The 20 Best CLN3 Disease Doctors Near Me in Massachusetts, US

Find the Top CLN3 Disease Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 24 doctor with experience in CLN3 Disease near Massachusetts, US. Of these, 21 are Experienced and 3 are Advanced.

Location
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24 providers found
    Advanced in CLN3 Disease
    Pediatric Neurology
    Advanced in CLN3 Disease
    Pediatric Neurology
    Referral may be required

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English

    Ariane Soldatos is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Soldatos is rated as an Advanced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Batten Disease, CLN3 Disease, CLN1 Disease, CLN5 Disease, and Deep Brain Stimulation.

    Advanced in CLN3 Disease
    Medical Genetics
    Advanced in CLN3 Disease
    Medical Genetics
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Lance Rodan is a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Rodan is rated as an Advanced provider by MediFind in the treatment of CLN3 Disease. He is also highly rated in 150 other conditions, according to our data. His clinical expertise encompasses Polymicrogyria, Hennekam Syndrome, Increased Head Circumference, and Retinopathy Pigmentary Mental Retardation. Dr. Rodan is currently accepting new patients.

    Advanced in CLN3 Disease
    Neurology | Pediatrics
    Advanced in CLN3 Disease
    Neurology | Pediatrics
    Referral may be required

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Tamar Caceres is a Neurologist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Caceres is rated as an Advanced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 88 other conditions, according to our data. Her clinical expertise encompasses Trisomy 2 Mosaicism, Mosaic Trisomy 7, Trisomy 12 Mosaicism, and Trisomy 14 Mosaicism. Dr. Caceres is currently accepting new patients.

    Learn about our expert tiers
    Experienced in CLN3 Disease
    Pediatric Neurology | Neurology
    Experienced in CLN3 Disease
    Pediatric Neurology | Neurology
    Referral may be required

    C H Neurology Foundation Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Darius Ebrahimi-Fakhari is a Pediatric Neurologist and a Neurologist practicing medicine in Boston, Massachusetts. Dr. Ebrahimi-Fakhari is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. He is also highly rated in 38 other conditions, according to our data. His clinical expertise encompasses Vici Syndrome, Chorea, Hereditary Spastic Paraparesis, and Spastic Paraplegia Type 4. Dr. Ebrahimi-Fakhari is currently accepting new patients.

    Experienced in CLN3 Disease
    Pediatric Neurology
    Experienced in CLN3 Disease
    Pediatric Neurology
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Melissa Tsuboyama is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Tsuboyama is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 31 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy, Succinic Semialdehyde Dehydrogenase Deficiency, and Cerebellar Hypoplasia. Dr. Tsuboyama is currently accepting new patients.

    Experienced in CLN3 Disease
    Experienced in CLN3 Disease
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Christelle Moufawadelachkar is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Moufawadelachkar is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 28 other conditions, according to our data. Her clinical expertise encompasses Epilepsy in Children, Seizures, Autism Spectrum Disorder, and Aphantasia. Dr. Moufawadelachkar is currently accepting new patients.

    Experienced in CLN3 Disease
    Experienced in CLN3 Disease
    Referral may be required
    55 Fruit St, Vbk 915, 
    Boston, MA 
    Languages Spoken:
    English

    Timothy Yu is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Yu is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Periventricular Heterotopia, Schizencephaly, Erythromelalgia, and Ohdo Syndrome, Say-Barber-Biesecker-Young-Simpson Variant.

    Experienced in CLN3 Disease
    Experienced in CLN3 Disease
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Alexander Rotenberg is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Rotenberg is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. He is also highly rated in 27 other conditions, according to our data. His clinical expertise encompasses Seizures, Succinic Semialdehyde Dehydrogenase Deficiency, Epilepsy, Generalized Tonic-Clonic Seizure, and Deep Brain Stimulation. Dr. Rotenberg is currently accepting new patients.

    Experienced in CLN3 Disease
    Medical Genetics
    Experienced in CLN3 Disease
    Medical Genetics
    Referral may be required

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Olaf Bodamer is a Medical Genetics provider practicing medicine in Boston, Massachusetts. Dr. Bodamer is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. He is also highly rated in 51 other conditions, according to our data. His clinical expertise encompasses Kabuki Syndrome, Classic Galactosemia, Niemann-Pick Disease, and Mucopolysaccharidoses (MPS). Dr. Bodamer is currently accepting new patients.

    Experienced in CLN3 Disease
    Pediatric Neurology
    Experienced in CLN3 Disease
    Pediatric Neurology
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Sara Trowbridge is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Trowbridge is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Seizures, Myoclonic Epilepsy, and Spasmus Nutans. Dr. Trowbridge is currently accepting new patients.

    Experienced in CLN3 Disease
    Pediatric Neurology
    Experienced in CLN3 Disease
    Pediatric Neurology
    Referral may be required

    New England Pain Cere

    10 Centennial Dr, 
    Peabody, MA 
    Languages Spoken:
    English

    Anna Pinto is a Pediatric Neurologist practicing medicine in Peabody, Massachusetts. Dr. Pinto is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 34 other conditions, according to our data. Her clinical expertise encompasses Sturge-Weber Syndrome, Parkes Weber Syndrome, Seizures, and Epilepsy.

    Experienced in CLN3 Disease
    Pediatric Neurology
    Experienced in CLN3 Disease
    Pediatric Neurology
    Referral may be required

    Department Of Neurology At Waltham

    9 Hope Ave, 
    Waltham, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Joshua August is a Pediatric Neurologist practicing medicine in Waltham, Massachusetts. Dr. August is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Periodic Limb Movement Disorder, Idiopathic Hypersomnia, Autism Spectrum Disorder, and Sleepwalking (Somnambulism). Dr. August is currently accepting new patients.

    Experienced in CLN3 Disease
    Experienced in CLN3 Disease
    Referral may be required

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Jeffrey Bolton is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Bolton is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. He is also highly rated in 48 other conditions, according to our data. His clinical expertise encompasses Seizures, Epilepsy, Epilepsy in Children, and Generalized Tonic-Clonic Seizure. Dr. Bolton is currently accepting new patients.

    Experienced in CLN3 Disease
    Experienced in CLN3 Disease
    Referral may be required

    Boston Medical Center

    1 Boston Medical Ctr Pl, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Marie-helene Saint-Hilaire is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Saint-Hilaire is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Parkinson's Disease, Movement Disorders, Drug Induced Dyskinesia, and Meige Syndrome. Dr. Saint-Hilaire is currently accepting new patients.

    Experienced in CLN3 Disease
    Medical Genetics | Pediatrics
    Experienced in CLN3 Disease
    Medical Genetics | Pediatrics
    Referral may be required

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Boston, Massachusetts. Dr. Sacharow is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 158 other conditions, according to our data. Her clinical expertise encompasses Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Experienced in CLN3 Disease
    Experienced in CLN3 Disease
    Referral may be required

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Karen Stannard is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Stannard is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 38 other conditions, according to our data. Her clinical expertise encompasses Stereotypic Movement Disorder, Spasmus Nutans, Seizures, and Memory Loss. Dr. Stannard is currently accepting new patients.

    Experienced in CLN3 Disease
    Experienced in CLN3 Disease
    Referral may be required

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Donatelli is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Donatelli is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 40 other conditions, according to our data. Her clinical expertise encompasses West Syndrome, Epilepsy, Epilepsy in Children, and Seizures. Dr. Donatelli is currently accepting new patients.

    Experienced in CLN3 Disease
    Pediatric Neurology
    Experienced in CLN3 Disease
    Pediatric Neurology
    Referral may be required

    Boston Children's Hospital

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients

    Agnieszka Kielian is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Kielian is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Seizures, Generalized Tonic-Clonic Seizure, Agyria Pachygyria Polymicrogyria, and Lissencephaly 1. Dr. Kielian is currently accepting new patients.

    Experienced in CLN3 Disease
    Experienced in CLN3 Disease
    Referral may be required

    Boston Medical Center

    1 Boston Medical Ctr Pl, 
    Boston,, MA 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Myriam Abdennadher is a Neurologist practicing medicine in Boston,, Massachusetts. She has been practicing medicine for over 18 years. Dr. Abdennadher is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Absence Seizure. Dr. Abdennadher is currently accepting new patients.

    Experienced in CLN3 Disease
    Pediatric Neurology
    Experienced in CLN3 Disease
    Pediatric Neurology
    Referral may be required

    Department Of Neurology

    300 Longwood Ave, 
    Boston, MA 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    David Urion is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Urion is rated as an Experienced provider by MediFind in the treatment of CLN3 Disease. He is also highly rated in 33 other conditions, according to our data. His clinical expertise encompasses Lissencephaly 2, Lissencephaly 1, Cerebellar Hypoplasia, and Polymicrogyria. Dr. Urion is currently accepting new patients.

    Showing 1-20 of 24

    Last Updated: 09/19/2026

    What is the definition of CLN3 Disease?

    CLN3 disease is an inherited disorder that primarily affects the nervous system. After 4 to 6 years of normal development, children with this condition develop vision impairment, intellectual disability, movement problems, speech difficulties, and seizures, which worsen over time.

    When should I see a CLN3 Disease doctor in Massachusetts, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CLN3 Disease doctor in Massachusetts, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CLN3 Disease doctors in Massachusetts, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CLN3 Disease doctors in Massachusetts, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CLN3 Disease doctor in Massachusetts, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN3 Disease doctor search results page. 

    Why is it important to get a second opinion from a different CLN3 Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CLN3 Disease doctor in Massachusetts, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CLN3 Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CLN3 Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CLN3 Disease doctors in Massachusetts, US?

    Look for the filter feature on the left side of the CLN3 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CLN3 Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the CLN3 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

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