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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in CLN4 Disease near Illinois, US. Of these, 7 are Experienced, 3 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    11 providers found
      Distinguished in CLN4 Disease
      Pediatric Neurology | Pediatrics | Psychiatry
      Distinguished in CLN4 Disease
      Pediatric Neurology | Pediatrics | Psychiatry

      Rush University Medical Group

      1725 W Harrison St, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Elizabeth Berry-Kravis is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Berry-Kravis is rated as a Distinguished provider by MediFind in the treatment of CLN4 Disease. Her top areas of expertise are Fragile X Syndrome, Niemann-Pick Disease, Autism Spectrum Disorder, and Rett Syndrome. Dr. Berry-Kravis is currently accepting new patients.

      Advanced in CLN4 Disease
      Medical Genetics | Pediatrics
      Advanced in CLN4 Disease
      Medical Genetics | Pediatrics

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joshua Baker is a Medical Genetics specialist and a Pediatrics provider in Chicago, Illinois. Dr. Baker is rated as an Advanced provider by MediFind in the treatment of CLN4 Disease. His top areas of expertise are Ornithine Transcarbamylase Deficiency, Urea Cycle Disorders (UCD), Acid Sphingomyelinase Deficiency (ASMD), and Propionic Acidemia.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in CLN4 Disease
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in CLN4 Disease
      Pediatric Neurology | Pediatrics | Neurology
      1725 W Harrison St Ste 718, Department Of Pediatrics, Section Of Child Neurology, 
      Chicago, IL 
      Languages Spoken:
      English, Russian
      Accepting New Patients
      Offers Telehealth

      Lubov Romantseva is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Romantseva is rated as an Advanced provider by MediFind in the treatment of CLN4 Disease. Her top areas of expertise are Seizures, CLN2 Disease, CLN3 Disease, and CLN4 Disease. Dr. Romantseva is currently accepting new patients.

      Learn about our expert tiers
      Advanced in CLN4 Disease
      Neurology | Pediatrics
      Advanced in CLN4 Disease
      Neurology | Pediatrics
      1725 W. Harrison Street, Professional Office Building Suite 710, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Tamar Caceres is a Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Caceres is rated as an Advanced provider by MediFind in the treatment of CLN4 Disease. Her top areas of expertise are Trisomy 14 Mosaicism, Trisomy 2 Mosaicism, Trisomy 3 Mosaicism, and Mosaic Trisomy 7. Dr. Caceres is currently accepting new patients.

      John J. Millichap
      Experienced in CLN4 Disease
      Pediatric Neurology | Neurology
      Experienced in CLN4 Disease
      Pediatric Neurology | Neurology

      Precision Epilepsy PLLC

      IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      John Millichap is a Pediatric Neurologist and a Neurologist in Illinois. Dr. Millichap is rated as an Experienced provider by MediFind in the treatment of CLN4 Disease. His top areas of expertise are West Syndrome, Spasmus Nutans, Epilepsy in Children, and Epilepsy. Dr. Millichap is currently accepting new patients.

      Dimitri Krainc
      Experienced in CLN4 Disease
      Experienced in CLN4 Disease
      259 E Erie St Ste 1900, Lavin Family Pavilion, 
      Chicago, IL 
      Experience:
      33+ years
      Languages Spoken:
      English
      Offers Telehealth

      Dimitri Krainc is a Neurologist in Chicago, Illinois. Dr. Krainc has been practicing medicine for over 33 years and is rated as an Experienced provider by MediFind in the treatment of CLN4 Disease. His top areas of expertise are Movement Disorders, Parkinson's Disease, Farber Lipogranulomatosis, Early Infantile Epileptic Encephalopathy, and Deep Brain Stimulation.

      Experienced in CLN4 Disease
      Pediatric Neurology
      Experienced in CLN4 Disease
      Pediatric Neurology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Polish, Spanish

      Dina Soloveychik is a Pediatric Neurologist in Chicago, Illinois. Dr. Soloveychik is rated as an Experienced provider by MediFind in the treatment of CLN4 Disease. Her top areas of expertise are Partial Seizure, Seizures, Absence Seizure, and Epilepsy Juvenile Absence.

      Experienced in CLN4 Disease
      Pediatric Neurology
      Experienced in CLN4 Disease
      Pediatric Neurology
      225 E Chicago Ave, Lurie Children's Hospital, 
      Chicago, IL 
      Languages Spoken:
      English

      Sunila Oconnor is a Pediatric Neurologist in Chicago, Illinois. Dr. Oconnor is rated as an Experienced provider by MediFind in the treatment of CLN4 Disease. Her top areas of expertise are Status Epilepticus, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, and Epilepsy Juvenile Absence.

      Experienced in CLN4 Disease
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in CLN4 Disease
      Pediatric Neurology | Pediatrics | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joshua Goldstein is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of CLN4 Disease. His top areas of expertise are Status Epilepticus, Seizures, Chorea, and Huntington Disease.

      Experienced in CLN4 Disease
      Pediatric Neurology | Pediatrics
      Experienced in CLN4 Disease
      Pediatric Neurology | Pediatrics
      25 North Winfield Road, Pediatric Outpatient Center East Clinic, 
      Winfield, IL 
      Languages Spoken:
      English, Polish

      Diana Sieciechowicz is a Pediatric Neurologist and a Pediatrics provider in Winfield, Illinois. Dr. Sieciechowicz is rated as an Experienced provider by MediFind in the treatment of CLN4 Disease. Her top areas of expertise are Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Partial Seizure, and Absence Seizure.

      Experienced in CLN4 Disease
      Medical Genetics
      Experienced in CLN4 Disease
      Medical Genetics
      5841 S Maryland Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients

      Darrel Waggoner is a Medical Genetics provider in Chicago, Illinois. Dr. Waggoner is rated as an Experienced provider by MediFind in the treatment of CLN4 Disease. His top areas of expertise are Ornithine Translocase Deficiency, Ornithine Transcarbamylase Deficiency, Kabuki Syndrome, Caudal Appendage Deafness, and Gastrostomy. Dr. Waggoner is currently accepting new patients.

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of CLN4 Disease?

      CLN4 disease is a condition that primarily affects the nervous system, causing problems with movement and intellectual function that worsen over time. The signs and symptoms of CLN4 disease typically appear around age 30, but they can develop anytime between adolescence and late adulthood.

      When should I see a CLN4 Disease doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CLN4 Disease doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CLN4 Disease doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CLN4 Disease doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CLN4 Disease doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CLN4 Disease doctor search results page. 

      Why is it important to get a second opinion from a different CLN4 Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CLN4 Disease doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CLN4 Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CLN4 Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CLN4 Disease doctors in Illinois, US?

      Look for the filter feature on the left side of the CLN4 Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CLN4 Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the CLN4 Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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