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    Last Updated: 10/30/2025

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    MediFind found 49 doctor with experience in CLN1 Disease near Hesse, DE. Of these, 41 are Experienced, 7 are Advanced and 1 are Distinguished.

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    49 providers found
      Distinguished in CLN1 Disease

      Janos Groh
      Distinguished in CLN1 Disease

      Janos Groh
      Josef Schneider Str. 11, 
      Wuerzburg, BY, DE 

      Janos Groh practices in Wuerzburg, Germany. Mr. Groh is rated as a Distinguished expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Batten Disease, CLN5 Disease, CLN4 Disease, and CLN3 Disease.

      Advanced in CLN1 Disease

      Rudolf Martini
      Advanced in CLN1 Disease

      Rudolf Martini
      4Developmental Neurobiology, Josef Schneider Str. 11, 
      Wuerzburg, BY, DE 

      Rudolf Martini practices in Wuerzburg, Germany. Mr. Martini is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Charcot-Marie-Tooth Disease, Batten Disease, CLN2 Disease, and CLN1 Disease.

      Advanced in CLN1 Disease

      Cornelia Volz
      Advanced in CLN1 Disease

      Cornelia Volz
      Franz Josef Strauß Allee 11, 
      Regensburg, BY, DE 

      Cornelia Volz practices in Regensburg, Germany. Ms. Volz is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Batten Disease, CLN3 Disease, CLN1 Disease, and CLN5 Disease.

      Learn about our expert tiers
      Advanced in CLN1 Disease

      Friederike Zunke
      Advanced in CLN1 Disease

      Friederike Zunke
      Erlangen, BY, DE 

      Friederike Zunke practices in Erlangen, Germany. Zunke is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Parkinson's Disease, Movement Disorders, Farber Lipogranulomatosis, and CLN2 Disease.

      Advanced in CLN1 Disease

      Herbert Jagle
      Advanced in CLN1 Disease

      Herbert Jagle
      Franz Josef Strauss Allee 11, 
      Regensburg, BY, DE 

      Herbert Jagle practices in Regensburg, Germany. Mr. Jagle is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, CLN3 Disease, CLN5 Disease, and Vitrectomy.

      Advanced in CLN1 Disease

      Claudia S. Priglinger
      Advanced in CLN1 Disease

      Claudia S. Priglinger
      Munich, BY, DE 

      Claudia Priglinger practices in Munich, Germany. Ms. Priglinger is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Leber Hereditary Optic Neuropathy (LHON), Optic Nerve Atrophy, Cystinosis, CLN2 Disease, and Vitrectomy.

      Advanced in CLN1 Disease

      Kristina C. Berve
      Advanced in CLN1 Disease

      Kristina C. Berve
      Josef Schneider Str. 11, 
      Wuerzburg, BY, DE 

      Kristina Berve practices in Wuerzburg, Germany. Ms. Berve is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are CLN2 Disease, Batten Disease, CLN5 Disease, and CLN4 Disease.

      Advanced in CLN1 Disease

      Anna Rosato-Scotto
      Advanced in CLN1 Disease

      Anna Rosato-Scotto
      Munich, BY, DE 

      Anna Rosato-Scotto practices in Munich, Germany. Ms. Rosato-Scotto is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Mucolipidosis Type 4, Sialidosis, Mucolipidosis 3, and CLN2 Disease.

      Manfred B. Lutz
      Experienced in CLN1 Disease

      Manfred B. Lutz
      Experienced in CLN1 Disease

      Manfred B. Lutz
      Versbacher Str. 7, 
      Wuerzburg, BY, DE 

      Manfred Lutz practices in Wuerzburg, Germany. Mr. Lutz is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Sialuria, Sialic Acid Storage Disease, Lung Metastases, Colostomy, and Bone Marrow Transplant.

      Experienced in CLN1 Disease

      Einar K. Krogsaeter
      Experienced in CLN1 Disease

      Einar K. Krogsaeter
      Munich, BY, DE 

      Einar Krogsaeter practices in Munich, Germany. Mr. Krogsaeter is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Mucolipidosis Type 4, CLN2 Disease, CLN5 Disease, and CLN1 Disease.

      Experienced in CLN1 Disease

      Jan P. Dobert
      Experienced in CLN1 Disease

      Jan P. Dobert
      Erlangen, BY, DE 

      Jan Dobert practices in Erlangen, Germany. Dobert is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Farber Lipogranulomatosis, CLN2 Disease, CLN3 Disease, and CLN5 Disease.

      Experienced in CLN1 Disease

      Alice Drobny
      Experienced in CLN1 Disease

      Alice Drobny
      Erlangen, BY, DE 

      Alice Drobny practices in Erlangen, Germany. Ms. Drobny is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are CLN2 Disease, CLN3 Disease, CLN5 Disease, and CLN4 Disease.

      Experienced in CLN1 Disease

      Philipp G. Arnold
      Experienced in CLN1 Disease

      Philipp G. Arnold
      Erlangen, BY, DE 

      Philipp Arnold practices in Erlangen, Germany. Mr. Arnold is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Farber Lipogranulomatosis, CLN2 Disease, CLN3 Disease, and CLN1 Disease.

      Experienced in CLN1 Disease

      Christian Haass
      Experienced in CLN1 Disease

      Christian Haass
      Feodor Lynen Str. 17, 
      Munich, BY, DE 

      Christian Haass practices in Munich, Germany. Mr. Haass is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Dementia, Alzheimer's Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

      Experienced in CLN1 Disease

      Sabina Tahirovic
      Experienced in CLN1 Disease

      Sabina Tahirovic
      Feodor Lynen Str. 17, 
      Munich, BY, DE 

      Sabina Tahirovic practices in Munich, Germany. Ms. Tahirovic is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Niemann-Pick Disease, Non-Langerhans-Cell Histiocytosis, Dementia, and Alzheimer's Disease.

      Experienced in CLN1 Disease

      Anja Capell
      Experienced in CLN1 Disease

      Anja Capell
      Munich, BY, DE 

      Anja Capell practices in Munich, Germany. Ms. Capell is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Dementia, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and CLN4 Disease.

      Experienced in CLN1 Disease

      Christian M. Werner
      Experienced in CLN1 Disease

      Christian M. Werner
      Prof. Ernst Nathan Str. 1, 
      Nuernberg, BY, DE 

      Christian Werner practices in Nuernberg, Germany. Mr. Werner is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Hereditary Hyperekplexia, Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency, Stiff Person Syndrome, and Becker Muscular Dystrophy.

      Experienced in CLN1 Disease

      Dawid Jaslan
      Experienced in CLN1 Disease

      Dawid Jaslan
      Munich, BY, DE 

      Dawid Jaslan practices in Munich, Germany. Mr. Jaslan is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Mucolipidosis Type 4, Mucolipidosis 3, Sialidosis, and CLN4 Disease.

      Experienced in CLN1 Disease

      Esther M. Maier
      Experienced in CLN1 Disease

      Esther M. Maier
      Dr. Von Haunersches Kinderspital, 
      Munich, BY, DE 

      Esther Maier practices in Munich, Germany. Ms. Maier is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Glutaric Acidemia Type 1, Isovaleric Acidemia, Long-Chain 3-Hydroxyacyl-CoA Dehydrogenase Deficiency, and Mitochondrial Trifunctional Protein Deficiency.

      Experienced in CLN1 Disease

      Rachel Tang
      Experienced in CLN1 Disease

      Rachel Tang
      Munich, BY, DE 

      Rachel Tang practices in Munich, Germany. Ms. Tang is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are CLN4 Disease, CLN5 Disease, CLN3 Disease, and CLN1 Disease.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 49

      Last Updated: 10/30/2025

      What is the definition of CLN1 Disease?

      CLN1 disease is an inherited disorder that primarily affects the nervous system. Individuals with this condition have normal development in infancy, but typically by 18 months they become increasingly irritable and begin to lose previously acquired skills (developmental regression). In affected children, nerve cells in the brain die over time, leading to an overall loss of brain tissue (brain atrophy) and an unusually small head (microcephaly). Children with CLN1 disease have decreased muscle tone (hypotonia), intellectual and motor disability, and rarely are able to speak or walk. Some affected children develop repetitive hand movements. By age 2, individuals with this condition often have muscle twitches (myoclonus), recurrent seizures (epilepsy), and vision loss. Some affected children develop frequent respiratory infections. As the condition worsens, children have severe feeding difficulties that often require a feeding tube. Children with CLN1 disease usually do not survive past childhood.

      When should I see a CLN1 Disease doctor in Hesse, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CLN1 Disease doctor in Hesse, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best CLN1 Disease doctor in Hesse, DE?

      You can find a CLN1 Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank CLN1 Disease doctors in Hesse, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CLN1 Disease doctors in Hesse, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CLN1 Disease doctor in Hesse, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN1 Disease doctor search results page. 

      Why is it important to get a second opinion from a different CLN1 Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CLN1 Disease doctor in Hesse, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CLN1 Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CLN1 Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CLN1 Disease doctors in Hesse, DE?

      Look for the filter feature on the left side of the CLN1 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CLN1 Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the CLN1 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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