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    Last Updated: 10/30/2025

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    MediFind found 13 doctor with experience in CLN1 Disease near Schleswig-Holstein, DE. Of these, 9 are Experienced and 4 are Advanced.

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    13 providers found
      Advanced in CLN1 Disease

      Paul Saftig
      Advanced in CLN1 Disease

      Paul Saftig
      Kiel, SH, DE 

      Paul Saftig practices in Kiel, Germany. Mr. Saftig is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Batten Disease, CLN3 Disease, CLN4 Disease, and CLN1 Disease.

      Advanced in CLN1 Disease

      Markus Damme
      Advanced in CLN1 Disease

      Markus Damme
      Kiel, SH, DE 

      Markus Damme practices in Kiel, Germany. Mr. Damme is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Usher Syndrome, Alpha Mannosidosis, CLN2 Disease, and CLN1 Disease.

      Advanced in CLN1 Disease

      Alessandro Di Spiezio
      Advanced in CLN1 Disease

      Alessandro Di Spiezio
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Alessandro Di Spiezio practices in Luebeck, Germany. Mr. Di Spiezio is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Batten Disease, CLN2 Disease, CLN4 Disease, and CLN3 Disease.

      Learn about our expert tiers
      Advanced in CLN1 Disease

      Susanne A. Schneider
      Advanced in CLN1 Disease

      Susanne A. Schneider
      Arnold Heller Str 3, 
      Kiel, SH, DE 

      Susanne Schneider practices in Kiel, Germany. Ms. Schneider is rated as an Advanced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Hallervorden-Spatz Disease, Pantothenate Kinase-Associated Neurodegeneration, Chorea, Deep Brain Stimulation, and Cataract Removal.

      Experienced in CLN1 Disease

      Joachim Grotzinger
      Experienced in CLN1 Disease

      Joachim Grotzinger
      Kiel, SH, DE 

      Joachim Grotzinger practices in Kiel, Germany. Mr. Grotzinger is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Scott Syndrome, Congenital Adrenal Hyperplasia (CAH), Intersex, and Swyer Syndrome.

      Experienced in CLN1 Disease

      Lara M. Lange
      Experienced in CLN1 Disease

      Lara M. Lange
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Lara Lange practices in Luebeck, Germany. Ms. Lange is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, and Focal Dystonia.

      Experienced in CLN1 Disease

      Sinem Tunc
      Experienced in CLN1 Disease

      Sinem Tunc
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Sinem Tunc practices in Luebeck, Germany. Ms. Tunc is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Drug Induced Dyskinesia, Spinocerebellar Ataxia Type 28, Myotonia Congenita, and Amyotonia Congenita.

      Experienced in CLN1 Disease

      Renate Rauch-Lullmann
      Experienced in CLN1 Disease

      Renate Rauch-Lullmann
      Kiel, SH, DE 

      Renate Rauch-Lullmann practices in Kiel, Germany. Ms. Rauch-Lullmann is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Fucosidosis, Mucopolysaccharidosis Type 3 (MPS III, Sanfilippo Syndrome), Mucopolysaccharidoses (MPS), and Alpha Mannosidosis.

      Experienced in CLN1 Disease

      Andreas Tholey
      Experienced in CLN1 Disease

      Andreas Tholey
      Kiel, SH, DE 

      Andreas Tholey practices in Kiel, Germany. Mr. Tholey is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Scott Syndrome, Trigger Thumb, Rhabditida Infections, and Primary Amyloidosis.

      Experienced in CLN1 Disease

      Norbert Bruggemann
      Experienced in CLN1 Disease

      Norbert Bruggemann
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Norbert Bruggemann practices in Luebeck, Germany. Mr. Bruggemann is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Drug Induced Dyskinesia, Movement Disorders, Parkinson's Disease, Acute Cerebellar Ataxia, and Deep Brain Stimulation.

      Experienced in CLN1 Disease

      Anne Weissbach
      Experienced in CLN1 Disease

      Anne Weissbach
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Anne Weissbach practices in Luebeck, Germany. Ms. Weissbach is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Dopa-Responsive Dystonia, Myoclonus-Dystonia, Drug Induced Dyskinesia, Focal Dystonia, and Deep Brain Stimulation.

      Experienced in CLN1 Disease

      Liam Cassidy
      Experienced in CLN1 Disease

      Liam Cassidy
      Kiel, SH, DE 

      Liam Cassidy practices in Kiel, Germany. Mr. Cassidy is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Rhabditida Infections, Pseudomembranous Colitis, CLN1 Disease, and CLN3 Disease.

      Experienced in CLN1 Disease

      Yorck Hellenbroich
      Experienced in CLN1 Disease

      Yorck Hellenbroich
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Yorck Hellenbroich practices in Luebeck, Germany. Hellenbroich is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Polydactyly Myopia Syndrome, Spinocerebellar Ataxia Type 4, Drug Induced Dyskinesia, and Joubert Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-13 of 13

      Last Updated: 10/30/2025

      What is the definition of CLN1 Disease?

      CLN1 disease is an inherited disorder that primarily affects the nervous system. Individuals with this condition have normal development in infancy, but typically by 18 months they become increasingly irritable and begin to lose previously acquired skills (developmental regression). In affected children, nerve cells in the brain die over time, leading to an overall loss of brain tissue (brain atrophy) and an unusually small head (microcephaly). Children with CLN1 disease have decreased muscle tone (hypotonia), intellectual and motor disability, and rarely are able to speak or walk. Some affected children develop repetitive hand movements. By age 2, individuals with this condition often have muscle twitches (myoclonus), recurrent seizures (epilepsy), and vision loss. Some affected children develop frequent respiratory infections. As the condition worsens, children have severe feeding difficulties that often require a feeding tube. Children with CLN1 disease usually do not survive past childhood.

      When should I see a CLN1 Disease doctor in Schleswig-Holstein, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CLN1 Disease doctor in Schleswig-Holstein, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best CLN1 Disease doctor in Schleswig-Holstein, DE?

      You can find a CLN1 Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank CLN1 Disease doctors in Schleswig-Holstein, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CLN1 Disease doctors in Schleswig-Holstein, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CLN1 Disease doctor in Schleswig-Holstein, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN1 Disease doctor search results page. 

      Why is it important to get a second opinion from a different CLN1 Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CLN1 Disease doctor in Schleswig-Holstein, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CLN1 Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CLN1 Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CLN1 Disease doctors in Schleswig-Holstein, DE?

      Look for the filter feature on the left side of the CLN1 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CLN1 Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the CLN1 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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