Swiss Cerebral Palsy Registry

Status: Recruiting
Location: See all (8) locations...
Study Type: Observational
SUMMARY

The Swiss-CP-Reg is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with cerebral palsy (CP) in Switzerland. It was first implemented in 2017 in the paediatric clinics in Basel, Bellinzona, Bern, Geneva, Lausanne, St. Gallen and Zurich. It is currently extended to all Swiss clinics and medical practices and adults will be invited to join the register in the coming years. The registry provides data for national and international monitoring and research. It supports research on CP in Switzerland and the exchange of knowledge between clinicians, researchers and therapists, with the goal to improve the treatment of children and adults with CP and optimizing their health and quality of life.

Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:

• Who were diagnosed with CP, confirmation of the diagnosis at the age of 5 years is required

• Who are born, treated for CP or living in Switzerland, and

• Who gave informed consent

Locations
Other Locations
Switzerland
University Children's Hospital Basel, UKBB
RECRUITING
Basel
Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
RECRUITING
Bellinzona
Institute of Social and Preventive Medicine (ISPM), University of Bern
RECRUITING
Bern
University Children's Hospital Bern, Inselspital
RECRUITING
Bern
University Hospitals of Geneva
RECRUITING
Geneva
University Children's hospital Lausane, CHUV
RECRUITING
Lausanne
Children's Hospital of Eastern Switzerland
RECRUITING
Sankt Gallen
University Children's Hospital Zurich
RECRUITING
Zurich
Contact Information
Primary
Claudia E Kuehni, Prof. MD
swiss-cp-reg.ispm@unibe.ch
+41 31 684 35 07
Time Frame
Start Date: 2017-06-19
Estimated Completion Date: 2071-01
Participants
Target number of participants: 15000
Treatments
Patient population
Children, adolescents and adults diagnosed with cerebral palsy who are born, treated or living in Switzerland
Related Therapeutic Areas
Sponsors
Leads: University of Bern
Collaborators: Schweizerische Stiftung für das cerebral gelähmte Kind

This content was sourced from clinicaltrials.gov