The 20 Best CDKL5 Deficiency Disorder Doctors in The United States

Find the Top CDKL5 Deficiency Disorder Experts and Specialists

Last Updated: 04/28/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 77 doctor with experience in CDKL5 Deficiency Disorder near The United States. Of these, 51 are Experienced, 19 are Advanced, 5 are Elite and 2 are Distinguished.

Location
LocationClose
77 providers found
    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English

    Elia Knight is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Knight is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 107 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Seizures, and Epilepsy. Dr. Knight is board certified in American Board Of Psychiatry And Neurology, 2013.

    Elite in CDKL5 Deficiency Disorder
    Pediatric Neurology
    Elite in CDKL5 Deficiency Disorder
    Pediatric Neurology

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Heather Olson is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Olson is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 50 other conditions, according to our data. Her clinical expertise encompasses CDKL5 Deficiency Disorder, Spasmus Nutans, West Syndrome, and Epilepsy in Children.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder

    Children's Hospital Colorado

    13123 E 16th Ave, 
    Aurora, CO 
    Languages Spoken:
    English

    Scott Demarest is a Neurologist practicing medicine in Aurora, Colorado. Dr. Demarest is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses CDKL5 Deficiency Disorder, West Syndrome, Spasmus Nutans, and Epilepsy.

    Learn about our expert tiers
    Elite in CDKL5 Deficiency Disorder
    Pediatric Neurology
    Elite in CDKL5 Deficiency Disorder
    Pediatric Neurology

    Office

    3401 Civic Center Blvd Fl 10, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Eric Marsh is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Marsh is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Epilepsy, West Syndrome, and CDKL5 Deficiency Disorder.

    Elite in CDKL5 Deficiency Disorder
    Elite in CDKL5 Deficiency Disorder

    Ronald Reagan UCLA Medical Center

    757 Westwood Plz, 
    Los Angeles, CA 
    Languages Spoken:
    English
    Offers Telehealth

    Rajsekar Rajaraman is a Pediatrics provider practicing medicine in Los Angeles, California. Dr. Rajaraman is rated as an Elite provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses West Syndrome, Spasmus Nutans, CDKL5 Deficiency Disorder, and Tuberous Sclerosis.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder

    Northeast Georgia Physicians Group Neurology

    4445 South Lee Street, Suite 310, 
    Buford, GA 
    Experience:
    22+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Tarquinio is a Neurologist practicing medicine in Buford, Georgia. He has been practicing medicine for over 22 years. Dr. Tarquinio is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Epilepsy, Seizures, and Absence Seizure. Dr. Tarquinio is board certified in American Board Of Psychiatry & Neurology, Neurology With Special Qualification In Child Neurology - 2013. Dr. Tarquinio is currently accepting new patients.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Languages Spoken:
    English, Hindi, Malayalam, Tamil

    Ahsan Naduvil is a Pediatrics provider practicing medicine in Cleveland, Ohio. Dr. Naduvil is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 50 other conditions, according to our data. His clinical expertise encompasses Continuous Spike-Wave During Slow Sleep Syndrome, Photosensitive Epilepsy, Seizures, and Memory Loss. Dr. Naduvil is board certified in American Board Of Psychiatry And Neurology, 2016.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder

    Cleveland Clinic Main Campus

    9500 Euclid Avenue, 
    Cleveland, OH 
    Experience:
    45+ years
    Languages Spoken:
    English, Hindi

    Deepak Lachhwani is a Pediatrics provider practicing medicine in Cleveland, Ohio. He has been practicing medicine for over 45 years. Dr. Lachhwani is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, Continuous Spike-Wave During Slow Sleep Syndrome, and Photosensitive Epilepsy. Dr. Lachhwani is board certified in American Board Of Psychiatry And Neurology, 2013.

    Distinguished in CDKL5 Deficiency Disorder
    Pediatric Neurology
    Distinguished in CDKL5 Deficiency Disorder
    Pediatric Neurology

    Children's Hospital Colorado

    13123 E 16th Ave, 
    Aurora, CO 
    Languages Spoken:
    English

    Timothy Benke is a Pediatric Neurologist practicing medicine in Aurora, Colorado. Dr. Benke is rated as a Distinguished provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, West Syndrome, Spasmus Nutans, and CDKL5 Deficiency Disorder.

    Distinguished in CDKL5 Deficiency Disorder
    Distinguished in CDKL5 Deficiency Disorder

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    William Hong is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Hong is rated as a Distinguished provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 42 other conditions, according to our data. His clinical expertise encompasses West Syndrome, CDKL5 Deficiency Disorder, Epilepsy in Children, and Seizures.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Annapurna Poduri is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Poduri is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 52 other conditions, according to our data. Her clinical expertise encompasses Epilepsy, West Syndrome, Cortical Dysplasia, and Polymicrogyria.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder

    Children's Hospital Colorado

    13123 East 16th Avenue, Department Of, 
    Aurora, CO 
    Experience:
    29+ years
    Languages Spoken:
    English
    Accepting New Patients

    Kelly Knupp is a Pediatrics provider practicing medicine in Aurora, Colorado. She has been practicing medicine for over 29 years. Dr. Knupp is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Myoclonic Epilepsy, Spasmus Nutans, and Dravet Syndrome. Dr. Knupp is board certified in American Board Of Psychiatry And Neurology and American Board Of Psychiatry And Neurology. Dr. Knupp is currently accepting new patients.

    Experienced in CDKL5 Deficiency Disorder
    Pediatrics | Pediatric Neurology
    Experienced in CDKL5 Deficiency Disorder
    Pediatrics | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
    Experience:
    24+ years
    Languages Spoken:
    English
    Accepting New Patients

    Elizabeth Leleszi is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Royal Oak, Michigan. She has been practicing medicine for over 24 years. Dr. Leleszi is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Migraine with Brainstem Aura, Migraine, Stereotypic Movement Disorder, and Spasmus Nutans. Dr. Leleszi is board certified in American Board Of Psychiatry And Neurology. Dr. Leleszi is currently accepting new patients.

    Experienced in CDKL5 Deficiency Disorder
    Pediatric Neurology
    Experienced in CDKL5 Deficiency Disorder
    Pediatric Neurology

    The Children's Hospital At Montefiore

    3415 Bainbridge Avenue, 
    Bronx, NY 
    Languages Spoken:
    English

    Solomon L. Moshé, MD, is Vice Chair of Neurology, Director of the Isabelle Rapin Child Neurology Division and Director of Clinical Neurophysiology at Montefiore. He is also the Charles Frost Chair in Neurosurgery and Neurology, Vice Chair, Saul R. Korey Department of Neurology, and Professor of Neurology, Neuroscience and Pediatrics at the Albert Einstein College of Medicine (Einstein). Dr. Moshé’s clinical focus is on epilepsy and electroencephalography with special emphasis on age-related influences on the expression, control and consequences of seizures. Dr. Moshe is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses West Syndrome, Spasmus Nutans, Post-Traumatic Epilepsy, and Epilepsy.

    Experienced in CDKL5 Deficiency Disorder
    Pediatric Neurology
    Experienced in CDKL5 Deficiency Disorder
    Pediatric Neurology

    Northwell Health Physician Partners Neurology At Third Avenue

    1317 3rd Avenue, 8th Floor, 
    New York, NY 
    Languages Spoken:
    English, Spanish
    Offers Telehealth

    Pediatric Neurologist and Clinical NeurophysiologistDirector of Pediatric Epilepsy Program at Lenox Hill Hospital Northwell HealthDirector of International Pediatric Neurology Program Northwell HealthClinical Professor of Neurology and Pediatrics, Zucker School of Medicine at Hofstra/Northwell. Dr. Bluvstein is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Seizures, Myoclonic Epilepsy, West Syndrome, and Epilepsy. Dr. Bluvstein is board certified in American Board Of Psychiatry/Neurology-Epilepsy and American Board Of Psychiatry & Neurology-Neurology With Special Qualifications In Child Neurology.

    Experienced in CDKL5 Deficiency Disorder
    Pediatric Neurology
    Experienced in CDKL5 Deficiency Disorder
    Pediatric Neurology

    The Children's Hospital At Montefiore

    3415 Bainbridge Avenue, 
    Bronx, NY 
    Languages Spoken:
    English

    Donya Eizadkhah is a Pediatric Neurologist practicing medicine in Bronx, New York. Dr. Eizadkhah is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. Her clinical expertise encompasses Generalized Tonic-Clonic Seizure and CDKL5 Deficiency Disorder.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder

    Logan Regional Hospital Physicians

    Logan, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Francis Filloux is a Pediatrics provider practicing medicine in Logan, Utah. Dr. Filloux is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cortical Dysplasia, West Syndrome, Seizures, and Tuberous Sclerosis Complex. Dr. Filloux is board certified in American Board Of Psychiatry And Neurology. Dr. Filloux is currently accepting new patients.

    Advanced in CDKL5 Deficiency Disorder
    Advanced in CDKL5 Deficiency Disorder

    Pediatric Specialists Of Virginia

    3023 Hamaker Ct, 300, 
    Fairfax, VA 
    Languages Spoken:
    English, Urdu
    Offers Telehealth

    John Schreiber is a Neurologist practicing medicine in Fairfax, Virginia. Dr. Schreiber is rated as an Advanced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Myoclonic Epilepsy, Seizures, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in CDKL5 Deficiency Disorder
    Pediatric Neurology | Neurology
    Experienced in CDKL5 Deficiency Disorder
    Pediatric Neurology | Neurology

    Texas Health Care, P.L.L.C.

    400 E John Carpenter Fwy, 
    Irving, TX 
    Languages Spoken:
    English

    Alison Dolce is a Pediatric Neurologist and a Neurologist practicing medicine in Irving, Texas. Dr. Dolce is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Memory Loss. Dr. Dolce is board certified in Neurology With Special Qualification In Child Neurology- American Board Of Psychiatry And Neurology, Clinical Neurophysiology- American Board Of Psychiatry And Neurology, and Epilepsy- American Board Of Psychiatry And Neurology.

    Experienced in CDKL5 Deficiency Disorder
    Experienced in CDKL5 Deficiency Disorder

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Catherine Salussolia is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Salussolia is rated as an Experienced provider by MediFind in the treatment of CDKL5 Deficiency Disorder. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Tuberous Sclerosis, Tuberous Sclerosis Complex, West Syndrome, and Seizures.

    Showing 1-20 of 77

    Last Updated: 04/28/2026

    What is the definition of CDKL5 Deficiency Disorder?

    CDKL5 deficiency disorder is characterized by seizures that begin in infancy, followed by significant delays in many aspects of development.

    When should I see a CDKL5 Deficiency Disorder doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CDKL5 Deficiency Disorder doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CDKL5 Deficiency Disorder doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CDKL5 Deficiency Disorder doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CDKL5 Deficiency Disorder doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. 

    Why is it important to get a second opinion from a different CDKL5 Deficiency Disorder doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CDKL5 Deficiency Disorder doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CDKL5 Deficiency Disorder doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CDKL5 Deficiency Disorder doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CDKL5 Deficiency Disorder doctors in The United States?

    Look for the filter feature on the left side of the CDKL5 Deficiency Disorder doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CDKL5 Deficiency Disorder doctor that offers video calls?

    Look for the filter feature on the left-side of the CDKL5 Deficiency Disorder doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy

    More CDKL5 Deficiency Disorder Doctors by state