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    Last Updated: 01/09/2026

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    MediFind found 18 doctor with experience in Coffin-Siris Syndrome near Leiden, ZH. Of these, 9 are Experienced, 5 are Advanced, 2 are Distinguished and 2 are Elite.

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    18 providers found
      Elite in Coffin-Siris Syndrome

      Gijs E. Santen
      Elite in Coffin-Siris Syndrome

      Gijs E. Santen

      Lumc

      Leiden, ZH, NL 
       (0.3 km away)

      Gijs Santen practices in Leiden, Netherlands. Santen is rated as an Elite expert by MediFind in the treatment of Coffin-Siris Syndrome. Their top areas of expertise are Micrognathia, Miller Syndrome, Coffin-Siris Syndrome, and KBG Syndrome.

      Elite in Coffin-Siris Syndrome

      Pleuntje J. Van Der Sluijs
      Elite in Coffin-Siris Syndrome

      Pleuntje J. Van Der Sluijs

      Lumc

      Leiden, ZH, NL 
       (0.3 km away)

      Pleuntje Van Der Sluijs practices in Leiden, Netherlands. Van Der Sluijs is rated as an Elite expert by MediFind in the treatment of Coffin-Siris Syndrome. Their top areas of expertise are Coffin-Siris Syndrome, Miller Syndrome, Micrognathia, and Delayed Growth.

      Distinguished in Coffin-Siris Syndrome

      Fabienne G. Ropers
      Distinguished in Coffin-Siris Syndrome

      Fabienne G. Ropers
      Leiden, ZH, NL 
       (1.1 km away)

      Fabienne Ropers practices in Leiden, Netherlands. Ms. Ropers is rated as a Distinguished expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are Coffin-Siris Syndrome, Micrognathia, Miller Syndrome, and Delayed Growth.

      Learn about our expert tiers
      Distinguished in Coffin-Siris Syndrome

      Arie Van Haeringen
      Distinguished in Coffin-Siris Syndrome

      Arie Van Haeringen
      Leiden, ZH, NL 
       (1.1 km away)

      Arie Van Haeringen practices in Leiden, Netherlands. Van Haeringen is rated as a Distinguished expert by MediFind in the treatment of Coffin-Siris Syndrome. Their top areas of expertise are Coffin-Siris Syndrome, Increased Head Circumference, Macrodactyly of the Foot, and Marshall-Smith Syndrome.

      Advanced in Coffin-Siris Syndrome

      Claudia L. Ruivenkamp
      Advanced in Coffin-Siris Syndrome

      Claudia L. Ruivenkamp

      Lumc

      Leiden, ZH, NL 
       (0.3 km away)

      Claudia Ruivenkamp practices in Leiden, Netherlands. Ruivenkamp is rated as an Advanced expert by MediFind in the treatment of Coffin-Siris Syndrome. Their top areas of expertise are Coffin-Siris Syndrome, Chromosome 18p Deletion, Miller Syndrome, and Symphalangism Distal.

      Advanced in Coffin-Siris Syndrome

      Monique C. Haak
      Advanced in Coffin-Siris Syndrome

      Monique C. Haak

      Lumc

      Leiden, ZH, NL 
       (0.3 km away)

      Monique Haak practices in Leiden, Netherlands. Ms. Haak is rated as an Advanced expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are Twin-To-Twin Transfusion Syndrome, Newborn Polycythemia, Intrauterine Growth Restriction, Anemia, and Endoscopy.

      Advanced in Coffin-Siris Syndrome

      Harald M. Mikkers
      Advanced in Coffin-Siris Syndrome

      Harald M. Mikkers

      Lumc

      Leiden, ZH, NL 
       (0.3 km away)

      Harald Mikkers practices in Leiden, Netherlands. Mr. Mikkers is rated as an Advanced expert by MediFind in the treatment of Coffin-Siris Syndrome. His top areas of expertise are Coffin-Siris Syndrome, Acheiropody, Miller Syndrome, and Dominant Dystrophic Epidermolysis Bullosa.

      Advanced in Coffin-Siris Syndrome

      Nicolette S. Den Hollander
      Advanced in Coffin-Siris Syndrome

      Nicolette S. Den Hollander
      Leiden, ZH, NL 
       (1.1 km away)

      Nicolette Den Hollander practices in Leiden, Netherlands. Ms. Den Hollander is rated as an Advanced expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are Coffin-Siris Syndrome, Miller Syndrome, Trisomy 12 Mosaicism, and Mosaicism.

      Advanced in Coffin-Siris Syndrome

      Emilia K. Bijlsma
      Advanced in Coffin-Siris Syndrome

      Emilia K. Bijlsma
      Leiden, ZH, NL 
       (1.1 km away)

      Emilia Bijlsma practices in Leiden, Netherlands. Ms. Bijlsma is rated as an Advanced expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are Huntington Disease, Atresia of Small Intestine, Pitt-Hopkins Syndrome, and Marshall-Smith Syndrome.

      Experienced in Coffin-Siris Syndrome

      Christian H. Freund
      Experienced in Coffin-Siris Syndrome

      Christian H. Freund

      Lumc

      Leiden, ZH, NL 
       (0.3 km away)

      Christian Freund practices in Leiden, Netherlands. Mr. Freund is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. His top areas of expertise are Telangiectasia, Hereditary Cerebral Amyloid Angiopathy, Dowling-Meara Epidermolysis Bullosa Simplex, and Dominant Dystrophic Epidermolysis Bullosa.

      Experienced in Coffin-Siris Syndrome

      Martine J. Van Belzen
      Experienced in Coffin-Siris Syndrome

      Martine J. Van Belzen
      Leiden, ZH, NL 
       (1.1 km away)

      Martine Van Belzen practices in Leiden, Netherlands. Ms. Van Belzen is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are Rubinstein-Taybi Syndrome, Huntington Disease, Miller Syndrome, and Coffin-Siris Syndrome.

      Experienced in Coffin-Siris Syndrome

      Marjolein Kriek
      Experienced in Coffin-Siris Syndrome

      Marjolein Kriek
      Leiden, ZH, NL 
       (1.1 km away)

      Marjolein Kriek practices in Leiden, Netherlands. Kriek is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. Their top areas of expertise are Miller Syndrome, Chromosome 18p Deletion, Facioscapulohumeral Muscular Dystrophy (FSHD), and Coffin-Siris Syndrome.

      Experienced in Coffin-Siris Syndrome

      Daniela M. Schaapveld-Barge
      Experienced in Coffin-Siris Syndrome

      Daniela M. Schaapveld-Barge
      Leiden, ZH, NL 
       (1.1 km away)

      Daniela Schaapveld-Barge practices in Leiden, Netherlands. Ms. Schaapveld-Barge is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are Familial Dilated Cardiomyopathy, Dilated Cardiomyopathy (DCM), Cardiomyopathy, and Mitral Valve Prolapse.

      Experienced in Coffin-Siris Syndrome

      Esther R. Nibbeling
      Experienced in Coffin-Siris Syndrome

      Esther R. Nibbeling
      Leiden, ZH, NL 
       (1.1 km away)

      Esther Nibbeling practices in Leiden, Netherlands. Ms. Nibbeling is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are Micrognathia, Olivopontocerebellar Atrophy, Drug Induced Dyskinesia, and Spinocerebellar Ataxia.

      Experienced in Coffin-Siris Syndrome

      Regina Bokenkamp
      Experienced in Coffin-Siris Syndrome

      Regina Bokenkamp
      Leiden, ZH, NL 
       (1.1 km away)

      Regina Bokenkamp practices in Leiden, Netherlands. Ms. Bokenkamp is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are Right Ventricle Hypoplasia, Pulmonary Valve Stenosis, Ventricular Septal Defects, Heart Transplant, and Angioplasty.

      Experienced in Coffin-Siris Syndrome

      Johan T. Den Dunnen
      Experienced in Coffin-Siris Syndrome

      Johan T. Den Dunnen
      Leiden, ZH, NL 
       (1.1 km away)

      Johan Den Dunnen practices in Leiden, Netherlands. Mr. Den Dunnen is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. His top areas of expertise are Congenital Muscular Dystrophy Type 1A, Micrognathia, Duchenne Muscular Dystrophy, and Optic Nerve Atrophy.

      Experienced in Coffin-Siris Syndrome

      Emmelien Aten
      Experienced in Coffin-Siris Syndrome

      Emmelien Aten
      Department Of Otorhinolaryngology Head And Neck Surgery, 
      Leiden, ZH, NL 
       (1.1 km away)

      Emmelien Aten practices in Leiden, Netherlands. Aten is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. Their top areas of expertise are Mitral Valve Prolapse, Miller Syndrome, Prader-Willi Syndrome, and Angelman Syndrome.

      Experienced in Coffin-Siris Syndrome

      Lucia C. Daxinger
      Experienced in Coffin-Siris Syndrome

      Lucia C. Daxinger
      Leiden, ZH, NL 
       (1.1 km away)

      Lucia Daxinger practices in Leiden, Netherlands. Ms. Daxinger is rated as an Experienced expert by MediFind in the treatment of Coffin-Siris Syndrome. Her top areas of expertise are ICF Syndrome, Facioscapulohumeral Muscular Dystrophy (FSHD), Primary Immunodeficiency (PID), and Coffin-Siris Syndrome.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-18 of 18

      Last Updated: 01/09/2026

      What is the definition of Coffin-Siris Syndrome?

      Coffin-Siris syndrome is a condition that affects several body systems. Although there are many variable signs and symptoms, hallmarks of this condition include developmental disability, abnormalities of the fifth (pinky) fingers or toes, and characteristic facial features.

      When should I see a Coffin-Siris Syndrome doctor near Leiden, ZH?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Coffin-Siris Syndrome doctor near Leiden, ZH?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Coffin-Siris Syndrome doctor near Leiden, ZH?

      You can find a Coffin-Siris Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Coffin-Siris Syndrome doctors near Leiden, ZH?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Coffin-Siris Syndrome doctors near Leiden, ZH?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Coffin-Siris Syndrome doctor near Leiden, ZH?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Coffin-Siris Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Coffin-Siris Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Coffin-Siris Syndrome doctor near Leiden, ZH?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Coffin-Siris Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Coffin-Siris Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Coffin-Siris Syndrome doctors near Leiden, ZH?

      Look for the filter feature on the left side of the Coffin-Siris Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Coffin-Siris Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Coffin-Siris Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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