The 20 Best CLN1 Disease Doctors in Switzerland

Find the Top CLN1 Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 51 doctor with experience in CLN1 Disease near Switzerland. Of these, 48 are Experienced and 3 are Advanced.

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51 providers found
    Advanced in CLN1 Disease

    Vidhya Jagannathan
    Advanced in CLN1 Disease

    Vidhya Jagannathan
    Referral may be required
    Bern, BE, CH 

    Vidhya Jagannathan practices practicing medicine in Bern, Switzerland. Ms. Jagannathan is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Congenital Mirror Movement Disorder, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Linear Nevus Sebaceous Syndrome, and L-2-Hydroxyglutaric Aciduria.

    Advanced in CLN1 Disease

    Tosso Leeb
    Advanced in CLN1 Disease

    Tosso Leeb
    Referral may be required
    Bern, BE, CH 

    Tosso Leeb practices practicing medicine in Bern, Switzerland. Leeb is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. They are also highly rated in 37 other conditions, according to our data. Their clinical expertise encompasses Congenital Mirror Movement Disorder, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Linear Nevus Sebaceous Syndrome, Hypohidrotic Ectodermal Dysplasia, and Herniated Disc Surgery.

    Advanced in CLN1 Disease

    Robert Steinfeld
    Advanced in CLN1 Disease

    Robert Steinfeld
    Referral may be required
    Zurich, ZH, CH 

    Robert Steinfeld practices practicing medicine in Zurich, Switzerland. Mr. Steinfeld is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses CLN3 Disease, CLN1 Disease, CLN5 Disease, and CLN4 Disease.

    Learn about our expert tiers
    Experienced in CLN1 Disease

    Lisa M. Crowther
    Experienced in CLN1 Disease

    Lisa M. Crowther
    Referral may be required
    Zurich, ZH, CH 

    Lisa Crowther practices practicing medicine in Zurich, Switzerland. Ms. Crowther is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cerebral Hypoxia, CLN3 Disease, CLN1 Disease, and CLN5 Disease.

    Experienced in CLN1 Disease

    Jingjing Zang
    Experienced in CLN1 Disease

    Jingjing Zang
    Referral may be required
    Zurich, ZH, CH 

    Jingjing Zang practices practicing medicine in Zurich, Switzerland. Zang is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Bardet-Biedl Syndrome, Usher Syndrome, and CLN4 Disease.

    Experienced in CLN1 Disease

    Margarita G. Todorova
    Experienced in CLN1 Disease

    Margarita G. Todorova
    Referral may be required
    Zurich, ZH, CH 

    Margarita Todorova practices practicing medicine in Zurich, Switzerland. Ms. Todorova is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, Vitrectomy, and Cataract Removal.

    Experienced in CLN1 Disease

    Michaela Drogemuller
    Experienced in CLN1 Disease

    Michaela Drogemuller
    Referral may be required
    Bern, BE, CH 

    Michaela Drogemuller practices practicing medicine in Bern, Switzerland. Ms. Drogemuller is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cerebellar Hypoplasia, Bernard-Soulier Syndrome, CLN3 Disease, and CLN5 Disease.

    Experienced in CLN1 Disease

    Cord Drogemuller
    Experienced in CLN1 Disease

    Cord Drogemuller
    Referral may be required
    Bern, BE, CH 

    Cord Drogemuller practices practicing medicine in Bern, Switzerland. Mr. Drogemuller is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Lung Agenesis, Continuous Muscle Fiber Activity Hereditary, Isaacs' Syndrome, Achondrogenesis, and Herniated Disc Surgery.

    Experienced in CLN1 Disease

    Matthias Christen
    Experienced in CLN1 Disease

    Matthias Christen
    Referral may be required
    Bern, BE, CH 

    Matthias Christen practices practicing medicine in Bern, Switzerland. Mr. Christen is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses L-2-Hydroxyglutaric Aciduria, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, Acute Cerebellar Ataxia, and Piebaldism.

    Experienced in CLN1 Disease

    Stefan J. Rietmann
    Experienced in CLN1 Disease

    Stefan J. Rietmann
    Referral may be required
    Bern, BE, CH 

    Stefan Rietmann practices practicing medicine in Bern, Switzerland. Mr. Rietmann is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His clinical expertise encompasses Hypohidrotic Ectodermal Dysplasia, Dowling-Meara Epidermolysis Bullosa Simplex, Dominant Dystrophic Epidermolysis Bullosa, and Acrokeratoelastoidosis of Costa.

    Experienced in CLN1 Disease

    Richard D. Welford
    Experienced in CLN1 Disease

    Richard D. Welford
    Referral may be required
    Allschwil, BL, CH 

    Richard Welford practices practicing medicine in Allschwil, Switzerland. Mr. Welford is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Tay-Sachs Disease, Niemann-Pick Disease, Gangliosidosis, and Non-Langerhans-Cell Histiocytosis.

    Experienced in CLN1 Disease

    Konstantinos Varvagiannis
    Experienced in CLN1 Disease

    Konstantinos Varvagiannis
    Referral may be required
    Geneve, GE, CH 

    Konstantinos Varvagiannis practices practicing medicine in Geneve, Switzerland. Mr. Varvagiannis is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His clinical expertise encompasses Myoclonic Epilepsy, Progressive Myoclonic Epilepsy, Dysgraphia, and CLN5 Disease.

    Experienced in CLN1 Disease

    Eline Vrieseling-Pecho
    Experienced in CLN1 Disease

    Eline Vrieseling-Pecho
    Referral may be required
    Basel, BS, CH 

    Eline Vrieseling-Pecho practices practicing medicine in Basel, Switzerland. Ms. Vrieseling-Pecho is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her clinical expertise encompasses Huntington Disease, CLN4 Disease, CLN5 Disease, and CLN1 Disease.

    Experienced in CLN1 Disease

    Ilse Kern
    Experienced in CLN1 Disease

    Ilse Kern
    Referral may be required
    Geneve, GE, CH 

    Ilse Kern practices practicing medicine in Geneve, Switzerland. Ms. Kern is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Inborn Amino Acid Metabolism Disorder, Myoclonic Epilepsy, Progressive Myoclonic Epilepsy, and Hypotonia.

    Experienced in CLN1 Disease

    Armand Bottani
    Experienced in CLN1 Disease

    Armand Bottani
    Referral may be required
    Geneve, GE, CH 

    Armand Bottani practices practicing medicine in Geneve, Switzerland. Mr. Bottani is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His clinical expertise encompasses Multiple Pterygium Syndrome, Oculomotor Apraxia Cogan Type, Progressive Myoclonic Epilepsy, and Pectus Carinatum.

    Experienced in CLN1 Disease

    Michel A. Steiner
    Experienced in CLN1 Disease

    Michel A. Steiner
    Referral may be required
    Allschwil, BL, CH 

    Michel Steiner practices practicing medicine in Allschwil, Switzerland. Mr. Steiner is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Gangliosidosis, Tay-Sachs Disease, GM1 Gangliosidosis, and Sandhoff Disease.

    Experienced in CLN1 Disease

    Johannes A. Lobrinus
    Experienced in CLN1 Disease

    Johannes A. Lobrinus
    Referral may be required
    Geneve, GE, CH 

    Johannes Lobrinus practices practicing medicine in Geneve, Switzerland. Mr. Lobrinus is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Necrotizing Myopathy (NM), Myoclonic Epilepsy, Nemaline Myopathy, and Progressive Myoclonic Epilepsy.

    Experienced in CLN1 Disease

    Petra J. Hug
    Experienced in CLN1 Disease

    Petra J. Hug
    Referral may be required
    Zurich, ZH, CH 

    Petra Hug practices practicing medicine in Zurich, Switzerland. Ms. Hug is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses X-Linked Retinal Dysplasia, Sideroblastic Anemia, Isolated Hypogonadotropic Hypogonadism, Chorea, and Orchiectomy.

    Experienced in CLN1 Disease

    Vera I. Wiersma
    Experienced in CLN1 Disease

    Vera I. Wiersma
    Referral may be required
    Zurich, ZH, CH 

    Vera Wiersma practices practicing medicine in Zurich, Switzerland. Ms. Wiersma is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Dementia, and Alzheimer's Disease.

    Experienced in CLN1 Disease

    Paolo Botta
    Experienced in CLN1 Disease

    Paolo Botta
    Referral may be required
    Basel, BS, CH 

    Paolo Botta practices practicing medicine in Basel, Switzerland. Mr. Botta is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His clinical expertise encompasses CLN4 Disease, CLN5 Disease, CLN1 Disease, and CLN3 Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 51

    Last Updated: 06/30/2026

    What is the definition of CLN1 Disease?

    CLN1 disease is an inherited disorder that primarily affects the nervous system. Individuals with this condition have normal development in infancy, but typically by 18 months they become increasingly irritable and begin to lose previously acquired skills (developmental regression). In affected children, nerve cells in the brain die over time, leading to an overall loss of brain tissue (brain atrophy) and an unusually small head (microcephaly). Children with CLN1 disease have decreased muscle tone (hypotonia), intellectual and motor disability, and rarely are able to speak or walk. Some affected children develop repetitive hand movements. By age 2, individuals with this condition often have muscle twitches (myoclonus), recurrent seizures (epilepsy), and vision loss. Some affected children develop frequent respiratory infections. As the condition worsens, children have severe feeding difficulties that often require a feeding tube. Children with CLN1 disease usually do not survive past childhood.

    When should I see a CLN1 Disease doctor in Switzerland?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CLN1 Disease doctor in Switzerland?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best CLN1 Disease doctor in Switzerland?

    You can find a CLN1 Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank CLN1 Disease doctors in Switzerland?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CLN1 Disease doctors in Switzerland?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CLN1 Disease doctor in Switzerland?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN1 Disease doctor search results page. 

    Why is it important to get a second opinion from a different CLN1 Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CLN1 Disease doctor in Switzerland?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CLN1 Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CLN1 Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CLN1 Disease doctors in Switzerland?

    Look for the filter feature on the left side of the CLN1 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CLN1 Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the CLN1 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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