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    Last Updated: 10/30/2025

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    MediFind found 25 doctor with experience in CLN1 Disease near North Rhine-Westphalia, DE. Of these, 22 are Experienced and 3 are Advanced.

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    25 providers found
      Advanced in CLN1 Disease

      Thomas Langmann
      Advanced in CLN1 Disease

      Thomas Langmann
      Koeln, NW, DE 

      Thomas Langmann practices in Koeln, Germany. Mr. Langmann is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Late-Onset Retinal Degeneration, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

      Advanced in CLN1 Disease

      Myriam Mirza
      Advanced in CLN1 Disease

      Myriam Mirza
      Koeln, NW, DE 

      Myriam Mirza practices in Koeln, Germany. Ms. Mirza is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are CLN3 Disease, CLN1 Disease, CLN5 Disease, and CLN4 Disease.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in CLN1 Disease

      Enzo Scifo
      Advanced in CLN1 Disease

      Enzo Scifo
      Bonn, NW, DE 

      Enzo Scifo practices in Bonn, Germany. Mr. Scifo is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are CLN2 Disease, Batten Disease, CLN5 Disease, and CLN1 Disease.

      Learn about our expert tiers
      Experienced in CLN1 Disease

      Stefan John-Rose
      Experienced in CLN1 Disease

      Stefan John-Rose
      St. Josef Hospital, 
      Bochum, NW, DE 

      Stefan John-Rose practices in Bochum, Germany. Mr. John-Rose is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Obesity, Mucolipidosis Type 4, CLN2 Disease, CLN3 Disease, and Osteotomy.

      Experienced in CLN1 Disease

      Melanie Thelen
      Experienced in CLN1 Disease

      Melanie Thelen
      Bonn, NW, DE 

      Melanie Thelen practices in Bonn, Germany. Ms. Thelen is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Mucolipidosis Type 4, CLN3 Disease, CLN4 Disease, and CLN5 Disease.

      Experienced in CLN1 Disease

      Johannes K. Knobloch
      Experienced in CLN1 Disease

      Johannes K. Knobloch
      Walter Flex Str. 3, 
      Siegen, NW, DE 

      Johannes Knobloch practices in Siegen, Germany. Mr. Knobloch is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are D-Plus Hemolytic Uremic Syndrome, Hemolytic-Uremic Syndrome, D-Minus Hemolytic Uremic Syndrome, and Severe Acute Respiratory Syndrome (SARS).

      Experienced in CLN1 Disease

      Hans R. Scholer
      Experienced in CLN1 Disease

      Hans R. Scholer
      Muenster, NW, DE 

      Hans Scholer practices in Muenster, Germany. Mr. Scholer is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Pelizaeus-Merzbacher Disease, Hairy Cell Leukemia (HCL), Retinal Vasculopathy with Cerebral Leukodystrophy, and Denys-Drash Syndrome (DDS).

      Experienced in CLN1 Disease

      Max Anstotz
      Experienced in CLN1 Disease

      Max Anstotz
      Duesseldorf, NW, DE 

      Max Anstotz practices in Duesseldorf, Germany. Mr. Anstotz is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Small Cell Lung Cancer (SCLC), CLN2 Disease, Batten Disease, and CLN4 Disease.

      Experienced in CLN1 Disease

      Katharina Dannhausen
      Experienced in CLN1 Disease

      Katharina Dannhausen
      Koeln, NW, DE 

      Katharina Dannhausen practices in Koeln, Germany. Ms. Dannhausen is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Properdin Deficiency, and Retinitis Pigmentosa.

      Experienced in CLN1 Disease

      Daniel Bender
      Experienced in CLN1 Disease

      Daniel Bender
      Koeln, NW, DE 

      Daniel Bender practices in Koeln, Germany. Mr. Bender is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Sulfite Oxidase Deficiency, CLN5 Disease, CLN3 Disease, and CLN1 Disease.

      Experienced in CLN1 Disease

      Katrin Marcus
      Experienced in CLN1 Disease

      Katrin Marcus
      St. Josef Hospital, 
      Bochum, NW, DE 

      Katrin Marcus practices in Bochum, Germany. Ms. Marcus is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Myofibrillar Myopathy, Cytoplasmic Body Myopathy, Parkinson's Disease, and Movement Disorders.

      Experienced in CLN1 Disease

      Marc D. Sylvester
      Experienced in CLN1 Disease

      Marc D. Sylvester
      Bonn, NW, DE 

      Marc Sylvester practices in Bonn, Germany. Mr. Sylvester is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Glutaric Acidemia Type 1.

      Experienced in CLN1 Disease

      Dagmar Zeuschner
      Experienced in CLN1 Disease

      Dagmar Zeuschner
      Von Esmarch Str. 54, 
      Muenster, NW, DE 

      Dagmar Zeuschner practices in Muenster, Germany. Ms. Zeuschner is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Retinal Vasculopathy with Cerebral Leukodystrophy, CLN5 Disease, CLN4 Disease, and CLN1 Disease.

      Experienced in CLN1 Disease

      Hans-georg Sprenger
      Experienced in CLN1 Disease

      Hans-georg Sprenger
      Joseph Stelzmann Str. 9b, 
      Koeln, NW, DE 

      Hans-georg Sprenger practices in Koeln, Germany. Sprenger is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Spinocerebellar Ataxia Type 28, Microphthalmia, Spastic Paraplegia Type 5A, and CLN1 Disease.

      Experienced in CLN1 Disease

      Volkmar Gieselmann
      Experienced in CLN1 Disease

      Volkmar Gieselmann
      Bonn, NW, DE 

      Volkmar Gieselmann practices in Bonn, Germany. Gieselmann is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Canavan Disease.

      Experienced in CLN1 Disease

      Caroline May
      Experienced in CLN1 Disease

      Caroline May
      St. Josef Hospital, 
      Bochum, NW, DE 

      Caroline May practices in Bochum, Germany. Ms. May is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Parkinson's Disease, and Movement Disorders.

      Experienced in CLN1 Disease

      Hans J. Bidmon
      Experienced in CLN1 Disease

      Hans J. Bidmon
      Duesseldorf, NW, DE 

      Hans Bidmon practices in Duesseldorf, Germany. Mr. Bidmon is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Liver Failure, CLN4 Disease, CLN3 Disease, and CLN1 Disease.

      Experienced in CLN1 Disease

      Kay Hofmann
      Experienced in CLN1 Disease

      Kay Hofmann
      Zülpicher Str. 47a, 
      Koeln, NW, DE 

      Kay Hofmann practices in Koeln, Germany. Hofmann is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Epidermodysplasia Verruciformis, Warts, CLN3 Disease, and CLN4 Disease.

      Experienced in CLN1 Disease

      Holm Zaehres
      Experienced in CLN1 Disease

      Holm Zaehres
      Bochum, NW, DE 

      Holm Zaehres practices in Bochum, Germany. Zaehres is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Retinal Vasculopathy with Cerebral Leukodystrophy, Pompe Disease, Frontotemporal Dementia, and CLN5 Disease.

      Experienced in CLN1 Disease

      Carsten Korth
      Experienced in CLN1 Disease

      Carsten Korth
      Duesseldorf, NW, DE 

      Carsten Korth practices in Duesseldorf, Germany. Mr. Korth is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Schizophrenia, Alzheimer's Disease, Dementia, and Parkinson's Disease.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 25

      Last Updated: 10/30/2025

      What is the definition of CLN1 Disease?

      CLN1 disease is an inherited disorder that primarily affects the nervous system. Individuals with this condition have normal development in infancy, but typically by 18 months they become increasingly irritable and begin to lose previously acquired skills (developmental regression). In affected children, nerve cells in the brain die over time, leading to an overall loss of brain tissue (brain atrophy) and an unusually small head (microcephaly). Children with CLN1 disease have decreased muscle tone (hypotonia), intellectual and motor disability, and rarely are able to speak or walk. Some affected children develop repetitive hand movements. By age 2, individuals with this condition often have muscle twitches (myoclonus), recurrent seizures (epilepsy), and vision loss. Some affected children develop frequent respiratory infections. As the condition worsens, children have severe feeding difficulties that often require a feeding tube. Children with CLN1 disease usually do not survive past childhood.

      When should I see a CLN1 Disease doctor in North Rhine-Westphalia, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CLN1 Disease doctor in North Rhine-Westphalia, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best CLN1 Disease doctor in North Rhine-Westphalia, DE?

      You can find a CLN1 Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank CLN1 Disease doctors in North Rhine-Westphalia, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CLN1 Disease doctors in North Rhine-Westphalia, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CLN1 Disease doctor in North Rhine-Westphalia, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN1 Disease doctor search results page. 

      Why is it important to get a second opinion from a different CLN1 Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CLN1 Disease doctor in North Rhine-Westphalia, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CLN1 Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CLN1 Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CLN1 Disease doctors in North Rhine-Westphalia, DE?

      Look for the filter feature on the left side of the CLN1 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CLN1 Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the CLN1 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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