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    Last Updated: 10/30/2025

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    MediFind found 25 doctor with experience in CLN1 Disease near Russian Federation. Of these, 25 are Experienced.

    Location
    LocationClose
    25 providers found
      Ekaterina A. Nikolaeva
      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      2, Taldomskaya St, 
      Moscow, MOW, RU 

      Ekaterina Nikolaeva practices in Moscow, Russian Federation. Ms. Nikolaeva is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome), X-Linked Ichthyosis, Marfan Syndrome, and Mucopolysaccharidoses (MPS).

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Moscow, MOW, RU 

      Ekaterina Surkova practices in Moscow, Russian Federation. Ms. Surkova is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Autosomal Recessive Cutis Laxa Type 1, CLN3 Disease, CLN5 Disease, and CLN4 Disease.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Obninsk, KLU, RU 

      Peter Shatalov practices in Obninsk, Russian Federation. Mr. Shatalov is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are CLN3 Disease, CLN5 Disease, CLN4 Disease, and CLN1 Disease.

      Learn about our expert tiers
      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      St Petersburg State Pediatric Medical University, 
      Saint Petersburg, SPE, RU 

      Natalia Baryshnikova practices in Saint Petersburg, Russian Federation. Ms. Baryshnikova is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Chronic Erosive Gastritis, Gastritis, Autosomal Recessive Cutis Laxa Type 1, and CLN3 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Gubkina Street 3, 
      Moscow, MOW, RU 

      Valery Ilinsky practices in Moscow, Russian Federation. Ilinsky is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Autosomal Recessive Cutis Laxa Type 1, CLN3 Disease, CLN5 Disease, and CLN1 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Moscow, MOW, RU 

      Svetlana Mikhaylova practices in Moscow, Russian Federation. Ms. Mikhaylova is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are CLN1 Disease, CLN3 Disease, CLN5 Disease, and CLN4 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      1, Academika Kurchatova Pl, 
      Moscow, MOW, RU 

      George Shpakovski practices in Moscow, Russian Federation. Mr. Shpakovski is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are CLN3 Disease, CLN5 Disease, CLN1 Disease, and CLN4 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      LCC, 7 B.3 Magadanskaya Str, 
      Moscow, MOW, RU 

      Olja Mijanovic practices in Moscow, Russian Federation. Mijanovic is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are CLN2 Disease, Batten Disease, CLN3 Disease, and CLN5 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Yakutsk, SA, RU 

      Aitalina Sukhomyasova practices in Yakutsk, Russian Federation. Sukhomyasova is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Mongolian Blue Spots, Mucopolysaccharidoses (MPS), Splenomegaly, and Mucopolysaccharidosis Type 2 (MPS II, Hunter Syndrome).

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Yakutsk, SA, RU 

      Nadezhda Maksimova practices in Yakutsk, Russian Federation. Ms. Maksimova is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Her top areas of expertise are Mongolian Blue Spots, Spinal and Bulbar Muscular Atrophy, Mucopolysaccharidoses (MPS), and Oculopharyngeal Muscular Dystrophy.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      1 Olympic Ave, 
      Sochi, KDA, RU 

      Alessandro Parodi practices in Sochi, Russian Federation. Mr. Parodi is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Renal Cell Carcinoma (RCC), Poliomyelitis, Myelitis, and Vitamin B12 Deficiency Anemia.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      1 Olympic Ave, 
      Sochi, KDA, RU 

      Andrey Zamyatnin practices in Sochi, Russian Federation. Zamyatnin is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are Malabsorption, Celiac Disease, Renal Cell Carcinoma (RCC), and Dry Eye Syndrome.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Novokuznetskaya Street 24/2, 
      Moscow, MOW, RU 

      Peter Fedichev practices in Moscow, Russian Federation. Mr. Fedichev is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are CLN4 Disease, CLN1 Disease, CLN3 Disease, and CLN5 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Tikhoretskay Ave 4, 
      Saint Petersburg, SPE, RU 

      Dmitriy Korostin practices in Saint Petersburg, Russian Federation. Mr. Korostin is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Cavernous Lymphangioma, Secondary Immunodeficiency (SID), Trisomy 13, and Chromosome 13q Duplication.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      1 Olympic Ave, 
      Sochi, KDA, RU 

      Anastasiia Petushkova practices in Sochi, Russian Federation. Petushkova is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are CLN3 Disease, CLN4 Disease, CLN1 Disease, and CLN5 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Moscow, MOW, RU 

      Oleg Suchalko practices in Moscow, Russian Federation. Mr. Suchalko is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Cavernous Lymphangioma, Autoimmune Polyendocrinopathy-Candidiasis-Ectodermal Dystrophy (APECED), Autoimmune Polyglandular Syndrome Type 2, and CLN3 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      6, Miklukho Maklaya St, 
      Moscow, MOW, RU 

      Anastasiia Buianova practices in Moscow, Russian Federation. Buianova is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. Their top areas of expertise are 46XX Testicular Disorder of Sex Development, Cavernous Lymphangioma, X-Linked Ichthyosis, and Autoimmune Polyendocrinopathy-Candidiasis-Ectodermal Dystrophy (APECED).

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Moscow, MOW, RU 

      Nikolay Plotnikov practices in Moscow, Russian Federation. Mr. Plotnikov is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Lactose Intolerance, Malabsorption, CLN5 Disease, and CLN4 Disease.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Moscow, MOW, RU 

      Alexander Rakitko practices in Moscow, Russian Federation. Mr. Rakitko is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Lactose Intolerance, Trisomy 13, COVID-19, and Chromosome 13q Duplication.

      Experienced in CLN1 Disease
      Experienced in CLN1 Disease
      Trubetskaya Street 8, Str. 2, 119991, 
      Moscow, MOW, RU 

      Sergey Bolevich practices in Moscow, Russian Federation. Mr. Bolevich is rated as an Experienced expert by MediFind in the treatment of CLN1 Disease. His top areas of expertise are Cardiomyopathy, Jaundice, Osmotic Diuresis, and Type 2 Diabetes (T2D).

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 25

      Last Updated: 10/30/2025

      What is the definition of CLN1 Disease?

      CLN1 disease is an inherited disorder that primarily affects the nervous system. Individuals with this condition have normal development in infancy, but typically by 18 months they become increasingly irritable and begin to lose previously acquired skills (developmental regression). In affected children, nerve cells in the brain die over time, leading to an overall loss of brain tissue (brain atrophy) and an unusually small head (microcephaly). Children with CLN1 disease have decreased muscle tone (hypotonia), intellectual and motor disability, and rarely are able to speak or walk. Some affected children develop repetitive hand movements. By age 2, individuals with this condition often have muscle twitches (myoclonus), recurrent seizures (epilepsy), and vision loss. Some affected children develop frequent respiratory infections. As the condition worsens, children have severe feeding difficulties that often require a feeding tube. Children with CLN1 disease usually do not survive past childhood.

      When should I see a CLN1 Disease doctor in Russian Federation?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CLN1 Disease doctor in Russian Federation?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CLN1 Disease doctors in Russian Federation?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CLN1 Disease doctors in Russian Federation?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CLN1 Disease doctor in Russian Federation?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN1 Disease doctor search results page. 

      Why is it important to get a second opinion from a different CLN1 Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CLN1 Disease doctor in Russian Federation?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CLN1 Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CLN1 Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CLN1 Disease doctors in Russian Federation?

      Look for the filter feature on the left side of the CLN1 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CLN1 Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the CLN1 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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