The 20 Best Charcot-Marie-Tooth Disease Doctors in The United States

Dr. Charlotte Sumner is a Professor of Neurology and Neuroscience at Johns Hopkins University School of Medicine. Dr. Sumner cares for patients with genetically-mediated neuromuscular diseases. Her practice is notable for a focus on individuals with inherited neuromuscular disorders of peripheral nerves and motor neurons, including spinal muscular atrophy (SMA) and Charcot-Marie-Tooth (CMT) disease. She co-directs the Johns Hopkins Muscular Dystrophy Association Care Center, the Spinal Muscular Atrophy (SMA), and the Charcot-Marie-Tooth (CMT) clinics, which deliver multidisciplinary clinical care, engage in international natural history studies, and provide cutting edge therapeutics. Dr. Sumner’s research focuses on developing treatments for degenerative disorders of motor neurons and peripheral nerves. Her laboratory uses human tissues and induced pluripotent cell lines, mouse models and cultured cells to characterize disease mechanisms and develop treatments. Dr. Charlotte Sumner received her medical degree from the University of Pennsylvania School of Medicine following undergraduate studies at Princeton University. She completed internal medicine internship and neurology residency at the University of California San Francisco, after which she returned to the east coast for a neuromuscular fellowship at Johns Hopkins and a neurogenetics fellowship in the Neurogenetics Branch at the National Institute of Neurological Disorders and Stroke. She joined the neurology faculty at Johns Hopkins in 2006. Dr. Sumner is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Charcot-Marie-Tooth Disease, Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 2, and Gastrostomy.

David Herrmann is a Neurologist in Rochester, New York. Dr. Herrmann is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Charcot-Marie-Tooth Disease, Chronic Inflammatory Demyelinating Polyneuropathy, Peripheral Neuropathy, and Spinal Muscular Atrophy with Arthrogryposis.

Kurt Thomas is a Neurologist in Paramus, New Jersey. Dr. Thomas is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Charcot-Marie-Tooth Disease, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Primary Lateral Sclerosis.

Michael Shy is a Neurologist in Iowa City, Iowa. Dr. Shy is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Sensorimotor Polyneuropathy, and Septic Arthritis.

Steven Scherer is a Neurologist in Philadelphia, Pennsylvania. Dr. Scherer is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Sensorimotor Polyneuropathy, and Tomaculous Neuropathy.

Sindhu Ramchandren is a Neurologist in Ann Arbor, Michigan. Dr. Ramchandren is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. Her top areas of expertise are Charcot-Marie-Tooth Disease, Myasthenia Gravis, Limb-Girdle Muscular Dystrophy Type 1A, and Limb-Girdle Muscular Dystrophy Type 2B.

Mario Saporta is a Neurologist in Miami, Florida. Dr. Saporta is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Charcot-Marie-Tooth Disease, Limb-Girdle Muscular Dystrophy Type 1B, Limb-Girdle Muscular Dystrophy Type 2A, and Limb-Girdle Muscular Dystrophy Type 1A.

Richard Finkel is a Pediatrics provider in Memphis, Tennessee. Dr. Finkel is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy Type 2.

Gyula Acsadi is a Neuromusculoskeletal Medicine provider in Farmington, Connecticut. Dr. Acsadi is rated as an Elite provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Charcot-Marie-Tooth Disease, Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Hereditary Spastic Paraparesis, and Rhizotomy.

. Dr. Lee is rated as an Advanced provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Myasthenia Gravis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy (SMA), Guillain-Barre Syndrome, and Gamma Knife Radiosurgery.

. Dr. Khoshnoodi is rated as an Experienced provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Peripheral Neuropathy, Guillain-Barre Syndrome, Chronic Polyradiculoneuritis, and Miller-Fisher Syndrome.

. Dr. Melvin is rated as an Experienced provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are West Syndrome, Generalized Tonic-Clonic Seizure, Phenylketonuria (PKU), and Seizures.

Arvo Kanna, MD, became a neurologist because he was deeply fascinated by the complexities of the human brain. “My job is like piecing together a puzzle, where I use a patient’s medical history along with examination and tests to find an accurate diagnosis.” Dr. Kanna believes that a strong patient-physician relationship is one of the most important tools a doctor can have. “Creating a personal connection is essential,” he says. “It lets the patient know that you genuinely care.”. Dr. Kanna is rated as an Experienced provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Autosomal Dominant Partial Epilepsy with Auditory Features, Epilepsy Juvenile Absence, Absence Seizure, and Memory Loss.

Emily Jaeger is a Neurologist in Oak Creek, Wisconsin. Dr. Jaeger is rated as an Experienced provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. Her top areas of expertise are Migraine, Seizures, Memory Loss, and Migraine with Brainstem Aura.

Leah Nitke is a primary care provider, practicing in Internal Medicine in Green Bay, Wisconsin. Dr. Nitke is rated as an Experienced provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. Her top areas of expertise are Sitosterolemia, Fetal Alcohol Syndrome (FAS), Hypothyroidism, and Obesity in Children.

Jiangping Liu is a Neurologist in Fort Worth, Texas. Dr. Liu is rated as a Distinguished provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Andermann Syndrome, Septic Arthritis, Charcot-Marie-Tooth Disease, and Sensorimotor Polyneuropathy.

Dhruv Patel is a Neurologist in Lorain, Ohio. Dr. Patel is rated as a Distinguished provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Charcot-Marie-Tooth Disease, Hereditary Sensory Neuropathy Type 1 (HSN1), Andermann Syndrome, and Sensorimotor Polyneuropathy. Dr. Patel is currently accepting new patients.

Lester Collins is a Neurologist in Tyler, Texas. Dr. Collins is rated as a Distinguished provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Lewy Body Dementia (LBD), Multiple System Atrophy, Stiff Person Syndrome, and Normal Pressure Hydrocephalus.

Sharique Ansari is a Neurologist in Bedford, Texas. Dr. Ansari is rated as a Distinguished provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Trigeminal Neuralgia, Septic Arthritis, Andermann Syndrome, and Tomaculous Neuropathy.

. Dr. Pilar is rated as an Advanced provider by MediFind in the treatment of Charcot-Marie-Tooth Disease. His top areas of expertise are Activated PI3K Delta Syndrome (APDS), Guillain-Barre Syndrome, Chronic Polyradiculoneuritis, and Miller-Fisher Syndrome.