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    Last Updated: 01/09/2026

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    MediFind found 69 doctor with experience in Coach Syndrome near Illinois, US. Of these, 62 are Experienced and 7 are Advanced.

    Location
    LocationClose
    69 providers found
      Experienced in Coach Syndrome
      Ophthalmology | Pediatrics
      Experienced in Coach Syndrome
      Ophthalmology | Pediatrics

      Wheaton Eye Clinic Ltd

      2015 N Main St, 
      Wheaton, IL 
      Languages Spoken:
      English

      Kelly Laurenti is an Ophthalmologist and a Pediatrics provider in Wheaton, Illinois. Dr. Laurenti is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Oculomotor Apraxia Cogan Type, Strabismus, Amblyopia, and Esotropia.

      Advanced in Coach Syndrome
      Neurology
      Advanced in Coach Syndrome
      Neurology

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joyce Wu is a Neurologist in Chicago, Illinois. Dr. Wu is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Epilepsy in Children, Autism Spectrum Disorder, Orofaciodigital Syndrome 6, and Bilateral Perisylvian Polymicrogyria.

      Advanced in Coach Syndrome
      Advanced in Coach Syndrome

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      David Bieber is a Neurologist in Chicago, Illinois. Dr. Bieber is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Memory Loss, Partial Seizure, Athetosis, and Seizures.

      Learn about our expert tiers
      Mohamed A. Katerji
      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Katerji Pediatric Neurology & Associates, SC

      1220 Iroquois Ave, 
      Naperville, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Mohamed Katerji is a Neurologist in Naperville, Illinois. Dr. Katerji is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Athetosis, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

      Ali Shaibani
      Experienced in Coach Syndrome
      Neuroradiology
      Experienced in Coach Syndrome
      Neuroradiology
      259 E Erie St Ste 1950, Lavin Family Pavilion, 
      Chicago, IL 
      Experience:
      34+ years
      Languages Spoken:
      English
      Offers Telehealth

      Ali Shaibani is a Neuroradiologist in Chicago, Illinois. Dr. Shaibani has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Arteriovenous Malformation, Cerebral Arteriovenous Malformation, Brain Aneurysm, Thrombectomy, and Stent Placement.

      Michal Szczodry
      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Midwest Orthopaedic Consultants, SC

      10719 160th St, 
      Orland Park, IL 
      Languages Spoken:
      English, Polish

      Michal Szczodry is an Orthopedics provider in Orland Park, Illinois. Dr. Szczodry is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Scoliosis, Sciatica, Distal 18q Deletion Syndrome, Microdiscectomy, and Herniated Disc Surgery.

      Experienced in Coach Syndrome
      Neurology
      Experienced in Coach Syndrome
      Neurology

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Linda Laux is a Neurologist in Chicago, Illinois. Dr. Laux is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Epilepsy in Children, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Orofaciodigital Syndrome 6, and VLDLR-Associated Cerebellar Hypoplasia.

      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Northwestern Medicine Central Dupage Hospital

      25 N Winfield Rd, 
      Winfield, IL 
      Languages Spoken:
      English

      Diana Sieciechowicz is a Neurologist in Winfield, Illinois. Dr. Sieciechowicz is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Partial Seizure, and Absence Seizure.

      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Sunila O'connor is a Neurologist in Chicago, Illinois. Dr. O'connor is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Status Epilepticus, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Seizures, and Epilepsy Juvenile Absence.

      Experienced in Coach Syndrome
      Pediatric Neurology
      Experienced in Coach Syndrome
      Pediatric Neurology

      Office

      1725 W Harrison St Ste 718, 
      Chicago, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Lubov Romantseva is a Pediatric Neurologist in Chicago, Illinois. Dr. Romantseva is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, CLN3 Disease, CLN4 Disease, and CLN2 Disease.

      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Joshua Goldstein is a Neurologist in Chicago, Illinois. Dr. Goldstein is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Landau-Kleffner Syndrome, Athetosis, Photosensitive Epilepsy, and Seizures.

      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Colleen Badke is a Pediatrics provider in Chicago, Illinois. Dr. Badke is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Respiratory Syncytial Virus (RSV) Infection, Orofaciodigital Syndrome 6, Lissencephaly 2, and VLDLR-Associated Cerebellar Hypoplasia.

      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Experience:
      10+ years
      Languages Spoken:
      English

      Alexandra Feldman is a Pediatrics provider in Chicago, Illinois. Dr. Feldman has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Cerebral Hypoxia, Biliary Atresia, Leigh Syndrome, and Maternally Inherited Leigh Syndrome.

      Experienced in Coach Syndrome
      Pediatrics
      Experienced in Coach Syndrome
      Pediatrics

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English
      Offers Telehealth

      Rajit Basu is a Pediatrics provider in Chicago, Illinois. Dr. Basu is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Cerebral Hypoxia, High Blood Pressure in Infants, and Glutaric Acidemia Type 2.

      Experienced in Coach Syndrome
      Pediatric Pulmonology
      Experienced in Coach Syndrome
      Pediatric Pulmonology

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Steven Lestrud is a Pediatric Pulmonologist in Chicago, Illinois. Dr. Lestrud is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Congenital Unilateral Pulmonary Hypoplasia, Congenital Central Hypoventilation Syndrome, Asthma, and Pulmonary Hypertension.

      Advanced in Coach Syndrome
      Pediatric Neurology
      Advanced in Coach Syndrome
      Pediatric Neurology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish

      Joanna Garcia-Pierce is a Pediatric Neurologist in Chicago, Illinois. Dr. Garcia-Pierce is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Partial Seizure, Absence Seizure, and Epilepsy in Children.

      Advanced in Coach Syndrome
      Pediatric Neurology | Neurology
      Advanced in Coach Syndrome
      Pediatric Neurology | Neurology
      225 E Chicago Ave # 51, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish

      Andrea Pardo is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Pardo is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Corpus Callosum Agenesis, Seizures, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

      Advanced in Coach Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Coach Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, Box 118, 
      Chicago, IL 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Charles Marcuccilli is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Marcuccilli is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Seizures, Epilepsy, Susac Syndrome, and Fetal Thalidomide Syndrome. Dr. Marcuccilli is currently accepting new patients.

      Advanced in Coach Syndrome
      Pediatric Neurology | Pediatrics
      Advanced in Coach Syndrome
      Pediatric Neurology | Pediatrics
      5721 S Maryland Ave, Mc 8016, K155, 
      Chicago, IL 
      Languages Spoken:
      English

      Afsaneh Talai is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Talai is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, and Lennox-Gastaut Syndrome (LGS).

      Advanced in Coach Syndrome
      Physician Assistant | Nurse Practitioner
      Advanced in Coach Syndrome
      Physician Assistant | Nurse Practitioner
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English

      Anne Mcrae is a Physician Assistant and a Nurse Practitioner in Chicago, Illinois. Ms. Mcrae is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Koolen De Vries Syndrome, Jacobsen Syndrome, Distal 18q Deletion Syndrome, and 15q11.2 Microdeletion.

      Showing 1-20 of 69

      Last Updated: 01/09/2026

      What is the definition of Coach Syndrome?

      COACH syndrome is a condition that mainly affects the brain and liver. Most individuals with COACH syndrome have intellectual disability, liver problems (fibrosis), and difficulty with movement (ataxia). Some may also have an abnormality of the eye (called a coloboma) or abnormal eye movements (such as nystagmus). This condition is inherited in an autosomal recessive manner; 70% of cases are thought to be caused by genetic changes in the TMEM67 gene. COACH syndrome is considered a rare form of another condition, Joubert syndrome.

      When should I see a Coach Syndrome doctor in Illinois, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Coach Syndrome doctor in Illinois, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Coach Syndrome doctors in Illinois, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Coach Syndrome doctors in Illinois, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Coach Syndrome doctor in Illinois, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Coach Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Coach Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Coach Syndrome doctor in Illinois, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Coach Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Coach Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Coach Syndrome doctors in Illinois, US?

      Look for the filter feature on the left side of the Coach Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Coach Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Coach Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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