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    Last Updated: 01/09/2026

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    MediFind found 16 doctor with experience in Cohen Syndrome near Netherlands. Of these, 14 are Experienced and 2 are Advanced.

    Location
    LocationClose
    16 providers found
      Advanced in Cohen Syndrome
      Advanced in Cohen Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Grazia Mancini practices in Rotterdam, Netherlands. Mancini is rated as an Advanced expert by MediFind in the treatment of Cohen Syndrome. Their top areas of expertise are Cerebellar Agenesis, Cortical Dysplasia, Focal or Multifocal Malformations in Neuronal Migration, and Achalasia Microcephaly Syndrome.

      Advanced in Cohen Syndrome
      Advanced in Cohen Syndrome
      Leiden, ZH, NL 

      Jessica Karuntu practices in Leiden, Netherlands. Ms. Karuntu is rated as an Advanced expert by MediFind in the treatment of Cohen Syndrome. Her top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Zellweger Syndrome.

      Carel B. Hoyng
      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Nijmegen, GE, NL 

      Carel Hoyng practices in Nijmegen, Netherlands. Hoyng is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Their top areas of expertise are Late-Onset Retinal Degeneration, Stargardt Macular Degeneration, Age-Related Macular Degeneration (ARMD), Vitrectomy, and Trabeculectomy.

      Learn about our expert tiers
      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Groningen, GR, NL 

      Patrick Rump practices in Groningen, Netherlands. Mr. Rump is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. His top areas of expertise are Achalasia Microcephaly Syndrome, Microcephaly, Cortical Dysplasia, and Autosomal Dominant Tubulointerstitial Kidney Disease.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome

      Erasmus MC

      Rotterdam, ZH, NL 

      Alberta Thiadens practices in Rotterdam, Netherlands. Ms. Thiadens is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Her top areas of expertise are Late-Onset Retinal Degeneration, Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, and Cone Dystrophy.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Leiden, ZH, NL 

      Xuan-thanh-an Nguyen practices in Leiden, Netherlands. Nguyen is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Their top areas of expertise are Retinopathy Pigmentary Mental Retardation, Retinitis Pigmentosa, Late-Onset Retinal Degeneration, and Refsum Disease.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Utrecht, UT, NL 

      Maria Van Genderen practices in Utrecht, Netherlands. Ms. Van Genderen is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Her top areas of expertise are Ocular Albinism, Late-Onset Retinal Degeneration, Albinism, and X-Linked Congenital Stationary Night Blindness.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Leiden, ZH, NL 

      Nicoline Delfos-Schalij practices in Leiden, Netherlands. Ms. Delfos-Schalij is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Her top areas of expertise are Retinopathy of Prematurity, Ocular Albinism, Retinopathy Pigmentary Mental Retardation, and Oculocutaneous Albinism Type 2.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Maastricht, LI, NL 

      Ad Masclee practices in Maastricht, Netherlands. Masclee is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Their top areas of expertise are Irritable Bowel Syndrome (IBS), Colorectal Polyps, Gastroesophageal Reflux Disease (GERD), Colonoscopy, and Endoscopy.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Amsterdam, NH, NL 

      Astrid Plomp practices in Amsterdam, Netherlands. Ms. Plomp is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Her top areas of expertise are Marshall-Smith Syndrome, Blue Cone Monochromatism, Septo-Optic Dysplasia, and Pseudoxanthoma Elasticum.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Amsterdam, NH, NL 

      Arthur Bergen practices in Amsterdam, Netherlands. Mr. Bergen is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. His top areas of expertise are Gyrate Atrophy of the Choroid and Retina, Late-Onset Retinal Degeneration, Retinopathy Pigmentary Mental Retardation, and Retinitis Pigmentosa.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Amsterdam, NH, NL 

      Marion Brands practices in Amsterdam, Netherlands. Brands is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Their top areas of expertise are Gyrate Atrophy of the Choroid and Retina, Gaucher Disease Type 2, Refsum Disease, and Mucopolysaccharidosis Type 6 (MPS VI, Maroteaux-Lamy Syndrome).

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Maastricht, LI, NL 

      Daniel Keszthelyi practices in Maastricht, Netherlands. Mr. Keszthelyi is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. His top areas of expertise are Irritable Bowel Syndrome (IBS), Indigestion, Gastroparesis, Gastrostomy, and Gastrectomy.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Amsterdam, NH, NL 

      Camiel Boon practices in Amsterdam, Netherlands. Mr. Boon is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. His top areas of expertise are Central Serous Chorioretinopathy, Retinopathy Pigmentary Mental Retardation, Late-Onset Retinal Degeneration, Retinitis Pigmentosa, and Vitrectomy.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Amsterdam, NH, NL 

      Mary Van Schooneveld practices in Amsterdam, Netherlands. Ms. Van Schooneveld is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. Her top areas of expertise are Late-Onset Retinal Degeneration, Retinitis Pigmentosa, Retinopathy Pigmentary Mental Retardation, and Blue Cone Monochromatism.

      Experienced in Cohen Syndrome
      Experienced in Cohen Syndrome
      Amsterdam, NH, NL 

      Ronald Wanders practices in Amsterdam, Netherlands. Mr. Wanders is rated as an Experienced expert by MediFind in the treatment of Cohen Syndrome. His top areas of expertise are Zellweger Syndrome, Refsum Disease, Barth Syndrome, and Infantile Refsum Disease.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-16 of 16

      Last Updated: 01/09/2026

      What is the definition of Cohen Syndrome?

      Cohen syndrome is an inherited disorder that affects many parts of the body and is characterized by developmental delay, intellectual disability, small head size (microcephaly), and weak muscle tone (hypotonia). Other features common in this condition include worsening nearsightedness (myopia), breakdown (degeneration) of the light-sensitive tissue at the back of the eye (retinal dystrophy), an unusually large range of joint movement (hypermobility), and distinctive facial features. These facial features typically include thick hair and eyebrows, long eyelashes, unusually-shaped eyes (down-slanting and wave-shaped), a bulbous nasal tip, a smooth or shortened area between the nose and the upper lip (philtrum), and prominent upper central teeth. The combination of the last two facial features results in an open mouth.

      When should I see a Cohen Syndrome doctor in Netherlands?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cohen Syndrome doctor in Netherlands?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Cohen Syndrome doctors in Netherlands?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cohen Syndrome doctors in Netherlands?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cohen Syndrome doctor in Netherlands?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cohen Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Cohen Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cohen Syndrome doctor in Netherlands?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cohen Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cohen Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cohen Syndrome doctors in Netherlands?

      Look for the filter feature on the left side of the Cohen Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cohen Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Cohen Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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