dysplasia, and Spastic Paraplegia Type 7. Dr. Sahin is currently accepting new patients.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology

      Children's Hospital Medical Center

      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Rochelle Witt is a Pediatric Neurologist and a Neurologist in Cincinnati, Ohio. Dr. Witt is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are Rett Syndrome, CDKL5 Deficiency Disorder, Myotonia Congenita, Sleepwalking (Somnambulism), and Adenoidectomy. Dr. Witt is currently accepting new patients.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      3333 Burnet Ave, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Shannon Standridge is a Pediatric Neurologist and a Neurologist in Cincinnati, Ohio. Dr. Standridge is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are Rett Syndrome, CDKL5 Deficiency Disorder, Tetrasomy 9p, and Pallister-Killian Mosaic Syndrome. Dr. Standridge is currently accepting new patients.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      3333 Burnet Avenue, Ml 2015, 
      Cincinnati, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Barbara Hallinan is a Pediatric Neurologist and a Neurologist in Cincinnati, Ohio. Dr. Hallinan is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are West Syndrome, Lennox-Gastaut Syndrome (LGS), Seizures, and Athetosis. Dr. Hallinan is currently accepting new patients.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Pediatrics | Neurology
      2200 Children's Way, Suite 30330, 
      Nashville, TN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffrey Neul is a Pediatric Neurologist and a Pediatrics provider in Nashville, Tennessee. Dr. Neul is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. His top areas of expertise are Rett Syndrome, FOXG1 Syndrome, Angelman Syndrome, and West Syndrome. Dr. Neul is currently accepting new patients.

      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology
      Advanced in CDKL5 Deficiency Disorder
      Pediatric Neurology | Neurology

      Unm Medical Group Inc

      2211 Lomas Blvd Ne, 
      Albuquerque, NM 
      Languages Spoken:
      English

      Jennifer Vickers is a Pediatric Neurologist and a Neurologist in Albuquerque, New Mexico. Dr. Vickers is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are Infant Epilepsy with Migrant Focal Crisis, Epilepsy in Children, Seizures, and Memory Loss.

      Advanced in CDKL5 Deficiency Disorder
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in CDKL5 Deficiency Disorder
      Neurology | Pediatrics | Pediatric Neurology

      University Physicians Incorporated

      13123 E 16th Ave, 
      Aurora, CO 
      Languages Spoken:
      English
      Accepting New Patients

      Kelly Knupp is a Neurologist and a Pediatrics provider in Aurora, Colorado. Dr. Knupp is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her top areas of expertise are West Syndrome, Myoclonic Epilepsy, Spasmus Nutans, and Dravet Syndrome. Dr. Knupp is currently accepting new patients.

      Showing 1-20 of 77

      Last Updated: 10/30/2025

      What is the definition of CDKL5 Deficiency Disorder?

      CDKL5 deficiency disorder is characterized by seizures that begin in infancy, followed by significant delays in many aspects of development.

      When should I see a CDKL5 Deficiency Disorder doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CDKL5 Deficiency Disorder doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CDKL5 Deficiency Disorder doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CDKL5 Deficiency Disorder doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CDKL5 Deficiency Disorder doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. 

      Why is it important to get a second opinion from a different CDKL5 Deficiency Disorder doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CDKL5 Deficiency Disorder doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CDKL5 Deficiency Disorder doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CDKL5 Deficiency Disorder doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CDKL5 Deficiency Disorder doctors in The United States?

      Look for the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CDKL5 Deficiency Disorder doctor that offers video calls?

      Look for the filter feature on the left-side of the CDKL5 Deficiency Disorder doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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