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    Last Updated: 01/09/2026

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    MediFind found 31 doctor with experience in Cholesteryl Ester Storage Disease near Germany. Of these, 28 are Experienced and 3 are Advanced.

    Location
    LocationClose
    31 providers found
      Ansgar S. Schulz
      Advanced in Cholesteryl Ester Storage Disease
      Advanced in Cholesteryl Ester Storage Disease
      Marburger Str. 85, 
      Kassel, HE, DE 

      Ansgar Schulz practices in Kassel, Germany. Schulz is rated as an Advanced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. Their top areas of expertise are Osteopetrosis, Severe Combined Immunodeficiency (SCID), CLN2 Disease, Bone Marrow Transplant, and Splenectomy.

      Advanced in Cholesteryl Ester Storage Disease
      Advanced in Cholesteryl Ester Storage Disease
      Jena, TH, DE 

      Bernd Gruhn practices in Jena, Germany. Mr. Gruhn is rated as an Advanced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Hepatic Venoocclusive Disease with Immunodeficiency, Acute Lymphoblastic Leukemia (ALL), Leukemia, Bone Marrow Transplant, and Bone Graft.

      Advanced in Cholesteryl Ester Storage Disease
      Advanced in Cholesteryl Ester Storage Disease
      Chemnitzer Str. 40, 
      Freiberg, SN, DE 

      Robert Zimmermann practices in Freiberg, Germany. Mr. Zimmermann is rated as an Advanced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Wolman Disease, Cholesteryl Ester Storage Disease, Lysosomal Acid Lipase Deficiency, Non-Alcoholic Fatty Liver Disease, and Bone Marrow Transplant.

      Learn about our expert tiers
      Ali E. Canbay
      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Leipziger Str. 44, 
      Magdeburg, ST, DE 

      Ali Canbay practices in Magdeburg, Germany. Canbay is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. Their top areas of expertise are Non-Alcoholic Fatty Liver Disease, Liver Failure, Cirrhosis, Liver Transplant, and Endoscopy.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Hochheim, TH, DE 

      Eugen Mengel practices in Hochheim, Germany. Mr. Mengel is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Acid Sphingomyelinase Deficiency (ASMD), and Histiocytosis.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Hamburg, HH, DE 

      Alexander Fischer practices in Hamburg, Germany. Mr. Fischer is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Obesity, Sialuria, Sialic Acid Storage Disease, and Wolman Disease.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Essen, NW, DE 

      Sarah Synoracki practices in Essen, Germany. Ms. Synoracki is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. Her top areas of expertise are Lipidosis with Triglycerid Storage Disease, Multiple Endocrine Neoplasia Type 2, Subacute Thyroiditis, Wolman Disease, and Thyroidectomy.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Berlin, BE, DE 

      Dominik Soll practices in Berlin, Germany. Mr. Soll is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Enlarged Liver, Wolman Disease, Lysosomal Acid Lipase Deficiency, and Cholesteryl Ester Storage Disease.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Aachen, NW, DE 

      Ralf Weiskirchen practices in Aachen, Germany. Mr. Weiskirchen is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Cirrhosis, Non-Alcoholic Fatty Liver Disease, Hepatocerebral Degeneration, Nonalcoholic Steatohepatitis (NASH), and Liver Transplant.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Bochum, NW, DE 

      Paul Manka practices in Bochum, Germany. Mr. Manka is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Liver Failure, Non-Alcoholic Fatty Liver Disease, Cirrhosis, Nonalcoholic Steatohepatitis (NASH), and Liver Transplant.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Carl Troll Str. 31, 
      Bonn, NW, DE 

      Margret Bulow practices in Bonn, Germany. Ms. Bulow is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. Her top areas of expertise are Lipidosis with Triglycerid Storage Disease, Wolman Disease, Cholesteryl Ester Storage Disease, and Lysosomal Acid Lipase Deficiency.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Velbert, NW, DE 

      Guido Gerken practices in Velbert, Germany. Mr. Gerken is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Liver Failure, Hepatitis, Hepatitis C, Liver Transplant, and Endoscopy.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Berlin, BE, DE 

      Thomas Bobbert practices in Berlin, Germany. Mr. Bobbert is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Cerebral Hypoxia, High Cholesterol, Defective Apolipoprotein B-100, and Familial Hypercholesterolemia.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Bochum, NW, DE 

      Stathis Philippou practices in Bochum, Germany. Philippou is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. Their top areas of expertise are Eosinophilic Fasciitis, Cholesteryl Ester Storage Disease, Lysosomal Acid Lipase Deficiency, Fibroadenoma, and Aquablation.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Goettingen, NI, DE 

      Ronald Kuhnlein practices in Goettingen, Germany. Mr. Kuhnlein is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Lipidosis with Triglycerid Storage Disease, Wolman Disease, Cholesteryl Ester Storage Disease, and Lysosomal Acid Lipase Deficiency.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Berlin, BE, DE 

      Linus Haberbosch practices in Berlin, Germany. Mr. Haberbosch is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Hypertrichosis-Acromegaloid Facial Appearance Syndrome, Acromegaloid Facial Appearance Syndrome, Acromegaly, and Hypothalamic Tumor.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Berlin, BE, DE 

      Ursula Kassner practices in Berlin, Germany. Ms. Kassner is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. Her top areas of expertise are High Cholesterol, Apolipoprotein C2 Deficiency, Familial Lipoprotein Lipase Deficiency, and Familial Hypercholesterolemia.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Hamburg, HH, DE 

      Joerg Heeren practices in Hamburg, Germany. Heeren is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. Their top areas of expertise are Atherosclerosis, Obesity, High Cholesterol, and Cholangitis.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Reinickendorfer Str. 61, 
      Berlin, BE, DE 

      Ilja Demuth practices in Berlin, Germany. Demuth is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. Their top areas of expertise are Nijmegen Breakage Syndrome, Apolipoprotein C2 Deficiency, Familial Lipoprotein Lipase Deficiency, and High Cholesterol.

      Experienced in Cholesteryl Ester Storage Disease
      Experienced in Cholesteryl Ester Storage Disease
      Essen, NW, DE 

      Holger Jastrow practices in Essen, Germany. Mr. Jastrow is rated as an Experienced expert by MediFind in the treatment of Cholesteryl Ester Storage Disease. His top areas of expertise are Lipidosis with Triglycerid Storage Disease, Wolman Disease, Cholesteryl Ester Storage Disease, and Lysosomal Acid Lipase Deficiency.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 31

      Last Updated: 01/09/2026

      What is the definition of Cholesteryl Ester Storage Disease?

      Cholesteryl ester storage disease is is a type of lysosomal acid lipase deficiency. It is an inherited disease that causes a buildup of fats (lipids) in the tissues and organs of the body and calcium deposits in the adrenal glands. The liver is most severely affected in most cases. Some people with Cholesteryl ester storage disease may develop liver cirrhosis that progresses to liver failure. People with Cholesteryl ester storage disease may also build up fatty deposits on the artery walls (atherosclerosis). This buildup can narrow the arteries and increase the risk for heart attack or stroke. Cholesteryl ester storage disease is caused by genetic changes in the LIPA gene. It is inherited in an autosomal recessive manner.

      When should I see a Cholesteryl Ester Storage Disease doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cholesteryl Ester Storage Disease doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Cholesteryl Ester Storage Disease doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cholesteryl Ester Storage Disease doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cholesteryl Ester Storage Disease doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cholesteryl Ester Storage Disease doctor search results page. 

      Why is it important to get a second opinion from a different Cholesteryl Ester Storage Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cholesteryl Ester Storage Disease doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cholesteryl Ester Storage Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cholesteryl Ester Storage Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cholesteryl Ester Storage Disease doctors in Germany?

      Look for the filter feature on the left side of the Cholesteryl Ester Storage Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cholesteryl Ester Storage Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Cholesteryl Ester Storage Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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