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    Last Updated: 10/30/2025

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    MediFind found 21 doctor with experience in Coach Syndrome near Detroit, MI. Of these, 18 are Experienced and 3 are Advanced.

    Location
    LocationClose
    21 providers found
      Advanced in Coach Syndrome
      Radiology | Pediatric Radiology
      Advanced in Coach Syndrome
      Radiology | Pediatric Radiology

      Vhs Physicians Of Michigan

      Detroit, MI 
       (1.5 miles away)
      Languages Spoken:
      English

      Deniz Altinok is a Radiologist and a Pediatric Radiologist in Detroit, Michigan. Dr. Altinok is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Arachnoid Cysts, Choroid Plexus Cyst, Familial Porencephaly, Corpus Callosum Agenesis, and Gastrostomy.

      Advanced in Coach Syndrome
      Nurse Practitioner
      Advanced in Coach Syndrome
      Nurse Practitioner
      3901 Beaubien St, 
      Detroit, MI 
       (1.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Melody Royer is a Nurse Practitioner in Detroit, Michigan. Ms. Royer is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are VLDLR-Associated Cerebellar Hypoplasia, Agyria Pachygyria Polymicrogyria, Hydranencephaly, and Lissencephaly 1. Ms. Royer is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Coach Syndrome
      Pediatrics | Internal Medicine
      Experienced in Coach Syndrome
      Pediatrics | Internal Medicine
      Detroit, MI 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sowkya Rangarajan is a primary care provider, practicing in Pediatrics and Internal Medicine in Detroit, Michigan. Dr. Rangarajan is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Pyomyositis, Diffuse Panbronchiolitis, Retropharyngeal Abscess, and Fecal Impaction. Dr. Rangarajan is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Coach Syndrome
      Emergency Medicine | Pediatrics
      Experienced in Coach Syndrome
      Emergency Medicine | Pediatrics
      Children's Hospital Of Mi, 3901 Beaubien, 
      Detroit, MI 
       (1.5 miles away)
      Languages Spoken:
      English

      Jason Miller is an Emergency Medicine specialist and a Pediatrics provider in Detroit, Michigan. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Croup, Viral Gastroenteritis, and Asthma in Children.

      Experienced in Coach Syndrome
      Nurse Practitioner
      Experienced in Coach Syndrome
      Nurse Practitioner
      Detroit, MI 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Christina Durkin is a Nurse Practitioner in Detroit, Michigan. Ms. Durkin is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Agyria Pachygyria Polymicrogyria, Lissencephaly 2, Lissencephaly 1, and Bilateral Perisylvian Polymicrogyria. Ms. Durkin is currently accepting new patients.

      Experienced in Coach Syndrome
      Physician Assistant
      Experienced in Coach Syndrome
      Physician Assistant

      University Pediatricians

      3901 Beaubien St, Suite H, 
      Detroit, MI 
       (1.6 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Melisa Concepcion is a Physician Assistant in Detroit, Michigan. Ms. Concepcion has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Koolen De Vries Syndrome, Lissencephaly 1, Hydranencephaly, and Bilateral Perisylvian Polymicrogyria. Ms. Concepcion is currently accepting new patients.

      Experienced in Coach Syndrome
      Neurology | Pediatrics
      Experienced in Coach Syndrome
      Neurology | Pediatrics

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
       (3.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Jules Constantinou is a Neurologist and a Pediatrics provider in Detroit, Michigan. Dr. Constantinou is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Lennox-Gastaut Syndrome (LGS), and Autosomal Dominant Nocturnal Frontal Lobe Epilepsy (ADNFLE). Dr. Constantinou is currently accepting new patients.

      Robert J. Moore
      Advanced in Coach Syndrome
      Family Medicine
      Advanced in Coach Syndrome
      Family Medicine

      Corewell Health Internal Medicine - 1700 Biddle Ave

      1700 Biddle Avenue, 
      Wyandotte, MI 
       (9.6 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Offers Telehealth

      Robert Moore is a primary care provider, practicing in Family Medicine in Wyandotte, Michigan. Dr. Moore has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Obesity in Children, Agyria Pachygyria Polymicrogyria, Polymicrogyria, and Hydranencephaly.

      Susan L. Youngs
      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Oakwood Family Center

      18501 Rotunda Drive, Suite 200, 
      Dearborn, MI 
       (9.1 miles away)
      Experience:
      32+ years
      Languages Spoken:
      English
      Accepting New Patients

      Susan Youngs is a Pediatrics provider in Dearborn, Michigan. Dr. Youngs has been practicing medicine for over 32 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Cerebral Palsy, Rasmussen Encephalitis, Encephalitis, and Autism Spectrum Disorder. Dr. Youngs is currently accepting new patients.

      Shaza N. Al
      Experienced in Coach Syndrome
      Ophthalmology
      Experienced in Coach Syndrome
      Ophthalmology

      Children's Eye Care PC

      22731 Newman Street, Suite 245, 
      Dearborn, MI 
       (11.0 miles away)
      Experience:
      10+ years
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Shaza Al is an Ophthalmologist in Dearborn, Michigan. Dr. Al has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Amblyopia, Strabismus, Esotropia, and Meibomianitis. Dr. Al is currently accepting new patients.

      Edward R. Dabrowski
      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Michigan Institute For Neurological Disorders (MIND)

      25100 Kelly Road, 
      Roseville, MI 
       (13.4 miles away)
      Experience:
      45+ years
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Edward Dabrowski is a Physiatrist in Roseville, Michigan. Dr. Dabrowski has been practicing medicine for over 45 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Cerebral Palsy, Spasticity, Spastic Diplegia Infantile Type, and Moebius Syndrome. Dr. Dabrowski is currently accepting new patients.

      Meghan R. Harper
      Experienced in Coach Syndrome
      Neuromusculoskeletal Medicine | Pediatric Neurology
      Experienced in Coach Syndrome
      Neuromusculoskeletal Medicine | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
       (14.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Meghan Harper is a Neuromusculoskeletal Medicine specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Harper is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Tourette Syndrome, Myotonia Congenita, Seizures, and Congenital Myasthenic Syndrome. Dr. Harper is currently accepting new patients.

      Rawad Obeid
      Experienced in Coach Syndrome
      Pediatric Neurology
      Experienced in Coach Syndrome
      Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
       (14.8 miles away)
      Experience:
      19+ years
      Languages Spoken:
      English, Arabic, French, Spanish
      Accepting New Patients

      Rawad Obeid is a Pediatric Neurologist in Royal Oak, Michigan. Dr. Obeid has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Intraventricular Hemorrhage of the Newborn, GAPO Syndrome, Delayed Growth, and Genetic Epilepsy with Febrile Seizures Plus (GEFS+). Dr. Obeid is currently accepting new patients.

      Alexandra Shaw
      Experienced in Coach Syndrome
      Neurology | Pediatric Neurology
      Experienced in Coach Syndrome
      Neurology | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
       (14.8 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English, French
      Accepting New Patients

      Alexandra Shaw is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Shaw has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Epilepsy Juvenile Absence, Absence Seizure, and Generalized Tonic-Clonic Seizure. Dr. Shaw is currently accepting new patients.

      Nancy A. Mcnamara
      Experienced in Coach Syndrome
      Pediatrics | Pediatric Neurology
      Experienced in Coach Syndrome
      Pediatrics | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
       (14.8 miles away)
      Experience:
      15+ years
      Languages Spoken:
      English
      Accepting New Patients

      Nancy Mcnamara is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Mcnamara has been practicing medicine for over 15 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Epilepsy in Children, Lennox-Gastaut Syndrome (LGS), and Generalized Tonic-Clonic Seizure. Dr. Mcnamara is currently accepting new patients.

      Danielle A. Nolan
      Experienced in Coach Syndrome
      Pediatrics | Pediatric Neurology
      Experienced in Coach Syndrome
      Pediatrics | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
       (14.8 miles away)
      Experience:
      14+ years
      Languages Spoken:
      English
      Accepting New Patients

      Danielle Nolan is a Pediatrics specialist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Nolan has been practicing medicine for over 14 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Tuberous Sclerosis Complex, Tuberous Sclerosis, Seizures, and West Syndrome. Dr. Nolan is currently accepting new patients.

      Garnett C. Smith
      Experienced in Coach Syndrome
      Pediatric Neurology | Neurology
      Experienced in Coach Syndrome
      Pediatric Neurology | Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
       (14.8 miles away)
      Experience:
      13+ years
      Languages Spoken:
      English, Russian, Spanish
      Accepting New Patients

      Garnett Smith is a Neurologist and a Pediatric Neurologist in Royal Oak, Michigan. Dr. Smith has been practicing medicine for over 13 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Myoclonic Epilepsy, and Memory Loss. Dr. Smith is currently accepting new patients.

      Erin M. Romanowski
      Experienced in Coach Syndrome
      General Surgery | Pediatrics | Pediatric Neurology
      Experienced in Coach Syndrome
      General Surgery | Pediatrics | Pediatric Neurology

      Corewell Health William Beaumont University Hospital Adult Neurosurgery Florence & Richard McBrien Pediatric Neuroscience Center - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N300, 
      Royal Oak, MI 
       (14.8 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Erin Romanowski is a General Surgeon and a Pediatrics provider in Royal Oak, Michigan. Dr. Romanowski has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Absence Seizure. Dr. Romanowski is currently accepting new patients.

      Adam H. Kuhlman
      Experienced in Coach Syndrome
      Experienced in Coach Syndrome

      Corewell Health William Beaumont University Hospital Movement Disorders And Neuromodulation Clinic - 3555 W 13 Mile Rd

      3555 West 13 Mile Road, Suite N120B, 
      Royal Oak, MI 
       (14.8 miles away)
      Experience:
      12+ years
      Languages Spoken:
      English
      Accepting New Patients

      Adam Kuhlman is a Neurologist in Royal Oak, Michigan. Dr. Kuhlman has been practicing medicine for over 12 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. His top areas of expertise are Parkinson's Disease, Movement Disorders, Drug Induced Dyskinesia, and Essential Tremor. Dr. Kuhlman is currently accepting new patients.

      Linda M. Dillon
      Experienced in Coach Syndrome
      Pediatrics | Internal Medicine
      Experienced in Coach Syndrome
      Pediatrics | Internal Medicine

      Corewell Health William Beaumont University Hospital Care Center

      3535 West 13 Mile Road, Ll - South Clinic, 
      Royal Oak, MI 
       (15.0 miles away)
      Experience:
      19+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Linda Dillon is a primary care provider, practicing in Pediatrics and Internal Medicine in Royal Oak, Michigan. Dr. Dillon has been practicing medicine for over 19 years and is rated as an Experienced provider by MediFind in the treatment of Coach Syndrome. Her top areas of expertise are Obesity in Children, Stork Bite, Vascular Birthmark, and Familial Multiple Nevi Flammei. Dr. Dillon is currently accepting new patients.

      Showing 1-20 of 21

      Last Updated: 10/30/2025

      What is the definition of Coach Syndrome?

      COACH syndrome is a condition that mainly affects the brain and liver. Most individuals with COACH syndrome have intellectual disability, liver problems (fibrosis), and difficulty with movement (ataxia). Some may also have an abnormality of the eye (called a coloboma) or abnormal eye movements (such as nystagmus). This condition is inherited in an autosomal recessive manner; 70% of cases are thought to be caused by genetic changes in the TMEM67 gene. COACH syndrome is considered a rare form of another condition, Joubert syndrome.

      When should I see a Coach Syndrome doctor near Detroit, MI?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Coach Syndrome doctor near Detroit, MI?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Coach Syndrome doctors near Detroit, MI?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Coach Syndrome doctors near Detroit, MI?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Coach Syndrome doctor near Detroit, MI?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Coach Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Coach Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Coach Syndrome doctor near Detroit, MI?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Coach Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Coach Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Coach Syndrome doctors near Detroit, MI?

      Look for the filter feature on the left side of the Coach Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Coach Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Coach Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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