The 20 Best CLN1 Disease Doctors Near Me in Parkville, VIC

Find the Top CLN1 Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 42 doctor with experience in CLN1 Disease near Parkville, VIC. Of these, 36 are Experienced, 5 are Advanced and 1 are Distinguished.

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42 providers found
    Advanced in CLN1 Disease
    Advanced in CLN1 Disease
    50 Flemington Rd, 
    Parkville, VIC, AU 
     (1.7 km away)

    Ingrid Scheffer practices practicing medicine in Parkville, Australia. Ms. Scheffer is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 62 other conditions, according to our data. Her clinical expertise encompasses Myoclonic Epilepsy, West Syndrome, Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Advanced in CLN1 Disease
    Advanced in CLN1 Disease
    50 Flemington Rd, 
    Parkville, VIC, AU 
     (1.7 km away)

    Michael Hildebrand practices practicing medicine in Parkville, Australia. Mr. Hildebrand is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Mosaicism, Hypothalamic Hamartomas, Epilepsy, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

    Advanced in CLN1 Disease
    Advanced in CLN1 Disease
    215 Franklin Street, 
    Melbourne, VIC, AU 
     (3.7 km away)

    Wendy Heywood practices practicing medicine in Melbourne, Australia. Ms. Heywood is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses CLN4 Disease, CLN2 Disease, CLN5 Disease, and CLN1 Disease.

    Learn about our expert tiers
    Distinguished in CLN1 Disease
    Distinguished in CLN1 Disease
    245 Burgundy St, 
    Heidelberg, VIC, AU 
     (10.5 km away)

    Samuel Berkovic practices practicing medicine in Heidelberg, Australia. Mr. Berkovic is rated as a Distinguished expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Myoclonic Epilepsy, Epilepsy, Partial Familial Epilepsy, and Epilepsy with Myoclonic-Atonic Seizures.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Parkville, VIC, AU 
     (0.8 km away)

    Peter Crouch practices practicing medicine in Parkville, Australia. Mr. Crouch is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Restless Legs Syndrome, and Batten Disease.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Parkville, VIC, AU 
     (0.8 km away)

    Clare Duncan practices practicing medicine in Parkville, Australia. Ms. Duncan is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Batten Disease, and CLN5 Disease.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Parkville, VIC, AU 
     (0.8 km away)

    Irene Volitakis practices practicing medicine in Parkville, Australia. Ms. Volitakis is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her clinical expertise encompasses Batten Disease, CLN5 Disease, CLN1 Disease, and CLN3 Disease.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Parkville, VIC, AU 
     (0.8 km away)

    Sarah Parker practices practicing medicine in Parkville, Australia. Ms. Parker is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her clinical expertise encompasses Batten Disease, CLN2 Disease, CLN3 Disease, and CLN5 Disease.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Parkville, VIC, AU 
     (0.8 km away)

    Lottie Morison practices practicing medicine in Parkville, Australia. Ms. Morison is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Apraxia, Developmental Expressive Language Disorder, Dysarthria, and Trichorhinophalangeal Syndrome Type 1 (TRPS1).

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Parkville, VIC, AU 
     (0.8 km away)

    Joanna Phipps practices practicing medicine in Parkville, Australia. Ms. Phipps is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her clinical expertise encompasses Diabetic Retinopathy, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and CLN5 Disease.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Parkville, VIC, AU 
     (0.8 km away)

    Linda Fothergill practices practicing medicine in Parkville, Australia. Ms. Fothergill is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Respiratory Alkalosis, Malabsorption, Celiac Disease, and CLN5 Disease.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    50 Flemington Road, 
    Melbourne, VIC, AU 
     (1.7 km away)

    Stefanie Eggers practices practicing medicine in Melbourne, Australia. Ms. Eggers is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Intersex, Rommen Mueller Sybert Syndrome, West Syndrome, and Myoclonic Epilepsy.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    50 Flemington Rd, 
    Parkville, VIC, AU 
     (1.7 km away)

    Angela Morgan practices practicing medicine in Parkville, Australia. Ms. Morgan is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Dysarthria, Apraxia, Developmental Expressive Language Disorder, and Bilateral Perisylvian Polymicrogyria.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    50 Flemington Road, 
    Parkville, VIC, AU 
     (1.7 km away)

    Cas Simons practices practicing medicine in Parkville, Australia. Mr. Simons is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Leukodystrophy, Axenfeld-Rieger Syndrome, and Spasticity.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    30 Flemington Road, 
    Parkville, VIC, AU 
     (2.3 km away)

    Paul Donnelly practices practicing medicine in Parkville, Australia. Mr. Donnelly is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Alzheimer's Disease, and Cerebral Hypoxia.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Grattan Street, 
    Melbourne, VIC, AU 
     (2.7 km away)

    Peter Fraser practices practicing medicine in Melbourne, Australia. Mr. Fraser is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His clinical expertise encompasses CLN3 Disease, CLN5 Disease, CLN4 Disease, and CLN2 Disease.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Grattan St, 
    Parkville, VIC, AU 
     (3.0 km away)

    Kirstan Vessey practices practicing medicine in Parkville, Australia. Ms. Vessey is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Diabetic Retinopathy, and Retinitis Pigmentosa.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Grattan St, 
    Parkville, VIC, AU 
     (3.0 km away)

    Erica Fletcher practices practicing medicine in Parkville, Australia. Ms. Fletcher is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Retinopathy Pigmentary Mental Retardation, and Ganglion Cyst.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Grattan Street, 
    Melbourne, VIC, AU 
     (3.0 km away)

    Andrew Jobling practices practicing medicine in Melbourne, Australia. Mr. Jobling is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), Diabetic Retinopathy, and Vasoconstriction.

    Experienced in CLN1 Disease
    Experienced in CLN1 Disease
    Melbourne Austin Branch, 
    Melbourne, VIC, AU 
     (3.1 km away)

    Marzena Walkiewicz practices practicing medicine in Melbourne, Australia. Ms. Walkiewicz is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Mesothelioma, Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), and Small Cell Lung Cancer (SCLC).

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 42

    Last Updated: 04/28/2026

    What is the definition of CLN1 Disease?

    CLN1 disease is an inherited disorder that primarily affects the nervous system. Individuals with this condition have normal development in infancy, but typically by 18 months they become increasingly irritable and begin to lose previously acquired skills (developmental regression). In affected children, nerve cells in the brain die over time, leading to an overall loss of brain tissue (brain atrophy) and an unusually small head (microcephaly). Children with CLN1 disease have decreased muscle tone (hypotonia), intellectual and motor disability, and rarely are able to speak or walk. Some affected children develop repetitive hand movements. By age 2, individuals with this condition often have muscle twitches (myoclonus), recurrent seizures (epilepsy), and vision loss. Some affected children develop frequent respiratory infections. As the condition worsens, children have severe feeding difficulties that often require a feeding tube. Children with CLN1 disease usually do not survive past childhood.

    When should I see a CLN1 Disease doctor near Parkville, VIC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CLN1 Disease doctor near Parkville, VIC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CLN1 Disease doctors near Parkville, VIC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CLN1 Disease doctors near Parkville, VIC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CLN1 Disease doctor near Parkville, VIC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN1 Disease doctor search results page. 

    Why is it important to get a second opinion from a different CLN1 Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CLN1 Disease doctor near Parkville, VIC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CLN1 Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CLN1 Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CLN1 Disease doctors near Parkville, VIC?

    Look for the filter feature on the left side of the CLN1 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CLN1 Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the CLN1 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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