The 20 Best Coach Syndrome Doctors Near Me in Detroit, MI

Find the Top Coach Syndrome Experts and Specialists

The 20 Best Coach Syndrome Doctors near Detroit, MI

Last Updated: 02/22/2026

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MediFind found 19 doctor with experience in Coach Syndrome near Detroit, MI. Of these, 17 are Experienced and 2 are Advanced.

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19 providers found
    Susan L. Youngs
    Experienced in Coach Syndrome
    Experienced in Coach Syndrome

    Oakwood Family Center

    18501 Rotunda Drive, Suite 200, 
    Dearborn, MI 
     (9.1 miles away)
    Experience:
    33+ years
    Languages Spoken:
    English
    Accepting New Patients

    Susan Youngs is a Pediatrics provider in Dearborn, Michigan. Dr. Youngs has been practicing medicine for over 33 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Rasmussen Encephalitis, Autism Spectrum Disorder, Early Infantile Epileptic Encephalopathy, and Microcephaly Deafness Syndrome. Dr. Youngs is currently accepting new patients.

    Experienced in Coach Syndrome
    Experienced in Coach Syndrome

    Office

    3950 Beaubien St Fl Childrens, 
    Detroit, MI 
     (1.5 miles away)
    Languages Spoken:
    English

    Christina Durkin is a Pediatrics provider in Detroit, Michigan. Dr. Durkin is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Lissencephaly 1, Orofaciodigital Syndrome 6, Hydranencephaly, and Lissencephaly 2.

    Experienced in Coach Syndrome
    Physician Assistant
    Experienced in Coach Syndrome
    Physician Assistant

    University Pediatricians

    3901 Beaubien St, 
    Detroit, MI 
     (1.6 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English
    Accepting New Patients

    Melisa Concepcion is a Physician Assistant in Detroit, Michigan. Ms. Concepcion has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Koolen De Vries Syndrome, Hydranencephaly, Agyria Pachygyria Polymicrogyria, and VLDLR-Associated Cerebellar Hypoplasia. Ms. Concepcion is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Coach Syndrome
    Experienced in Coach Syndrome

    DMC Children's Hospital Of Michigan

    3901 Beaubien St, 
    Detroit, MI 
     (1.6 miles away)
    Languages Spoken:
    English

    Charles Pelshaw is a Pediatrics provider in Detroit, Michigan. Dr. Pelshaw is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Myelomeningocele.

    Experienced in Coach Syndrome
    Experienced in Coach Syndrome

    Henry Ford Hospital

    2799 W Grand Blvd, 
    Detroit, MI 
     (3.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jules Constantinou is a Neurologist in Detroit, Michigan. Dr. Constantinou is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Lennox-Gastaut Syndrome (LGS), and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE).

    Robert J. Moore
    Advanced in Coach Syndrome
    Family Medicine
    Advanced in Coach Syndrome
    Family Medicine

    Corewell Health Internal Medicine - 1700 Biddle Ave

    1700 Biddle Avenue, 
    Wyandotte, MI 
     (9.6 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English
    Offers Telehealth

    Robert Moore is a primary care provider, practicing in Family Medicine in Wyandotte, Michigan. Dr. Moore has been practicing medicine for over 10 years and is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Obesity in Children, Cerebellar Hypoplasia, Agyria Pachygyria Polymicrogyria, and Cerebellar Agenesis.

    Shaza N. Al
    Experienced in Coach Syndrome
    Ophthalmology
    Experienced in Coach Syndrome
    Ophthalmology

    Children's Eye Care PC

    22731 Newman Street, Suite 245, 
    Dearborn, MI 
     (11.0 miles away)
    Experience:
    11+ years
    Languages Spoken:
    English, Arabic
    Accepting New Patients

    Shaza Al is an Ophthalmologist in Dearborn, Michigan. Dr. Al has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Amblyopia, Strabismus, Esotropia, and Meibomianitis. Dr. Al is currently accepting new patients.

    Edward R. Dabrowski
    Experienced in Coach Syndrome
    Experienced in Coach Syndrome

    Michigan Institute For Neurological Disorders (MIND)

    25100 Kelly Road, 
    Roseville, MI 
     (13.4 miles away)
    Experience:
    46+ years
    Languages Spoken:
    English, German
    Accepting New Patients
    Offers Telehealth

    Edward Dabrowski is a Physiatrist in Roseville, Michigan. Dr. Dabrowski has been practicing medicine for over 46 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Dabrowski is currently accepting new patients.

    Advanced in Coach Syndrome
    Neuroradiology
    Advanced in Coach Syndrome
    Neuroradiology

    Office

    24500 Northwestern Hwy, 
    Southfield, MI 
     (13.8 miles away)
    Languages Spoken:
    English

    Deniz Altinok is a Neuroradiologist in Southfield, Michigan. Dr. Altinok is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Arachnoid Cysts, Choroid Plexus Cyst, Familial Porencephaly, Corpus Callosum Agenesis, and Gastrostomy.

    Meghan R. Harper
    Experienced in Coach Syndrome
    Neuromusculoskeletal Medicine | Pediatric Neurology
    Experienced in Coach Syndrome
    Neuromusculoskeletal Medicine | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (14.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Meghan Harper is a Neuromusculoskeletal Medicine specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Harper is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Aphantasia, Seizures, Congenital Myasthenic Syndrome, and Amyotonia Congenita. Dr. Harper is currently accepting new patients.

    Rawad Obeid
    Experienced in Coach Syndrome
    Pediatric Neurology
    Experienced in Coach Syndrome
    Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (14.8 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English, Arabic, French, Spanish
    Accepting New Patients

    Rawad Obeid is a Pediatric Neurologist in Royal Oak, Michigan. Dr. Obeid has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Microcephaly, Seizures, and Aicardi Syndrome. Dr. Obeid is currently accepting new patients.

    Alexandra Shaw
    Experienced in Coach Syndrome
    Neurology | Pediatric Neurology
    Experienced in Coach Syndrome
    Neurology | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (14.8 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English, French
    Accepting New Patients

    Alexandra Shaw is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Shaw has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Memory Loss, and Absence Seizure. Dr. Shaw is currently accepting new patients.

    Nancy A. Mcnamara
    Experienced in Coach Syndrome
    Pediatrics | Pediatric Neurology
    Experienced in Coach Syndrome
    Pediatrics | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (14.8 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Nancy Mcnamara is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Mcnamara has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Epilepsy in Children, Lennox-Gastaut Syndrome (LGS), and Generalized Tonic-Clonic Seizure. Dr. Mcnamara is currently accepting new patients.

    Danielle A. Nolan
    Experienced in Coach Syndrome
    Pediatrics | Pediatric Neurology
    Experienced in Coach Syndrome
    Pediatrics | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (14.8 miles away)
    Experience:
    15+ years
    Languages Spoken:
    English
    Accepting New Patients

    Danielle Nolan is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Nolan has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, West Syndrome, and Seizures. Dr. Nolan is currently accepting new patients.

    Garnett C. Smith
    Experienced in Coach Syndrome
    Pediatric Neurology | Neurology
    Experienced in Coach Syndrome
    Pediatric Neurology | Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (14.8 miles away)
    Experience:
    14+ years
    Languages Spoken:
    English, Russian, Spanish
    Accepting New Patients

    Garnett Smith is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Smith has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Myoclonic Epilepsy, and Memory Loss. Dr. Smith is currently accepting new patients.

    Erin M. Romanowski
    Experienced in Coach Syndrome
    General Surgery | Pediatrics | Pediatric Neurology
    Experienced in Coach Syndrome
    General Surgery | Pediatrics | Pediatric Neurology

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (14.8 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Erin Romanowski is a General Surgeon and a Pediatrics provider in Royal Oak, Michigan. Dr. Romanowski has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Absence Seizure. Dr. Romanowski is currently accepting new patients.

    Linda M. Dillon
    Experienced in Coach Syndrome
    Pediatrics | Internal Medicine
    Experienced in Coach Syndrome
    Pediatrics | Internal Medicine

    Corewell Health William Beaumont University Hospital Care Center

    3535 West 13 Mile Road, Ll - South Clinic, 
    Royal Oak, MI 
     (15.0 miles away)
    Experience:
    20+ years
    Languages Spoken:
    English
    Accepting New Patients

    Linda Dillon is a primary care provider, practicing in Pediatrics and Internal Medicine in Royal Oak, Michigan. Dr. Dillon has been practicing medicine for over 20 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Obesity in Children, Familial Multiple Nevi Flammei, Vascular Birthmark, and Stork Bite. Dr. Dillon is currently accepting new patients.

    Adam H. Kuhlman
    Experienced in Coach Syndrome
    Experienced in Coach Syndrome

    Corewell Health William Beaumont University Hospital Movement Disorders And Neuromodulation Clinic - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N120B, 
    Royal Oak, MI 
     (14.8 miles away)
    Experience:
    13+ years
    Languages Spoken:
    English

    Adam Kuhlman is a Neurologist in Royal Oak, Michigan. Dr. Kuhlman has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Parkinson's Disease, Movement Disorders, Drug Induced Dyskinesia, and Essential Tremor.

    Experienced in Coach Syndrome
    Nurse Practitioner
    Experienced in Coach Syndrome
    Nurse Practitioner

    Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

    3555 West 13 Mile Road, Suite N300, 
    Royal Oak, MI 
     (14.8 miles away)
    Experience:
    34+ years
    Languages Spoken:
    English

    Anne Michon is a Nurse Practitioner in Royal Oak, Michigan. Ms. Michon has been practicing medicine for over 34 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Gomez Lopez Hernandez Syndrome, Marcus Gunn Phenomenon, Koolen De Vries Syndrome, and VLDLR-Associated Cerebellar Hypoplasia.

    Showing 1-19 of 19

    Last Updated: 02/22/2026

    What is the definition of Coach Syndrome?

    COACH syndrome is a condition that mainly affects the brain and liver. Most individuals with COACH syndrome have intellectual disability, liver problems (fibrosis), and difficulty with movement (ataxia). Some may also have an abnormality of the eye (called a coloboma) or abnormal eye movements (such as nystagmus). This condition is inherited in an autosomal recessive manner; 70% of cases are thought to be caused by genetic changes in the TMEM67 gene. COACH syndrome is considered a rare form of another condition, Joubert syndrome.

    When should I see a Coach Syndrome doctor near Detroit, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Coach Syndrome doctor near Detroit, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Coach Syndrome doctors near Detroit, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Coach Syndrome doctors near Detroit, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Coach Syndrome doctor near Detroit, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Coach Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Coach Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Coach Syndrome doctor near Detroit, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Coach Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Coach Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Coach Syndrome doctors near Detroit, MI?

    Look for the filter feature on the left side of the Coach Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Coach Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Coach Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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