Chondrodysplasia Punctata Syndrome
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Learn About Chondrodysplasia Punctata Syndrome

What is the definition of Chondrodysplasia Punctata Syndrome?
A heterogeneous group of bone dysplasias, the common character of which is stippling of the epiphyses in infancy. The group includes a severe autosomal recessive form (CHONDRODYSPLASIA PUNCTATA, RHIZOMELIC), an autosomal dominant form (Conradi-Hunermann syndrome), and a milder X-linked form. Metabolic defects associated with impaired peroxisomes are present only in the rhizomelic form.
What are the alternative names for Chondrodysplasia Punctata Syndrome?
  • Chondrodysplasia punctata syndrome
  • Chondrodysplasia punctata
  • Toriello Higgins Miller syndrome
Who are the top Chondrodysplasia Punctata Syndrome Local Doctors?
Elite in Chondrodysplasia Punctata Syndrome
Medical Genetics | Pediatrics
Elite in Chondrodysplasia Punctata Syndrome
Medical Genetics | Pediatrics
601 N Caroline St, 
Baltimore, MD 
Languages Spoken:
English

Nancy Braverman is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Baltimore, Maryland. Dr. Braverman is rated as an Elite provider by MediFind in the treatment of Chondrodysplasia Punctata Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Zellweger Syndrome, Chondrodysplasia Punctata Syndrome, X-Linked Chondrodysplasia Punctata 2, and Acromesomelic Dysplasia.

Elite in Chondrodysplasia Punctata Syndrome
Medical Genetics
Elite in Chondrodysplasia Punctata Syndrome
Medical Genetics
707 N Broadway Ste 500, 
Baltimore, MD 
Languages Spoken:
English

Wedad Fallatah is a Medical Genetics provider practicing medicine in Baltimore, Maryland. Dr. Fallatah is rated as an Elite provider by MediFind in the treatment of Chondrodysplasia Punctata Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Chondrodysplasia Punctata Syndrome, X-Linked Chondrodysplasia Punctata 2, Achondrogenesis, and Acromesomelic Dysplasia.

 
 
 
 
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Elite in Chondrodysplasia Punctata Syndrome
Elite in Chondrodysplasia Punctata Syndrome
Montreal, QC, CA 

Erminia Di Pietro practices practicing medicine in Montreal, Canada. Ms. Di Pietro is rated as an Elite expert by MediFind in the treatment of Chondrodysplasia Punctata Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Zellweger Syndrome, X-Linked Chondrodysplasia Punctata 2, Chondrodysplasia Punctata Syndrome, and Achondrogenesis.

What are the latest Chondrodysplasia Punctata Syndrome Clinical Trials?
Longitudinal Natural History Study of Patients With Peroxisome Biogenesis Disorders (PBD)

Summary: The Peroxisome Biogenesis Disorders (PBD) are a group of inherited disorders due to defects in peroxisome assembly causing complex developmental and metabolic sequelae. In spite of advancements in peroxisome biology, the pathophysiology remains unknown, the spectrum of phenotypes poorly characterized and the natural history not yet systematically reported. Our aims are to further define this popul...

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Rhizomelic Chondrodysplasia Punctata Registry at Nemours Children's Health

Summary: The goal of this registry is to collect medical information on individuals with rhizomelic chondrodysplasia punctata and closely related conditions. The study team hopes to learn more about these conditions and improve the care of people with it by establishing this registry.

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Published Date: May 02, 2022
Published By: Genetic and Rare Diseases Informnation Center