The 20 Best Cohen Syndrome Doctors in Netherlands

Find the Top Cohen Syndrome Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 16 doctor with experience in Cohen Syndrome near Netherlands. Of these, 15 are Experienced and 1 are Advanced.

Location
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16 providers found
    Advanced in Cohen Syndrome
    Advanced in Cohen Syndrome
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Grazia Mancini practices practicing medicine in Rotterdam, Netherlands. Mancini is rated as an Advanced expert by MediFind in the treatment of Cohen Syndrome. They are also highly rated in 26 other conditions, according to our data. Their clinical expertise encompasses Cerebellar Agenesis, Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, and Polymicrogyria.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Nijmegen, GE, NL 

    Carel Hoyng practices practicing medicine in Nijmegen, Netherlands. Hoyng is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. They are also highly rated in 21 other conditions, according to our data. Their clinical expertise encompasses Late-Onset Retinal Degeneration, Stargardt Macular Degeneration, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Trabeculectomy.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Leiden, ZH, NL 

    Jessica Karuntu practices practicing medicine in Leiden, Netherlands. Ms. Karuntu is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Zellweger Syndrome.

    Learn about our expert tiers
    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Leiden, ZH, NL 

    Camiel Boon practices practicing medicine in Leiden, Netherlands. Mr. Boon is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Central Serous Chorioretinopathy, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and Vitrectomy.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required

    Erasmus MC

    Rotterdam, ZH, NL 

    Alberta Thiadens practices practicing medicine in Rotterdam, Netherlands. Ms. Thiadens is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, and Pigment-Dispersion Syndrome.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Leiden, ZH, NL 

    Nicoline Delfos-Schalij practices practicing medicine in Leiden, Netherlands. Ms. Delfos-Schalij is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. She is also highly rated in 9 other conditions, according to our data. Her clinical expertise encompasses Retinopathy of Prematurity, Ocular Albinism, Retinopathy Pigmentary Mental Retardation, and Hermansky-Pudlak Syndrome.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Maastricht, LI, NL 

    Ad Masclee practices practicing medicine in Maastricht, Netherlands. Masclee is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. They are also highly rated in 19 other conditions, according to our data. Their clinical expertise encompasses Irritable Bowel Syndrome (IBS), Colorectal Polyps, Indigestion, Colonoscopy, and Endoscopy.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Amsterdam, NH, NL 

    Mary Van Schooneveld practices practicing medicine in Amsterdam, Netherlands. Ms. Van Schooneveld is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Blue Cone Monochromatism, and Vitrectomy.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Leiden, ZH, NL 

    Xuan-thanh-an Nguyen practices practicing medicine in Leiden, Netherlands. Nguyen is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Refsum Disease.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Utrecht, UT, NL 

    Maria Van Genderen practices practicing medicine in Utrecht, Netherlands. Ms. Van Genderen is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Ocular Albinism, Late-Onset Retinal Degeneration, Albinism, Hermansky-Pudlak Syndrome, and Vitrectomy.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Amsterdam, NH, NL 

    Marion Brands practices practicing medicine in Amsterdam, Netherlands. Brands is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. They are also highly rated in 2 other conditions, according to our data. Their clinical expertise encompasses Gyrate Atrophy of the Choroid and Retina, Gaucher Disease Type 2, Refsum Disease, and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Maastricht, LI, NL 

    Daniel Keszthelyi practices practicing medicine in Maastricht, Netherlands. Mr. Keszthelyi is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Irritable Bowel Syndrome (IBS), Indigestion, Gastroparesis, Gastrostomy, and Gastrectomy.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Amsterdam, NH, NL 

    Astrid Plomp practices practicing medicine in Amsterdam, Netherlands. Ms. Plomp is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Marshall-Smith Syndrome, Septo-Optic Dysplasia, Blue Cone Monochromatism, and Pseudoxanthoma Elasticum.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Amsterdam, NH, NL 

    Hind Almushattat practices practicing medicine in Amsterdam, Netherlands. Ms. Almushattat is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Refsum Disease, and Late-Onset Retinal Degeneration.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Amsterdam, NH, NL 

    Arthur Bergen practices practicing medicine in Amsterdam, Netherlands. Mr. Bergen is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. He is also highly rated in 19 other conditions, according to our data. His clinical expertise encompasses Gyrate Atrophy of the Choroid and Retina, Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, and Retinitis Pigmentosa.

    Experienced in Cohen Syndrome
    Experienced in Cohen Syndrome
    Referral may be required
    Amsterdam, NH, NL 

    Ronald Wanders practices practicing medicine in Amsterdam, Netherlands. Mr. Wanders is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. He is also highly rated in 32 other conditions, according to our data. His clinical expertise encompasses Zellweger Syndrome, Refsum Disease, Barth Syndrome, and Infantile Refsum Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-16 of 16

    Last Updated: 11/08/2026

    What is the definition of Cohen Syndrome?

    Cohen syndrome is an inherited disorder that affects many parts of the body and is characterized by developmental delay, intellectual disability, small head size (microcephaly), and weak muscle tone (hypotonia). Other features common in this condition include worsening nearsightedness (myopia), breakdown (degeneration) of the light-sensitive tissue at the back of the eye (retinal dystrophy), an unusually large range of joint movement (hypermobility), and distinctive facial features. These facial features typically include thick hair and eyebrows, long eyelashes, unusually-shaped eyes (down-slanting and wave-shaped), a bulbous nasal tip, a smooth or shortened area between the nose and the upper lip (philtrum), and prominent upper central teeth. The combination of the last two facial features results in an open mouth.

    When should I see a Cohen Syndrome doctor in Netherlands?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Cohen Syndrome doctor in Netherlands?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Cohen Syndrome doctor in Netherlands?

    You can find a Cohen Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Cohen Syndrome doctors in Netherlands?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Cohen Syndrome doctors in Netherlands?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Cohen Syndrome doctor in Netherlands?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cohen Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Cohen Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Cohen Syndrome doctor in Netherlands?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Cohen Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Cohen Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Cohen Syndrome doctors in Netherlands?

    Look for the filter feature on the left side of the Cohen Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Cohen Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Cohen Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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