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    Last Updated: 10/30/2025

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    MediFind found 97 doctor with experience in Coach Syndrome near Michigan, US. Of these, 86 are Experienced and 11 are Advanced.

    Location
    LocationClose
    97 providers found
      Jason T. Umfleet
      Advanced in Coach Syndrome
      Pediatric Neurology
      Advanced in Coach Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      25+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jason Umfleet is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Umfleet has been practicing medicine for over 25 years and is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Absence Seizure, Partial Seizure, Epilepsy Juvenile Absence, and Seizures. Dr. Umfleet is currently accepting new patients.

      Robert J. Moore
      Advanced in Coach Syndrome
      Family Medicine
      Advanced in Coach Syndrome
      Family Medicine

      Corewell Health Internal Medicine - 1700 Biddle Ave

      1700 Biddle Avenue, 
      Wyandotte, MI 
      Experience:
      9+ years
      Languages Spoken:
      English
      Offers Telehealth

      Robert Moore is a primary care provider, practicing in Family Medicine in Wyandotte, Michigan. Dr. Moore has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Obesity in Children, Agyria Pachygyria Polymicrogyria, Polymicrogyria, and Hydranencephaly.

      What does Elite, Distinguished, Advanced, Experienced mean?
      David S. Moon
      Advanced in Coach Syndrome
      Pediatric Neurology
      Advanced in Coach Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      12+ years
      Languages Spoken:
      English
      Accepting New Patients

      David Moon is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Moon has been practicing medicine for over 12 years and is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Tourette Syndrome, Transient Tic Disorder, Cerebral Palsy, and Focal Dystonia. Dr. Moon is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Coach Syndrome
      Pediatric Nephrology | Pediatrics
      Advanced in Coach Syndrome
      Pediatric Nephrology | Pediatrics
      1500 East Medical Center Dr, 8th Floor C.s. Mott Childrens Hospital, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Friedhelm Hildebrandt is a Pediatric Nephrologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Hildebrandt is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Nephronophthisis, Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, Achalasia Microcephaly Syndrome, and Kidney Transplant.

      Advanced in Coach Syndrome
      Nurse Practitioner
      Advanced in Coach Syndrome
      Nurse Practitioner
      3901 Beaubien St, 
      Detroit, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Melody Royer is a Nurse Practitioner in Detroit, Michigan. Ms. Royer is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are VLDLR-Associated Cerebellar Hypoplasia, Agyria Pachygyria Polymicrogyria, Hydranencephaly, and Lissencephaly 1. Ms. Royer is currently accepting new patients.

      Advanced in Coach Syndrome
      Pediatric Neurology | Pediatrics
      Advanced in Coach Syndrome
      Pediatric Neurology | Pediatrics
      1500 E Medical Center Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Steven Leber is a Pediatric Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Leber is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Myoclonic Epilepsy, Seizures, Partial Seizure, and Dihydrolipoamide Dehydrogenase Deficiency. Dr. Leber is currently accepting new patients.

      Advanced in Coach Syndrome
      Pediatric Neurology | Neurology
      Advanced in Coach Syndrome
      Pediatric Neurology | Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Nicole Pariseau is a Pediatric Neurologist and a Neurologist in Ann Arbor, Michigan. Dr. Pariseau is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Conversion Disorder, and Memory Loss. Dr. Pariseau is currently accepting new patients.

      Advanced in Coach Syndrome
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in Coach Syndrome
      Neurology | Pediatrics | Pediatric Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Laurel Reed is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Reed is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Absence Seizure. Dr. Reed is currently accepting new patients.

      Advanced in Coach Syndrome
      Neurology | Pediatrics | Pediatric Neurology
      Advanced in Coach Syndrome
      Neurology | Pediatrics | Pediatric Neurology

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Erin Neil-Knierbein is a Neurologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Neil-Knierbein is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Pompe Disease, Danon Disease, Dysferlinopathy, and Duchenne Muscular Dystrophy. Dr. Neil-Knierbein is currently accepting new patients.

      Advanced in Coach Syndrome
      Radiology | Pediatric Radiology
      Advanced in Coach Syndrome
      Radiology | Pediatric Radiology

      Vhs Physicians Of Michigan

      Detroit, MI 
      Languages Spoken:
      English

      Deniz Altinok is a Radiologist and a Pediatric Radiologist in Detroit, Michigan. Dr. Altinok is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Arachnoid Cysts, Choroid Plexus Cyst, Familial Porencephaly, Corpus Callosum Agenesis, and Gastrostomy.

      Advanced in Coach Syndrome
      Pediatrics | Medical Genetics
      Advanced in Coach Syndrome
      Pediatrics | Medical Genetics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.

      Meghan R. Harper
      Experienced in Coach Syndrome
      Neuromusculoskeletal Medicine | Pediatric Neurology
      Experienced in Coach Syndrome
      Neuromusculoskeletal Medicine | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Meghan Harper is a Neuromusculoskeletal Medicine specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Harper is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Tourette Syndrome, Myotonia Congenita, Seizures, and Congenital Myasthenic Syndrome. Dr. Harper is currently accepting new patients.

      Rawad Obeid
      Experienced in Coach Syndrome
      Pediatric Neurology
      Experienced in Coach Syndrome
      Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      19+ years
      Languages Spoken:
      English, Arabic, French, Spanish
      Accepting New Patients

      Rawad Obeid is a Pediatric Neurologist in Royal Oak, Michigan. Dr. Obeid has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Intraventricular Hemorrhage of the Newborn, GAPO Syndrome, Delayed Growth, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Obeid is currently accepting new patients.

      Alexandra Shaw
      Experienced in Coach Syndrome
      Neurology | Pediatric Neurology
      Experienced in Coach Syndrome
      Neurology | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      16+ years
      Languages Spoken:
      English, French
      Accepting New Patients

      Alexandra Shaw is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Shaw has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Absence Seizure, and Generalized Tonic-Clonic Seizure. Dr. Shaw is currently accepting new patients.

      Nancy A. Mcnamara
      Experienced in Coach Syndrome
      Pediatrics | Pediatric Neurology
      Experienced in Coach Syndrome
      Pediatrics | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      15+ years
      Languages Spoken:
      English
      Accepting New Patients

      Nancy Mcnamara is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Mcnamara has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Epilepsy in Children, Lennox-Gastaut Syndrome (LGS), and Generalized Tonic-Clonic Seizure. Dr. Mcnamara is currently accepting new patients.

      Danielle A. Nolan
      Experienced in Coach Syndrome
      Pediatrics | Pediatric Neurology
      Experienced in Coach Syndrome
      Pediatrics | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      14+ years
      Languages Spoken:
      English
      Accepting New Patients

      Danielle Nolan is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Nolan has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Seizures, and West Syndrome. Dr. Nolan is currently accepting new patients.

      Jamie L. Frost
      Experienced in Coach Syndrome
      Pediatric Radiology
      Experienced in Coach Syndrome
      Pediatric Radiology

      Advanced Radiology Services - Grand Rapids

      3264 North Evergreen Drive Northeast, 
      Grand Rapids, MI 
      Experience:
      18+ years
      Languages Spoken:
      English

      Jamie Frost is a Pediatric Radiologist in Grand Rapids, Michigan. Dr. Frost has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Congenital Giant Megaureter, Bronchogenic Cyst, Periventricular Heterotopia, Focal or Multifocal Malformations in Neuronal Migration, and Aortic Valve Replacement.

      Robin J. Cook
      Experienced in Coach Syndrome
      Pediatric Neurology
      Experienced in Coach Syndrome
      Pediatric Neurology

      Corewell Health Pediatric Neurology - 35 Michigan St NE

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      11+ years
      Languages Spoken:
      English

      Robin Cook is a Pediatric Neurologist in Grand Rapids, Michigan. Dr. Cook has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Absence Seizure, Seizures, Partial Seizure, and Epilepsy Juvenile Absence.

      Sarah K. Depas
      Experienced in Coach Syndrome
      Nurse Practitioner
      Experienced in Coach Syndrome
      Nurse Practitioner

      Corewell Health Pediatric Neurodevelopmental - Grand Rapids

      35 Michigan Street Northeast, Suite 3003, 
      Grand Rapids, MI 
      Experience:
      24+ years
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Depas is a Nurse Practitioner in Grand Rapids, Michigan. Ms. Depas has been practicing medicine for over 24 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Koolen De Vries Syndrome, Bilateral Perisylvian Polymicrogyria, Hydranencephaly, and Agyria Pachygyria Polymicrogyria. Ms. Depas is currently accepting new patients.

      Garnett C. Smith
      Experienced in Coach Syndrome
      Pediatric Neurology | Neurology
      Experienced in Coach Syndrome
      Pediatric Neurology | Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
      Experience:
      13+ years
      Languages Spoken:
      English, Russian, Spanish
      Accepting New Patients

      Garnett Smith is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Smith has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Myoclonic Epilepsy, and Memory Loss. Dr. Smith is currently accepting new patients.

      Showing 1-20 of 97

      Last Updated: 10/30/2025

      What is the definition of Coach Syndrome?

      COACH syndrome is a condition that mainly affects the brain and liver. Most individuals with COACH syndrome have intellectual disability, liver problems (fibrosis), and difficulty with movement (ataxia). Some may also have an abnormality of the eye (called a coloboma) or abnormal eye movements (such as nystagmus). This condition is inherited in an autosomal recessive manner; 70% of cases are thought to be caused by genetic changes in the TMEM67 gene. COACH syndrome is considered a rare form of another condition, Joubert syndrome.

      When should I see a Coach Syndrome doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Coach Syndrome doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Coach Syndrome doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Coach Syndrome doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Coach Syndrome doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Coach Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Coach Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Coach Syndrome doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Coach Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Coach Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Coach Syndrome doctors in Michigan, US?

      Look for the filter feature on the left side of the Coach Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Coach Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Coach Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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