The 20 Best Centronuclear Myopathy Doctors in The United Kingdom

Find the Top Centronuclear Myopathy Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 19 doctor with experience in Centronuclear Myopathy near The United Kingdom. Of these, 12 are Experienced, 4 are Advanced, 2 are Elite and 1 are Distinguished.

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19 providers found
    Elite in Centronuclear Myopathy
    Elite in Centronuclear Myopathy
    Referral may be required
    Guy's And St, 
    London, ENG, GB 

    Heinz Jungbluth practices practicing medicine in London, United Kingdom. Mr. Jungbluth is rated as an Elite expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Centronuclear Myopathy, Rhabdomyolysis, and Congenital Fiber-Type Disproportion.

    Elite in Centronuclear Myopathy
    Elite in Centronuclear Myopathy
    Referral may be required
    UCL Great Ormond Street, 
    London, ENG, GB 

    Francesco Muntoni practices practicing medicine in London, United Kingdom. Mr. Muntoni is rated as an Elite expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Primary Lateral Sclerosis, Gastrostomy, and Spinal Fusion.

    Distinguished in Centronuclear Myopathy
    Distinguished in Centronuclear Myopathy
    Referral may be required
    Manchester, ENG, GB 

    Caroline Sewry practices practicing medicine in Manchester, United Kingdom. Ms. Sewry is rated as a Distinguished expert by MediFind in the treatment of Centronuclear Myopathy. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, Tubular Aggregate Myopathy, and Nemaline Myopathy.

    Learn about our expert tiers
    Advanced in Centronuclear Myopathy
    Advanced in Centronuclear Myopathy
    Referral may be required
    UCL Queen Square Institute Of Neurology, Queen Square, 
    London, ENG, GB 

    Rahul Phadke practices practicing medicine in London, United Kingdom. Mr. Phadke is rated as an Advanced expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Arthrogryposis Multiplex Congenita, Congenital Contractures, Amyotonia Congenita, and Myotonia Congenita.

    Advanced in Centronuclear Myopathy
    Advanced in Centronuclear Myopathy
    Referral may be required
    Dubowitz Neuromuscular Centre Great Ormond Street Hospital, 
    London, ENG, GB 

    Anna Sarkozy practices practicing medicine in London, United Kingdom. Ms. Sarkozy is rated as an Advanced expert by MediFind in the treatment of Centronuclear Myopathy. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses X-Linked Myotubular Myopathy, Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, Becker Muscular Dystrophy, and Gastrostomy.

    Advanced in Centronuclear Myopathy
    Advanced in Centronuclear Myopathy
    Referral may be required
    Great Ormond Street Hospital, 
    London, ENG, GB 

    Thomas Cullup practices practicing medicine in London, United Kingdom. Mr. Cullup is rated as an Advanced expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, X-Linked Myotubular Myopathy, Congenital Fiber-Type Disproportion, and Tubular Aggregate Myopathy.

    Advanced in Centronuclear Myopathy
    Advanced in Centronuclear Myopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Hanns Lochmuller practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Lochmuller is rated as an Advanced expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Congenital Myasthenic Syndrome, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Paramyotonia Congenita.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Volker Straub practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Straub is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 40 other conditions, according to our data. His clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Cramp-Fasciculation Syndrome.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Ana Topf practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Topf is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Congenital Myasthenic Syndrome, Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 1A, and Cerebellar Hypoplasia.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    London, ENG, GB 

    Mathias Gautel practices practicing medicine in London, United Kingdom. Mr. Gautel is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Corpus Callosum Agenesis, Myotonia Congenita, Amyotonia Congenita, and Heart Transplant.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    UCL Queen Square Institute Of Neurology, 
    London, ENG, GB 

    David Pellerin practices practicing medicine in London, United Kingdom. Mr. Pellerin is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Acute Cerebellar Ataxia, Drug Induced Dyskinesia, Spinocerebellar Ataxia, and Olivopontocerebellar Atrophy.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Pierre Carlier practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Carlier is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Miyoshi Myopathy, Dysferlinopathy, Duchenne Muscular Dystrophy, and Limb-Girdle Muscular Dystrophy.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    London, ENG, GB 

    Gemma Fisher practices practicing medicine in London, United Kingdom. Ms. Fisher is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. Her clinical expertise encompasses Primary Lateral Sclerosis, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Tubular Aggregate Myopathy.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    Queen Square, 
    London, ENG, GB 

    Susan Treves practices practicing medicine in London, United Kingdom. Ms. Treves is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Rhabdomyolysis, Amyotonia Congenita, Myotonia Congenita, and Hyperthermia.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Luca Bello practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Mr. Bello is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal and Bulbar Muscular Atrophy, Dysferlinopathy, and Thymectomy.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    Newcastle Upon Tyne, ENG, GB 

    Katherine Johnson practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Johnson is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Bosma Arhinia Microphthalmia Syndrome, Choanal Atresia, and Limb-Girdle Muscular Dystrophy Type 2A.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    Central Parkway, 
    Newcastle Upon Tyne, ENG, GB 

    Elena Pegoraro practices practicing medicine in Newcastle Upon Tyne, United Kingdom. Ms. Pegoraro is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. She is also highly rated in 33 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal and Bulbar Muscular Atrophy, Primary Lateral Sclerosis, and Thymectomy.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    Oxford, ENG, GB 

    Charlotte Lilien practices practicing medicine in Oxford, United Kingdom. Ms. Lilien is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, and Primary Lateral Sclerosis.

    Experienced in Centronuclear Myopathy
    Experienced in Centronuclear Myopathy
    Referral may be required
    London, ENG, GB 

    Sarah Johnson practices practicing medicine in London, United Kingdom. Ms. Johnson is rated as an Experienced expert by MediFind in the treatment of Centronuclear Myopathy. Her clinical expertise encompasses Parathyroid Cancer, Centronuclear Myopathy, Thyroid Cancer, Parathyroid Adenoma, and Thyroidectomy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-19 of 19

    Last Updated: 11/08/2026

    What is the definition of Centronuclear Myopathy?

    Centronuclear myopathy is a condition characterized by muscle weakness (myopathy) and wasting (atrophy) in the skeletal muscles, which are the muscles used for movement. The severity of centronuclear myopathy varies among affected individuals, even among members of the same family.

    When should I see a Centronuclear Myopathy doctor in The United Kingdom?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Centronuclear Myopathy doctor in The United Kingdom?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Centronuclear Myopathy doctor in The United Kingdom?

    You can find a Centronuclear Myopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Centronuclear Myopathy doctors in The United Kingdom?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Centronuclear Myopathy doctors in The United Kingdom?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Centronuclear Myopathy doctor in The United Kingdom?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Centronuclear Myopathy doctor search results page. 

    Why is it important to get a second opinion from a different Centronuclear Myopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Centronuclear Myopathy doctor in The United Kingdom?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Centronuclear Myopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Centronuclear Myopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Centronuclear Myopathy doctors in The United Kingdom?

    Look for the filter feature on the left side of the Centronuclear Myopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Centronuclear Myopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Centronuclear Myopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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