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    Last Updated: 10/30/2025

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    MediFind found 34 doctor with experience in Cerebrotendinous Xanthomatosis near Germany. Of these, 25 are Experienced, 8 are Advanced and 1 are Distinguished.

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    34 providers found
      Distinguished in Cerebrotendinous Xanthomatosis

      Ludger J. Schols
      Distinguished in Cerebrotendinous Xanthomatosis

      Ludger J. Schols
      Hoppe Seyler Str. 3, 
      Tuebingen, BW, DE 

      Ludger Schols practices in Tuebingen, Germany. Mr. Schols is rated as a Distinguished expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Paraplegia, Spastic Paraplegia Type 7, Spasticity, and Drug Induced Dyskinesia.

      Advanced in Cerebrotendinous Xanthomatosis

      Philip Hoflinger
      Advanced in Cerebrotendinous Xanthomatosis

      Philip Hoflinger
      Siegfried Weller Research Institute At The BG Unfallklinik Tübingen, Schnarrenbergstr. 95, 
      Tuebingen, BW, DE 

      Philip Hoflinger practices in Tuebingen, Germany. Mr. Hoflinger is rated as an Advanced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Spastic Paraplegia Type 5A, Cerebrotendinous Xanthomatosis, Spastic Paraplegia Type 7, and Xanthoma.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Cerebrotendinous Xanthomatosis

      Silke Matysik
      Advanced in Cerebrotendinous Xanthomatosis

      Silke Matysik
      Franz Josef Strauß Allee 11, 
      Regensburg, BY, DE 

      Silke Matysik practices in Regensburg, Germany. Ms. Matysik is rated as an Advanced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. Her top areas of expertise are Cerebrotendinous Xanthomatosis, Xanthoma, Adrenocortical Carcinoma, and Adrenal Cancer.

      Learn about our expert tiers
      Advanced in Cerebrotendinous Xanthomatosis

      Dieter S. Lutjohann
      Advanced in Cerebrotendinous Xanthomatosis

      Dieter S. Lutjohann
      Sigmund Freud Str. 25, 
      Bonn, NW, DE 

      Dieter Lutjohann practices in Bonn, Germany. Mr. Lutjohann is rated as an Advanced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are High Cholesterol, Sitosterolemia, Atherosclerosis, Gallstones, and Bone Marrow Transplant.

      Advanced in Cerebrotendinous Xanthomatosis

      Gerd Schmitz
      Advanced in Cerebrotendinous Xanthomatosis

      Gerd Schmitz
      Franz Josef Strauß Allee 11, 
      Regensburg, BY, DE 

      Gerd Schmitz practices in Regensburg, Germany. Schmitz is rated as an Advanced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. Their top areas of expertise are Cerebrotendinous Xanthomatosis, Xanthoma, Metabolic Syndrome, Obesity, and Hip Replacement.

      Advanced in Cerebrotendinous Xanthomatosis

      Tom Luedde
      Advanced in Cerebrotendinous Xanthomatosis

      Tom Luedde
      Duesseldorf, NW, DE 

      Tom Luedde practices in Duesseldorf, Germany. Mr. Luedde is rated as an Advanced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Cholangiocarcinoma (Bile Duct Cancer), Cirrhosis, Liver Cancer, Hepato-Pancreato-Biliary Surgery, and Pancreaticoduodenectomy.

      Advanced in Cerebrotendinous Xanthomatosis

      David Scholer
      Advanced in Cerebrotendinous Xanthomatosis

      David Scholer
      Duesseldorf, NW, DE 

      David Scholer practices in Duesseldorf, Germany. Mr. Scholer is rated as an Advanced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Xanthoma, Cerebrotendinous Xanthomatosis, Liver Cancer, and Hemorrhoids.

      Advanced in Cerebrotendinous Xanthomatosis

      Holger Hengel
      Advanced in Cerebrotendinous Xanthomatosis

      Holger Hengel
      Hoppe Seyler Str. 3, 
      Tuebingen, BW, DE 

      Holger Hengel practices in Tuebingen, Germany. Mr. Hengel is rated as an Advanced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Spastic Paraplegia Type 4, Spastic Paraplegia Type 5A, Olivopontocerebellar Atrophy, and Spinocerebellar Ataxia Type 3.

      Advanced in Cerebrotendinous Xanthomatosis

      Stefan Hauser
      Advanced in Cerebrotendinous Xanthomatosis

      Stefan Hauser
      Tuebingen, BW, DE 

      Stefan Hauser practices in Tuebingen, Germany. Mr. Hauser is rated as an Advanced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Spastic Paraplegia Type 5A, Spastic Paraplegia Type 7, Spastic Paraplegia Type 2, and Paraplegia.

      Experienced in Cerebrotendinous Xanthomatosis

      Benjamin Roeben
      Experienced in Cerebrotendinous Xanthomatosis

      Benjamin Roeben
      Hoppe Seyler Str. 3, 
      Tuebingen, BW, DE 

      Benjamin Roeben practices in Tuebingen, Germany. Mr. Roeben is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Subcortical Band Heterotopia, Miller-Dieker Syndrome, Lissencephaly 1, and Lissencephaly.

      Experienced in Cerebrotendinous Xanthomatosis

      Wolfgang Kohler
      Experienced in Cerebrotendinous Xanthomatosis

      Wolfgang Kohler

      Fachkrankenhaus Hubertusburg

      Wermsdorf, SN, DE 

      Wolfgang Kohler practices in Wermsdorf, Germany. Mr. Kohler is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are CACH Syndrome, Adrenoleukodystrophy (ALD), Addison's Disease, Leukodystrophy, and Bone Marrow Transplant.

      Experienced in Cerebrotendinous Xanthomatosis

      Frank Kannenberg
      Experienced in Cerebrotendinous Xanthomatosis

      Frank Kannenberg
      Muenster, NW, DE 

      Frank Kannenberg practices in Muenster, Germany. Mr. Kannenberg is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Cerebrotendinous Xanthomatosis, Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, and Acid Sphingomyelinase Deficiency (ASMD).

      Experienced in Cerebrotendinous Xanthomatosis

      Saskia Biskup
      Experienced in Cerebrotendinous Xanthomatosis

      Saskia Biskup
      Paul Ehrlich Str. 23, 
      Tuebingen, BW, DE 

      Saskia Biskup practices in Tuebingen, Germany. Ms. Biskup is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. Her top areas of expertise are Camptodactyly Syndrome Guadalajara Type 2, Camptodactyly Taurinuria, Camptodactyly Syndrome Guadalajara Type 1, Camptodactyly Fibrous Tissue Hyperplasia Skeletal Dysplasia, and Gastrostomy.

      Experienced in Cerebrotendinous Xanthomatosis

      Christian Vollmar
      Experienced in Cerebrotendinous Xanthomatosis

      Christian Vollmar
      Munich, BY, DE 

      Christian Vollmar practices in Munich, Germany. Mr. Vollmar is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Juvenile Myoclonic Epilepsy, Myoclonic Epilepsy, Epilepsy, Epilepsy with Myoclonic-Atonic Seizures, and Deep Brain Stimulation.

      Experienced in Cerebrotendinous Xanthomatosis

      Thomas Klopstock
      Experienced in Cerebrotendinous Xanthomatosis

      Thomas Klopstock
      Feodor Lynen Str. 17, 
      Munich, BY, DE 

      Thomas Klopstock practices in Munich, Germany. Mr. Klopstock is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Pantothenate Kinase-Associated Neurodegeneration, and Hallervorden-Spatz Disease.

      Experienced in Cerebrotendinous Xanthomatosis

      Ebba Lohmann
      Experienced in Cerebrotendinous Xanthomatosis

      Ebba Lohmann
      Hoppe Seyler Str. 3, 
      Tuebingen, BW, DE 

      Ebba Lohmann practices in Tuebingen, Germany. Ms. Lohmann is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. Her top areas of expertise are Movement Disorders, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Drug Induced Dyskinesia, and Parkinson's Disease.

      Experienced in Cerebrotendinous Xanthomatosis

      Konstanze Hortnagel
      Experienced in Cerebrotendinous Xanthomatosis

      Konstanze Hortnagel
      Paul Ehrlich Str. 23, 
      Tuebingen, BW, DE 

      Konstanze Hortnagel practices in Tuebingen, Germany. Hortnagel is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. Their top areas of expertise are West Syndrome, Hereditary Spastic Paraparesis, Epilepsy in Children, and MYH9 Related Thrombocytopenia.

      Experienced in Cerebrotendinous Xanthomatosis

      Jennifer Just
      Experienced in Cerebrotendinous Xanthomatosis

      Jennifer Just
      Otfried Müller Str. 23, 
      Tuebingen, BW, DE 

      Jennifer Just practices in Tuebingen, Germany. Ms. Just is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Metachromatic Leukodystrophy, and Leukodystrophy.

      Experienced in Cerebrotendinous Xanthomatosis

      Constanze Gallenmuller
      Experienced in Cerebrotendinous Xanthomatosis

      Constanze Gallenmuller
      Munich, BY, DE 

      Constanze Gallenmuller practices in Munich, Germany. Gallenmuller is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. Their top areas of expertise are Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Retinopathy Pigmentary Mental Retardation, and Drug Induced Dyskinesia.

      Experienced in Cerebrotendinous Xanthomatosis

      Manfred Fobker
      Experienced in Cerebrotendinous Xanthomatosis

      Manfred Fobker
      Muenster, NW, DE 

      Manfred Fobker practices in Muenster, Germany. Mr. Fobker is rated as an Experienced expert by MediFind in the treatment of Cerebrotendinous Xanthomatosis. His top areas of expertise are Glutaric Acidemia Type 2, COVID-19, Niemann-Pick Disease, Cerebrotendinous Xanthomatosis, and Thrombectomy.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 34

      Last Updated: 10/30/2025

      What is the definition of Cerebrotendinous Xanthomatosis?

      Cerebrotendinous xanthomatosis is a disorder characterized by abnormal storage of fats (lipids) in many areas of the body (lipid storage disease). People with this disorder cannot break down certain lipids effectively (such as cholesterol), so these fats form fatty yellow nodules called xanthomas, that accumulate in the body, especially in the brain and the tendons that attach muscle to bone, which is reflected in the condition name (cerebro- meaning brain and -tendinous referring to tendons). Symptoms may include diarrhea, clouding of the lens of the eyes (cataracts), tendon problems and progressive neurologic problems, such as epilepsy, movement disorders, impaired speech (dysarthria), loss of sensation in the arms and legs (peripheral neuropathy), dementia, hallucinations, and depression. Other symptoms may include brittle bones that are prone to fracture (osteoporosis) and an increased risk of developing heart or lung failure because of lipid buildup. It is caused by genetic changes in the CYP27A1 gene.

      When should I see a Cerebrotendinous Xanthomatosis doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cerebrotendinous Xanthomatosis doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Cerebrotendinous Xanthomatosis doctor in Germany?

      You can find a Cerebrotendinous Xanthomatosis doctor in any of the 10 largest U.S. cities by clicking below:

      Cerebrotendinous Xanthomatosis doctor near New York, NY
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      Cerebrotendinous Xanthomatosis doctor near Philadelphia, PA
      Cerebrotendinous Xanthomatosis doctor near Atlanta, GA
      Cerebrotendinous Xanthomatosis doctor near Boston, MA
      Cerebrotendinous Xanthomatosis doctor near Dallas, TX
      Cerebrotendinous Xanthomatosis doctor near San Jose, CA

      How does MediFind rank Cerebrotendinous Xanthomatosis doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cerebrotendinous Xanthomatosis doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cerebrotendinous Xanthomatosis doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cerebrotendinous Xanthomatosis doctor search results page. 

      Why is it important to get a second opinion from a different Cerebrotendinous Xanthomatosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cerebrotendinous Xanthomatosis doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cerebrotendinous Xanthomatosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cerebrotendinous Xanthomatosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cerebrotendinous Xanthomatosis doctors in Germany?

      Look for the filter feature on the left side of the Cerebrotendinous Xanthomatosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cerebrotendinous Xanthomatosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cerebrotendinous Xanthomatosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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