The 20 Best CHARGE Syndrome Doctors Near Me in Grand Rapids, MI

Find the Top CHARGE Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 62 doctor with experience in CHARGE Syndrome near Grand Rapids, MI. Of these, 57 are Experienced and 5 are Advanced.

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62 providers found
    Advanced in CHARGE Syndrome
    Advanced in CHARGE Syndrome

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English

    Julie Conley is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 17 years. Dr. Conley is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 39 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Legius Syndrome, Esotropia, and RASopathies. Dr. Conley is board certified in American Board Of Ophthalmology.

    Advanced in CHARGE Syndrome
    Advanced in CHARGE Syndrome

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English

    Brooke Geddie is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Geddie is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 47 other conditions, according to our data. Her clinical expertise encompasses Coloboma, Strabismus, Congenital Cataract, Esotropia, and Vitrectomy. Dr. Geddie is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Advanced in CHARGE Syndrome
    Pediatric Neurology
    Advanced in CHARGE Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    34+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Fain is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 34 years. Dr. Fain is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. He is also highly rated in 84 other conditions, according to our data. His clinical expertise encompasses Neurofibromatosis Type 1 (NF1), Neurofibromatosis, Legius Syndrome, and Seizures. Dr. Fain is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2016 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 1999. Dr. Fain is currently accepting new patients.

    Learn about our expert tiers
    Advanced in CHARGE Syndrome
    Pediatrics | Medical Genetics
    Advanced in CHARGE Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Medical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English, Spanish

    Linda Rossetti is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 10 years. Dr. Rossetti is rated as an Advanced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 87 other conditions, according to our data. Her clinical expertise encompasses Smith-Magenis Syndrome, Miller-Dieker Syndrome, Chromosome 6q Duplication, and Chromosome 8p Deletion. Dr. Rossetti is board certified in American Board Of Medical Genetics And Genomics and American Board Of Pediatrics.

    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    37+ years
    Languages Spoken:
    English

    John Winters is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 37 years. Dr. Winters is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. His clinical expertise encompasses Respiratory Syncytial Virus (RSV) Infection, CHARGE Syndrome, Koolen De Vries Syndrome, and Early Infantile Epileptic Encephalopathy. Dr. Winters is board certified in American Board Of Pediatrics.

    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Critical Care (PICU)

    100 Michigan Street Northeast, 
    Grand Rapids, MI 
     (0.4 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English

    Shefali Aggarwal is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 12 years. Dr. Aggarwal is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. Her clinical expertise encompasses Chondrodystrophy, Koolen De Vries Syndrome, Wildervanck Syndrome, and Early Infantile Epileptic Encephalopathy. Dr. Aggarwal is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Experienced in CHARGE Syndrome
    Pediatric Orthopedics
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    21+ years
    Languages Spoken:
    English
    Accepting New Patients

    Lisa Maskill is a Pediatric Orthopedics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 21 years. Dr. Maskill is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 36 other conditions, according to our data. Her clinical expertise encompasses Congenital Radioulnar Synostosis, Brachydactyly Type B, Liebenberg Syndrome, and Brachydactyly Type A2. Dr. Maskill is board certified in American Board Of Orthopaedic Surgery. Dr. Maskill is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Pediatrics | Medical Genetics
    Experienced in CHARGE Syndrome
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    8+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 8 years. Dr. Priestley is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Multiple Sulfatase Deficiency. Dr. Priestley is board certified in American Board Of Medical Genetics And Genomics, American Board Of Medical Genetics And Genomics, and American Board Of Pediatrics.

    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Neurodevelopmental - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Meghan Behrmann is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 17 years. Dr. Behrmann is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Delayed Growth, Cardiofaciocutaneous Syndrome, and Distal 18q Deletion Syndrome. Dr. Behrmann is board certified in American Board Of Pediatrics and American Board Of Pediatrics. Dr. Behrmann is currently accepting new patients.

    Experienced in CHARGE Syndrome
    General Surgery
    Experienced in CHARGE Syndrome
    General Surgery

    Corewell Health Pediatric Neurosurgery - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Casey Madura is a General Surgeon practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 18 years. Dr. Madura is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Chiari Malformation Type 2, Chiari Malformation, Chiari Malformation Type 1, Hydrocephalus, and Craniectomy. Dr. Madura is board certified in American Board Of Neurological Surgery.

    Experienced in CHARGE Syndrome
    Pediatric Neurology
    Experienced in CHARGE Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 32 years. Dr. Deroos is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is board certified in American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2005. Dr. Deroos is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Pediatric Orthopedics
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    19+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Kemppainen is a Pediatric Orthopedics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 19 years. Dr. Kemppainen is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Scoliosis, Clubfoot, Spondylocarpotarsal Synostosis Syndrome, and Caudal Regression Syndrome. Dr. Kemppainen is board certified in American Board Of Orthopaedic Surgery and American Board Of Orthopaedic Surgery. Dr. Kemppainen is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Pediatric Neurology | Family Medicine
    Experienced in CHARGE Syndrome
    Pediatric Neurology | Family Medicine

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Seth Devries is a Pediatric Neurologist and a Family Medicine provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 18 years. Dr. Devries is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Absence Seizure, Seizures, Epilepsy Juvenile Absence, and Epilepsy in Children. Dr. Devries is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2017 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2015. Dr. Devries is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Neurodevelopmental - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    12+ years
    Languages Spoken:
    English

    Megan Quist is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 12 years. Dr. Quist is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Autism Spectrum Disorder, Microcephaly, DiGeorge Syndrome, and Developmental Dysphasia Familial. Dr. Quist is board certified in American Board Of Pediatrics and American Board Of Pediatrics.

    Experienced in CHARGE Syndrome
    Experienced in CHARGE Syndrome

    Corewell Health Pediatric Ophthalmology - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 5101, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English

    Lauren Fletcher is a Pediatrics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 13 years. Dr. Fletcher is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses Strabismus, Esotropia, Amblyopia, and Astigmatism. Dr. Fletcher is board certified in American Osteopathic Board Of Ophthalmology & Otolaryngology.

    Experienced in CHARGE Syndrome
    Pediatric Pulmonology
    Experienced in CHARGE Syndrome
    Pediatric Pulmonology

    Helen DeVos Children's Hospital Pulmonary And Sleep Medicine

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    40+ years
    Languages Spoken:
    English
    Accepting New Patients

    Susan Millard is a Pediatric Pulmonologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 40 years. Dr. Millard is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Laryngomalacia, Exocrine Pancreatic Insufficiency, Cystic Fibrosis, and Vocal Cord Dysfunction. Dr. Millard is board certified in American Board Of Pediatrics, Pediatric Pulmonology - 1992. Dr. Millard is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Pediatric Pulmonology
    Experienced in CHARGE Syndrome
    Pediatric Pulmonology

    Corewell Health Pediatric Sleep Disorders Clinic - Grand Rapids

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    9+ years
    Languages Spoken:
    English
    Accepting New Patients

    Carolyn Dress is a Pediatric Pulmonologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 9 years. Dr. Dress is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Laryngomalacia, Trisomy 13, Duchenne Muscular Dystrophy, and Spinal Muscular Atrophy Type 2. Dr. Dress is board certified in American Board Of Pediatrics and American Board Of Pediatrics. Dr. Dress is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Pediatric Orthopedics
    Experienced in CHARGE Syndrome
    Pediatric Orthopedics

    Corewell Health Pediatric Orthopedics - 35 Michigan St NE

    35 Michigan Street Northeast, Suite 4150, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    22+ years
    Languages Spoken:
    English
    Accepting New Patients

    Philip Nowicki is a Pediatric Orthopedics provider practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 22 years. Dr. Nowicki is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Slipped Capital Femoral Epiphysis, Clubfoot, Beukes Familial Hip Dysplasia, and Spastic Diplegia Infantile Type. Dr. Nowicki is board certified in American Board Of Orthopaedic Surgery. Dr. Nowicki is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Pediatric Neurology
    Experienced in CHARGE Syndrome
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jena Krueger is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 16 years. Dr. Krueger is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2. Dr. Krueger is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2017 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2015. Dr. Krueger is currently accepting new patients.

    Experienced in CHARGE Syndrome
    Pediatrics | Pediatric Pulmonology
    Experienced in CHARGE Syndrome
    Pediatrics | Pediatric Pulmonology

    Helen DeVos Children's Hospital Pulmonary And Sleep Medicine

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    36+ years
    Languages Spoken:
    English
    Accepting New Patients

    John Schuen is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 36 years. Dr. Schuen is rated as an Experienced provider by MediFind in the treatment of CHARGE Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Cystic Fibrosis, Central Sleep Apnea, Laryngomalacia, and Excessive Daytime Sleepiness. Dr. Schuen is board certified in American Board Of Pediatrics, Sleep Medicine - 2009 and American Board Of Pediatrics, Pediatric Pulmonology - 1996. Dr. Schuen is currently accepting new patients.

    Showing 1-20 of 62

    Last Updated: 04/28/2026

    What is the definition of CHARGE Syndrome?

    CHARGE syndrome is a congenital condition (present from birth) that affects many areas of the body. CHARGE stands for coloboma, heart defect, atresia choanae (also known as choanal atresia), restricted growth and development, genital abnormality, and ear abnormality. Signs and symptoms vary among people with this condition; however, infants often have multiple medical conditions. The diagnosis of CHARGE syndrome is based on a combination of major and minor characteristics. In more than half of all cases, genetic changes in the CHD7 gene cause CHARGE syndrome. When caused by a genetic change in the CHD7 gene, it can be inherited in an autosomal dominant pattern; although most cases result from new (de novo) genetic changes in the gene and occur in people with no history of the condition in their family.

    When should I see a CHARGE Syndrome doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CHARGE Syndrome doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CHARGE Syndrome doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CHARGE Syndrome doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CHARGE Syndrome doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CHARGE Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CHARGE Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CHARGE Syndrome doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CHARGE Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CHARGE Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CHARGE Syndrome doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the CHARGE Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CHARGE Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CHARGE Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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