The 20 Best CLN1 Disease Doctors in Belgium

Find the Top CLN1 Disease Experts and Specialists

Last Updated: 06/30/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 20 doctor with experience in CLN1 Disease near Belgium. Of these, 20 are Experienced.

Location
LocationClose
20 providers found
    Experienced in CLN1 Disease

    Christine Van Broeckhoven
    Experienced in CLN1 Disease

    Christine Van Broeckhoven
    Referral may be required
    Antwerpen, VLG, BE 

    Christine Van Broeckhoven practices practicing medicine in Antwerpen, Belgium. Ms. Van Broeckhoven is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Dementia, Alzheimer's Disease, Frontotemporal Dementia, and Movement Disorders.

    Experienced in CLN1 Disease

    Sebastiaan Engelborghs
    Experienced in CLN1 Disease

    Sebastiaan Engelborghs
    Referral may be required

    Universitair Ziekenhuis Brussel

    Brussels, BRU, BE 

    Sebastiaan Engelborghs practices practicing medicine in Brussels, Belgium. Mr. Engelborghs is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Dementia, Alzheimer's Disease, Frontotemporal Dementia, and Parkinson's Disease.

    Experienced in CLN1 Disease

    Chantal De Groote-Ceuterick
    Experienced in CLN1 Disease

    Chantal De Groote-Ceuterick
    Referral may be required
    Antwerpen, VLG, BE 

    Chantal De Groote-Ceuterick practices practicing medicine in Antwerpen, Belgium. Ms. De Groote-Ceuterick is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Progressive Myoclonic Epilepsy, CLN3 Disease, and CLN4 Disease.

    Learn about our expert tiers
    Experienced in CLN1 Disease

    Julie A. Van Der Zee
    Experienced in CLN1 Disease

    Julie A. Van Der Zee
    Referral may be required
    Antwerpen, VLG, BE 

    Julie Van Der Zee practices practicing medicine in Antwerpen, Belgium. Ms. Van Der Zee is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Frontotemporal Dementia, Dementia, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

    Experienced in CLN1 Disease

    Jean-jacques A. Martin
    Experienced in CLN1 Disease

    Jean-jacques A. Martin
    Referral may be required
    Antwerpen, VLG, BE 

    Jean-jacques Martin practices practicing medicine in Antwerpen, Belgium. Mr. Martin is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Dementia, Frontotemporal Dementia, Alzheimer's Disease, and CACH Syndrome.

    Experienced in CLN1 Disease

    Isabel J. Santana
    Experienced in CLN1 Disease

    Isabel J. Santana
    Referral may be required

    CHU Liège

    Liege, WAL, BE 

    Isabel Santana practices practicing medicine in Liege, Belgium. Ms. Santana is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Dementia, Frontotemporal Dementia, Developmental Dysphasia Familial, and Alzheimer's Disease.

    Experienced in CLN1 Disease

    Miriam Bauwens
    Experienced in CLN1 Disease

    Miriam Bauwens
    Referral may be required
    Gent, VLG, BE 

    Miriam Bauwens practices practicing medicine in Gent, Belgium. Ms. Bauwens is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Stargardt Macular Degeneration, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, and Leber Congenital Amaurosis.

    Experienced in CLN1 Disease

    Lubina Dillen
    Experienced in CLN1 Disease

    Lubina Dillen
    Referral may be required
    Antwerpen, VLG, BE 

    Lubina Dillen practices practicing medicine in Antwerpen, Belgium. Ms. Dillen is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Frontotemporal Dementia, and Dementia.

    Experienced in CLN1 Disease

    Anne A. Sieben
    Experienced in CLN1 Disease

    Anne A. Sieben
    Referral may be required
    Edegem, VLG, BE 

    Anne Sieben practices practicing medicine in Edegem, Belgium. Ms. Sieben is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Dementia, Cerebral Amyloid Angiopathy, Alzheimer's Disease, and Frontotemporal Dementia.

    Experienced in CLN1 Disease

    Sara Van Mossevelde
    Experienced in CLN1 Disease

    Sara Van Mossevelde
    Referral may be required
    Antwerpen, VLG, BE 

    Sara Van Mossevelde practices practicing medicine in Antwerpen, Belgium. Ms. Van Mossevelde is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Frontotemporal Dementia, Dementia, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

    Experienced in CLN1 Disease

    Danya F. Vears
    Experienced in CLN1 Disease

    Danya F. Vears
    Referral may be required
    Leuven, VLG, BE 

    Danya Vears practices practicing medicine in Leuven, Belgium. Ms. Vears is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Lafora Disease, Dentatorubral-Pallidoluysian Atrophy, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), and Infant Hearing Loss.

    Experienced in CLN1 Disease

    Frauke Coppieters
    Experienced in CLN1 Disease

    Frauke Coppieters
    Referral may be required
    Gent, VLG, BE 

    Frauke Coppieters practices practicing medicine in Gent, Belgium. Coppieters is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. They are also highly rated in 7 other conditions, according to our data. Their clinical expertise encompasses Leber Congenital Amaurosis, Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, and Late-Onset Retinal Degeneration.

    Experienced in CLN1 Disease

    Peter Marien
    Experienced in CLN1 Disease

    Peter Marien
    Referral may be required
    Brussels, BRU, BE 

    Peter Marien practices practicing medicine in Brussels, Belgium. Mr. Marien is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Dysgraphia, Apraxia, Dysarthria, Selective Mutism, and Awake Craniotomy.

    Experienced in CLN1 Disease

    Riet De Rycke
    Experienced in CLN1 Disease

    Riet De Rycke
    Referral may be required
    Gent, VLG, BE 

    Riet De Rycke practices practicing medicine in Gent, Belgium. De Rycke is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Cutis Laxa, Autosomal Recessive Cutis Laxa Type 1, Ehlers-Danlos Syndrome (EDS), and Hereditary Sensory Neuropathy Type 1 (HSN1).

    Experienced in CLN1 Disease

    Elfride W. De Baere
    Experienced in CLN1 Disease

    Elfride W. De Baere
    Referral may be required
    Gent, VLG, BE 

    Elfride De Baere practices practicing medicine in Gent, Belgium. De Baere is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. They are also highly rated in 19 other conditions, according to our data. Their clinical expertise encompasses Blepharophimosis, Leber Congenital Amaurosis, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal.

    Experienced in CLN1 Disease

    Patrick P. Cras
    Experienced in CLN1 Disease

    Patrick P. Cras
    Referral may be required
    Wilrijk, VLG, BE 

    Patrick Cras practices practicing medicine in Wilrijk, Belgium. Mr. Cras is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Movement Disorders, Dementia, Parkinson's Disease, and Frontotemporal Dementia.

    Experienced in CLN1 Disease

    Rudy N. Van Coster
    Experienced in CLN1 Disease

    Rudy N. Van Coster
    Referral may be required
    Gent, VLG, BE 

    Rudy Van Coster practices practicing medicine in Gent, Belgium. Mr. Van Coster is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Lactic Acidosis, Mitochondrial Complex V Deficiency, Cytochrome C Oxidase Deficiency, and West Syndrome.

    Experienced in CLN1 Disease

    Brecht Guillemyn
    Experienced in CLN1 Disease

    Brecht Guillemyn
    Referral may be required
    Gent, VLG, BE 

    Brecht Guillemyn practices practicing medicine in Gent, Belgium. Guillemyn is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Vascular Ehlers-Danlos Syndrome (VEDS), Ehlers-Danlos Syndrome (EDS), Osteogenesis Imperfecta, and Cutis Laxa.

    Experienced in CLN1 Disease

    Jan Versijpt
    Experienced in CLN1 Disease

    Jan Versijpt
    Referral may be required

    Universitair Ziekenhuis Brussel

    Brussels, BRU, BE 

    Jan Versijpt practices practicing medicine in Brussels, Belgium. Versijpt is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Headache, Migraine, Primary Lateral Sclerosis, and Dementia.

    Experienced in CLN1 Disease

    Daniele Bertoglio
    Experienced in CLN1 Disease

    Daniele Bertoglio
    Referral may be required
    Antwerpen, VLG, BE 

    Daniele Bertoglio practices practicing medicine in Antwerpen, Belgium. Ms. Bertoglio is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Huntington Disease, Movement Disorders, Dementia, and Status Epilepticus.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 20

    Last Updated: 06/30/2026

    What is the definition of CLN1 Disease?

    CLN1 disease is an inherited disorder that primarily affects the nervous system. Individuals with this condition have normal development in infancy, but typically by 18 months they become increasingly irritable and begin to lose previously acquired skills (developmental regression). In affected children, nerve cells in the brain die over time, leading to an overall loss of brain tissue (brain atrophy) and an unusually small head (microcephaly). Children with CLN1 disease have decreased muscle tone (hypotonia), intellectual and motor disability, and rarely are able to speak or walk. Some affected children develop repetitive hand movements. By age 2, individuals with this condition often have muscle twitches (myoclonus), recurrent seizures (epilepsy), and vision loss. Some affected children develop frequent respiratory infections. As the condition worsens, children have severe feeding difficulties that often require a feeding tube. Children with CLN1 disease usually do not survive past childhood.

    When should I see a CLN1 Disease doctor in Belgium?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CLN1 Disease doctor in Belgium?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best CLN1 Disease doctor in Belgium?

    You can find a CLN1 Disease doctor in any of the 10 largest U.S. cities by clicking below:

    CLN1 Disease doctor near New York, NY
    CLN1 Disease doctor near Los Angeles, CA
    CLN1 Disease doctor near Chicago, IL
    CLN1 Disease doctor near Houston, TX
    CLN1 Disease doctor near Phoenix, AZ
    CLN1 Disease doctor near Philadelphia, PA
    CLN1 Disease doctor near Atlanta, GA
    CLN1 Disease doctor near Boston, MA
    CLN1 Disease doctor near Dallas, TX
    CLN1 Disease doctor near San Jose, CA

    How does MediFind rank CLN1 Disease doctors in Belgium?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CLN1 Disease doctors in Belgium?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CLN1 Disease doctor in Belgium?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN1 Disease doctor search results page. 

    Why is it important to get a second opinion from a different CLN1 Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CLN1 Disease doctor in Belgium?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CLN1 Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CLN1 Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CLN1 Disease doctors in Belgium?

    Look for the filter feature on the left side of the CLN1 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CLN1 Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the CLN1 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy.